RE: Belle's sleeping ... STILL

[Guest guest]

Personally, I would have a dr take a look at her. Just because she has

no fever doesn't mean she couldn't be sick with something. Just make an

appt and bring her in just to check. Sleeping this much is too much in

my opinion. What is the worst that could happen? You get there and

nothing is wrong? Don't worry about that - at the least I think she

could be dehydrating. I waited once with when he was little and it

turned out he was dehydrating, even though he was going to the bathroom.

He had to have IV fluids. slept this much last year when he had

mono. If you are not comfortable with what the dr says over the phone,

take her in. You are paying for the service; they aren't seeing her for

free, right? Don't worry about being an overreacting mom. I don't think

you are. If you are, then I would be too! LOL I hope you get some

answers, Michele (19, spondy)

________________________________

From: [mailto: ] On

Behalf Of branx4

Sent: Tuesday, December 12, 2006 11:42 AM

Subject: Belle's sleeping ... STILL

I'm trying very hard to think rational through this crisis but its

becoming increasing harder day by day , hour by hour.. Belle's body

is trying to recover from last weeks flare and since this flare was the

beginning of her hot swollen joints I realize this one will probably

take a little longer to recuperate from. She went to bed on Saturday and

woke up 41 hours later ( I did wake her so that she would drink a bit

every few hours ) but she can't seem to stay awake for more that an hour

or two at best. She has no fever ( actually its low at 79.1 ) no rash

anymore , no swelling, not much pain but she cant stay awake . I made a

DR appointment yesterday with her GP and then cancelled it when it

looked like she was feeling better. She got up and showered , ate a

sandwich and drank a juice box. By 4:00 PM she was back laying on the

couch and sleeping. She slept until 6:30 AM today , and I made her go

take a shower and see how she felt about school , after taking a look at

her there is no way I could send her in . She's pale with those

" sick eye's " and still SO very lethargic. I have called the

Rheumy office but the new nurse is really of no help , no comforting

words nothing ! She says to take her to the GP if " I feel like she needs

to be seen but that this might be Belles new normal " . I m waiting for a

call from the GP office to see what he thinks I should do . Guy's I

just need some comforting words right now , Im doing all I can do to

take care of her but it doesn't seem like enough ....

Teri ( Belle 12 psoriatic arthritis for two long long years)

[Guest guest]

I have to agree with Michele. When I read your post I immediatly thought of

mono. Hannah had mono when she was 5 and she was very lethargic and slept a lot

too. If it were my child I would make an appt. and take her in. The amount of

time Belle is sleeping is not normal. Let us know how she's doing and I would

trust your instincts on this one.

Sending prayers & happy thoughts,

Beth :-)

Belle's sleeping ... STILL

I'm trying very hard to think rational through this crisis but its

becoming increasing harder day by day , hour by hour.. Belle's body

is trying to recover from last weeks flare and since this flare was the

beginning of her hot swollen joints I realize this one will probably

take a little longer to recuperate from. She went to bed on Saturday and

woke up 41 hours later ( I did wake her so that she would drink a bit

every few hours ) but she can't seem to stay awake for more that an hour

or two at best. She has no fever ( actually its low at 79.1 ) no rash

anymore , no swelling, not much pain but she cant stay awake . I made a

DR appointment yesterday with her GP and then cancelled it when it

looked like she was feeling better. She got up and showered , ate a

sandwich and drank a juice box. By 4:00 PM she was back laying on the

couch and sleeping. She slept until 6:30 AM today , and I made her go

take a shower and see how she felt about school , after taking a look at

her there is no way I could send her in . She's pale with those

" sick eye's " and still SO very lethargic. I have called the

Rheumy office but the new nurse is really of no help , no comforting

words nothing ! She says to take her to the GP if " I feel like she needs

to be seen but that this might be Belles new normal " . I m waiting for a

call from the GP office to see what he thinks I should do . Guy's I

just need some comforting words right now , Im doing all I can do to

take care of her but it doesn't seem like enough ....

Teri ( Belle 12 psoriatic arthritis for two long long years)

[Guest guest]

Hi Teri,

I agree with the others and think thats its time to get her in to

the dr. When had pneumonia he wasn't coughing or running a

fever. Infections can have different symptoms and her extreme

fatigue is a symptom of something.

You will feel better once you have her checked out. They should do

a little lab work and see if anything is going on there. Having her

tested for mono makes since. You can rule out a few things and if

nothing shows up then perhaps this is flare related.

Hang in there and let us know how things go for Belle today.

sonia (aundrea 11 systemic jra/gerd)

-

-- In , " branx4 " <branx4@...> wrote:

>

>

> I'm trying very hard to think rational through this crisis but its

> becoming increasing harder day by day , hour by hour.. Belle's body

> is trying to recover from last weeks flare and since this flare

was the

> beginning of her hot swollen joints I realize this one will

probably

> take a little longer to recuperate from. She went to bed on

Saturday and

> woke up 41 hours later ( I did wake her so that she would drink a

bit

> every few hours ) but she can't seem to stay awake for more that

an hour

> or two at best. She has no fever ( actually its low at 79.1 ) no

rash

> anymore , no swelling, not much pain but she cant stay awake . I

made a

> DR appointment yesterday with her GP and then cancelled it when it

> looked like she was feeling better. She got up and showered , ate a

> sandwich and drank a juice box. By 4:00 PM she was back laying on

the

> couch and sleeping. She slept until 6:30 AM today , and I made her

go

> take a shower and see how she felt about school , after taking a

look at

> her there is no way I could send her in . She's pale with those

> " sick eye's " and still SO very lethargic. I have called the

> Rheumy office but the new nurse is really of no help , no

comforting

> words nothing ! She says to take her to the GP if " I feel like she

needs

> to be seen but that this might be Belles new normal " . I m waiting

for a

> call from the GP office to see what he thinks I should do . Guy's I

> just need some comforting words right now , Im doing all I can do

to

> take care of her but it doesn't seem like enough ....

>

> Teri ( Belle 12 psoriatic arthritis for two long long years)

>

>

>

>

[Guest guest]

I would have to agree to call your primary care doctor and get her in right

away. With a sub normal temperature and the amount of sleep there is likely an

infection of some time going on. I can't remember which one but I do recall a

doctor saying that is one way they diagnose illnesses, if temp is up above

normal or below (one meant probably viral and another bacterial). She is likely

dehydrated if she is sleeping that much. Time for a check up and hopefully they

get her feeling on the mend quickly.-e

branx4 <branx4@...> wrote:

I'm trying very hard to think rational through this crisis but its

becoming increasing harder day by day , hour by hour.. Belle's body

is trying to recover from last weeks flare and since this flare was the

beginning of her hot swollen joints I realize this one will probably

take a little longer to recuperate from. She went to bed on Saturday and

woke up 41 hours later ( I did wake her so that she would drink a bit

every few hours ) but she can't seem to stay awake for more that an hour

or two at best. She has no fever ( actually its low at 79.1 ) no rash

anymore , no swelling, not much pain but she cant stay awake . I made a

DR appointment yesterday with her GP and then cancelled it when it

looked like she was feeling better. She got up and showered , ate a

sandwich and drank a juice box. By 4:00 PM she was back laying on the

couch and sleeping. She slept until 6:30 AM today , and I made her go

take a shower and see how she felt about school , after taking a look at

her there is no way I could send her in . She's pale with those

" sick eye's " and still SO very lethargic. I have called the

Rheumy office but the new nurse is really of no help , no comforting

words nothing ! She says to take her to the GP if " I feel like she needs

to be seen but that this might be Belles new normal " . I m waiting for a

call from the GP office to see what he thinks I should do . Guy's I

just need some comforting words right now , Im doing all I can do to

take care of her but it doesn't seem like enough ....

Teri ( Belle 12 psoriatic arthritis for two long long years)

[Guest guest]

Teri - I just wanted to let you know we are thinking of you. It is so hard

watching our little one's struggle like this.

I hope the GP calls back soon!!

Alia and Caroline, age 4, poly and uveitis

[Guest guest]

I think you are right to take her in to see the gp but I would also get ahold of

her rheumy (not the nurse) and explain your concern. My thoughts are with you.