Re: Thyroid problems now!!!

[Guest guest]

:

With the exception of the thyroid issue, Lexi sounds like Hannah. Through all

the testing she has been through thus far they did find that she does not have a

good immune system. We are now working with a immunologist for Hannah. This

might be something you want to ask about. We have learned that Hannah's body

rejected some, but not all of her childhood immunizations. She has since had to

receive some booster shots...we have labs next week to see how she responded to

those. They currently have her diagnosed with Selective Immunity. She too gets

sick quickly and stays sick longer than the average healthy kid. They may also

be able to help you with the signs & symptoms to watch for. As you know a lot

of our kids on this list have immune issues so it would be worth checking into.

redfeather03@... wrote:

Hello all - just wanted to put this question out there to this

knowledgeable group! Lexi went to the doctor last Friday for a routine well

child physical and her kindergarten shots, only to find out the she once AGAIN

had strep throat (in June it was vaginal strep) with no fever, no pain, and no

other symptoms. We would've NEVER known except that the doc looked in her throat

to see HUGE tonsils that obscured her uvula, and the tonsils had giant white

patches on them! The rapid strep came back positive in record time even! Then, I

asked the doctor ( a new pediatrician for us since July 1) again about Lexi's

ongoing lack of appetite and complete lack of interest in eating as well as

insomnia, and although her old ped 2x passed it off as behavioral since she

really has no documented weight LOSS, this doc felt like we could at least do

some other bloodwork to check some things since the loss of appetite had gone on

for about 8 months or so now. Well, this morning the

doc called to tell me that her thyroid tests came back abnormal - she has

hypothyroidism. I guess your TSH (or maybe it FSH) is supposed to be between

0.5-7.5 and Lexi's was 19!!!! I can't understand why my seemingly " typical "

looking kiddo seems to draw the short straw on everything by continually getting

ill with no other signs and now another autoimmune disorder to add to her list!

Anyone have any other experience with JRA kiddos at this age with thyroid

disorders too - or anyone else know how to keep on top of knowing when their

child is seriously ill when they have no symptoms! I worry because w/ starting

kindergarten now, I don't know how to tell the nurse when to call me for

illness. The normal symptoms don't ever show up in Lexi and you don't know she's

sick until she's REALLY sick and I don't want to wait until a 104 fever before

the nurse calls!!! ARgh!!

Thanks!

Arvada mom to Lexi, 5 (pauci or maybe poly jra)

__________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

[Guest guest]

Dear ,

I don't have any concrete answers for you at all, but

I want you to know I empathize with your frustration!

I, myself have hypothyroidism, and in hindsight, I

think I probably had it for several years before

something seemingly " snapped " in my body and I went to

see my family doctor, knowing that something vague was

definitely wrong. After talking to a lot of people, I

find that thyroid issues are like that---so many vague

symptoms that could be shrugged off as stress issues,

and for adults, aging issues, etc. Once Lexi gets

regulated on thyroid medicine, I think you'll find

that she'll feel so much better on so very many

different levels!

Don't you wish there were some sort of computer

reading that you could get every so often---a printout

of anything abnormal in your child's body?!

Sounds like you have a great new pediatrician!

Tammy (mom to , who will be nine in one month!

She has pauci-articular JA and related uveitis)

--- redfeather03@... wrote:

> Hello all - just wanted to put this question out

> there to this knowledgeable group! Lexi went to the

> doctor last Friday for a routine well child physical

> and her kindergarten shots, only to find out the she

> once AGAIN had strep throat (in June it was vaginal

> strep) with no fever, no pain, and no other

> symptoms. We would've NEVER known except that the

> doc looked in her throat to see HUGE tonsils that

> obscured her uvula, and the tonsils had giant white

> patches on them! The rapid strep came back positive

> in record time even! Then, I asked the doctor ( a

> new pediatrician for us since July 1) again about

> Lexi's ongoing lack of appetite and complete lack of

> interest in eating as well as insomnia, and although

> her old ped 2x passed it off as behavioral since she

> really has no documented weight LOSS, this doc felt

> like we could at least do some other bloodwork to

> check some things since the loss of appetite had

> gone on for about 8 months or so now. Well, this

> morning the doc called to tell me that her thyroid

> tests came back abnormal - she has hypothyroidism.

> I guess your TSH (or maybe it FSH) is supposed to be

> between 0.5-7.5 and Lexi's was 19!!!! I can't

> understand why my seemingly " typical " looking kiddo

> seems to draw the short straw on everything by

> continually getting ill with no other signs and now

> another autoimmune disorder to add to her list!

> Anyone have any other experience with JRA kiddos at

> this age with thyroid disorders too - or anyone else

> know how to keep on top of knowing when their child

> is seriously ill when they have no symptoms! I

> worry because w/ starting kindergarten now, I don't

> know how to tell the nurse when to call me for

> illness. The normal symptoms don't ever show up in

> Lexi and you don't know she's sick until she's

> REALLY sick and I don't want to wait until a 104

> fever before the nurse calls!!! ARgh!!

> Thanks!

>

> Arvada mom to Lexi, 5 (pauci or maybe poly jra)

>

________________________________________________________________________

> Check out AOL.com today. Breaking news, video

> search, pictures, email and IM. All on demand.

> Always Free.

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

-,

I am sorry Lexi now has a another issue to deal with. it's good

though, that you found it now and can start treating it. Its only 1

small pill a day. Can Lexi swollow pills??

I am hypo too, When mine was discovered my TSH was 179!!!!! by that

point my thyriod was swollen so big I thought I had a HUGE tumor in

my neck.

Just make sure you keep getting regular checks on her levels, once

in awhile doses might need to be adjusted.

Hugs Helen and (9,systemic)

-- In , redfeather03@... wrote:

>

> Hello all - just wanted to put this question out there to this

knowledgeable group! Lexi went to the doctor last Friday for a

routine well child physical and her kindergarten shots, only to find

out the she once AGAIN had strep throat (in June it was vaginal

strep) with no fever, no pain, and no other symptoms. We would've

NEVER known except that the doc looked in her throat to see HUGE

tonsils that obscured her uvula, and the tonsils had giant white

patches on them! The rapid strep came back positive in record time

even! Then, I asked the doctor ( a new pediatrician for us since

July 1) again about Lexi's ongoing lack of appetite and complete

lack of interest in eating as well as insomnia, and although her old

ped 2x passed it off as behavioral since she really has no

documented weight LOSS, this doc felt like we could at least do some

other bloodwork to check some things since the loss of appetite had

gone on for about 8 months or so now. Well, this morning the doc

called to tell me that her thyroid tests came back abnormal - she

has hypothyroidism. I guess your TSH (or maybe it FSH) is supposed

to be between 0.5-7.5 and Lexi's was 19!!!! I can't understand why

my seemingly " typical " looking kiddo seems to draw the short straw

on everything by continually getting ill with no other signs and now

another autoimmune disorder to add to her list! Anyone have any

other experience with JRA kiddos at this age with thyroid disorders

too - or anyone else know how to keep on top of knowing when their

child is seriously ill when they have no symptoms! I worry because

w/ starting kindergarten now, I don't know how to tell the nurse

when to call me for illness. The normal symptoms don't ever show up

in Lexi and you don't know she's sick until she's REALLY sick and I

don't want to wait until a 104 fever before the nurse calls!!!

ARgh!!

> Thanks!

>

> Arvada mom to Lexi, 5 (pauci or maybe poly jra)

>

_____________________________________________________________________

___

> Check out AOL.com today. Breaking news, video search, pictures,

email and IM. All on demand. Always Free.

>

>

>

[Guest guest]

Hi ,

I also have hypothryoid. I was diagnosed with it over 12 years ago.

My mom and grandpa also have it and I do believe there is an

increase in genetic links to it.

My symptoms were dry skin, fatigue, " fuzzy " thinking, and difficulty

loosing weight.

Just like Helen, I also take one small pill a day. I get my lab work

checked every year just to make sure that my dose is correct.

Sorry, that Lexi has another thing to deal with and I hope that she

starts feeling better quickly!

(Drea 11 systemic jra)

>

> Hello all - just wanted to put this question out there to this

knowledgeable group! Lexi went to the doctor last Friday for a

routine well child physical and her kindergarten shots, only to find

out the she once AGAIN had strep throat (in June it was vaginal

strep) with no fever, no pain, and no other symptoms. We would've

NEVER known except that the doc looked in her throat to see HUGE

tonsils that obscured her uvula, and the tonsils had giant white

patches on them! The rapid strep came back positive in record time

even! Then, I asked the doctor ( a new pediatrician for us since

July 1) again about Lexi's ongoing lack of appetite and complete

lack of interest in eating as well as insomnia, and although her old

ped 2x passed it off as behavioral since she really has no

documented weight LOSS, this doc felt like we could at least do some

other bloodwork to check some things since the loss of appetite had

gone on for about 8 months or so now. Well, this morning the doc

called to tell me that her thyroid tests came back abnormal - she

has hypothyroidism. I guess your TSH (or maybe it FSH) is supposed

to be between 0.5-7.5 and Lexi's was 19!!!! I can't understand why

my seemingly " typical " looking kiddo seems to draw the short straw

on everything by continually getting ill with no other signs and now

another autoimmune disorder to add to her list! Anyone have any

other experience with JRA kiddos at this age with thyroid disorders

too - or anyone else know how to keep on top of knowing when their

child is seriously ill when they have no symptoms! I worry because

w/ starting kindergarten now, I don't know how to tell the nurse

when to call me for illness. The normal symptoms don't ever show up

in Lexi and you don't know she's sick until she's REALLY sick and I

don't want to wait until a 104 fever before the nurse calls!!!

ARgh!!

> Thanks!

>

> Arvada mom to Lexi, 5 (pauci or maybe poly jra)

>

_____________________________________________________________________

___

> Check out AOL.com today. Breaking news, video search, pictures,

email and IM. All on demand. Always Free.

>

>

>

[Guest guest]

-,

They dont actually make a pill in the strength I need so I need to

take 2 pills. What suxs is that its two separate RX's so they charge

me 2 co-pays for it. Its not a lot, but its a pet peeve of mine. I

already pay for way too many rx's

Hugs Helen and (9,systemic)

-- In , " sonia1md " <sonia1md@...> wrote:

>

> Hi ,

>

> I also have hypothryoid. I was diagnosed with it over 12 years

ago.

> My mom and grandpa also have it and I do believe there is an

> increase in genetic links to it.

>

> My symptoms were dry skin, fatigue, " fuzzy " thinking, and

difficulty

> loosing weight.

>

> Just like Helen, I also take one small pill a day. I get my lab

work

> checked every year just to make sure that my dose is correct.

>

> Sorry, that Lexi has another thing to deal with and I hope that

she

> starts feeling better quickly!

>

> (Drea 11 systemic jra)

>

>

> >

> > Hello all - just wanted to put this question out there to this

> knowledgeable group! Lexi went to the doctor last Friday for a

> routine well child physical and her kindergarten shots, only to

find

> out the she once AGAIN had strep throat (in June it was vaginal

> strep) with no fever, no pain, and no other symptoms. We would've

> NEVER known except that the doc looked in her throat to see HUGE

> tonsils that obscured her uvula, and the tonsils had giant white

> patches on them! The rapid strep came back positive in record

time

> even! Then, I asked the doctor ( a new pediatrician for us since

> July 1) again about Lexi's ongoing lack of appetite and complete

> lack of interest in eating as well as insomnia, and although her

old

> ped 2x passed it off as behavioral since she really has no

> documented weight LOSS, this doc felt like we could at least do

some

> other bloodwork to check some things since the loss of appetite

had

> gone on for about 8 months or so now. Well, this morning the doc

> called to tell me that her thyroid tests came back abnormal - she

> has hypothyroidism. I guess your TSH (or maybe it FSH) is

supposed

> to be between 0.5-7.5 and Lexi's was 19!!!! I can't understand

why

> my seemingly " typical " looking kiddo seems to draw the short straw

> on everything by continually getting ill with no other signs and

now

> another autoimmune disorder to add to her list! Anyone have any

> other experience with JRA kiddos at this age with thyroid

disorders

> too - or anyone else know how to keep on top of knowing when their

> child is seriously ill when they have no symptoms! I worry

because

> w/ starting kindergarten now, I don't know how to tell the nurse

> when to call me for illness. The normal symptoms don't ever show

up

> in Lexi and you don't know she's sick until she's REALLY sick and

I

> don't want to wait until a 104 fever before the nurse calls!!!

> ARgh!!

> > Thanks!

> >

> > Arvada mom to Lexi, 5 (pauci or maybe poly jra)

> >

>

_____________________________________________________________________

> ___

> > Check out AOL.com today. Breaking news, video search, pictures,

> email and IM. All on demand. Always Free.

> >

> >

> >

[Guest guest]

How did you get your pediatrician to refer Hannah to an immunologist? I would

like Lexi to get looked at for this but I know most pediatricians just think

" well, they just get sick more often - take more vitamins! "

Re: Thyroid problems now!!!

:

With the exception of the thyroid issue, Lexi sounds like Hannah. Through all

the testing she has been through thus far they did find that she does not have a

good immune system. We are now working with a immunologist for Hannah. This

might be something you want to ask about. We have learned that Hannah's body

rejected some, but not all of her childhood immunizations. She has since had to

receive some booster shots...we have labs next week to see how she responded to

those. They currently have her diagnosed with Selective Immunity. She too gets

sick quickly and stays sick longer than the average healthy kid. They may also

be able to help you with the signs & symptoms to watch for. As you know a lot

of our kids on this list have immune issues so it would be worth checking into.

redfeather03@... wrote:

Hello all - just wanted to put this question out there to this

knowledgeable group! Lexi went to the doctor last Friday for a routine well

child physical and her kindergarten shots, only to find out the she once AGAIN

had strep throat (in June it was vaginal strep) with no fever, no pain, and no

other symptoms. We would've NEVER known except that the doc looked in her throat

to see HUGE tonsils that obscured her uvula, and the tonsils had giant white

patches on them! The rapid strep came back positive in record time even! Then, I

asked the doctor ( a new pediatrician for us since July 1) again about Lexi's

ongoing lack of appetite and complete lack of interest in eating as well as

insomnia, and although her old ped 2x passed it off as behavioral since she

really has no documented weight LOSS, this doc felt like we could at least do

some other bloodwork to check some things since the loss of appetite had gone on

for about 8 months or so now. Well, this morning the

doc called to tell me that her thyroid tests came back abnormal - she has

hypothyroidism. I guess your TSH (or maybe it FSH) is supposed to be between

0.5-7.5 and Lexi's was 19!!!! I can't understand why my seemingly " typical "

looking kiddo seems to draw the short straw on everything by continually getting

ill with no other signs and now another autoimmune disorder to add to her list!

Anyone have any other experience with JRA kiddos at this age with thyroid

disorders too - or anyone else know how to keep on top of knowing when their

child is seriously ill when they have no symptoms! I worry because w/ starting

kindergarten now, I don't know how to tell the nurse when to call me for

illness. The normal symptoms don't ever show up in Lexi and you don't know she's

sick until she's REALLY sick and I don't want to wait until a 104 fever before

the nurse calls!!! ARgh!!

Thanks!

Arvada mom to Lexi, 5 (pauci or maybe poly jra)

__________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

[Guest guest]

Yes, a weekly printout of everything going on with Lexi each week would be

nice!!! So far our pediatrician has been great - I'm just waiting for

Kaiser to start saying that Lexi has too many medical problems for them to cover

all!!!

Re: Thyroid problems now!!!

Dear ,

I don't have any concrete answers for you at all, but

I want you to know I empathize with your frustration!

I, myself have hypothyroidism, and in hindsight, I

think I probably had it for several years before

something seemingly " snapped " in my body and I went to

see my family doctor, knowing that something vague was

definitely wrong. After talking to a lot of people, I

find that thyroid issues are like that---so many vague

symptoms that could be shrugged off as stress issues,

and for adults, aging issues, etc. Once Lexi gets

regulated on thyroid medicine, I think you'll find

that she'll feel so much better on so very many

different levels!

Don't you wish there were some sort of computer

reading that you could get every so often---a printout

of anything abnormal in your child's body?!

Sounds like you have a great new pediatrician!

Tammy (mom to , who will be nine in one month!

She has pauci-articular JA and related uveitis)

--- redfeather03@... wrote:

> Hello all - just wanted to put this question out

> there to this knowledgeable group! Lexi went to the

> doctor last Friday for a routine well child physical

> and her kindergarten shots, only to find out the she

> once AGAIN had strep throat (in June it was vaginal

> strep) with no fever, no pain, and no other

> symptoms. We would've NEVER known except that the

> doc looked in her throat to see HUGE tonsils that

> obscured her uvula, and the tonsils had giant white

> patches on them! The rapid strep came back positive

> in record time even! Then, I asked the doctor ( a

> new pediatrician for us since July 1) again about

> Lexi's ongoing lack of appetite and complete lack of

> interest in eating as well as insomnia, and although

> her old ped 2x passed it off as behavioral since she

> really has no documented weight LOSS, this doc felt

> like we could at least do some other bloodwork to

> check some things since the loss of appetite had

> gone on for about 8 months or so now. Well, this

> morning the doc called to tell me that her thyroid

> tests came back abnormal - she has hypothyroidism.

> I guess your TSH (or maybe it FSH) is supposed to be

> between 0.5-7.5 and Lexi's was 19!!!! I can't

> understand why my seemingly " typical " looking kiddo

> seems to draw the short straw on everything by

> continually getting ill with no other signs and now

> another autoimmune disorder to add to her list!

> Anyone have any other experience with JRA kiddos at

> this age with thyroid disorders too - or anyone else

> know how to keep on top of knowing when their child

> is seriously ill when they have no symptoms! I

> worry because w/ starting kindergarten now, I don't

> know how to tell the nurse when to call me for

> illness. The normal symptoms don't ever show up in

> Lexi and you don't know she's sick until she's

> REALLY sick and I don't want to wait until a 104

> fever before the nurse calls!!! ARgh!!

> Thanks!

>

> Arvada mom to Lexi, 5 (pauci or maybe poly jra)

>

________________________________________________________________________

> Check out AOL.com today. Breaking news, video

> search, pictures, email and IM. All on demand.

> Always Free.

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Actually our rheumatologist referred her. But when I mentioned it to the ped he

was all for it too. I think when they saw how abnormal some of her labs were

neither one hesitated. Has Lexi had had recent lab work? One of the ones that

the rheumy checked that was a huge red flag was the HISS panel. This is the one

that will tell you how your child responded to immunizations. There were others

that were concerning, but I honestly don't remember speicifically which ones

they were, that seems so long ago.

Rember that JRA is an autoimmune disease so I can't imagine that you would

have trouble with this referral.

redfeather03@... wrote:

How did you get your pediatrician to refer Hannah to an immunologist?

I would like Lexi to get looked at for this but I know most pediatricians just

think " well, they just get sick more often - take more vitamins! "

Re: Thyroid problems now!!!

:

With the exception of the thyroid issue, Lexi sounds like Hannah. Through all

the testing she has been through thus far they did find that she does not have a

good immune system. We are now working with a immunologist for Hannah. This

might be something you want to ask about. We have learned that Hannah's body

rejected some, but not all of her childhood immunizations. She has since had to

receive some booster shots...we have labs next week to see how she responded to

those. They currently have her diagnosed with Selective Immunity. She too gets

sick quickly and stays sick longer than the average healthy kid. They may also

be able to help you with the signs & symptoms to watch for. As you know a lot

of our kids on this list have immune issues so it would be worth checking into.

redfeather03@... wrote:

Hello all - just wanted to put this question out there to this

knowledgeable group! Lexi went to the doctor last Friday for a routine well

child physical and her kindergarten shots, only to find out the she once AGAIN

had strep throat (in June it was vaginal strep) with no fever, no pain, and no

other symptoms. We would've NEVER known except that the doc looked in her throat

to see HUGE tonsils that obscured her uvula, and the tonsils had giant white

patches on them! The rapid strep came back positive in record time even! Then, I

asked the doctor ( a new pediatrician for us since July 1) again about Lexi's

ongoing lack of appetite and complete lack of interest in eating as well as

insomnia, and although her old ped 2x passed it off as behavioral since she

really has no documented weight LOSS, this doc felt like we could at least do

some other bloodwork to check some things since the loss of appetite had gone on

for about 8 months or so now. Well, this morning the

doc called to tell me that her thyroid tests came back abnormal - she has

hypothyroidism. I guess your TSH (or maybe it FSH) is supposed to be between

0.5-7.5 and Lexi's was 19!!!! I can't understand why my seemingly " typical "

looking kiddo seems to draw the short straw on everything by continually getting

ill with no other signs and now another autoimmune disorder to add to her list!

Anyone have any other experience with JRA kiddos at this age with thyroid

disorders too - or anyone else know how to keep on top of knowing when their

child is seriously ill when they have no symptoms! I worry because w/ starting

kindergarten now, I don't know how to tell the nurse when to call me for

illness. The normal symptoms don't ever show up in Lexi and you don't know she's

sick until she's REALLY sick and I don't want to wait until a 104 fever before

the nurse calls!!! ARgh!!

Thanks!

Arvada mom to Lexi, 5 (pauci or maybe poly jra)

__________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

[Guest guest]

Thyroid Disease has a tendency to follow jra and ra. It is also

considered an autoimmune disease (yuck!) I have both. Started with

jra and thyroiditis at age 13. The thyroid finally quit all together

at 25 went hyper then hypo after treatment. Thyroid disease can also

cause althralgia.

Monna

> Hello all - just wanted to put this question out there to this

> knowledgeable group! Lexi went to the doctor last Friday for a

routine well

> child physical and her kindergarten shots, only to find out the she

once AGAIN

> had strep throat (in June it was vaginal strep) with no fever, no

pain, and no

> other symptoms. We would've NEVER known except that the doc looked

in her throat

> to see HUGE tonsils that obscured her uvula, and the tonsils had

giant white

> patches on them! The rapid strep came back positive in record time

even! Then, I

> asked the doctor ( a new pediatrician for us since July 1) again

about Lexi's

> ongoing lack of appetite and complete lack of interest in eating as

well as

> insomnia, and although her old ped 2x passed it off as behavioral

since she

> really has no documented weight LOSS, this doc felt like we could

at least do

> some other bloodwork to check some things since the loss of

appetite had gone on

> for about 8 months or so now. Well, this morning the

> doc called to tell me that her thyroid tests came back abnormal -

she has

> hypothyroidism. I guess your TSH (or maybe it FSH) is supposed to

be between

> 0.5-7.5 and Lexi's was 19!!!! I can't understand why my

seemingly " typical "

> looking kiddo seems to draw the short straw on everything by

continually getting

> ill with no other signs and now another autoimmune disorder to add

to her list!

> Anyone have any other experience with JRA kiddos at this age with

thyroid

> disorders too - or anyone else know how to keep on top of knowing

when their

> child is seriously ill when they have no symptoms! I worry because

w/ starting

> kindergarten now, I don't know how to tell the nurse when to call

me for

> illness. The normal symptoms don't ever show up in Lexi and you

don't know she's

> sick until she's REALLY sick and I don't want to wait until a 104

fever before

> the nurse calls!!! ARgh!!

> Thanks!

>

> Arvada mom to Lexi, 5 (pauci or maybe poly jra)

> __________________________________________________________

> Check out AOL.com today. Breaking news, video search, pictures,

email and IM.

> All on demand. Always Free.

>

>

[Guest guest]

Yuck! It just seems like once you have an autoimmune disorder so much other

stuff follows! Thank you for everyone's responses - Lexi will start the

medication this evening (scheduling when to take it around meals and school is

tricky too!!!) and we'll see how it goes. The doctor just also called me this

morning and after checking with an endocrinologist, they are concerned for some

reason about her adrenal glands too. They want me to bring her in tomorrow

morning to have more blood work taken to check the adrenal gland function - so

I'm not sure what that means exactly now too. Ugh!!!

Arvada mom to Lexi, 5 (pauci or poly JRA)

Re: Thyroid problems now!!!

Thyroid Disease has a tendency to follow jra and ra. It is also

considered an autoimmune disease (yuck!) I have both. Started with

jra and thyroiditis at age 13. The thyroid finally quit all together

at 25 went hyper then hypo after treatment. Thyroid disease can also

cause althralgia.

Monna

> Hello all - just wanted to put this question out there to this

> knowledgeable group! Lexi went to the doctor last Friday for a

routine well

> child physical and her kindergarten shots, only to find out the she

once AGAIN

> had strep throat (in June it was vaginal strep) with no fever, no

pain, and no

> other symptoms. We would've NEVER known except that the doc looked

in her throat

> to see HUGE tonsils that obscured her uvula, and the tonsils had

giant white

> patches on them! The rapid strep came back positive in record time

even! Then, I

> asked the doctor ( a new pediatrician for us since July 1) again

about Lexi's

> ongoing lack of appetite and complete lack of interest in eating as

well as

> insomnia, and although her old ped 2x passed it off as behavioral

since she

> really has no documented weight LOSS, this doc felt like we could

at least do

> some other bloodwork to check some things since the loss of

appetite had gone on

> for about 8 months or so now. Well, this morning the

> doc called to tell me that her thyroid tests came back abnormal -

she has

> hypothyroidism. I guess your TSH (or maybe it FSH) is supposed to

be between

> 0.5-7.5 and Lexi's was 19!!!! I can't understand why my

seemingly " typical "

> looking kiddo seems to draw the short straw on everything by

continually getting

> ill with no other signs and now another autoimmune disorder to add

to her list!

> Anyone have any other experience with JRA kiddos at this age with

thyroid

> disorders too - or anyone else know how to keep on top of knowing

when their

> child is seriously ill when they have no symptoms! I worry because

w/ starting

> kindergarten now, I don't know how to tell the nurse when to call

me for

> illness. The normal symptoms don't ever show up in Lexi and you

don't know she's

> sick until she's REALLY sick and I don't want to wait until a 104

fever before

> the nurse calls!!! ARgh!!

> Thanks!

>

> Arvada mom to Lexi, 5 (pauci or maybe poly jra)

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