Re: Re: another ped visit-

December 18, 2006

:

It's funny that you mention about the pred. My ped told me last week that he

was somewhat insulted by the comments made by the rheumatolgist/immunology

doctor. He said they don't see her when she can't breathe and there are no

better alternatives than pred. He has told me numerous times over the years

that if Hannah did not respond as well as she does to pred, there would have

been many hospitalizations in her past. In fact he said today that if her

breathing was any worse that it was today he would have put her in the hospital.

He also finds it curious that pred is a med they give to arthitis patients, yet

they feel she's had too much?!? . Any way did not mean to rant...but it is time

to give her something she can't function with the cough now and it's been over a

week.

Hopefully she'll get to school for a while tomorrow. I'm so thankful she has

such a great teacher. In fact on Friday a neighbor girl brought home her work

and there was huge get well card signed by the whole class!

Sending prayers & happy thoughts,

Beth :-)

Re: another ped visit

Beth,

I know you were hoping to avoid the pred for awhile but it seems as

if the breathing troubles really warranted the need for a quick

boost of them. Sure hope the mood swings aren't to awful and that

Hannah gets to feeling better soon.

You must be starting to feel like you life at the ped's office.

sonia (aundrea 11 systemic jra/gerd)

>

> Ok, I had to take Hannah back to the ped today. She had a

terrible day yesterday. Coughed all day and was gasping with some

and almost gagging. I put her to bed at 9:00 and she coughed non-

stop until midnight and then started right back up at 5:30 this

morning.

>

> He now has her on 40mg pred for 5 days and tapering from there.

She should be on it 12 days when we are all done with the taper.

Hopefully this will get her better...let the mood swings begin!

Wahoo!!!!

>

> Sending prayers & happy thoughts,

> Beth :-)

>

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