Re: First Remicade Bill-Oh My!

[Guest guest]

Hi e -

That is about what our bill runs for Caroline also. It usually is between

8K-10K per treatment. We are fortunate and our insurance covers 100% of

everything. I hope that you get that lucky too!

Alia and Caroline, age 4, poly and uveitis

[Guest guest]

HI e-

Ouch! It's been two years since Caitlin did Remicade and at the time, it

varied between 6k and 8k per treatment. We have a PPO so we paid 20% of

whatever the insurance negotiated rate was. It seems like it ended up being

about $700 a treatment... and that year, we did reach the patient max out of

pocket cost for our plan, which is $3K. I did find that no two bills were

alike.... so if you are going to have to pay a portion, keep them for

comparison. I found that they sometimes had billed for meds that were never

given - such as a second dose of Benadryl or Solumedrol. And I loved that they

always billed $10.75 for the lunch... which the insurance deemed as unncessary

treatment - so we got the bill for those lovely, salted green beans and rice

pudding. Also, my hospital was always willing to set up a no interest payment

plan for my potion of the bill. They also usually offered me a discount if I

could pay the whole thing at once... they cut as much as 50% off of

my bill. Crazy.... but they will do so much to get some payment at all

sometimes.

I hope the Remicade works for Joe. Is she still playing (violin, isn't it?)

I think of her often, in formal black dress on stage somewhere.

As for the weather.... yikes! Flooding? And I was just complaining because

it was 93 here yesterday and will be the same today! Talk about extremes

Best hopes to you-

Colleen (mom to Caitlin, 8, systemic)

bound for london <boundforlondon@...> wrote:

Okay, if you don't mind sharing just curious how much your hospital is

charging for Remicade infusion. Our bill is $8514.56. It is broken down as

Sterile Supply 2 units $24.30; Chemotherapy IV 6 units $1622.00; Drugs/Detail

Code 251 Units $6868.26. We have not heard from our insurance yet about how much

they are picking up. And to think I complained about Enbrel. So if you don't

mind I'm curious what others are being charged or if this is standard. It is so

expensive. Yikes! But if we can get a good dosage schedule and get it working I

will be happy about it no matter the price!

Hope everyone is doing well. All around us is flooding but thankfully we are

not. We have had about 6 inches of rain in 24 hours. Crazy!!!

e, mom to joe 19 poly + lupus

---------------------------------

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[Guest guest]

e: I know nothing about this, but wow!!!! I had no idea something like

would cost so much. I sure hope your insurance picks it up.

At least the rain isn't snow :-)

Beth

bound for london <boundforlondon@...> wrote:

Okay, if you don't mind sharing just curious how much your hospital is

charging for Remicade infusion. Our bill is $8514.56. It is broken down as

Sterile Supply 2 units $24.30; Chemotherapy IV 6 units $1622.00; Drugs/Detail

Code 251 Units $6868.26. We have not heard from our insurance yet about how much

they are picking up. And to think I complained about Enbrel. So if you don't

mind I'm curious what others are being charged or if this is standard. It is so

expensive. Yikes! But if we can get a good dosage schedule and get it working I

will be happy about it no matter the price!

Hope everyone is doing well. All around us is flooding but thankfully we are

not. We have had about 6 inches of rain in 24 hours. Crazy!!!

e, mom to joe 19 poly + lupus

---------------------------------

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Sign up now.

[Guest guest]

-kristine,

Yup, sounds about right... nicks is 6-7k every 4 weeks. Thank

goodness for insurance, ours is covered after Nick pays his part of

our yearly deductable ($500) at 100%. Needless to say, Nicks

deductable is usually met sometime in Jan.

I hope Jo is starting to feel better from the infusions.

hugs Helen and (9,systemic)

-- In , bound for london

<boundforlondon@...> wrote:

>

> Okay, if you don't mind sharing just curious how much your

hospital is charging for Remicade infusion. Our bill is $8514.56. It

is broken down as Sterile Supply 2 units $24.30; Chemotherapy IV 6

units $1622.00; Drugs/Detail Code 251 Units $6868.26. We have not

heard from our insurance yet about how much they are picking up. And

to think I complained about Enbrel. So if you don't mind I'm curious

what others are being charged or if this is standard. It is so

expensive. Yikes! But if we can get a good dosage schedule and get

it working I will be happy about it no matter the price!

>

> Hope everyone is doing well. All around us is flooding but

thankfully we are not. We have had about 6 inches of rain in 24

hours. Crazy!!!

>

> e, mom to joe 19 poly + lupus

>

>

> ---------------------------------

> Sponsored Link

>

> For just $24.99/mo., Vonage offers unlimited local and long-

distance calling. Sign up now.

>

>

[Guest guest]

Abbies infusions are broken down into labs, medicine fees, dr fees. Usually is

between $8 and 9 thousand. We pay $35 medical specialist copay, and $150.00 per

infusion.

Christy (Abbie 17, systemic, spondy, osteoporosis)

First Remicade Bill-Oh My!

Okay, if you don't mind sharing just curious how much your hospital is

charging for Remicade infusion. Our bill is $8514.56. It is broken down as

Sterile Supply 2 units $24.30; Chemotherapy IV 6 units $1622.00; Drugs/Detail

Code 251 Units $6868.26. We have not heard from our insurance yet about how much

they are picking up. And to think I complained about Enbrel. So if you don't

mind I'm curious what others are being charged or if this is standard. It is so

expensive. Yikes! But if we can get a good dosage schedule and get it working I

will be happy about it no matter the price!

Hope everyone is doing well. All around us is flooding but thankfully we are

not. We have had about 6 inches of rain in 24 hours. Crazy!!!

e, mom to joe 19 poly + lupus

---------------------------------

Sponsored Link

For just $24.99/mo., Vonage offers unlimited local and long- distance calling.

Sign up now.

[Guest guest]

I think that the bills listed so far are the highest I have heard

of... our Remicade visits run between 5K and 7K per visit. They are

broken down simalar to what was stated in other posts. For us we pay

20% until our 3K out of pocket and our deductible is completed (which

doesn't take long). I am shocked at the cost. They show the drug

alone costing anywhere from 2,500 to 3,000!!! This all before we

changed dosage, it will be interesting to see our next EOB

Are you doing the infusions at a Children's Hospital? Often a place

like that will allow you to apply for financial aid and usually they

will grant it when talking about these type of treatments. I hope

that will help... I know my jaw hit the ground the first time I saw

the bill!

Theresa

[Guest guest]

-I think the bills might also depend on what dosage is being given.

Remicade is mixed in 100mg increments. I should take a closer look

at our next EOB and see the breakdown. Ours are covered 100% so i

just tend to look at the total amount on the front and file it.

hugs Helen and (9,systemic)

-- In , " tj2girls2 " <tj2girls@...> wrote:

>

> I think that the bills listed so far are the highest I have heard

> of... our Remicade visits run between 5K and 7K per visit. They

are

> broken down simalar to what was stated in other posts. For us we

pay

> 20% until our 3K out of pocket and our deductible is completed

(which

> doesn't take long). I am shocked at the cost. They show the drug

> alone costing anywhere from 2,500 to 3,000!!! This all before we

> changed dosage, it will be interesting to see our next EOB

>

> Are you doing the infusions at a Children's Hospital? Often a

place

> like that will allow you to apply for financial aid and usually

they

> will grant it when talking about these type of treatments. I hope

> that will help... I know my jaw hit the ground the first time I

saw

> the bill!

>

> Theresa

>

[Guest guest]

Alia,

Oh my, I wish. We have a huge deductible and they don't seem to pay much. It

is not great insurance but better than none I guess. We will definetly hit the

deductible. But if they consider the costs too much we get stuck with all the

over that they don't pay. It is very aggravating. My kitchen cupboards are

literally falling apart. The drawers fall out on their own with no one around

now, but I spend all our money on doctor bills. Ugh! Hopefully I get a statement

from them soon. She has had two treatments now so there is a large amount of

unpaid bills out there.

Glad to hear Caroline is doing so well. I pray that she continues to do well.

e, mom to joe 19 poly + lupus

aliaalan@... wrote:

Hi e -

That is about what our bill runs for Caroline also. It usually is between

8K-10K per treatment. We are fortunate and our insurance covers 100% of

everything. I hope that you get that lucky too!

Alia and Caroline, age 4, poly and uveitis

[Guest guest]

The part I posted was the whole bill that they sent, no further breakdown. I

haven't received the second bill yet. Our insurance stinks. We have a $1200

deductible before they pick up. This does not include our medications. All the

money I have paid for her Enbrel and other meds does not apply towards the

deductible. ARGH! And I have paid out a lot of money on medications this year.

And my son's neurologist bill that is outrageous does not count because it is

" out of network " . Yeah, great! I can't remember how much we have to pay before

we meet the maximum for the year. And their web site is down much more than it

is up. So frustrating.

Yes, joe still plays the viola but not as much as she would like. She is in

too much pain many times and her classwork takes too much of her time these

days. She played in the university orchestra last year and enjoyed it, but this

year she has no time. She is hoping that maybe next quarter she will be able to.

But nothing will ever top her experience at Carnegie Hall for her. I am so glad

that we were able to get her medications under control and her spine healed

enough for her to go. That was a horrible time for all of us. Thanks for asking

about her.

Flooding, yes. Major! I am glad we do not live in a flood zone. Many schools

are closed, roads, houses and bridges are being washed away. Scary stuff! And

right now a city is hoping to not get washed away. Oh my!

e, mom to joe 19 poly + lupus

Colleen <bookissmom@...> wrote:

HI e-

Ouch! It's been two years since Caitlin did Remicade and at the time, it varied

between 6k and 8k per treatment. We have a PPO so we paid 20% of whatever the

insurance negotiated rate was. It seems like it ended up being about $700 a

treatment... and that year, we did reach the patient max out of pocket cost for

our plan, which is $3K. I did find that no two bills were alike.... so if you

are going to have to pay a portion, keep them for comparison. I found that they

sometimes had billed for meds that were never given - such as a second dose of

Benadryl or Solumedrol. And I loved that they always billed $10.75 for the

lunch... which the insurance deemed as unncessary treatment - so we got the bill

for those lovely, salted green beans and rice pudding. Also, my hospital was

always willing to set up a no interest payment plan for my potion of the bill.

They also usually offered me a discount if I could pay the whole thing at

once... they cut as much as 50% off of

my bill. Crazy.... but they will do so much to get some payment at all

sometimes.

I hope the Remicade works for Joe. Is she still playing (violin, isn't it?) I

think of her often, in formal black dress on stage somewhere.

As for the weather.... yikes! Flooding? And I was just complaining because it

was 93 here yesterday and will be the same today! Talk about extremes

Best hopes to you-

Colleen (mom to Caitlin, 8, systemic)

bound for london <boundforlondon@...> wrote:

Okay, if you don't mind sharing just curious how much your hospital is charging

for Remicade infusion. Our bill is $8514.56. It is broken down as Sterile Supply

2 units $24.30; Chemotherapy IV 6 units $1622.00; Drugs/Detail Code 251 Units

$6868.26. We have not heard from our insurance yet about how much they are

picking up. And to think I complained about Enbrel. So if you don't mind I'm

curious what others are being charged or if this is standard. It is so

expensive. Yikes! But if we can get a good dosage schedule and get it working I

will be happy about it no matter the price!

Hope everyone is doing well. All around us is flooding but thankfully we are

not. We have had about 6 inches of rain in 24 hours. Crazy!!!

e, mom to joe 19 poly + lupus

---------------------------------

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For just $24.99/mo., Vonage offers unlimited local and long- distance calling.

Sign up now.

[Guest guest]

Beth,

Yeah, outrageous costs! I am hoping that the insurance is kind too! As for the

rain, the whole west side of Washington would rather see that. Houses are

floating down the rivers, bridges and roads being washed out. A good side city

is hoping and praying that the sand bags hold so that the city doesn't all go

under water. The main bridge is questionable. Schools and homes under water. It

is very scary. I am glad that I do not live on a flood plain. My brother lives

across the street from an area that is way under water and they are hoping that

there house isn't flooded next. Scary stuff!

e

Beth Yohnk <yohnkmom@...> wrote:

e: I know nothing about this, but wow!!!! I had no idea

something like would cost so much. I sure hope your insurance picks it up.

At least the rain isn't snow :-)

Beth

bound for london <boundforlondon@...> wrote:

Okay, if you don't mind sharing just curious how much your hospital is charging

for Remicade infusion. Our bill is $8514.56. It is broken down as Sterile Supply

2 units $24.30; Chemotherapy IV 6 units $1622.00; Drugs/Detail Code 251 Units

$6868.26. We have not heard from our insurance yet about how much they are

picking up. And to think I complained about Enbrel. So if you don't mind I'm

curious what others are being charged or if this is standard. It is so

expensive. Yikes! But if we can get a good dosage schedule and get it working I

will be happy about it no matter the price!

Hope everyone is doing well. All around us is flooding but thankfully we are

not. We have had about 6 inches of rain in 24 hours. Crazy!!!

e, mom to joe 19 poly + lupus

---------------------------------

Sponsored Link

For just $24.99/mo., Vonage offers unlimited local and long- distance calling.

Sign up now.

[Guest guest]

e,

Try the Partnership for Prescription Assistance. I contacted them

when my daughter was prescribed Humira and our insurance co. flat out

refused to pay anything for it. Both my husband and I work full-time

and we have health insurance. We qualified to get the medication for

free, but when they found out that my daughter was a minor, they

wouldn't give it to us, b/c humira is not fda approved for children.

I know Remicade was a medication listed on there. Google partnership

for prescription assistance. Good luck.

Sophie

's mom, age 6, systemic jra

> Okay, if you don't mind sharing just curious how much your hospital

is charging for Remicade infusion. Our bill is $8514.56. It is broken

down as Sterile Supply 2 units $24.30; Chemotherapy IV 6 units

$1622.00; Drugs/Detail Code 251 Units $6868.26. We have not heard

from our insurance yet about how much they are picking up. And to

think I complained about Enbrel. So if you don't mind I'm curious

what others are being charged or if this is standard. It is so

expensive. Yikes! But if we can get a good dosage schedule and get it

working I will be happy about it no matter the price!

>

> Hope everyone is doing well. All around us is flooding but

thankfully we are not. We have had about 6 inches of rain in 24

hours. Crazy!!!

>

> e, mom to joe 19 poly + lupus

>

> ---------------------------------

> Sponsored Link

>

> For just $24.99/mo., Vonage offers unlimited local and long-

distance calling. Sign up now.

>

>

[Guest guest]

e,

I know can not go on an IV invusion.

The drug itself costs the same as Enbrel.I know I can have it shiped to me or

the Dr.

The real money goes to hospital facility charges,room,nurses,meds to

counteract reactions,etc.

I know of a Dr and his wife that run a Podiatry office and their son has been

on Reemicade for a several yrs and they are very thankful that it ONLY costs

them $1000 a month.

Since Joe is a legal adult with limited personal income she may be eligable

for help.

What you are going through terrifies me.

L & H

Becki and 8 systemic