3 Years Ago.

[Guest guest]

It was 3 years ago today that Nick and I walked into a

rheumatologists office for the 1st time and walked out with a dx of

probable systemic onset JRA. Although Nick had been sick for the

previous 3 months and we suspected this, it was still devestating

news.

Its hard to imagine sometimes what life was like pre- dx. Nick was

just 1/2 way though his kindergarten year with his whole school life

ahead of him. Now life is filled with medications, shots, infusions,

blood tests, hospital and doctor visits.

But though it all Nick has not changed. He deals with each day as it

comes. He is still the fisty, stubborn, fun loving kid he always

was. He has grown stronger, he rolls with the punches and faces the

challenges with the fortitude of most adults.

I have grown stronger too. I have learnt to advocate for my child. I

have learnt not to take anything for granted. Nick has taught me

many life lessons. Although we are walking down a different path

than the one we dreamed of, this one has its silver linings too. We

have crossed paths with people that we otherwise would never have

met, people I like to call my friends, people who mean a lot to us.

I know whatever hand we are dealt, we will deal with it together and

move forward. Theres no stopping this kid and he will succeed in

anything he puts his mind to.

, my hero, my son.

hugs Helen and (8,systemic)