Re: Son with symptoms

December 30, 2006

It sure sounds like it could be arthritis. But of course I am not a doctor. How

old is your son? ---My daughter's JRA started out in a similiar way. First it

was a finger then an ankle. It went on for about 6 months before she was

diagnosed. She was 7 1/2 when it started and was diagnosed around her 8th

birthday. Good luck with the dr appointment! Keep us posted about what happens.

I really hope it is NOT arthritis but if it is then welcome to the group!

Everyone is very supportive and quite helpful.--- & Elaney(12

polyarticular JRA, heart defects, scoliosis, etc.)

linuxgal77 <stanrock@...> wrote: My son has developed swollen

middle finger joints. It started like 5

months ago. He had a socker accident on his hand. So a week went by

and he said he couldn't bend his middle finger. So I thought that is

where the ball hit into his hand. I took him into doctor for an xray.

Nothing was wrong, Not broken, nothing. Just some soft tissue

inflammation. Said to watch it.

Time went by I still notice it stays swollen. And now his other hand

middle finger joint is swollen too. They are getting more swollen as

time goes on.

I am going to get him into doctor monday when i can make an appt. I

think he might have juvenile arthritis. He also can't walk down the

stairs that well in the morning. He just says the side of his foot

hurts. So he walks down different to get down. He has done that for

about the same time now. But his finger joints are getting worse.

I think that is what it is. Does these symptoms sound familiar to

anyone?

In the meantime I am going to start to give him motrin.

Let me know what ya think

Linuxgal

__________________________________________________

December 31, 2006

My son is almost 8 years old. About 5 months before the onset of

these symptoms he is having now. He did have a rash on his legs. ANd

then on his back. I took him into doctor but we assumed it was an

allergy rash, since he has bad allergies. So he was on predisone for

that. But as soon as he would come off the medicine it would come

back. So they would keep putting him on more predisone. Then it

finally went away. I have read other people saying about a rash a

fever during onset of arthritis. I looked up the pictures that people

posted on this site. And the rash looked just like some other people

had.

Is that what happened with your

daughter too? and what test need to be done to find this out or not.

Thank you\

Linuxgal

My son has developed

swollen middle finger joints. It started like 5

> months ago. He had a socker accident on his hand. So a week went by

> and he said he couldn't bend his middle finger. So I thought that

is

> where the ball hit into his hand. I took him into doctor for an

xray.

> Nothing was wrong, Not broken, nothing. Just some soft tissue

> inflammation. Said to watch it.

>

> Time went by I still notice it stays swollen. And now his other

hand

> middle finger joint is swollen too. They are getting more swollen

as

> time goes on.

>

> I am going to get him into doctor monday when i can make an appt. I

> think he might have juvenile arthritis. He also can't walk down the

> stairs that well in the morning. He just says the side of his foot

> hurts. So he walks down different to get down. He has done that for

> about the same time now. But his finger joints are getting worse.

>

> I think that is what it is. Does these symptoms sound familiar to

> anyone?

> In the meantime I am going to start to give him motrin.

>

> Let me know what ya think

> Linuxgal

>

> __________________________________________________

>

December 31, 2006

My daughter had a rash for 5 months before fevers set in.We were sent to an

allergist and to a skin specialist for urticaria.Finally in September Jordan was

so sick she was hospitalized for over a week and put through extensive testing

they first diagnosed non hodgkins lymphoma but after a few days decided it wasnt

that and we continued not knowing.We then went home for a few weeks and back in

the hospital for 3 more days because she was very sick.Jordan has never shown

signs of the arthritis but that was because she was in the early stage.Her fever

was never consistant with what some people call the SOJRA rash because it never

went away, it just moved around.The doctors around here would not diagnose her

until they had signs of the arthritis.I couldnt wait til that happened and I

hated watching her suffer, she was losing a pound or two a day and looked

horrible.I decided no matter what I would find the best doctors and help her, I

was not willing to wait.So I researched

and found that Boston had one of the top childrens hospitals in the US and I

made appointments with all types of specialist.The rheumatologist in Boston

looked at all of Jordans previous blood work and diagnosed her within minutes.We

have now been on Kineret since November 20 and she is back to her old self.The

injections hurt for the first few weeks but now she looks forward to them , she

knows it is what is keeping her feeling well.There are still no signs of Arthur

and lets keep our fingers crossed that he stays away.Her blood work has returned

to normal.She still has to get her blood taken bi weekly because of the MAS, but

besides that shen has returned to her normal self.I suggest that if you cant get

a diagnosis from you doctor go to another, do not accept I dont know as an

answer, the longer you wait the more damage could be done and the longer your

child will suffer.I drive Jordan 8 hours to her appointments but it is worth it,

I would drive for days if I have

to.Good Luck and be very persistent.

a and Jordan (9,systemic)

linuxgal77 <stanrock@...> wrote: