Re: Sophie eye update (not good)

[Guest guest]

,

Oh my I've been there. I just read your journal entry. I have an idea, that

might help Sophie with the red top drops. Try putting them in the

refridgerator. When it is cold the stinging drops don't hurt as much. Talk to

Sophie about it, and ask her if she wouldn't just try to see if it helps her.

Tell her that a 10 year old girl, a, did that all the time and swears by it.

I'm sorry about the docs response. Just remember, noone needs to pressure you

into anything that you are not ready for. Listen to your gut, breathe deeply,

and you will get through this. Timing is everything, and you are asking the

right questions.

If Sophie would ever like to talk to a 10 year old going through the same

issues, just let me know. I'll let a use my cell.

Big Hugs,

'

daughter5cats <teamsophie@...> wrote:

Sorry I've been out of it, lately. I have been lurking occationally

to keep up with everyone. However, I just can't seem to motivate

myself to type all the responses my mind wants to share. I think

I've gotten myself into a slight depression. Never fear, I'm sure I

will shake it soon.

I've posted an update regarding Sophie's fight with uveitis. It is

on her caringbridge site:

http://www.caringbridge.org/visit/teamsophie.

Keep your updates coming. I don't think of Sophie when I read about

others... especially the good stuff!

Professional Mom to:

Sophie (5)- pauci/panuveitis

Charlie (15 mos.) - " The Bird "

http://www.caringbridge.org/visit/teamsophie

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

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[Guest guest]

I think the period at the end of the site address is messing things

up.

Just in case...

http://www.caringbridge.org/visit/teamsophie

Thanks so much for the advice, . I will certainly give

the 'fridge a try!

Professional Mom to:

Sophie (5) - pauci/panuveitis

Charlie (15 mos) - " The Bird "

http://www.caringbridge.org/visit/teamsophie

>

> Sorry I've been out of it, lately. I have been lurking

occationally

> to keep up with everyone. However, I just can't seem to motivate

> myself to type all the responses my mind wants to share. I think

> I've gotten myself into a slight depression. Never fear, I'm sure

I

> will shake it soon.

>

> I've posted an update regarding Sophie's fight with uveitis. It

is

> on her caringbridge site:

> http://www.caringbridge.org/visit/teamsophie.

>

> Keep your updates coming. I don't think of Sophie when I read

about

> others... especially the good stuff!

>

>

> Professional Mom to:

> Sophie (5)- pauci/panuveitis

> Charlie (15 mos.) - " The Bird "

> http://www.caringbridge.org/visit/teamsophie

>

[Guest guest]

tracy,

I am so sorry that the news for sophie hasn't been better. I can

see why you would be so frustrated with all the different doctor

visits and hearing different things from each of them. Seems like

you have the most trust in Dr. , so I think its good that you

will once again be making the trip to see him.

I understand that you are to disheartened to post...times like these

are when you just need to be given a shoulder to cry on and

continued prayers for your beautiful daughter.

P.S. anyone wanting to visit sophies page should use this site..the

other one had a period at the end and wouldn't let you access it.

http://www.caringbridge.org/visit/teamsophie

(drea 11 systemic jra/gerd)

>

> Sorry I've been out of it, lately. I have been lurking

occationally

> to keep up with everyone. However, I just can't seem to motivate

> myself to type all the responses my mind wants to share. I think

> I've gotten myself into a slight depression. Never fear, I'm sure

I

> will shake it soon.

>

> I've posted an update regarding Sophie's fight with uveitis. It

is

> on her caringbridge site:

> http://www.caringbridge.org/visit/teamsophie.

>

> Keep your updates coming. I don't think of Sophie when I read

about

> others... especially the good stuff!

>

>

> Professional Mom to:

> Sophie (5)- pauci/panuveitis

> Charlie (15 mos.) - " The Bird "

> http://www.caringbridge.org/visit/teamsophie

>

[Guest guest]

:

I'm sorry things are not going better for all of you! I know how frustrating

doctors can be, but as a mom you have to trust your instincts. From your

journal entry I can see that you have great trust in Dr. and a visit with

him may do Sophie and you some good.

Please know you and your little cutie are in my thoughts & prayers. Please

keep us updated.

Beth (Hannah, 10, unspecified arthritis; asthma; gerd)

daughter5cats <teamsophie@...> wrote:

Sorry I've been out of it, lately. I have been lurking occationally

to keep up with everyone. However, I just can't seem to motivate

myself to type all the responses my mind wants to share. I think

I've gotten myself into a slight depression. Never fear, I'm sure I

will shake it soon.

I've posted an update regarding Sophie's fight with uveitis. It is

on her caringbridge site:

http://www.caringbridge.org/visit/teamsophie.

Keep your updates coming. I don't think of Sophie when I read about

others... especially the good stuff!

Professional Mom to:

Sophie (5)- pauci/panuveitis

Charlie (15 mos.) - " The Bird "

http://www.caringbridge.org/visit/teamsophie

Beth Yohnk

Happy Thoughts..Be Well

[Guest guest]

,

I replied to your post as well, but it didn't show up. I see that it showed

up online, but it didn't come back to my email. I hope you got it.

'

sonia1md <sonia1md@...> wrote:

tracy,

I am so sorry that the news for sophie hasn't been better. I can

see why you would be so frustrated with all the different doctor

visits and hearing different things from each of them. Seems like

you have the most trust in Dr. , so I think its good that you

will once again be making the trip to see him.

I understand that you are to disheartened to post...times like these

are when you just need to be given a shoulder to cry on and

continued prayers for your beautiful daughter.

P.S. anyone wanting to visit sophies page should use this site..the

other one had a period at the end and wouldn't let you access it.

http://www.caringbridge.org/visit/teamsophie

(drea 11 systemic jra/gerd)

>

> Sorry I've been out of it, lately. I have been lurking

occationally

> to keep up with everyone. However, I just can't seem to motivate

> myself to type all the responses my mind wants to share. I think

> I've gotten myself into a slight depression. Never fear, I'm sure

I

> will shake it soon.

>

> I've posted an update regarding Sophie's fight with uveitis. It

is

> on her caringbridge site:

> http://www.caringbridge.org/visit/teamsophie.

>

> Keep your updates coming. I don't think of Sophie when I read

about

> others... especially the good stuff!

>

>

> Professional Mom to:

> Sophie (5)- pauci/panuveitis

> Charlie (15 mos.) - " The Bird "

> http://www.caringbridge.org/visit/teamsophie

>

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

'

I did see your reply while online. I can't thank you enough for

the 'fridge suggestion. Sophie and I are very anxious to see if it

works. The are cooling off as I type. I'll be sure to let you know

if it helps. Got any tips on the eye pressure test???

Thanks to everyone for your kind words of support and

encouragement. They certainly help. Again, I'm sure I'll shake

this thing. I just have to get some distance between myself and

Tuesday's visit...

Professional Mom to:

Sophie (5) - pauci/panuveitis

Charlie (15 mos.) - " The Bird "

http://www.caringbridge.org/visit/teamsophie

> >

> > Sorry I've been out of it, lately. I have been lurking

> occationally

> > to keep up with everyone. However, I just can't seem to motivate

> > myself to type all the responses my mind wants to share. I think

> > I've gotten myself into a slight depression. Never fear, I'm

sure

> I

> > will shake it soon.

> >

> > I've posted an update regarding Sophie's fight with uveitis. It

> is

> > on her caringbridge site:

> > http://www.caringbridge.org/visit/teamsophie.

> >

> > Keep your updates coming. I don't think of Sophie when I read

> about

> > others... especially the good stuff!

> >

> >

> > Professional Mom to:

> > Sophie (5)- pauci/panuveitis

> > Charlie (15 mos.) - " The Bird "

> > http://www.caringbridge.org/visit/teamsophie

> >

>

>

>

>

>

>

> ---------------------------------

> Get your email and more, right on the new .com

>

>

[Guest guest]

Traci,

Drops should be instilled in a pouch under the eye, not directly onto the eye

ball. Often this simple adjustment makes a huge difference.

Let me know if it helps!

daughter5cats <teamsophie@...> wrote:

'

I did see your reply while online. I can't thank you enough for

the 'fridge suggestion. Sophie and I are very anxious to see if it

works. The are cooling off as I type. I'll be sure to let you know

if it helps. Got any tips on the eye pressure test???

Thanks to everyone for your kind words of support and

encouragement. They certainly help. Again, I'm sure I'll shake

this thing. I just have to get some distance between myself and

Tuesday's visit...

Professional Mom to:

Sophie (5) - pauci/panuveitis

Charlie (15 mos.) - " The Bird "

http://www.caringbridge.org/visit/teamsophie

> >

> > Sorry I've been out of it, lately. I have been lurking

> occationally

> > to keep up with everyone. However, I just can't seem to motivate

> > myself to type all the responses my mind wants to share. I think

> > I've gotten myself into a slight depression. Never fear, I'm

sure

> I

> > will shake it soon.

> >

> > I've posted an update regarding Sophie's fight with uveitis. It

> is

> > on her caringbridge site:

> > http://www.caringbridge.org/visit/teamsophie.

> >

> > Keep your updates coming. I don't think of Sophie when I read

> about

> > others... especially the good stuff!

> >

> >

> > Professional Mom to:

> > Sophie (5)- pauci/panuveitis

> > Charlie (15 mos.) - " The Bird "

> > http://www.caringbridge.org/visit/teamsophie

> >

>

>

>

>

>

>

> ---------------------------------

> Get your email and more, right on the new .com

>

>

[Guest guest]

,

I am sorry the new is so bad concerning Sophies eyes. It is so hard

to know what to do. It sounds to me that you are most comfortable

with Dr so I would be planning another trip to Boston to see

him. I dont like the way our local doctor brushes off what Dr Fster

days. I think you need to find a local doctor that will work hand in

hand with Dr so you dont have to keep going to Boston to see

him.

Im sorry this is so hard. I will keep you in my thoughts and prayers.

hugs Helen and (9,systemic)

>

> Sorry I've been out of it, lately. I have been lurking

occationally

> to keep up with everyone. However, I just can't seem to motivate

> myself to type all the responses my mind wants to share. I think

> I've gotten myself into a slight depression. Never fear, I'm sure

I

> will shake it soon.

>

> I've posted an update regarding Sophie's fight with uveitis. It

is

> on her caringbridge site:

> http://www.caringbridge.org/visit/teamsophie.

>

> Keep your updates coming. I don't think of Sophie when I read

about

> others... especially the good stuff!

>

>

> Professional Mom to:

> Sophie (5)- pauci/panuveitis

> Charlie (15 mos.) - " The Bird "

> http://www.caringbridge.org/visit/teamsophie

>

[Guest guest]

:

I am sorry to hear of Sophie's continued struggle with her eyes. I hope you

get some clear answers from the doctors. I Will keep her in my prayers for

some good news soon.

By the way, she is ABSOLUTELY ADORABLE.

Take care.

Patty