Uveitis ( was ... Re: MAJOR GRRRR!!!!!!!!!)

[Guest guest]

Hi Alia,

I'm in a state of shock here, too, upon reading this. I had so hoped that things

would have settled down and your report would be a really good one. All I can

say is I'm so glad that little Caroline has you for her Mom, as you're right on

top of things and are doing absolutely everything possible to help in every way

you can. This has got to be so hard to deal with. Stay strong ... and know that

we are sending positive energies and thoughts your way.

Take care,

Georgina

MAJOR GRRRR!!!!!!!!!

Okay guys. We just got back from the eye doctor. Guess what? Clear? No

cells? you might think? No... Life can't be that easy for us!! Not Miss

Caroline! (Can you sense my frustration?)

Caroline is a trace in the left eye and a 1+ in the right eye. We are

now bumping her up to eye drops SIX times per day each eye. We are also

readding PREDNISONE!!!!! She is going to be taking 20mg PER day for the

next 2 weeks and then we'll ATTEMPT a slow taper.

Can you all say GRRRRRRRRRRRRRRRRRRRRRRRRRRRR!!!!!!!!!!!!!!!!!!!!

No plans on halting the Remicade for now, but we'll see after the doc's

get together. Both her rheumy and eye doc are in a state of shock!

Alia and Caroline, age 4, poly and uveitis

Evan Guy, Just turned the big NUMBER 1!!