Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 HI Gail: What wonderful news about ! E & RP is like a miracle,isn't it? Very good work, Gail, in geeting the therapist to refocus on the E & RP. SHe must be a very good person not to be difficult and defensive about her professional shortcomings like this. I often found that this time was when the therapist would part ways with us as they could not handle the ego-dystonic feelings from recognizing their therapeutic focus was misplaced and my child suffered. Your family needs to interact with the learning specialist's negativity like a hole in the head. Why not talk about her to her superior or to the school principal. At a time like this she needs to be your family's cheerleader not a worrier. Perhaps she has her own anxiety issues? OCD is a chronic situation and things will go up and down. No point worrying about the fact, enjoy the good times and respond to the less good times. In between the learning specialist needs to remain calm. Good luck with this Gail. There is nothing like progress against OCD for the whole family to perk up. I am so happy this is happening in your family right now. Take care, aloha, Kathy (H) kathyh@... At 11:59 PM 12/01/2000 EST, you wrote: > This morning, Harold and I met with 's homeroom teacher, the >learning specialist, the middle school principal and her therapist to assess >where is now, 3 months later. I was so gratified to hear the therapist >admit that she had made a wrong turn at the beginning by not pushing a more >traditional E & RP program - even saying that now that she is doing the March >approach, is responding very rapidly! AMEN! It seems that we have >turned the corner with her and are now all playing on the same team! > > The school agreed that is doing better overall, with certain >gliches around her most disabling fears. They are suppportive overall, >although the learning specialist has, of late, seemed much more negative >about 's prognosis than anyone else. Whenever anyone mentioned that > was now handling homework, scheduling, etc. better, the learning >specialist immediately asked " But what happens if she slips up again - like >the beginning of school? " I have heard her say this quite a number of times, >and even tried to explain that there were no safety nets in place when school >started and was in crisis, etc. But she does not appear to get this >message from me. So, I'm going to appeal to the therapist to help me with >this one, as I don't want the l.s. to go around looking for ways that >is tripping up! > > Now, if I can sound so much more upbeat, after the devastation I felt a >few months ago when was out of control, there must be hope for us all!!! > >Gail in N'Awlins > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 Chris: I empathize so much with you about your meeting at 's school. I have been there and done that. It's hard for school personnel to understand just what our kids are going through, even if you given them printed material to read. I learned a great trick from Gail who presented at last year's conference (and who will be in Denver this year). She gave us some math problems to do -- not hard, but a mix of everthing from addition to division -- and while we tried to solve them, she talked like OCD (pick some of the things your kids tell you). After a few minutes, she asked us how many of the dozen or so problems on the page we'd been able to solve. Talk about a reality check. Jule Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 At 03:01 PM 3/9/01 -0000, you wrote: >Anyway, after all this, I BROKE DOWN IN TEARS, just could not stop >crying for about 5 minutes. It was like all the stress had just >finally got to me, they had to get a box of tissues for me, etc. I >thought later, THIS MAY HAVE HELPED. Maybe they'll feel sorry for me >and do more for !? > >Thanks for letting me get ALL this out. I'm still sort of drained >from the tears. I kept tearing up all night when I got home. > > From in N.C. Hi, -- here's hoping summer comes fast! I'm sorry things are difficult for at school right now. I can relate -- more than once I have been reduced to tears at the school, or after meeting at the school, however hard I tried to keep it together. Here is one example of quite a few I could write: One time my husband & I had scheduled a meeting with our older son 's teachers. - he of the inexplicable mental blocks that keep him from completing & handing in work, from writing & reading, even though he demonstrates that he can do it, but just doesn't, and who has no dx because things just aren't quite that bad -- argh -- was doing very badly again in English. As we walked into the school for this meeting, we could hear hollering all down the hall, hollering that sounded all too familiar. Yes, it was our younger son Quinn (Asperger's & OCD) having another meltdown. He had been sent to the superintendent's office, and the superindentent was standing over Quinn (sitting on the floor) screaming right back at him -- as if that would help. sheesh. By the time we sorted that one out, and then found 's English teacher, I could barely speak for trying to keep the tears under control. What fun. That was about two years ago and - just to give you some hope - things ARE much better now. Quinn has come so far in handling his emotions that he hasn't had a true out-of-control no holds barred meltdown in well over a year. And after two years on different meds he is, for now anyway, med free. This year, I finally got somewhere with 's teachers. He is taking World History (freshman in high school) and was doing abominably. After several conferences with his teacher, she decided to start giving him his tests orally and - surprise, surprise - he has been getting 100% PLUS the bonus questions!!! Also he went from a D- to a B in science after his science teacher made some accomodations. Hang in there - keep chipping away at it. You, too, Gail in N'Awlins -- and all the rest on the list. This too shall pass... Vicki in Montana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 In a message dated 3/9/01 8:25:13 PM Mountain Standard Time, kishields@... writes: Today Tim refused to go to school and told me about the bad person he hears telling him all kinds of threats (in his head), who he fears will kill him, kill me, cut off our birds' heads, etc., etc. I spoke to the psychiatrist as well as the school and he feels we should try to medicate for bipolar since he believes hearing a voice like that is not OCD but may be bipolar - or something even worse????? I have to wonder. But that is what my , diagnosed with OCD, says too - someone saying "I'll kill the cat if you don't [fill in the ritual]," so does that mean she is bipolar or schizophrenic or whatever too????? , Please try to get a copy of this book: "The Imp of The Mind: Exploring the Silent Epidemic of Obsessive Bad Thoughts" by Lee Baer, Ph.D., Dutton Books, 2001. This book explains how these bad thoughts are related to OCD, Tourettes Syndrome, and other related disorders. It goes into great detail and really, really explains how and why these thoughts happen and is very reassuring in that if a person is disturbed by these thoughts then they are not likely to act on them. It also goes into ER & P and CBT for obsessive bad thoughts. It's VERY GOOD, and any parent or therapist of a person having thoughts like this could benefit from reading it. I originally got it because my 12 year old daughter has obsessive bad thoughts, but when I read it, wow, I found some of my own personal issues described. Jay in Denver Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 Dear - I also was crying on the phone with the school counselor today. I told her it is almost impossible to deal with school's rules and demands and this very troubled, highly oppositional 12-year-old of mine - not to mention his father, my ex. Today was very overwhelming because last night Tim took extra medication (on purpose) at his father's house (there was an argument about whether he had taken his Paxil because his father doesn't WATCH him take it, which you have to do) and we spent 3 hours in the ER talking to yet another shrink and more doctors, none of whom could offer any suggestions or help for this endless crisis Tim is in lately. Today Tim refused to go to school and told me about the bad person he hears telling him all kinds of threats (in his head), who he fears will kill him, kill me, cut off our birds' heads, etc., etc. I spoke to the psychiatrist as well as the school and he feels we should try to medicate for bipolar since he believes hearing a voice like that is not OCD but may be bipolar - or something even worse????? I have to wonder. But that is what my , diagnosed with OCD, says too - someone saying " I'll kill the cat if you don't [fill in the ritual], " so does that mean she is bipolar or schizophrenic or whatever too????? I am afraid and so upset and exhausted - and today, Tim's Dad was out somewhere all day with his new gf and did not even call Tim to see how he was doing after the extra medication and ER last night, or to see if he went to school, or to see what the psychiatrist had to say. It can be sooooo overwhelming and depressing and terrifying. I don't quite know where to turn, but I do think we need a fuller evaluation. That's my next move I think. -- >From: @... >Reply- > >Subject: School Meeting >Date: Fri, 09 Mar 2001 15:01:54 -0000 > > >I had a meeting March 8 with 's guidance counselor, 2 teachers >and an assistant principal. I had called the meeting because of >'s reading problems due to OCD. > >The school has 2 reading programs - one is the Accelerated Reading >program that is school-wide and goes separately on the report card, >the other is his teacher's 20-minute per night reading requirement >where they keep a log to turn in each week. The AR reading can be >done at school where actually sometimes reads. But the home >reading had become a problem as he just CANNOT read at home even on >his good nights. (I mean we can't do homework some nights as he >can't look at a page if he feels he'll get " stuck " on it; if it's >something I can read out loud to him it's OK.) Anyway, was >getting all these 0's for the reading logs, which REALLY pulled down >his language grade to D-'s. > >So, I wanted to see if we could eliminate the reading at home part, >but continue to let him do the AR reading at school. I explained >that home is just a different environment than school and he just >CANNOT do it at home. (He sometimes has to read and reread until >it " sounds right " in his head or something...) > >So his reading teacher said he can come to school early and come to >her room and read for 15 minutes or so at least 3x a week before >school begins; he does get to school early anyway so I can get to >work on time. I did tell her that he may NOT be able to read some >days, she said OK. His other teacher who has them do the AR reading >in her room said that she has noticed that some days doesn't >read, he just sits there for the 45 minutes. > >I had them look at his test scores for the tests the school gives for >aptitude, etc., and it helped my case that he scored above average on >the math and reading, and average on vocabulary or something. > >Well, then I had to address his classwork and homework. He had just >brought home an F in social studies. This was due to all 70's and a >lower grade, plus one good test grade. All the 70's were his grades >for work turned in late!!! So I asked about allowing late work, that >he usually always has it but just doesn't turn it in tho we do get >behind at times. She said, well, 3 weeks is a little too long. So, >anyway, she will ask each Friday if he has any work he hasn't >turned in while he looks in his notebook for it. She said she >wouldn't count work as late, if it wasn't TOO LATE. She agreed that >the F was due to all the late work. And she said he's missing 2 >assignments that can only be done in the classroom so he has to stay >after school next Wednesday to do these. > >I told them SOME of the stuff goes through at home - how he >gets stuck in doorways, or touches things and can't let go, how >things have to feel right, even jumping onto the bed has to be done >just right, how he has not touched the TV remote in months and won't >touch a light switch (due to having to turn it on/off " 50 " times and >not being able to stop changing channels or something).... > >Anyway, after all this, I BROKE DOWN IN TEARS, just could not stop >crying for about 5 minutes. It was like all the stress had just >finally got to me, they had to get a box of tissues for me, etc. I >thought later, THIS MAY HAVE HELPED. Maybe they'll feel sorry for me >and do more for !? > >Anyway, I hope some of this actually helps . I told them I >would probably try him on meds this summer, that I just didn't want >to add anything meds might start (behaviors or sickness side effects) >this school year when we're just trying to cope with getting through >6th grade. And I'd probably be lucky if the first med we tried was >the right one for him that worked, that I'd rather try in the summer. >(I don't know if I'm making the right decision on the meds, but I'm >starting to cope with the OCD, I don't need anything new that the >meds might bring on right now.) > >Well, I'm sorry I went on for so long. I don't know if anyone else >has had better luck or worse luck in dealing with the schools. I'm >not sure if I WON much of anything or could have got more!?? > >Thanks for letting me get ALL this out. I'm still sort of drained >from the tears. I kept tearing up all night when I got home. > > From in N.C. > > > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 Hi Chris: Thanks for sharing about your rough day. There is a lot of grieving we have to do around our kids' illnesses. It seems like you did an incredible job of educating the teachers at 's school. I think it is hard for them to understand our position, but your genuineness is very compelling and must have set them thinking. I always think of tears as a wonderful saline solution which can soothe and bathe our fears and hardships. Since OCD came to stay in our family I have cried buckets. At first it was tears of frustration, fear, grief and sadness. Now it is more likely tears of gratitude and even joy as I can celebrate how far our beloved son, Steve, has come in learning how to live with his OCD and comorbid disorders. Good luck, it will get more manageable, as incredible as that may seem now. Take care, aloha, Kathy (h) kathyh@... ..At 03:01 PM 3/9/01 -0000, you wrote: > >I had a meeting March 8 with 's guidance counselor, 2 teachers >and an assistant principal. I had called the meeting because of >'s reading problems due to OCD. > >The school has 2 reading programs - one is the Accelerated Reading >program that is school-wide and goes separately on the report card, >the other is his teacher's 20-minute per night reading requirement >where they keep a log to turn in each week. The AR reading can be >done at school where actually sometimes reads. But the home >reading had become a problem as he just CANNOT read at home even on >his good nights. (I mean we can't do homework some nights as he >can't look at a page if he feels he'll get " stuck " on it; if it's >something I can read out loud to him it's OK.) Anyway, was >getting all these 0's for the reading logs, which REALLY pulled down >his language grade to D-'s. > >So, I wanted to see if we could eliminate the reading at home part, >but continue to let him do the AR reading at school. I explained >that home is just a different environment than school and he just >CANNOT do it at home. (He sometimes has to read and reread until >it " sounds right " in his head or something...) > >So his reading teacher said he can come to school early and come to >her room and read for 15 minutes or so at least 3x a week before >school begins; he does get to school early anyway so I can get to >work on time. I did tell her that he may NOT be able to read some >days, she said OK. His other teacher who has them do the AR reading >in her room said that she has noticed that some days doesn't >read, he just sits there for the 45 minutes. > >I had them look at his test scores for the tests the school gives for >aptitude, etc., and it helped my case that he scored above average on >the math and reading, and average on vocabulary or something. > >Well, then I had to address his classwork and homework. He had just >brought home an F in social studies. This was due to all 70's and a >lower grade, plus one good test grade. All the 70's were his grades >for work turned in late!!! So I asked about allowing late work, that >he usually always has it but just doesn't turn it in tho we do get >behind at times. She said, well, 3 weeks is a little too long. So, >anyway, she will ask each Friday if he has any work he hasn't >turned in while he looks in his notebook for it. She said she >wouldn't count work as late, if it wasn't TOO LATE. She agreed that >the F was due to all the late work. And she said he's missing 2 >assignments that can only be done in the classroom so he has to stay >after school next Wednesday to do these. > >I told them SOME of the stuff goes through at home - how he >gets stuck in doorways, or touches things and can't let go, how >things have to feel right, even jumping onto the bed has to be done >just right, how he has not touched the TV remote in months and won't >touch a light switch (due to having to turn it on/off " 50 " times and >not being able to stop changing channels or something).... > >Anyway, after all this, I BROKE DOWN IN TEARS, just could not stop >crying for about 5 minutes. It was like all the stress had just >finally got to me, they had to get a box of tissues for me, etc. I >thought later, THIS MAY HAVE HELPED. Maybe they'll feel sorry for me >and do more for !? > >Anyway, I hope some of this actually helps . I told them I >would probably try him on meds this summer, that I just didn't want >to add anything meds might start (behaviors or sickness side effects) >this school year when we're just trying to cope with getting through >6th grade. And I'd probably be lucky if the first med we tried was >the right one for him that worked, that I'd rather try in the summer. >(I don't know if I'm making the right decision on the meds, but I'm >starting to cope with the OCD, I don't need anything new that the >meds might bring on right now.) > >Well, I'm sorry I went on for so long. I don't know if anyone else >has had better luck or worse luck in dealing with the schools. I'm >not sure if I WON much of anything or could have got more!?? > >Thanks for letting me get ALL this out. I'm still sort of drained >from the tears. I kept tearing up all night when I got home. > > From in N.C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 >Wow, I cannot imagine what you are going through. I was wondering if you have ever considered home schooling? Good luck! > My 13yr old son has dx of AS, ODD, OCD, mood disorder, anxiety, > depression. He recently also received a dx of Schizoaffective > disorder. He will be in 8th grade this coming school year. The > middle school my son goes to has approx 500 students. He was able > to cope with the school setting in the past. My son has told me > that he was able to hold all of his frustration in during the school > day, and release all his frustration when he got home. He would > have big 'meltdowns' after getting home from school. He did have > some problems in the school setting with anxiety, anxiety attacks, > bullies, etc... He had an 'anytime pass' he could use, if he > started to get upset, he could use the pass to leave the classroom > and go to the office. He would use this pass frequently. Sometimes > up to 5 times a day. I have always had trouble with the school. > Their communication with me is horrible. They seem to think that > there is nothing wrong with my child. They took him off of his IEP > in February, because he 'test to high' to be on one. According to > the school, his medical dx do not affect his educational > perfomance. So far, they have not let him even get on a 504 plan. > > My son's condition has changed signifigantly this summer. He > started to become very paranoid. He would pull all the shades and > lock all the doors (day and night) in the house. He would even > refuse to leave the house at times. He thought people were spying > on him, talking about him, etc... He also thought that his younger > brother was possessed by demons. It was also discovered that he is > having auditory hallucinations. My son states that he has been > hearing voices all of his life. He just thought that everyone did, > and that is why he never told anyone. He also started having severe > mood swings. With significant med changes, the paranoia is under > control at this time. So this is why he received the dx of > Schizoaffective disorder. > > His medical professionals (pediatrician, psychiatrist, and > counselor), my son, and myself all feel he is unable to cope with > the middle school environment at this time. The medical > prfessionals feel he would benifit from being placed in a smaller > environment. There is an alternative school that holds up to 50 > students here in our town. The only catch is that you have to have > a recommendation from the public school to be able to go to the > alternative school. I've also found out that the middle school > would have to pay for my son to go there. My son's peditrician has > set up a meeting with the school in the peditrician's office for > Tuesday morning. All of my son's medical professionals, myself and > his grandmother are going to be there. We are hoping to get my son > to attend the meeting, at this time he doesn't know if he will go. > The social worker at the pediatrician's office has told me that the > school is being very resistant in agreeing to send him to the > altenative school. She told me that the school has suggested > putting him in there ISS(in school suspension)room to provide a > smaller environment. > > Sorry to have wrote a book. Any suggestions??? > > Thanks---Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 Get a lawyer and/or pull him out altogether and homeschool him with documentation as to why he is not going to attend the large school. It sounds as though this is a powder keg about to blow and the fall-out could be very difficult for your son. He sounds too fragile to attend a large school, especially with a history of bully behavior directed toward him and his verbalization of hallucinations. I would think that the school personal would be aware that your son could possibly lash out and cause harm to someone who pushes him over the edge. They are putting your son and the other students in harm's way. THIS is why we home school. I simply will no longer spend my child's life fighting a system that is slated to win. The cost is too high for the child. While we fight for services, better placement, paras, etc. etc. the child is in bad school situation and not only loses valuable educational time, he loses recovery time. If a child has to " hold it together " and then have meltdowns to simply be in any specific environment, change the environment. No reasonable adult would attend a party that was miserable, nor would a reasonable adult go to a miserable job if a better environment/job were available. Why do we expect more of our disabled and vulnerable children? Priscilla __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 Priscilla wrote; > THIS is why we home school. I simply will no longer spend my > child's life > fighting a system that is slated to win. The cost is too high for the > child. While we fight for services, better placement, paras, etc. > etc. the > child is in bad school situation and not only loses valuable > educationaltime, he loses recovery time. If a child has to " hold > it together " and > then have meltdowns to simply be in any specific environment, > change the > environment. No reasonable adult would attend a party that was > miserable,nor would a reasonable adult go to a miserable job if a > betterenvironment/job were available. Why do we expect more of our > disabled and > vulnerable children? > > Priscilla Bravo Priscilla ,well said that is exactly how I feel and why my child is attending Connections Academy a " virtual school " ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 wrote: Wow, I cannot imagine what you are going through. I was wondering If you have ever considered home schooling? Good luck! I don't see how I could do home schooling. I am a single parent with two children. I have to work full time. Right now we are not getting any child support. For my son to stay on track with school work, he needs 1:1. During the school year it is not unusual for him and I to be doing homework for 2 or more hours in the evening. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 Best of luck to you. We were fortunate enough that for us, the large elementary school insisted that our son switch to the smaller, publicly funded school. We were resistant at first, mostly because our dreams of our child succeeding in a "normal" environment were shattered, but it has been the best thing for our entire family. Our son is so much happier there. I've heard that the waiting list can be quite long, at least for the school in our area. Again, good luck. Tracey School Meeting My 13yr old son has dx of AS, ODD, OCD, mood disorder, anxiety, depression. He recently also received a dx of Schizoaffective disorder. He will be in 8th grade this coming school year. The middle school my son goes to has approx 500 students. He was able to cope with the school setting in the past. My son has told me that he was able to hold all of his frustration in during the school day, and release all his frustration when he got home. He would have big 'meltdowns' after getting home from school. He did have some problems in the school setting with anxiety, anxiety attacks, bullies, etc... He had an 'anytime pass' he could use, if he started to get upset, he could use the pass to leave the classroom and go to the office. He would use this pass frequently. Sometimes up to 5 times a day. I have always had trouble with the school. Their communication with me is horrible. They seem to think that there is nothing wrong with my child. They took him off of his IEP in February, because he 'test to high' to be on one. According to the school, his medical dx do not affect his educational perfomance. So far, they have not let him even get on a 504 plan.My son's condition has changed signifigantly this summer. He started to become very paranoid. He would pull all the shades and lock all the doors (day and night) in the house. He would even refuse to leave the house at times. He thought people were spying on him, talking about him, etc... He also thought that his younger brother was possessed by demons. It was also discovered that he is having auditory hallucinations. My son states that he has been hearing voices all of his life. He just thought that everyone did, and that is why he never told anyone. He also started having severe mood swings. With significant med changes, the paranoia is under control at this time. So this is why he received the dx of Schizoaffective disorder.His medical professionals (pediatrician, psychiatrist, and counselor), my son, and myself all feel he is unable to cope with the middle school environment at this time. The medical prfessionals feel he would benifit from being placed in a smaller environment. There is an alternative school that holds up to 50 students here in our town. The only catch is that you have to have a recommendation from the public school to be able to go to the alternative school. I've also found out that the middle school would have to pay for my son to go there. My son's peditrician has set up a meeting with the school in the peditrician's office for Tuesday morning. All of my son's medical professionals, myself and his grandmother are going to be there. We are hoping to get my son to attend the meeting, at this time he doesn't know if he will go. The social worker at the pediatrician's office has told me that the school is being very resistant in agreeing to send him to the altenative school. She told me that the school has suggested putting him in there ISS(in school suspension)room to provide a smaller environment.Sorry to have wrote a book. Any suggestions???Thanks---Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Sounds like you need to find an advocate............. in Lancaster, Carebo7392 <rebo7392@...> wrote: >Wow, I cannot imagine what you are going through. I was wondering if you have ever considered home schooling? Good luck!> My 13yr old son has dx of AS, ODD, OCD, mood disorder, anxiety, > depression. He recently also received a dx of Schizoaffective > disorder. He will be in 8th grade this coming school year. The > middle school my son goes to has approx 500 students. He was able > to cope with the school setting in the past. My son has told me > that he was able to hold all of his frustration in during the school > day, and release all his frustration when he got home. He would > have big 'meltdowns' after getting home from school. He did have > some problems in the school setting with anxiety, anxiety attacks, > bullies, etc... He had an 'anytime pass' he could use, if he > started to get upset, he could use the pass to leave the classroom > and go to the office. He would use this pass frequently. Sometimes > up to 5 times a day. I have always had trouble with the school. > Their communication with me is horrible. They seem to think that > there is nothing wrong with my child. They took him off of his IEP > in February, because he 'test to high' to be on one. According to > the school, his medical dx do not affect his educational > perfomance. So far, they have not let him even get on a 504 plan.> > My son's condition has changed signifigantly this summer. He > started to become very paranoid. He would pull all the shades and > lock all the doors (day and night) in the house. He would even > refuse to leave the house at times. He thought people were spying > on him, talking about him, etc... He also thought that his younger > brother was possessed by demons. It was also discovered that he is > having auditory hallucinations. My son states that he has been > hearing voices all of his life. He just thought that everyone did, > and that is why he never told anyone. He also started having severe > mood swings. With significant med changes, the paranoia is under > control at this time. So this is why he received the dx of > Schizoaffective disorder.> > His medical professionals (pediatrician, psychiatrist, and > counselor), my son, and myself all feel he is unable to cope with > the middle school environment at this time. The medical > prfessionals feel he would benifit from being placed in a smaller > environment. There is an alternative school that holds up to 50 > students here in our town. The only catch is that you have to have > a recommendation from the public school to be able to go to the > alternative school. I've also found out that the middle school > would have to pay for my son to go there. My son's peditrician has > set up a meeting with the school in the peditrician's office for > Tuesday morning. All of my son's medical professionals, myself and > his grandmother are going to be there. We are hoping to get my son > to attend the meeting, at this time he doesn't know if he will go. > The social worker at the pediatrician's office has told me that the > school is being very resistant in agreeing to send him to the > altenative school. She told me that the school has suggested > putting him in there ISS(in school suspension)room to provide a > smaller environment.> > Sorry to have wrote a book. Any suggestions???> > Thanks---Lori> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Beth, I am so glad that the meeting went so well for you! Sounds like you will be working with a very supportive staff! With everything that you have in place prior to the start of the school year hopefully, Hannah will be able to have a smooth transition! (aundrea 11 systemic jra) > > Well, we had our meeting today with Hannah's principal & teacher (the lunkhead gym teacher was too busy to come). It went really well, even though I (and Mike) nearly started crying a few times (I even saw the principal well up a couple of times). Her teacher has a son with epilepsy and completely understands where we are coming from. > > They both were incredibly supportive and asked tons of questions. The principal gave us the referral paperwork to start. I will hopefully be able to drop that back off at school by Friday. Once I drop it off the school district has 60 days to get Hannah evaluated, They both feel she may qualify for OT/PT services right at school if needed. > > Her teacher loves the idea of reading the Keeping a Secret book to the class and handing out the KGAT bracelets to the class. We are going to do that next week Friday. That is good timing because she sees her new doctor on Thursday. > > My only concern left will be the gym teacher, but I have been assured by the principal he will not be a problem. > > When we got home we had a long talk with Hannah about her needing to be honest about her pain and not try and hide it. That will be the hardest part I think. > > Thanks again for everyone's support and suggestions, I never would have been as prepared for this meeting without all of you!!! > > > Beth Yohnk > Happy Thoughts..Be Well > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 So the old stereotypical thick jock rides again?! I am sure, if the principal is on your side, the gym teacher will have to fall into line here. And yes, Miss Hannah must tell them when she is uncomfortable or unable to complete the tasks given her. Learning to stand up and speak for herself is one of those lessons not on the school curriculum really, but every bit necessary for life. And hey, it's her right to be able to say when she's not ok with things. I wish you all the best, and appreciate you sharing your experiences, since little Bayly is lined up to start school next year- maybe. HUGS, Jo > > Well, we had our meeting today with Hannah's principal & teacher (the lunkhead gym teacher was too busy to come). It went really well, even though I (and Mike) nearly started crying a few times (I even saw the principal well up a couple of times). Her teacher has a son with epilepsy and completely understands where we are coming from. > > They both were incredibly supportive and asked tons of questions. The principal gave us the referral paperwork to start. I will hopefully be able to drop that back off at school by Friday. Once I drop it off the school district has 60 days to get Hannah evaluated, They both feel she may qualify for OT/PT services right at school if needed. > > Her teacher loves the idea of reading the Keeping a Secret book to the class and handing out the KGAT bracelets to the class. We are going to do that next week Friday. That is good timing because she sees her new doctor on Thursday. > > My only concern left will be the gym teacher, but I have been assured by the principal he will not be a problem. > > When we got home we had a long talk with Hannah about her needing to be honest about her pain and not try and hide it. That will be the hardest part I think. > > Thanks again for everyone's support and suggestions, I never would have been as prepared for this meeting without all of you!!! > Beth Yohnk > Happy Thoughts..Be Well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Thanks Soina: 9 days and counting until her appt with the new rheumy. I also found out today they will be allergy testing her that day and she's having a CT of sinuses tormorrow. sonia1md <sonia1md@...> wrote: Beth, I am so glad that the meeting went so well for you! Sounds like you will be working with a very supportive staff! With everything that you have in place prior to the start of the school year hopefully, Hannah will be able to have a smooth transition! (aundrea 11 systemic jra) > > Well, we had our meeting today with Hannah's principal & teacher (the lunkhead gym teacher was too busy to come). It went really well, even though I (and Mike) nearly started crying a few times (I even saw the principal well up a couple of times). Her teacher has a son with epilepsy and completely understands where we are coming from. > > They both were incredibly supportive and asked tons of questions. The principal gave us the referral paperwork to start. I will hopefully be able to drop that back off at school by Friday. Once I drop it off the school district has 60 days to get Hannah evaluated, They both feel she may qualify for OT/PT services right at school if needed. > > Her teacher loves the idea of reading the Keeping a Secret book to the class and handing out the KGAT bracelets to the class. We are going to do that next week Friday. That is good timing because she sees her new doctor on Thursday. > > My only concern left will be the gym teacher, but I have been assured by the principal he will not be a problem. > > When we got home we had a long talk with Hannah about her needing to be honest about her pain and not try and hide it. That will be the hardest part I think. > > Thanks again for everyone's support and suggestions, I never would have been as prepared for this meeting without all of you!!! > > > Beth Yohnk > Happy Thoughts..Be Well > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Glad to hear it went well. That is a real load off of your mind I'll bet. It helps that the school is open and receptive to listening to you. I hope the dr's appt goes well next week, Michele ( 19, spondy) ________________________________ From: [mailto: ] On Behalf Of Beth Yohnk Sent: Tuesday, August 29, 2006 4:54 PM Subject: school meeting Well, we had our meeting today with Hannah's principal & teacher (the lunkhead gym teacher was too busy to come). It went really well, even though I (and Mike) nearly started crying a few times (I even saw the principal well up a couple of times). Her teacher has a son with epilepsy and completely understands where we are coming from. They both were incredibly supportive and asked tons of questions. The principal gave us the referral paperwork to start. I will hopefully be able to drop that back off at school by Friday. Once I drop it off the school district has 60 days to get Hannah evaluated, They both feel she may qualify for OT/PT services right at school if needed. Her teacher loves the idea of reading the Keeping a Secret book to the class and handing out the KGAT bracelets to the class. We are going to do that next week Friday. That is good timing because she sees her new doctor on Thursday. My only concern left will be the gym teacher, but I have been assured by the principal he will not be a problem. When we got home we had a long talk with Hannah about her needing to be honest about her pain and not try and hide it. That will be the hardest part I think. Thanks again for everyone's support and suggestions, I never would have been as prepared for this meeting without all of you!!! Beth Yohnk Happy Thoughts..Be Well Quote Link to comment Share on other sites More sharing options...
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