Jo

[Guest guest]

Oh my...dear Jo..hang tight and hang tough my friend and I hope for all,

this too shall pass and very soon..hugs and prayers to all!

Donna

[Guest guest]

Helen, Veri, Donna, Beth, , Thanks for the thoughts and prayers,

and kind words.

We are having a SHOCKER!!!

After 2 nights on IV, Miss Violet was discharged from hospital late

yesterday, but now has the explosive diarhorrea, and vomited again

this morning (after clinging to me all night long). Bayly went off at

both ends again yesterday, but none so far today. Grant was up all

night with the Gastro (after having it Sunday night)!

It's not a pleasant time. At all.

I've had to hold off Bay's Mtx shot again, due to the illness, but he

had his immunisations yesterday, and seems none the worse for it. I am

just praying that no Flare shows up- he's been saying his 'foots hurt'

and he is a bit wobbly on his little legs.

Can I just say how OVER hospitals I am. How I am OVER holding my

beautiful screaming children while they are being jabbed with needles.

And if I NEVER have to sleep in a chair beside a hospital bed again, I

will be a happy lady. Oh one can live in hope, can't one??

*SIGH*

I do hope and pray all our other kids on this list are faring well. I

pray for that every single day.

Jo

Bayly, 4, extended oligo

>> How is Miss violet today. I am hoping she is home safe and sound.

What > a awful thing for her and YOU to have to go though.

> > Update us when you can

> > Hugs and prayers

> Helen and (9,systemic)

[Guest guest]

Jo,

We will continue to pray for you all. I pray that you keep from getting this

bug. It is tough taking care of three sick people but if you get this it

will be so much harder. I am glad you got to bring Miss V home so that you can

take care of her there. Hospitals are good for some things but it is sure good

to get back home and sleep in your own bed. I have been there done that and

even though the kids are not totally well when you bring them home they seem

to feel better just being back home as well.

Veri & Jaye 12 poly

[Guest guest]

Jo:

Hugs and prayers still coming for all of you!!! Hopefully with the weekend

near, you all can get some much needed rest. Let's hope Bayly is only hurting

cause he's sick and its not a nasty flare!!!

Keep us posted...hugs & happy thoughts coming to you.

Beth (Hannah, 10, unspecified arthritis; asthma; gerd)

Jo & Grant <joking70@...> wrote:

Helen, Veri, Donna, Beth, , Thanks for the thoughts and prayers,

and kind words.

We are having a SHOCKER!!!

After 2 nights on IV, Miss Violet was discharged from hospital late

yesterday, but now has the explosive diarhorrea, and vomited again

this morning (after clinging to me all night long). Bayly went off at

both ends again yesterday, but none so far today. Grant was up all

night with the Gastro (after having it Sunday night)!

It's not a pleasant time. At all.

I've had to hold off Bay's Mtx shot again, due to the illness, but he

had his immunisations yesterday, and seems none the worse for it. I am

just praying that no Flare shows up- he's been saying his 'foots hurt'

and he is a bit wobbly on his little legs.

Can I just say how OVER hospitals I am. How I am OVER holding my

beautiful screaming children while they are being jabbed with needles.

And if I NEVER have to sleep in a chair beside a hospital bed again, I

will be a happy lady. Oh one can live in hope, can't one??

*SIGH*

I do hope and pray all our other kids on this list are faring well. I

pray for that every single day.

Jo

Bayly, 4, extended oligo

>> How is Miss violet today. I am hoping she is home safe and sound.

What > a awful thing for her and YOU to have to go though.

> > Update us when you can

> > Hugs and prayers

> Helen and (9,systemic)

[Guest guest]

Hey there Veri,

Sadly, the sleeping-at-home-in-the-own-bed thing didn't work out for

us. Miss Violet is back in hospital. On a naso-gastric tube now. Her

veins have sunken and they couldn't get a drip in this time.

Man! If I thought I'd been through it all with Bayly and his trips

to hospital- I haven't had to hold my little boy while they force a

tube up his nose. My baby girl is one brave (albeit terrified) little

thing.

I am holding together by a thread. Not sick yet, but absolutely

shattered. I've had to come to work. For a 'rest.' HA!

Jo

Bayly, 4, extended oligo

Violet, 2

>> Jo,

>> We will continue to pray for you all. I pray that you keep from

getting this > bug. It is tough taking care of three sick people but

if you get this it > will be so much harder. I am glad you got to

bring Miss V home so that you can > take care of her there.

Hospitals are good for some things but it is sure good > to get back

home and sleep in your own bed. I have been there done that and

> even though the kids are not totally well when you bring them home

they seem > to feel better just being back home as well.

> > Veri & Jaye 12 poly

[Guest guest]

Jo, We are keeping sweet little Violet in our prayers. I hope she gets well

quickly and come back home to your loving arms really soon. Hang in there.

Sending hugs & happy thoughts to you!!

Beth (Hannah, 10, unspecified arthritis; asthma; gerd)

Jo & Grant <joking70@...> wrote:

Hey there Veri,

Sadly, the sleeping-at-home-in-the-own-bed thing didn't work out for

us. Miss Violet is back in hospital. On a naso-gastric tube now. Her

veins have sunken and they couldn't get a drip in this time.

Man! If I thought I'd been through it all with Bayly and his trips

to hospital- I haven't had to hold my little boy while they force a

tube up his nose. My baby girl is one brave (albeit terrified) little

thing.

I am holding together by a thread. Not sick yet, but absolutely

shattered. I've had to come to work. For a 'rest.' HA!

Jo

Bayly, 4, extended oligo

Violet, 2

>> Jo,

>> We will continue to pray for you all. I pray that you keep from

getting this > bug. It is tough taking care of three sick people but

if you get this it > will be so much harder. I am glad you got to

bring Miss V home so that you can > take care of her there.

Hospitals are good for some things but it is sure good > to get back

home and sleep in your own bed. I have been there done that and

> even though the kids are not totally well when you bring them home

they seem > to feel better just being back home as well.

> > Veri & Jaye 12 poly

[Guest guest]

Jo,

So sorry to hear that you are back in the hospital with Miss Violet. That is so

tough. How is Bayley handleing you being gone. I spent weeks at a time at the

hospital with my Kristie Jo and . They had pneumonia and croup so bad so

many times. At the beginning of our stays I would not be able to sleep because

their breathing was so loud and by the end of our visits I couldnt sleep because

they were quieter and I was afraid they would quit breathing. I was blessed most

of the times to be given a bed in their room so that I could at least attempt to

sleep when they were. All three of my kids have had their issues and fortunatly

and Kristie Jo have outgrown their problems. Kristie has asthma but it is

not severe so it is pretty easy to work with. is just 17 and a typical

teenager. My fortunatly has only had a few hospital stays and hers were

generally just one or two nights. I do feel for you and will continue to pray

for you all.

Veri

Re: Jo

Hey there Veri,

Sadly, the sleeping-at-home-in-the-own-bed thing didn't work out for

us. Miss Violet is back in hospital. On a naso-gastric tube now. Her

veins have sunken and they couldn't get a drip in this time.

Man! If I thought I'd been through it all with Bayly and his trips

to hospital- I haven't had to hold my little boy while they force a

tube up his nose. My baby girl is one brave (albeit terrified) little

thing.

I am holding together by a thread. Not sick yet, but absolutely

shattered. I've had to come to work. For a 'rest.' HA!

Jo

Bayly, 4, extended oligo

Violet, 2

>> Jo,

>> We will continue to pray for you all. I pray that you keep from

getting this > bug. It is tough taking care of three sick people but

if you get this it > will be so much harder. I am glad you got to

bring Miss V home so that you can > take care of her there.

Hospitals are good for some things but it is sure good > to get back

home and sleep in your own bed. I have been there done that and

> even though the kids are not totally well when you bring them home

they seem > to feel better just being back home as well.

> > Veri & Jaye 12 poly

________________________________________________________________________

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[Guest guest]

How is Miss Violet doing today. I am hoping by the time you read this

she is home safe and sound tucked in her own little bed and this

nightmare is behind you.

keeping you all in my thoughts and prayers.

hugs Helen and (9,systemic)

[Guest guest]

You said it- NIGHTMARE!

Violet spent another 2 nights in hospital (4 all up last week, and 7

hours in Emergency), the second time on a Naso-Gastric tube because her

little veins had sunken so much from the dehydration.

We got home last night, and this morning she cam trotting into my

bedroom wanting a packet of chips for breakfast. Had a major tantrum

when I said no. So yeah, she's back to normal!

Bayly, on the other hand, has NOT coped with mummy being away. Aside

from the acting-up behaviour from the broken routine- his daddy

unfortunately forgot to give him his Pred while I was in hospital with

Violet, so his legs are sore today. I gave him his dose this morning

and he's been eating all day long!!

I hope we avoid a Flare.

Made a point to take them both to a park to play and ride their bikes

today. It was lovely.

Thanks everyone for the thoughts and prayers, I'll keep you posted. And

of course, all your kids are in my thoughts and prayers too.

Jo

Bayly, 4, extended oligo

Violet, 2, Mistress of Mischief

>

> How is Miss Violet doing today. I am hoping by the time you read this

> she is home safe and sound tucked in her own little bed and this

> nightmare is behind you.

> > keeping you all in my thoughts and prayers.

> > hugs Helen and (9,systemic)

[Guest guest]

Jo,

So glad to hear Mss Violet is home and feeling better. You need to take care

of yourself now too.

Hope Bayle doesn't flare!!!!!

Teri ( mom to -9 yrs old-Princess with pauci

in remission)

Re: Jo

You said it- NIGHTMARE!

Violet spent another 2 nights in hospital (4 all up last week, and 7

hours in Emergency), the second time on a Naso-Gastric tube because her

little veins had sunken so much from the dehydration.

We got home last night, and this morning she cam trotting into my

bedroom wanting a packet of chips for breakfast. Had a major tantrum

when I said no. So yeah, she's back to normal!

Bayly, on the other hand, has NOT coped with mummy being away. Aside

from the acting-up behaviour from the broken routine- his daddy

unfortunately forgot to give him his Pred while I was in hospital with

Violet, so his legs are sore today. I gave him his dose this morning

and he's been eating all day long!!

I hope we avoid a Flare.

Made a point to take them both to a park to play and ride their bikes

today. It was lovely.

Thanks everyone for the thoughts and prayers, I'll keep you posted. And

of course, all your kids are in my thoughts and prayers too.

Jo

Bayly, 4, extended oligo

Violet, 2, Mistress of Mischief

>

> How is Miss Violet doing today. I am hoping by the time you read this

> she is home safe and sound tucked in her own little bed and this

> nightmare is behind you.

> > keeping you all in my thoughts and prayers.

> > hugs Helen and (9,systemic)

[Guest guest]

Jo, Glad to hear your mistress of mischief is feeling better!

Sounds like ya all had a pretty difficult week. Hope this one is

filled with more lovely days and trips to the park!

(Aundrea 11 systemic jra/gerd)

> >

> > How is Miss Violet doing today. I am hoping by the time you read

this

> > she is home safe and sound tucked in her own little bed and this

> > nightmare is behind you.

> > > keeping you all in my thoughts and prayers.

> > > hugs Helen and (9,systemic)

>

[Guest guest]

Jo,

I think after all that I would have given her the chips and just smiled. Glad to

hear that she is much better and we will keep Bayly in our thoughts and prayers

today as well. Get some rest and have a good day.

Veri

Re: Jo

Jo, Glad to hear your mistress of mischief is feeling better!

Sounds like ya all had a pretty difficult week. Hope this one is

filled with more lovely days and trips to the park!

(Aundrea 11 systemic jra/gerd)

> >

> > How is Miss Violet doing today. I am hoping by the time you read

this

> > she is home safe and sound tucked in her own little bed and this

> > nightmare is behind you.

> > > keeping you all in my thoughts and prayers.

> > > hugs Helen and (9,systemic)

>

________________________________________________________________________

Check out the new AOL. Most comprehensive set of free safety and security

tools, free access to millions of high-quality videos from across the web, free

AOL Mail and more.

[Guest guest]

-Im glad things are getting back to normal, kids fighting is always

a " good " sign )

Sorry about the long walk today though. I had that issue the othjer

week at the hospital too. We went on a saturday for Nicks remicade

and I always use valet parking ( I have a high top van that will not

fit in parking ramps) well, who would have known they dont operate on

weekends and there was no where to park. We were already late and I

had to park in an a not so nice neighborhood and hope my van was

still there later that day!!

Nick is having a few rough mornings, Im assuming from the missed 2

doses of MTX. Yesterday he had a fever, dizzy, sore ankles, knees and

fingers. We did the rice packs, upped his relafen and sent him off to

school as he insisted on going. It took a good 3 hours before he was

feeling better, he said. Today was no fever, but stiff and sore. He's

hanging in there though and not letting it get him down.

Hopwfully we will have some answers on friday after we re-check the

liver #'s

hugs Helen and (9,systemic)

a kilo overnight, and has now officially lost her 'baby fat'. :-(

> She and Bayly are back to fighting each other with as much vigour

as always.

>

> Bayly is going reasonaly well. He had his last " Hospital School "

today, through OT, and got a certificate of which he's very proud.

>

> But the car parking was a shocker at the Hospital today, so we had

to walk a very long way, and both his little legs and his mum's back

started to complain. (I'm about to take him back up for

Hydrotherapy, so hopefully that might ease his discomfort.)

>

> The OT's said he may need an electronic writing assistant thingo

called a 'Dana'. I have NO idea what this is, nor where to find out

more. Apparently the school can apply for funding to get one for him

if he needs one, when he starts Kindy next year.

>

> How is Master ? Did he get his next postcard? How are you?

> Hugs,

> Jo

>

> Posted by: " hburger64 " hburger64@... hburger64

> Tue Nov 7, 2006 12:58 pm (PST)

>

> How is Miss Violet, has she recovered from her days in the hosptial

> and has mum recovered yet???

>

> Hows Bayly doing, continuing to do well on the MTX???

>

> thinking of you guys too

>

> hugs Helen and (9,systmeic)

>

>

>

> http://www.kidsgetarthritistoo.org.au

>

>