Re: The Commitment to a Cure breakfast.

[Guest guest]

Helen, I am so proud of you and Nick! I hope it made a huge impact. keep in

mind many of those who heard you will share the story with someone else and

slowly, one by one the word passes to others....keep up the incredible work....

Donna

[Guest guest]

Helen and Nick,

CONGRADULATIONS on the Speeches. Now about the Sam Video. I have not seen

it yet.

Where could I get it to view the Video?

Robbin

Give me a H - Give me a E - Give me a L - Give me a E - Give me a N - Now

Give me a N - Give me a I - Give me a C - Give me a K - What do you get? Helen

and Nick Y'all did it.

[Guest guest]

Helen did a wonderful job! Allie and I went to see her and Nick! She

did get the message out to a few more people. We will never stop

talking until there is a cure for this awful disease. You did great

Helen!

<mailto:@blueribbon travel.com>

an Allie ( 10 ploy)

________________________________

From: [mailto: ] On

Behalf Of hburger64

Sent: Thursday, October 26, 2006 3:58 PM

Subject: The Commitment to a Cure breakfast.

Well I survived my 1st public speaking event. I was suprised I was

not a nervous as I thought I would be. Don't get me wrong, my left

knee started shaking and would not stop, but it was behind the

podium so no one saw it. The hard part was building myself up to go

though with it before hand, once I got up there it was not so bad.

Another tough part was that they had me follow a short video about a

little boy named Sam, has anyone seen the " Little man Sam " video.

Wow, it was so emotional watching that and then having to speak. Sam

is systemic and so serverly affected. He is 5, to see the pain on

his mom and dads face and the tears in their eyes was hard for me to

watch.

But i did it and was proud of myself for stepping so totally out of

my comfort zone. But I was most proud of , he followed my

speech with a short one of his own. He did awesome. He had everyone

laughing when he told the story of what he calls his rheumy because

he could never say her name when he was little. There were a few wet

eyes in room when we were finished.

Hopefully a few more people went away from that breakfast with a

greater understanding that Kids CAN and DO suffer for arthritis.

hugs Helen and (9,systemic)

[Guest guest]

Helen:

I'm really proud of you!! Tell Nick great job.

Beth (Hannah, 10, unspecified arthritis, asthma; gerd)

hburger64 <hburger64@...> wrote:

Well I survived my 1st public speaking event. I was suprised I was

not a nervous as I thought I would be. Don't get me wrong, my left

knee started shaking and would not stop, but it was behind the

podium so no one saw it. The hard part was building myself up to go

though with it before hand, once I got up there it was not so bad.

Another tough part was that they had me follow a short video about a

little boy named Sam, has anyone seen the " Little man Sam " video.

Wow, it was so emotional watching that and then having to speak. Sam

is systemic and so serverly affected. He is 5, to see the pain on

his mom and dads face and the tears in their eyes was hard for me to

watch.

But i did it and was proud of myself for stepping so totally out of

my comfort zone. But I was most proud of , he followed my

speech with a short one of his own. He did awesome. He had everyone

laughing when he told the story of what he calls his rheumy because

he could never say her name when he was little. There were a few wet

eyes in room when we were finished.

Hopefully a few more people went away from that breakfast with a

greater understanding that Kids CAN and DO suffer for arthritis.

hugs Helen and (9,systemic)

[Guest guest]

Way to go Helen!

High fives Nick!!

Keep spreading that word! They WILL find a cure- they HAVE to!

Jo

BTW- what DOES Nick call his Rheumy? I'm intrigued!

>

> Well I survived my 1st public speaking event. I was suprised I was

> not a nervous as I thought I would be. Don't get me wrong, my left

> knee started shaking and would not stop, but it was behind the

> podium so no one saw it. The hard part was building myself up to

go > though with it before hand, once I got up there it was not so

bad.

> > Another tough part was that they had me follow a short video

about a > little boy named Sam, has anyone seen the " Little man Sam "

video. > Wow, it was so emotional watching that and then having to

speak. Sam > is systemic and so serverly affected. He is 5, to see

the pain on> his mom and dads face and the tears in their eyes was

hard for me to > watch.

> > But i did it and was proud of myself for stepping so totally out

of> my comfort zone. But I was most proud of , he followed

my > speech with a short one of his own. He did awesome. He had

everyone > laughing when he told the story of what he calls his

rheumy because > he could never say her name when he was little.

There were a few wet > eyes in room when we were finished.

> > Hopefully a few more people went away from that breakfast with a

> greater understanding that Kids CAN and DO suffer for arthritis.

> > hugs Helen and (9,systemic)

[Guest guest]

Congratulations Helen! I am soo sorry we flaked this and didn't put

together a table like we promised! We have pnemoina in our house, so we were not

able to see you. I know you did a great job though!!

Alia and Caroline, age 4, poly and uveitis

[Guest guest]

Way to go, Helen and Nick!!

Liz

_____

From: [mailto: ] On Behalf

Of hburger64

Sent: Thursday, October 26, 2006 4:58 PM

Subject: The Commitment to a Cure breakfast.

Well I survived my 1st public speaking event. I was suprised I was

not a nervous as I thought I would be. Don't get me wrong, my left

knee started shaking and would not stop, but it was behind the

podium so no one saw it. The hard part was building myself up to go

though with it before hand, once I got up there it was not so bad.

Another tough part was that they had me follow a short video about a

little boy named Sam, has anyone seen the " Little man Sam " video.

Wow, it was so emotional watching that and then having to speak. Sam

is systemic and so serverly affected. He is 5, to see the pain on

his mom and dads face and the tears in their eyes was hard for me to

watch.

But i did it and was proud of myself for stepping so totally out of

my comfort zone. But I was most proud of , he followed my

speech with a short one of his own. He did awesome. He had everyone

laughing when he told the story of what he calls his rheumy because

he could never say her name when he was little. There were a few wet

eyes in room when we were finished.

Hopefully a few more people went away from that breakfast with a

greater understanding that Kids CAN and DO suffer for arthritis.

hugs Helen and (9,systemic)

[Guest guest]

Hey, I just asked you about this..How awesome that you were able to

get thru it! I always get a knot in my throat and can't even

speak! A little shaky left knee aint bad! lol

How proud you must have been of Nick...I would have had more that a

tear or too. I would have been sobbing like a baby! :-)

I have never seen the video you mentioned. I would like to if you

know of a link.

The next public speaking engagement should be easier! :-)

(Aundrea 11 systemic jra/gerd)-

-- In , " hburger64 " <hburger64@...> wrote:

>

> Well I survived my 1st public speaking event. I was suprised I was

> not a nervous as I thought I would be. Don't get me wrong, my left

> knee started shaking and would not stop, but it was behind the

> podium so no one saw it. The hard part was building myself up to

go

> though with it before hand, once I got up there it was not so bad.

>

> Another tough part was that they had me follow a short video about

a

> little boy named Sam, has anyone seen the " Little man Sam " video.

> Wow, it was so emotional watching that and then having to speak.

Sam

> is systemic and so serverly affected. He is 5, to see the pain on

> his mom and dads face and the tears in their eyes was hard for me

to

> watch.

>

> But i did it and was proud of myself for stepping so totally out

of

> my comfort zone. But I was most proud of , he followed my

> speech with a short one of his own. He did awesome. He had

everyone

> laughing when he told the story of what he calls his rheumy

because

> he could never say her name when he was little. There were a few

wet

> eyes in room when we were finished.

>

>

> Hopefully a few more people went away from that breakfast with a

> greater understanding that Kids CAN and DO suffer for arthritis.

>

> hugs Helen and (9,systemic)

>

[Guest guest]

Hi Helen,

We are all so very proud of both of you. Thank you, for all you do to help

spread awareness of this disease.

Aloha,

Georgina

The Commitment to a Cure breakfast.

Well I survived my 1st public speaking event. I was suprised I was

not a nervous as I thought I would be. Don't get me wrong, my left

knee started shaking and would not stop, but it was behind the

podium so no one saw it. The hard part was building myself up to go

though with it before hand, once I got up there it was not so bad.

Another tough part was that they had me follow a short video about a

little boy named Sam, has anyone seen the " Little man Sam " video.

Wow, it was so emotional watching that and then having to speak. Sam

is systemic and so serverly affected. He is 5, to see the pain on

his mom and dads face and the tears in their eyes was hard for me to

watch.

But i did it and was proud of myself for stepping so totally out of

my comfort zone. But I was most proud of , he followed my

speech with a short one of his own. He did awesome. He had everyone

laughing when he told the story of what he calls his rheumy because

he could never say her name when he was little. There were a few wet

eyes in room when we were finished.

Hopefully a few more people went away from that breakfast with a

greater understanding that Kids CAN and DO suffer for arthritis.

hugs Helen and (9,systemic)

[Guest guest]

I have seen the sam video and it is amazing!!!! I am a

table captian for November 9th here in Richmond Va,

and I think Sam will actually be at our breakfast. I

can't wait to meet him. When we watched the video at a

meeting, we all agreed there won't be a dry eye in the

house!!

a S.

29

JRA & MCTD Since age 8

3 months pregnant!!!! EDD 5/4/07

__________________________________________________

[Guest guest]

-a,

Congrats on your pregnancy. I remember you posting about wanting to

a while back.

Hows it going??

hugs Helen and (9,systemic)

-- In , a <riotkat@...> wrote:

>

> I have seen the sam video and it is amazing!!!! I am a

> table captian for November 9th here in Richmond Va,

> and I think Sam will actually be at our breakfast. I

> can't wait to meet him. When we watched the video at a

> meeting, we all agreed there won't be a dry eye in the

> house!!

>

> a S.

> 29

> JRA & MCTD Since age 8

> 3 months pregnant!!!! EDD 5/4/07

>

> __________________________________________________

>

[Guest guest]

a,

CONGRADULATIONS on that News. Almost on my Anniversary day lolol. 2 days

earlier lolol. How are you and the Family doing? Is everyone excited?

Robbin

[Guest guest]

Way to go Nick and Helen ! We were waiting to hear how things went. Everyone

has been sick again in our house so the computer has not been put to use much.

We are so proud of both of you and ne wants to hear all about Nick's

speech. She forgot about it until today when we were at her Rheumy appointment

and then wanted me to give her all the info. I didn't have much to tell her so

I told her to email you

She had a great drs appoint and her arthritis is still in medical remission.

Now if we could just keep her healthy and in school that would be great! She

got her flu shot today from our Rheumy dr and she does such a wonderful job.

ne is so afraid of needles and she didnt even feel the shot - it was a

wonderful day!. and her are out at our annual square dance for

father/daughter in Girl Scouts so I know she will be exhausted tomorrow.

Hope all is well with the rest of your crew and again thanks for giving your

speech and being one more parent and child to tell their story.

Kim & ne Summerhill (12 yrs)