Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 << 1. Has your child received the Hepatitis B vaccine? Yes, at birth 2. Did your doctor inform you that you can sign a personal waiver NOT to receive hepatitis B or any vaccine for that matter? NO If NO, did the nurse inform you of your right to be exempt from receiving immunizations? NO 3. Has your doctor discussed the risks involved in receiving immunizations; that adverse reactions can cause immediate or long term problems, including death, in some people? NO If NO, did the nurse? NO 4. Did you know that The National Vaccine Information Health Center (established 1982) in Washington released figures during the week of January 24th, 1999 which show that the number of Hepatitis-B vaccine-associated serious adverse event and death reports in American children under the age of 14 outnumber the reported cases of Hepatitis B disease in that age group? NO 5. Did you know that a national poll reveals that two thirds of all Americans want the right to make informed, voluntary decisions about vaccination? I did not know then.... but I know now Would you like to make informed, voluntary decisions about vaccines? YES 6. Did you know that polio has been eradicated and only exists in India today? Yes And did you know that the only known cause of polio in the United States is from people who have an adverse reaction to the vaccine, or, in a few cases polio that was brought in from outside the country? Yes Do you have anything that you would like to share that would be pertinent to the T.V. program on a parents rights to be informed and freedom to choose? >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 ---Harmonious Living <harmony@...> wrote: > > From: " Harmonious Living " <harmony@...> > > My name is Kathy Smiley and I am preparing for a one hour live interview on > Public Access T.V. In Reno Nevada next Wednesday. Your input in responding > to this questionnaire would be greatly appreciated. > > 1. Has your child received the Hepatitis B vaccine? yes, at birth > 2. Did your doctor inform you that you can sign a personal waiver NOT to > receive hepatitis B or any vaccine for that matter? no > If NO, did the nurse inform you of your right to be exempt from receiving > immunizations? no > 3. Has your doctor discussed the risks involved in receiving > immunizations; that adverse reactions can cause immediate or long term > problems, including death, in some people? no, in fact he called me irresponsible when i raised my doubts on the effectiveness and safety of immunizations > If NO, did the nurse? no > 4. Did you know that The National Vaccine Information Health Center > (established 1982) in Washington released figures during the week of > January 24th, 1999 which show that the number of Hepatitis-B > vaccine-associated serious adverse event and death reports in American > children under the age of 14 outnumber the reported cases of Hepatitis B > disease in that age group? i do know, but didn't when my son was born. > 5. Did you know that a national poll reveals that two thirds of all > Americans want the right to make informed, voluntary decisions about > vaccination? Would you like to make informed, voluntary decisions about > vaccines? i certainly would. and what i would like to see even more is to put the health of humans BEFORE the greed of large corporations such as pharmaceutical companies > 6. Did you know that polio has been eradicated and only exists in India > today? And did you know that the only known cause of polio in the United > States is from people who have an adverse reaction to the vaccine, or, in a > few cases polio that was brought in from outside the country? yes > Do you have anything that you would like to share that would be pertinent > to the T.V. program on a parents rights to be informed and freedom to > choose? i would like to ask everybody who considers immunizing their children to wonder why the pharmaceutical companies in the western world are the most successful companies in terms of profit! > Thank you for your time, > Kathy > Send your repsonse to harmony@... > visit my web site for women age 30-90 www.awomansneeds.com > > > > ------------------------------------------------------------------------ > Ta Da! Come see our new web site! > > Onelist: A free email community service > == http://homepages.infoseek.com/~lovingdolphin1/geninfo.html silly verses http://www.freeyellow.com/members6/saraavidolphin/index.html go holistic! http://www.freeyellow.com/members6/saraavidolphin/page1.html channelings about atlantis and today icq 8082968 subscribe to NATURAL_PARENT, /subscribe.cgi/natural_parent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 > 1. Has your child received the Hepatitis B vaccine? My Daughter recieved 1 round of HepB at 2 months. My son has not recieved any vaccines. > 2. Did your doctor inform you that you can sign a personal waiver NOT to > receive hepatitis B or any vaccine for that matter? No. > If NO, did the nurse inform you of your right to be exempt from receiving > immunizations? No, I've always been told that my child will not be able to enroll in schools/day care if they are not vaccinated. I found out on my own that this is not true. > 3. Has your doctor discussed the risks involved in receiving > immunizations; that adverse reactions can cause immediate or long term > problems, including death, in some people? No, my doctor has *never* discussed adverse reactions to vaccinating with me. I've always been told about the horrible outcomes of the disease itself. > If NO, did the nurse? Again, no. But I have been completely informed about the outcomes of catching the disease naturally, and have been shown videos of babies dying horrible painful deaths from these diseases. > 4. Did you know that The National Vaccine Information Health Center > (established 1982) in Washington released figures during the week of > January 24th, 1999 which show that the number of Hepatitis-B > vaccine-associated serious adverse event and death reports in American > children under the age of 14 outnumber the reported cases of Hepatitis B > disease in that age group? > Yes. > 5. Did you know that a national poll reveals that two thirds of all > Americans want the right to make informed, voluntary decisions about > vaccination? Would you like to make informed, voluntary decisions about > vaccines? > YES! > 6. Did you know that polio has been eradicated and only exists in India > today? And did you know that the only known cause of polio in the United > States is from people who have an adverse reaction to the vaccine, or, in a > few cases polio that was brought in from outside the country? > Yes. > Do you have anything that you would like to share that would be pertinent > to the T.V. program on a parents rights to be informed and freedom to > choose? Each child is different, no pattern can fit them all. Vaccines should be decided on a case by case basis, and not prescribed for the general population. Parents have minds, and parents *always* want what is best for thier children. Treating parents as if they can't possibly understand the possible risks and benefits of a vaccine and scaring them into compliance isn't good medicine, nor is it ethical. > Thank you for your time, > Kathy > Send your repsonse to harmony@... > visit my web site for women age 30-90 www.awomansneeds.com > > ------------------------------------------------------------------------ > Ta Da! Come see our new web site! > > Onelist: A free email community service Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 > 1. Has your child received the Hepatitis B vaccine? No > 2. Did your doctor inform you that you can sign a personal waiver NOT > to > receive hepatitis B or any vaccine for that matter? No > If NO, did the nurse inform you of your right to be exempt from > receiving > immunizations? No > 3. Has your doctor discussed the risks involved in receiving > immunizations; that adverse reactions can cause immediate or long term > > problems, including death, in some people? No, not voluntarily. He *did* quote " the benefits outweigh the risk " (sounds like a broken record (!) when I stated I did not want my child given the shot. > If NO, did the nurse? No. > 4. Did you know that The National Vaccine Information Health Center > (established 1982) in Washington released figures during the week of > January 24th, 1999 which show that the number of Hepatitis-B > vaccine-associated serious adverse event and death reports in > American > children under the age of 14 outnumber the reported cases of Hepatitis > B > disease in that age group? I think I saw that. > 5. Did you know that a national poll reveals that two thirds of all > Americans want the right to make informed, voluntary decisions about > vaccination? Would you like to make informed, voluntary decisions > about > vaccines? I think we should have that right. > 6. Did you know that polio has been eradicated and only exists in > India > today? And did you know that the only known cause of polio in the > United > States is from people who have an adverse reaction to the vaccine, or, > in a > few cases polio that was brought in from outside the country? Didn't know about India. Was already aware that the only people getting polio here were those who got it from the vaccine. > Do you have anything that you would like to share that would be > pertinent > to the T.V. program on a parents rights to be informed and freedom to > choose? Doctors are, from what I've seen the past ten years or so, only pushing the vaccines, and not being very up front about possible reactions. > > > Thank you for your time, > Kathy > Send your repsonse to harmony@... > visit my web site for women age 30-90 www.awomansneeds.com > > ---------------------------------------------------------- > ------------- > Ta Da! Come see our new web site! > > Onelist: A free email community service Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 1999 Report Share Posted February 27, 1999 >From: " Harmonious Living " <harmony@...> ><Vaccinationsonelist> >Date: Thu, 25 Feb 1999 15:30:41 -0800 >Reply-to: Vaccinationsonelist >Subject: Questionnaire >1. Has your child received the Hepatitis B vaccine? >YES, AT BIRTH. >2. Did your doctor inform you that you can sign a personal waiver NOT to >receive hepatitis B or any vaccine for that matter? >NO >If NO, did the nurse inform you of your right to be exempt from receiving >immunizations? >NO >3. Has your doctor discussed the risks involved in receiving >immunizations; that adverse reactions can cause immediate or long term >problems, including death, in some people? >NO >If NO, did the nurse? >NO >4. Did you know that The National Vaccine Information Health Center >(established 1982) in Washington released figures during the week of >January 24th, 1999 which show that the number of Hepatitis-B >vaccine-associated serious adverse event and death reports in American >children under the age of 14 outnumber the reported cases of Hepatitis B >disease in that age group? >YES >5. Did you know that a national poll reveals that two thirds of all >Americans want the right to make informed, voluntary decisions about >vaccination? Would you like to make informed, voluntary decisions about >vaccines? >NO, YES >6. Did you know that polio has been eradicated and only exists in India >today? And did you know that the only known cause of polio in the United >States is from people who have an adverse reaction to the vaccine, or, in a >few cases polio that was brought in from outside the country? >YES, YES >Do you have anything that you would like to share that would be pertinent >to the T.V. program on a parents rights to be informed and freedom to >choose? > >Thank you for your time, >Kathy >Send your repsonse to harmony@... >visit my web site for women age 30-90 www.awomansneeds.com > > > >------------------------------------------------------------------------ >Ta Da! Come see our new web site! > >Onelist: A free email community service Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 Carol, A questionnaire sounds like a great idea. Maybe we can give the medical society some views from the people who live, breathe and SWALLOW this condition. By the way, recently went to my OB/GYN and was told that I can no longer have any more children due to the thinning of my uterus. (I could die!). My uterus was so thin that when he proceeded with the C-section, he could see directly through the muscle to my infant. Anyway, he suggested that there may be a link because the uterus is also a muscle. It something I would like to look into. Does anyone else have any other similar problems. Best regards to all, Cheryl Cini __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 Cheryl brings up an interesting point, i.e., the need for US to provide the medical community with some " real life " information about this disorder. I've been struck by how little information seems to exist in the professional literature about long-term management of achalasia. When I ask my doctor about this, he says, " I don't know. " And I'm in an area with pretty high-level access to medical care, so something tells me that there just hasn't been much done in this subject yet. Do any of us someone who is actually conducting current research in long-term issues with achalasia? Someone affliated with the Cleveland Clinic, maybe? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Just a few thoughts re: the Questionnaire and Vicki's question about what the medical community is doing. I'm scheduled for surgery in about 10 days. My doctor has been treating Achalasia for at least 10 years. He's affilated with Harvard Medical School. He made a comment about sitting around with other Thoracic surgeons disscussing the merits of various treatment methods for Achalasia just for the heck of it. So it seems he's had quite a bit of experience and exposure to this disease. I had been thinking I'd mention our group's interest and willingness to offer up information for research and see if he knew anyone in the medical community that would welcome our input or perhaps there is a medical student that might take it on as a project - someone who's more versed in proper research. On a side note: If we do the questionnaire ourselves, some of my thoughts were to break things out by age, and detail info within. ie: Family History - others with the problem, other diseases they suffered from and so on. Infancy - diseases & treatments and severity of illness, medications, general health, weight, where you live, pets, siblings, etc. List the same for childhood - 2 to 11, teenage years and adulthood. History of your own Achalasia symptoms and treatments. Include info on eating habits, environmental contamination such as airborne particles, chemicals, list any diet supplements, vitamins, herbal supplements. I think more importantly than asking " did you have " we should try to get as much information as possible throughout the life stages, then it needs to be compiled with an eye towards spotting similarities. I'll let you know if my doctor responds enthusiastically to my inquries about someone in the medical community taking on the project. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Jane, Great idea! Count me in to help. Best approach is to stick to basic factual stuff first - expanded questionnaires following some thread of similar past histories can come later. Firstly : Age & at onset of achalasia type of achalasia suffered (vigorous, non-vigourous etc)? what treatment employed? When? Successful? For how long? Would you recommend your specialist/surgoen/medical centre to others with this disorder? Do you suffer from other digestive problems? Prior to onset of achalasia, or after? Have you/ do you rely on antacids? any unusual past medical history,( eg chronic problem requiring ttmt, operations etc)? any noticeable health problems immediately prior to first achalasia symptoms? Diet - meat eater/vegetarian/vegan? Medications/ health supplements taken for extended periods ? any past history swallowing probs/ throat cancer in family? any past history ongoing dental problems? facial/mouth herpes? pets - (alsatians have achalasia as an inherited disorder)? travelled o/seas prior to achalasia - where? ever caught any parasites? etc, etc I'm sure others can think of many other pertinent q's-those were off the top of my head. But we could do with an interested medical party to collate all the answers and look for commonalities. I can help with that in an informal way if you like. Have done similar health related social reseach at Uni years ago - bit rusty though. My being in Sydney Australia might pose a problem when most of you are in the States or UK. By the way, I've never had a head injury, and still have a healthy gall bladder I think. I eat meat, have had a successful myotomy with dor fundoplication to prevent reflux which seems to work very well. I have had mnor digestive probs dating back years - other than that nothing major to report. Consider myself pretty lucky so far especially after reading some of your stories. I think this egroup is a wonderful resource especially since this is a relatively rare condition. Cheers everyone. Regards Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Hi Everyone-- I think Jeanne's idea of connecting an interested medical person to our survey idea is a terrific one. That way, we can make sure we stay on the beam AND our survey results are more likely to be put to good use. Any of us know any likely researchers? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 There's another possibility: we could contact the ISRDN about questionnaires. They might already have something we could use or adapt. Carol Re: Re: Questionnaire > Hi Everyone-- > > I think Jeanne's idea of connecting an interested medical person to our > survey idea is a terrific one. That way, we can make sure we stay on the > beam AND our survey results are more likely to be put to good use. > > Any of us know any likely researchers? > > Vicki > > > > > > Shop online without a credit card http://www.rocketcash.com RocketCash, a NetZero subsidiary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 Thanks Noel for the questionnaire, it certainly does make much more sense, than relying on ELISA, Western Blots, CD4 counts and Viral Loads surrogate markers. All the best phine Re: mercury meter > > > > Jesus Bob, this is scary stuff... > > > > I live in Ireland and have no idea if there are dentists here who can > > extract mercury fillings...having said that, I just realised that I do > know > > a Hiv+ dentist I can email. I will keep you posted. > > > > Regards > > > > > > The way I saw it was that I didn't have medical insurance, > so I didn't need to go to a toxicologist for a porphyrin > test to justify a prescription for amalgam removal to get > the insurance company to pay. Since I was paying for > everything, no tests. I happened to have a blood test on > hand and I had a hair test for mineral assessment, but I > didn't pay for a porphyrin test for mercury. > > Don't Be a Hero--just do what you can afford-- > > I looked at all tests as noble things to do for somebody else, > to construct before and after evidence for a group like > this, and the mercury groups that catalog that data both > to educate and to bring collective pressure such as > lobbying and suing the perps. I couldn't afford to be > noble or heroic, so I skipped the porphyrin test, which > is the only conclusive test for mercury poisoning. > > I really should have used a mercury-free dentist, if only > to support them. I just went to the closest dentist and > asked if he would mind swapping out my " old " mercury > fillings, which ranged in age from twenty to forty years > old each, and he said yes. The cost was five hundred > dollars. He used a rubber dam because he always uses > that for whatever reason, and that keeps a lot of mercury > vapor from being breathed in, but he didn't give me an > oxygen mask for my nose, which some do. I must have > breathed mercury vapor through my nose, and so did > the dentist and his assistant. Not good, but I used every > oral chelating supplement plus green juicing for three > to six months(alpha lipoic acid, C, l-glutathione, NAC, > CoQ10, milk thistle, dong quai, green juice, broccoli, > brussels sprouts, collards and kale and wheatgrass for > juice, mixed with celery and/or melons in juice). > > If your dentist is HIV+ he should be careful during > amalgam removal. Removing amalgams is dangerous > for dentists and assistants, since they do it for many > people. They should have an air exhaust system pulling > from near the patient's mouth, and use a rubber dam > in the patient's mouth, and drop the mercury material > into water and keep a lid over the container. > > Some of what I assumed to be cleansing crisis, worse > symptoms, are attributed by others to not wearing an > oxygen mask. I did have the rubber dam, and you > could insist on at least that, and it is standard for > generic who cares dentists for all procedures so you > will probably get it. At least get the rubber dam. > > If you have had even a good physical you have a > blood test on record which will show high red cell > count and low hemoglobin quality. That should > persuade you, along with any symptoms on the > list I posted, such as hypothyroidism(low waking > temp, cold hands and feet) or MS type symptoms > (nerve damage such as numb or itching spots or > extremities, Alzheimer's forgetfulness). > > I'll have to dump the dentist soon since he gives > fluoride treatment to children every time they > come in without asking their parents, and he > refuses to listen about mercury and fluoride. I'll > find a mercury-free and fluoride-free dentist to > support. > > My dentist's assistant quit to go to work for a > zealous mercury-free dentist. Actually my > dentist mainly uses composites, but he's not > radical, and uses fluoride, and that's not good > enough. > > You could do a hair test through the mail using > a lab anywhere in the world. I think the offer > you got here was from Africa. > > -Bob > > > Read AIDS-Cured Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Here we go again. Another getting to know you. Simply cut and paste into a new email and answer these questions. 1. Full name: Diane Loretta Bornscheuer 2. favorite color: yellow 3. favorite dessert: too hard to narrow down, but it's definitely something chocolate 4. favorite food: pasta 5. If you were a crayon, what color would you be? red 6. what did you want to be when you grew up? a writer 7. dream car: Mercedes convertible 8. dream vacation: an extended tour of Europe with time for beaches, sightseeing and just drinking in the culture in remote places 9. favorite TV show(s) Grey's Anatomy, Lost, House 10. favorite cartoon character: Ginger 11. do you collect anything? just my kids' artwork and school projects 12. can you swim? of course . . . I live in AZ 13. pierced ears? nope 14. favorite flower: gladiolas 15. sing karaoke? no way, I'm awful 16. would you bungee jump? no 17. would you skydive? hell no 18. 1 word to describe yourself: frazzled 19. If you were on a deserted island, name 3 must haves: my family, drinking water, McGyver 20. like or dislike these type emails? like 21. one thing most people don't know about you: if I wanted them to know, they would! 22. favorite type of music: my musical tastes are pretty varied, but I guess mainly " alternative " 23. most embarassing album/CD/cassette you own? probably Boys II Men 24. if you could trade places with 1 person for a day, who? Angelina Jolie, for obvious reasons 25. If you could meet/talk to anybody dead or alive, who? probably my grandfather b/c I miss him, realize more and more how special he was, would like him to know what's going on in my life, and hope he could share info about the " hereafter " send it to all your friends and back to the person who sent it. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 > 19. If you were on a deserted island, name 3 must haves: my family, > drinking > water, McGyver Oh definitely Mcgyver - he can make anything out of nothing LOL loved that answer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 and Diane, Heck I almost put down Tim McGraw lololol Here y'all put down McGyver I am not sure who that is unless it is the guy who played Mcgyver on the show lololol Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Robin- There was a show called McGyver, and the guy could make absolutely anything out of normal everyday objects. He'd be very handy on a deserted island. I'd need him to build a boat, hunting tools, a stove. . . whatever :-) Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 yes Dean who played Macgyver on TV LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 > > > > Here we go again. > Another getting to know you. Simply cut and paste into a new email and > answer > these questions. > > 1. Full name: Marie Dykhuizen....took me forever to learn how spell my married name! The dutch boy I married was worth the pitiful name! lol > 2. favorite color: green > 3. favorite dessert: Cheesecake with strawberries, but its the milkduds that I crave at least once a month! > > 4. favorite food: carbs...Right now I am on a low-carb diet. Its working great because I am denying myself my favorite foods of course! :-) > 5. If you were a crayon, what color would you be? green > 6. what did you want to be when you grew up? a social worker and to run an orphanage. > > 7. dream car: I am a total soccer mom (basketball mom really) just give me any type of van that will hold a bunch of kids! > 8. dream vacation:I would love to go to Hawaii > > 9. favorite TV show(s) Currently I like the show " so you think you can dance " . I can't dance but I like to pretend that I can! lol > 10. favorite cartoon character: spongebob > 11. do you collect anything? not really. > 12. can you swim? Its my favorite form of exercise, its just the swimsuits that I hate. > 13. pierced ears? yes > 14. favorite flower: pink roses > 15. sing karaoke? Only sing in the car...My kids are still young enough to think I am great! > 16. would you bungee jump? never ever ever! > 17. would you skydive? only for a million dollars and even then its quite likely that I would chicken out! > 18. 1 word to describe yourself: passionate > 19. If you were on a deserted island, name 3 must haves: water, my family, food would be nice. > 20. like or dislike these type emails? like > 21. one thing most people don't know about you: I really am shy. > 22. favorite type of music: christian music and 80's rock. > > 23. most embarassing album/CD/cassette you own? Air supply...hahaha > 24. if you could trade places with 1 person for a day, who? This is a really hard one. I keep thinking I would just trade with any rich and famous person with a hot body...But then what would be the point of having all the wealth and good looks if I couldn't share it with my hubby? I will have to continue to think on this one, for now noone comes to mind. > 25. If you could meet/talk to anybody dead or alive, who? I guess I would ask to speak with Jesus...I have a whole lot of questions for him. > send it to all your friends and back to the person who sent it. > > [Non-text portions of this message have been removed] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 , Yes that's the man lolol. He also played on a Soap Opera lolol Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Sorry, I haven't been online much lately as I've been feeling worse than my usual "not so good". BP and pulse have been up slightly and I feel absolutely exhausted. Nothing has changed as far a diet and meds, so I don't have a clue as to what is going on. Electrolytes and other blood work is OK. I had to cut down to 2 days per week at work and I am barely making it through the day when I do work. Enough complaining though, I'm still here ;-) Dr. Grim, I can take the questionnaire from the study we did, make a template out of it in Word format and upload it to the site. People could download it to their own computer, fill in their own personal info and upload it back to the group site. Would that work? a From: Clarence Grim <lowerbp2mac (DOT) com>Subject: [hyperaldosteronism ] (unknown)"hyperaldosteronism @groups. com" <hyperaldosteronism>Received: Monday, June 8, 2009, 1:07 AM Would like to have someone to volunteer to keep aRunning tab ofNew members and ex or can we we up a newbies database that would allow a newbie to enter their own info and update it as events develop.?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Get it Now for Free! color: #1E66AE; font-weight: bold; } div#ygrp-mlmsg #ygrp-msg p a span.yshortcuts { font-family: Verdana; font-size: 10px; font-weight: normal; } #ygrp-msg p a { font-family: Verdana; font-size: 10px; } #ygrp-mlmsg a { color: #1E66AE; } div.attach-table div div a { text-decoration: none; } div.attach-table { width: 400px; } --> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 thanks a: I would prefer to just let them use the one you set up on the net as it is much easier to analyze and we don't have to enter the data. How long an we keep it at that site? I think the DB is limited to size. Sorry to hear you are not feeling so well. Can you list the drugs you are on? Clarence E. Grim, BS, MS, MD Specializing in Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in population's today. On Tuesday, June 09, 2009, at 03:46PM, " a Hall " <shahall@...> wrote: >Sorry, I haven't been online much lately as I've been feeling worse than my usual " not so good " .   BP and pulse have been up slightly and I feel absolutely exhausted. Nothing has changed as far a diet and meds, so I don't have a clue as to what is going on. Electrolytes and other blood work is OK.  I had to cut down to 2 days per week at work and I am barely making it through the day when I do work.  Enough complaining though, I'm still here ;-) > >Dr. Grim, I can take the questionnaire from the study we did, make a template out of it in Word format and upload it to the site. People could download it to their own computer, fill in their own personal info and upload it back to the group site. Would that work? > >a > > > > > > >From: Clarence Grim <lowerbp2mac (DOT) com> >Subject: [hyperaldosteronism ] (unknown) > " hyperaldosteronism @groups. com " <hyperaldosteronism@ groups. com> >Received: Monday, June 8, 2009, 1:07 AM > > > > >Would like to have someone to volunteer to keep a >Running tab of >New members and ex or can we we up a newbies database that would allow >a newbie to enter their own info and update it as events develop.? > >Tiped sad Send form mi >iPhone ;-) > >May your pressure be low! > >CE Grim MD >Specializing in Difficult >Hypertension > > > >Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Get it Now for Free! >color: #1E66AE; font-weight: bold; } div#ygrp-mlmsg #ygrp-msg p a span.yshortcuts { font-family: Verdana; font-size: 10px; font-weight: normal; } #ygrp-msg p a { font-family: Verdana; font-size: 10px; } #ygrp-mlmsg a { color: #1E66AE; } div.attach-table div div a { text-decoration: none; } div.attach-table { width: 400px; } --> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 We can do that, as far as I know it stays on the site until I delete it. It's still open at http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and it looks like 32 people have now taken it. The drawbacks are it can't be updated or changed once it's been completed plus the results don't go to the group to be seen by all. I own a group at and got around the space issue by adding a new group just to hold files and data. If we run short of space here just start a new one and call it PA Library, or some such name. Meds haven't changed in at least 2 years, probably longer. Spiro 100 mg BID Toprol XL 50 mg Lipitor 20 mg Omeprazole 20 mg Plavix 75 mg ASA 81 mg MG 500 mg Ca + D CA + D I have to go now and try to stay awake to see the Red Wings win the Stanley Cup - again. Go Wings! a > > > > > >From: Clarence Grim <lowerbp2mac (DOT) com> > >Subject: [hyperaldosteronism ] (unknown) > > " hyperaldosteronism @groups. com " > <hyperaldosteronism> > >Received: Monday, June 8, 2009, 1:07 AM > > > > > > > > > >Would like to have someone to volunteer to keep a > >Running tab of > >New members and ex or can we we up a newbies database > that would allow > >a newbie to enter their own info and update it as > events develop.? > > > >Tiped sad Send form mi > >iPhone ;-) > > > >May your pressure be low! > > > >CE Grim MD > >Specializing in Difficult > >Hypertension > > > > > > > >Make your browsing faster, safer, and easier with the > new Internet Explorer® 8. Optimized for Get it Now > for Free! > >color: #1E66AE; font-weight: bold; } div#ygrp-mlmsg > #ygrp-msg p a span.yshortcuts { font-family: Verdana; > font-size: 10px; font-weight: normal; } #ygrp-msg p a { > font-family: Verdana; font-size: 10px; } #ygrp-mlmsg a { > color: #1E66AE; } div.attach-table div div a { > text-decoration: none; } div.attach-table { width: 400px; } > --> > > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 I think we might be able to have a column that would have a date that the form was completed. That way one could update their file and just use the new one to replace the old one. Put out a call for all who have not completed the survey who have been Dxed with PA to complete it and then I will invite all new folks to enter data now and then to update it as more data become available. So we would need a column that has not only date but another that has time of day. Or we could put both in same column using the format: yymmddhhmm using 24 hr clock time. So if I did it now ( june 9, 2009 at 1005PM or at 2205 I would enter 200906092205. This will be a constantly increasing number. Clarence E. Grim, BS, MS, MD Specializing in Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in population's today. On Tuesday, June 09, 2009, at 06:28PM, " a Hall " <shahall@...> wrote: > >We can do that, as far as I know it stays on the site until I delete it. It's still open at http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and it looks like 32 people have now taken it. The drawbacks are it can't be updated or changed once it's been completed plus the results don't go to the group to be seen by all. I own a group at and got around the space issue by adding a new group just to hold files and data. If we run short of space here just start a new one and call it PA Library, or some such name. > >Meds haven't changed in at least 2 years, probably longer. >Spiro 100 mg BID >Toprol XL 50 mg This can cause fatiure - Toprol >Lipitor 20 mg-if you are DASHing you may not need this due to improvement in lipids from diet. >Omeprazole 20 mg What is this for and have you tried stopping it? >Plavix 75 mg >ASA 81 mg Why are you on both Plavix and ASA? Seem young to be on both? >MG 500 mg >Ca + D >CA + D > >I have to go now and try to stay awake to see the Red Wings win the Stanley Cup - again. Go Wings! > >a > > > > >> > >> > >> >From: Clarence Grim <lowerbp2mac (DOT) com> >> >Subject: [hyperaldosteronism ] (unknown) >> > " hyperaldosteronism @groups. com " >> <hyperaldosteronism> >> >Received: Monday, June 8, 2009, 1:07 AM >> > >> > >> > >> > >> >Would like to have someone to volunteer to keep a >> >Running tab of >> >New members and ex or can we we up a newbies database >> that would allow >> >a newbie to enter their own info and update it as >> events develop.? >> > >> >Tiped sad Send form mi >> >iPhone ;-) >> > >> >May your pressure be low! >> > >> >CE Grim MD >> >Specializing in Difficult >> >Hypertension >> > >> > >> > >> >Make your browsing faster, safer, and easier with the >> new Internet Explorer® 8. Optimized for Get it Now >> for Free! >> >color: #1E66AE; font-weight: bold; } div#ygrp-mlmsg >> #ygrp-msg p a span.yshortcuts { font-family: Verdana; >> font-size: 10px; font-weight: normal; } #ygrp-msg p a { >> font-family: Verdana; font-size: 10px; } #ygrp-mlmsg a { >> color: #1E66AE; } div.attach-table div div a { >> text-decoration: none; } div.attach-table { width: 400px; } >> --> >> > >> > >> > >> >> >> ------------------------------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 The form can't be modified in any way once anyone has responded to it so I can't add date. So it can't be updated, that's what I meant before. The only other option that I can think of is what I said before. Upload a blank template to the site for members to download and fill out on their computer then upload their data back to the site. That could be modified, changed and added to anytime they want to upload a new one. I know Toprol makes you tired but since I've been on it for over 2 years I don't think it's just now kicking in. My cardiologist wants me to stay on it since I had LVH, he feels it's " heart protective " , or some such thing. I did try weaning down to 25 mg about a year ago and my heart rate went above 100. Lipitor - my cholesterol and lipids are always high, my LDL is high and my HDL is low. Same for my Dad. Plavix & ASA - I had two stents put in my legs almost 3 years ago. Yes, I was very young for this. As the doctor said, " I do this on 80 year olds, not 55 year olds " . My mother and two of her sisters had carotid endarterectomies in their 50's and my father had an MI and by-pass in his 50's. I have a great family HX. Omeprazole is generic prilosec. The Plavix gives me heartburn, I started taking it when I started the Plavix. a > >> > > >> > > >> >From: Clarence Grim <lowerbp2mac (DOT) com> > >> >Subject: [hyperaldosteronism ] (unknown) > >> > " hyperaldosteronism @groups. com " > >> <hyperaldosteronism> > >> >Received: Monday, June 8, 2009, 1:07 AM > >> > > >> > > >> > > >> > > >> >Would like to have someone to volunteer to > keep a > >> >Running tab of > >> >New members and ex or can we we up a newbies > database > >> that would allow > >> >a newbie to enter their own info and update it > as > >> events develop.? > >> > > >> >Tiped sad Send form mi > >> >iPhone ;-) > >> > > >> >May your pressure be low! > >> > > >> >CE Grim MD > >> >Specializing in Difficult > >> >Hypertension > >> > > >> > > >> > > >> >Make your browsing faster, safer, and easier > with the > >> new Internet Explorer® 8. Optimized for > Get it Now > >> for Free! > >> >color: #1E66AE; font-weight: bold; } > div#ygrp-mlmsg > >> #ygrp-msg p a span.yshortcuts { font-family: > Verdana; > >> font-size: 10px; font-weight: normal; } #ygrp-msg > p a { > >> font-family: Verdana; font-size: 10px; } > #ygrp-mlmsg a { > >> color: #1E66AE; } div.attach-table div div a { > >> text-decoration: none; } div.attach-table { width: > 400px; } > >> --> > >> > > >> > > >> > > >> > >> > >> ------------------------------------ > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 If your LDL is high and the HDL is low, it may be time to add good fats to your diet and limit carbs. I do a low carb diet with a K of 3.5 and I'm not a mess - uncomfortable at times to be sure - and I am sick and tired of peeing all night since it messes with my cortisol, which makes weight loss hard - however detra test and cotton chewing test showed normal cortisol - whic means no Cushings disease. Is there a Carb Addicted version of DASH? If not, I can't do it, since I won't add diabetes to my list of symptoms if I can avoid it. The PA already has me be hypoglycemic and a diet where all the carb aren't in a reward meal won't help me. Hopefully I have a mass in one gland so that I can go off meds and eat more normally. Assuming I can ever save enough duckets to be off work for the surgery and recovery. Bindner > >> >> >> >> >> >From: Clarence Grim <lowerbp2mac (DOT) com>> >> >Subject: [hyperaldosteronism ] (unknown)> >> >"hyperaldosteronism @groups. com"> >> <hyperaldosteronism >> >> >Received: Monday, June 8, 2009, 1:07 AM> >> >> >> >> >> >> >> >> >> >Would like to have someone to volunteer to> keep a> >> >Running tab of> >> >New members and ex or can we we up a newbies> database> >> that would allow > >> >a newbie to enter their own info and update it> as> >> events develop.?> >> >> >> >Tiped sad Send form mi> >> >iPhone ;-)> >> >> >> >May your pressure be low!> >> >> >> >CE Grim MD> >> >Specializing in Difficult> >> >Hypertension> >> >> >> >> >> >> >> >Make your browsing faster, safer, and easier> with the> >> new Internet Explorer® 8. Optimized for > Get it Now> >> for Free! > >> >color: #1E66AE; font-weight: bold; }> div#ygrp-mlmsg> >> #ygrp-msg p a span.yshortcuts { font-family:> Verdana;> >> font-size: 10px; font-weight: normal; } #ygrp-msg> p a {> >> font-family: Verdana; font-size: 10px; }> #ygrp-mlmsg a {> >> color: #1E66AE; } div.attach-table div div a {> >> text-decoration: none; } div.attach-table { width:> 400px; }> >> --> > >> >> >> >> >> >> >> > >> > >> ------------ --------- --------- ------> >> > >> Quote Link to comment Share on other sites More sharing options...
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