? about Remicade/woahs-prayers needed

[Guest guest]

Just returning from rheumy appt. Due to continued difficulties on Enbrel and too

much joint activity even with Enbrel, Pred, MTX, Plaquenil, Celebrex, etc we are

switching to Remicade. Rheumy feels if you fail Enbrel you will fail Humira. New

drug out with infusion once every 9 months but if it doesn't work, what do you

do with 9 months of drug in you? So, going to Remicade. Big problem is that joe

heads to school in two weeks so trying to rush insurance approval to have first

infusion by Friday and second in two weeks. So, pros out there, tell us what to

expect with it please. The good, the bad and the ugly.

As for woahs, computer crashed so checking in at library. Been in Utah taking

care of grandma. Awaiting results, but drs believe she has stomach cancer-likely

terminal for 84 year old who weighs less than 90-lbs. Nephew, age 18, ran a stop

sign Saturday night and not sure if he is going to make it. First they told his

folks expect him in ICU for a couple days observation, then to general room for

a week. Unfortunately things have gone from bad to worse. He has a fractured

pelvis and hip, surgically repaired. Ruptured spleen, they removed. Lung now

collapsed, chest tube. Needed major transfusions. Brain swelling last night, in

surgery much of night. He is not responding and his brain pressure (?) is

increasing. He is on a ventilator and at this time we don't know if he is going

to survive or not. He and his family live in Missippi and none of the rest of

the family do. So, if you can add to your prayers we would appreciate it.

Amazing how in an instant your life can

be totally changed.

e, mom to joe 19 poly + lupus

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