Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Thank you so much for all the great info. Its good to know all this stuff so we know what we are facing and what questions to bring up. I will feel much better once we see our regular rheumy on Wednesday. We have missed her so much. The temp. one was great too, he really knew his stuff, but we were only there for the short term and I dont think he was very willing to get truly involved in Nicks total care. I don't blame him, Im sure his work load was horrendous with one rheumy out for close to a year. We are so blessed in the Twin Cities, we have another new rheumy that started in August, A Dr. Mona LaPlant ( has anyone ever seen her???) So that makes it 4 rheumies in the Twin Cities alone and rumor has it we are getting a 5th one, but he will be more into the research aspect. We also have another one just an hour south at the Mayo Clinic. Six ped rheumatologists within a 2 hour radius, WOW!! I know your old rheumy will look at the full picture and we will have a better plan of action. I am hoping we will have news from the UGI by then too. Im sorry the PT is not helping Rob's knee as much as you were hoping, hes such a tropper for still working with all that hes going though. How scary driving home for him in the rain. Thank goodness he was ok ( although im sure he was more worried about his beloved caddie) You take it easy girlfriend, rest up this weekend and get better. I hope the mtx increase helps. You are now up to Nicks dose )) have you discussed any other meds if the enbrel is not working fully, like humira?? rest up and stay off the stairs will ya!!! hugs Helen and (9,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Helen: I'm so glad that you are getting Nick's regular rheumy back...I know it will be a huge sigh of relief! It is so awesome that your area has so many resources and docs. I grieve for the states like Kentucky who are down to one rheumy for the whole state, and the states that have absolutely NO ped rheumies at all! It seems like the areas of more economic hardship do not have ped rheumies...which breaks my heart since the parents likely don't have the resources to travel to one. I count my blessings all the time in that department. I'd stay off the stairs if my guys knew how to do laundry properly! At least once a month my hubbie ignores my instructions on laundry and shrinks or ruins something. WHen I was in a car wreck a few years ago with various broken bones, my incentive to get better was to be able to go up and down steps to stop him from doing the laundry! It amazes me that someone who can understand ELECTRICITY of all things and work with complex manufacturering equipment and robotics can't understand that you simply CANT put some things in the dryer! GEESH! Oops, got started on one of my pet peeves. I hope that Nick's week goes well, your rheumy is ready to get Nick feeling better and that you get some answers!! Take care, and Rob 17 Spondy > > Thank you so much for all the great info. Its good to know all this > stuff so we know what we are facing and what questions to bring up. I > will feel much better once we see our regular rheumy on Wednesday. We > have missed her so much. The temp. one was great too, he really knew > his stuff, but we were only there for the short term and I dont think > he was very willing to get truly involved in Nicks total care. I don't > blame him, Im sure his work load was horrendous with one rheumy out > for close to a year. > > We are so blessed in the Twin Cities, we have another new rheumy that > started in August, A Dr. Mona LaPlant ( has anyone ever seen her???) > So that makes it 4 rheumies in the Twin Cities alone and rumor has it > we are getting a 5th one, but he will be more into the research > aspect. We also have another one just an hour south at the Mayo > Clinic. Six ped rheumatologists within a 2 hour radius, WOW!! > > I know your old rheumy will look at the full picture and we will have > a better plan of action. I am hoping we will have news from the UGI by > then too. > > Im sorry the PT is not helping Rob's knee as much as you were hoping, > hes such a tropper for still working with all that hes going though. > How scary driving home for him in the rain. Thank goodness he was ok ( > although im sure he was more worried about his beloved caddie) > > You take it easy girlfriend, rest up this weekend and get better. I > hope the mtx increase helps. You are now up to Nicks dose )) have > you discussed any other meds if the enbrel is not working fully, like > humira?? > > rest up and stay off the stairs will ya!!! > > hugs Helen and (9,systemic) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 -, Im sorry that Drea had a hard time with the increase, she really is so sensitive to the MTX, poor child. I think upping her pre meds is a good way to go and see how that goes. Hopefully she will not feel as bad next week. hugs Helen and (9,systemic) -- In , " sonia1md " <sonia1md@...> wrote: > > Thanks Veri, > > Drea started doing better by afternoon. So about 36 hours of > troubles post injection...Maybe I will just try to give her more > phenegren next time. > > did good today..at least I think he did. He stayed at school > all day and I haven't seen him yet..he is suppose to call shortly > for me to go pick him up...He stayed to watch the basketball try- out > practice...I hope he just " watched " ! > > sonia (drea 11 systemic jra/gerd)- > > > -- In , veristroud@ wrote: > > > > , > > > > Sorry to hear that it did not go too well with the increase. Since > I have absolutely no knowlede of how Mtx works I am just baffled for > you. I feel for you I really do. This is a tough time for you and > Aundrea. Will keep you both in our prayers. How is today? > > > > Veri > > > > > > Re: , > > > > > > The increase didn't go very well at all. She immediately felt > > nauseated afterwards and the entire next day she was exhausted, > > headache, stomach upset...By evening 24 hours post injection she > was > > crying and in out of the bathroom with stomach cramps, loose > stools > > and nausea. I gave her another dose of phenegran thinking that it > may > > help. She said her body just felt so strange and out of sorts. She > > eventually feel asleep and I stayed in her room on the futon...I > let > > her sleep in this morning and my grandfather stayed with her..I am > > hoping that when she wakes up she will be feeling better. > > > > I hope that Nick does ok with the skipped mtx and that his alt's > go > > back down...let me know what the rheumy has to say. > > > > sonia (aundrea 11 systemic jra/gerd) > > > > > > > > > > How did Drea handle the increase of MTX last night?? Hopefully > it > > > didnt increase the tummy issues. > > > > > > I have held Nicks MTX this week because of the elevated ALT's. > We > > will > > > see what the rheumy says. > > > > > > hugs Helen and (9,systemic) > > > > > > > > > > > > _____________________________________________________________________ > ___ > > Check out the new AOL. Most comprehensive set of free safety and > security tools, free access to millions of high-quality videos from > across the web, free AOL Mail and more. > > > > > > Quote Link to comment Share on other sites More sharing options...
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