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Re: Back form the Rheumy-

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Tanis - my heart goes out to you and your little girls. What other blood

work has been done so far? We know a family here in Columbus and their two

younger children have arthritis - among other autoimmune diseases. They also

see Dr. Vogler and the Institute for Health in New Jersey. Hang in there - try

to stay calm and if she gets to feeling to bad - call Dr. Vogler back - we

did several times - My husband's aunt lives in Lawrencville and she was

recently diagnosed with Lymes disease - that is why I was asking what other lab

work had been done. How long has she been sick - any other symptoms ? Sandi

Ken Hunter (7 Systemic)

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There have been many days that Madison couldn't walk until after

lunchtime. She would just sit on the floor and tell us to carry her.

Also when her JRA started she couldn't walk for months.

Good luck and I hope and pray it's not JRA!!!

Ashlee (Madison, 3 1/2, Poly and Iritis)

Back form the Rheumy-

Well as I already expected, since has not had the symptoms for 6

weeks, she has been diagnosed with Unspecific Monoarticular

Arthritis. At this point, Dr. Volger has put her on naproxen for the

next month. He also wants me to go ahead and have her eyes tested.

In my opinion it doesn't look good, I am not trying to be negative,

just realistic. If her symptoms dissapear in the next two weeks, we

are probably in the clear. Otherwise he wants more bloodwork on her

in two to three weeks and will see her again July 24th. My poor baby

cannot walk at all today. Yesterday it lasted about 3 hours, and then

went on to limp and then was fine. Today by naptime, she still was

unable to put weight on her leg without screaming in pain. Is this

normal? This type of reaction is new to me since the joints that

affect Kylie are not weight bearing joints. I am just sick about

this. I wish I could fast forward three weeks to know if she is going

to be better or not. Ugh, waiting is the worst isn't it?!

Tanis

Kylie 3, pauci

22 months, unspecific arthritis

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Tanis,

I've read your posts and wanted you to know that I'm praying for your

little girl. My daughter was diagnosed with poly JRA a couple of

months ago. She's now 20 months old. It's in her fingers, toes,

wrists, ankles and now her right knee. When it went to her knee last

week, she stopped walking and started crawling. But even before that,

there were many mornings she wouldn't walk for a few hours after waking

up.

Good luck.....hope that this is something that's temporary and not JRA.

Kathy

_____

From: [mailto: ] On

Behalf Of Ashlee Blair

Sent: Thursday, June 22, 2006 1:58 PM

Subject: RE: Back form the Rheumy-

There have been many days that Madison couldn't walk until after

lunchtime. She would just sit on the floor and tell us to carry her.

Also when her JRA started she couldn't walk for months.

Good luck and I hope and pray it's not JRA!!!

Ashlee (Madison, 3 1/2, Poly and Iritis)

Back form the Rheumy-

Well as I already expected, since has not had the symptoms for 6

weeks, she has been diagnosed with Unspecific Monoarticular

Arthritis. At this point, Dr. Volger has put her on naproxen for the

next month. He also wants me to go ahead and have her eyes tested.

In my opinion it doesn't look good, I am not trying to be negative,

just realistic. If her symptoms dissapear in the next two weeks, we

are probably in the clear. Otherwise he wants more bloodwork on her

in two to three weeks and will see her again July 24th. My poor baby

cannot walk at all today. Yesterday it lasted about 3 hours, and then

went on to limp and then was fine. Today by naptime, she still was

unable to put weight on her leg without screaming in pain. Is this

normal? This type of reaction is new to me since the joints that

affect Kylie are not weight bearing joints. I am just sick about

this. I wish I could fast forward three weeks to know if she is going

to be better or not. Ugh, waiting is the worst isn't it?!

Tanis

Kylie 3, pauci

22 months, unspecific arthritis

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-Tanis,

It will be a long wait, but we are here waiting with you. I hope

your little one starts to feel better soon.

hugs Helen and (8,systmeic)

-- In , " littlet_78 " <littlet_78@...> wrote:

>

> Well as I already expected, since has not had the symptoms

for 6

> weeks, she has been diagnosed with Unspecific Monoarticular

> Arthritis. At this point, Dr. Volger has put her on naproxen for

the

> next month. He also wants me to go ahead and have her eyes

tested.

> In my opinion it doesn't look good, I am not trying to be

negative,

> just realistic. If her symptoms dissapear in the next two weeks,

we

> are probably in the clear. Otherwise he wants more bloodwork on

her

> in two to three weeks and will see her again July 24th. My poor

baby

> cannot walk at all today. Yesterday it lasted about 3 hours, and

then

> went on to limp and then was fine. Today by naptime, she still

was

> unable to put weight on her leg without screaming in pain. Is

this

> normal? This type of reaction is new to me since the joints that

> affect Kylie are not weight bearing joints. I am just sick about

> this. I wish I could fast forward three weeks to know if she is

going

> to be better or not. Ugh, waiting is the worst isn't it?!

>

> Tanis

> Kylie 3, pauci

> 22 months, unspecific arthritis

>

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Thanks for your concern, everyone-

She is having all the " typical " blood work, (same as Kylie had).

The only other symptoms is irritability (the last 6-8wks) and not

sleeping well. The swelling I only noticed on Wed. but she has

chubby knees and may have been swollen for a while just not as

severely. The trouble walking in the morning occured a few weeks

ago, and then never happened again until Wed. It took her about 3

hours to loosen up on WEd and until 4 pm yesterday. This morning,

she is still swollen but able to walk with minimal stiffness. She

is not complaining at all, whereas yesterday she whined all day

about her leg. Is it normal to go from one extreme to the other so

quickly? I am familiar with this because of Kylie, but has never

seemed to suffer as much as did the last two days. I'm

assuming it is just different since it's a weight bearing joint.

So full of soooo many questions!

Tanis

Kylie 3, pauci

almost 2, unspecfic mono arthritis

>

> Tanis - my heart goes out to you and your little girls. What

other blood

> work has been done so far? We know a family here in Columbus and

their two

> younger children have arthritis - among other autoimmune

diseases. They also

> see Dr. Vogler and the Institute for Health in New Jersey. Hang

in there - try

> to stay calm and if she gets to feeling to bad - call Dr. Vogler

back - we

> did several times - My husband's aunt lives in Lawrencville and

she was

> recently diagnosed with Lymes disease - that is why I was asking

what other lab

> work had been done. How long has she been sick - any other

symptoms ? Sandi

> Ken Hunter (7 Systemic)

>

>

>

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Thanks for your concern, everyone-

She is having all the " typical " blood work, (same as Kylie had).

The only other symptoms is irritability (the last 6-8wks) and not

sleeping well. The swelling I only noticed on Wed. but she has

chubby knees and may have been swollen for a while just not as

severely. The trouble walking in the morning occured a few weeks

ago, and then never happened again until Wed. It took her about 3

hours to loosen up on WEd and until 4 pm yesterday. This morning,

she is still swollen but able to walk with minimal stiffness. She

is not complaining at all, whereas yesterday she whined all day

about her leg. Is it normal to go from one extreme to the other so

quickly? I am familiar with this because of Kylie, but has never

seemed to suffer as much as did the last two days. I'm

assuming it is just different since it's a weight bearing joint.

So full of soooo many questions!

Tanis

Kylie 3, pauci

almost 2, unspecfic mono arthritis

>

> Tanis - my heart goes out to you and your little girls. What

other blood

> work has been done so far? We know a family here in Columbus and

their two

> younger children have arthritis - among other autoimmune

diseases. They also

> see Dr. Vogler and the Institute for Health in New Jersey. Hang

in there - try

> to stay calm and if she gets to feeling to bad - call Dr. Vogler

back - we

> did several times - My husband's aunt lives in Lawrencville and

she was

> recently diagnosed with Lymes disease - that is why I was asking

what other lab

> work had been done. How long has she been sick - any other

symptoms ? Sandi

> Ken Hunter (7 Systemic)

>

>

>

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That is just plain crazy- she is running around like nobody;s

business but this time yesterday she was completely immobile.

Is this just one more finger that is pointing to the fact it is in

fact jra?

Tanis

Kylie 3, pauci

22 months, unspecific arthritis

>

> It is very normal for one day to be really hurting and the next it

get

> better. Sandi Ken Hunter (7 Systemic)

>

>

>

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Tanis:

We have been on vacation and I am waay behind on e-mails. I am sending happy

thoughts, well wishes, lots of prayers & hugs your way. Yes, believe me waiting

is the worst. I sure hope you get answers sooner than we are. I has been

almost 3 months since we first saw the rheumy and I still have no idea what

diagnosis they are going to give Hannah. I hate waitng, but more I hate seeing

her in pain every day. Please keep me posted.

littlet_78 <littlet_78@...> wrote:

Well as I already expected, since has not had the symptoms for 6

weeks, she has been diagnosed with Unspecific Monoarticular

Arthritis. At this point, Dr. Volger has put her on naproxen for the

next month. He also wants me to go ahead and have her eyes tested.

In my opinion it doesn't look good, I am not trying to be negative,

just realistic. If her symptoms dissapear in the next two weeks, we

are probably in the clear. Otherwise he wants more bloodwork on her

in two to three weeks and will see her again July 24th. My poor baby

cannot walk at all today. Yesterday it lasted about 3 hours, and then

went on to limp and then was fine. Today by naptime, she still was

unable to put weight on her leg without screaming in pain. Is this

normal? This type of reaction is new to me since the joints that

affect Kylie are not weight bearing joints. I am just sick about

this. I wish I could fast forward three weeks to know if she is going

to be better or not. Ugh, waiting is the worst isn't it?!

Tanis

Kylie 3, pauci

22 months, unspecific arthritis

Beth Yohnk

Happy Thoughts..Be Well

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