Re: Atlanta Conference

December 29, 1999

Margaret,

Hi, All the info I have is where and what date it is. What is the keynote and

some topics that will be disuss. I was wondering if there is something

discussing about feeding disorder. I am not sure if my husband is coming or not.

Not sure if he is off yet.I am planning on going. Oh I am going to be in Atlanta

the 20th of Jan. Got to take Dayton to Emory to Todd ll ENT. We have a

11:15 appt. I am going to try and call you when I come that way. If I don't

forget your #..hehe

Well hopefully to talk to you soon.

Medrano

Atlanta conference

,

Yes we just received the info and I think I am going on Friday morning when

the kids are in school. Perhaps thursday night if Drew is able to babysit but

the other times I will have trouble with babysitters. I most want to hear the

keynote speaker and what all he has to say on Piracetam. I am also trying to get

inrolled in the new feeding disorder clinic he is doing alson with doctors

over at ish Rite. We would love to go to the Wahsington Conference but

right now it does not seem possible financially or Drew getting the time off.

But who knows? Would love to get together and meet at the conference and mabey

we can get all the kids and husbands together too.

Margaret

December 30, 1999

hey is this conf. being held by NDSC?

We went to one 3 yrs ago in Miami and they had

numerous things for the kids and teens...doesnt sound

like the same meeting...

--- greysean <greysean@...> wrote:

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<DIV><FONT color=#000000 size=2> & nbsp; Hi

,</FONT></DIV>

<DIV><FONT color=#000000 size=2>I'll give you the main

topics on each

day:</FONT></DIV>

<DIV><FONT color=#000000 size=2>Feb. 3rd - 5-6:30pm -

Registration and exhibits,

bookstore</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \

nbsp; & nbsp;

5:30 - 6:15pm - Networking session - led by parents

and arranged by child's age

(they didn't do thins last time)</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \

nbsp; & nbsp;

6:30 - 7:05pm - Welcome and Musical presentation by

Chamblee Highschool

Band</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \

nbsp; & nbsp;

7:05 - 8:15pm Keynote Address & quot;Recognizing the

Potential & quot; Dr Louis

Sullivan and & quot;Count Me In & quot; & nbsp;

Levitz</FONT></DIV>

<DIV><FONT color=#000000

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nbsp; & nbsp;

8:15 - 9:00pm Success Stories</FONT></DIV>

<DIV><FONT color=#000000

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nbsp; & nbsp;

9:00pm Reception and Meet the Speakers</FONT></DIV>

<DIV><FONT color=#000000 size=2>Feb 4th - 8:00am -

Registration and Continential

Breakfast</FONT></DIV>

<DIV><FONT color=#000000

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nbsp;

8:30am - & quot;How Faith and Family advance the

potential & quot;</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \

nbsp;

9:15am - Keynote Address - & quot;Down Syndrome

Research in Cognitive

Neuroscience & quot; Dr. Capone</FONT></DIV>

<DIV><FONT color=#000000

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nbsp;

10:30am - Morning Breakout sessions</FONT></DIV>

<DIV><FONT color=#000000

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sp; & nbsp; & nbsp;

1 - Early Intervention</FONT></DIV>

<DIV><FONT color=#000000

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sp; & nbsp; & nbsp;

2 - Curriculum Accomodations and

Modifications</FONT></DIV>

<DIV><FONT color=#000000

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nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nb\

sp; & nbsp; & nbsp;

3 - Transitioning from High School to supported

employment</FONT></DIV>

<DIV><FONT color=#000000

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nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nb\

sp; & nbsp; & nbsp;

4 - Assistive Technology</FONT></DIV>

<DIV><FONT color=#000000

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nbsp; & nbsp;

12:30pm - lunch and keynote addresss & quot; Self

Determination & quot;

Bradley</FONT></DIV>

<DIV><FONT color=#000000

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nbsp; & nbsp; & nbsp;

2:00pm - Afternoon Breakout Sessions:</FONT></DIV>

<DIV><FONT color=#000000

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sp; & nbsp;

5 - Person Centered planning</FONT></DIV>

<DIV><FONT color=#000000

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sp; & nbsp;

6 - Coordinated Network of Community

Agencies</FONT></DIV>

<DIV><FONT color=#000000

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sp; & nbsp;

7 - Behavior Management Techniques</FONT></DIV>

<DIV><FONT color=#000000

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sp; & nbsp;

8 - Accessible Congregations</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \

nbsp; & nbsp; & nbsp;

4:15pm - Advocacy Panel</FONT></DIV>

<DIV><FONT color=#000000 size=2>Feb 5th - 8:00am -

Registration and continential

breakfast</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \

nbsp;

8:15am - & quot;Achieving the potential thru

research & quot;</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \

nbsp;

9:15am - Medical updates Cartology, Endocrine,

Infectious Diseases, Autism,

ADHD, ENT</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp;

11:15am - & quot; where Health Care is headed in the

21st

century & quot;</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp;

12:00pm - & quot;Evaluating Nontraditional

treatments & quot;</FONT></DIV>

<DIV><FONT color=#000000

size=2> & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & \

nbsp; & nbsp;

1:15pm - & quot;Where to Now & quot; Conference Wrap

up.</FONT></DIV>

<DIV><FONT color=#000000 size=2>11:00am - Young Adult

forum with

Levitz</FONT></DIV>

<DIV><FONT color=#000000 size=2> Bradley is

Chair of the President's

Committee on Mental Retardation and Pres. of Human

Services

Research</FONT></DIV>

<DIV><FONT color=#000000 size=2> Levita is the

Self -Advocate

Coordinator for Capabilities Unlimited and co-editor

of the Community Advocacy

Press</FONT></DIV>

<DIV><FONT color=#000000 size=2> Capone, MD is

the Director of the Down

Syndrome Clinic and Attending Physician on the

Neurobehaviorial Unit at the

Kennedy Krieger Institute in Baltimore,MD. He is also

leading research on the

effects of the drug Piracetam.</FONT></DIV>

<DIV><FONT color=#000000 size=2>Louis Sullivan is

President of Morehouse School

of Medicine and served as U.S & gt; Secretary of Health

and Human

Services</FONT></DIV>

<DIV><FONT color=#000000 size=2>Hope this helps plan

what you want to hear. I

can't remember what date you said you will be in

Atlanta but we should be here -

not planning on going anywhere so hope to meet or talk

to you.</FONT></DIV>

<DIV><FONT color=#000000 size=2>Margaret. & nbsp;

</FONT></DIV></BODY></HTML>

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June 27, 2006

Kim,

I will meet who ever needs me to meet at the College Park Station. This

is 1 station from the Airport. You will do fine lolol and y'all will enjoy the

ride.

The Park is right across the street from the Omni. Just walk up to the

red light and cross the street. Now for all to know a Atlanta Police precint is

right on the other side of the CNN Center.

Clothing to wear lololol. Ummmmmm Summer clothes that will be cool since

Atlanta is HOT. Tank top and short's. Bring 1 pair of pant's and a light

jacket just in case. The rest short's and tanks. Sandals or sneakers for shoes.

Dress comfy though. Remember this is a Conference and fun time. As I have

said before and I will dress comfortable. Swim suits if you want to.

The

kids may get in the pool in their sessions or after. Also across the street

at the Park is the water fountain this comes from the ground kids run through

this water. lololol Ummm adults too.

Make sure you bring a Notebook and pen, Cameras, If you want to mail

something from Atlanta you can do so Ummmm Addresses of those you want to mail

to. Bring the child's medications.

Make sure if you carry a purse to keep it close to you. I carry a fanny

pack myself. If you have pockets this is a good idea to keep credit cards and

cash in there. DO NOT flash cash around as this tends to draws attention

anywhere you go. I want this to be a enjoyable time for everyone. Bring the

Stroller if you want. Sunscreen also. Extra diaper's and diaper rash cream

lololol. Am I forgetting anything yet?

Most have my Cell number. So if you need me call me. Ok chime in if I

have forgot anything

Robbin

June 28, 2006

Not yet, but can we do Friday night maybe?? Maybe somewhere in the

hotel lobby or something.

Alia and Caroline, age 4, poly and uveitis

Evan - Just turned the big NUMBER 1 !!!

>

> HAs anyone established ameeting place, timefor the list to meet while

in Atlanta???

> Donna

>

________________________________________________________________________

> Check out AOL.com today. Breaking news, video search, pictures, email

and IM. All on demand. Always Free.

>

June 28, 2006

I am hip to any time just let me know.

Robbin

June 28, 2006

I swear Caroline gets cuter and cuter with age (not that she wasn't unbelievably

adorable to begin with). She doesn't look like a baby anymore.. she actually

looks like a little girl!! She is so adorable though and its hard to believe

when you look at her what an amazing survivor she is, but she is. Thanks for

sharing the picture!

Lots of Love

(JAS, 21)

Alia Pranke <aliaalan@...> wrote:

Not yet, but can we do Friday night maybe?? Maybe somewhere in the

hotel lobby or something.

Alia and Caroline, age 4, poly and uveitis

Evan - Just turned the big NUMBER 1 !!!

>

> HAs anyone established ameeting place, timefor the list to meet while

in Atlanta???

> Donna

>

__________________________________________________________

> Check out AOL.com today. Breaking news, video search, pictures, email

and IM. All on demand. Always Free.

>

July 10, 2006

Kim,

Yes meeting at 5:30 or 6:00pm Friday in the Omni Lobby. Then we can go

over to the Park if y'all want to. Now remember on July 15th there will be a

big Celebration at the park. So we can also go there also. I think the last

count was almost 50 people.

Robbin

July 10, 2006

Ok - I want to make sure that we don't miss meeting anyone from the

group. Does anyone have a list of who all is going for sure? It

looked like there were quite a few when we all started posting but I

never kept exact track of numbers or names.

Robbin : still meeting on Friday in the lobby 5:30/6:00?

Can't wait to meet everyone !

The Summerhill Family

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