Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Hehehehheee!!! LOL Congrats. to your clever son! :-)) SUE Ruby (2) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 That is great -- I was actually thinking of giving this Conference a miss this year -- But I think I am reconsidering!! (Ya know I am so busy with a Seniorthis year and School Bard duties!!) Can't wait to hear your complete story -- That is what makes it all worth coming is hearing the stories! ~guin KIGreen816@... wrote: > Hi Guin. I've been silently monitoring your posts. All is well here is MI > (Michigan, not the cardiac MI, never had one of those). They've asked me to > speak at the Young ICD conference in Ypsilanti in October and I said yes. I > told them my story is boring compared to many others (even more so after > looking at the lists of other people's meds!) but they still say they want > me. Next EP check is in 2 weeks, first time I've made it the full 6 months. > Yeah! > > > Please visit the Zapper homepage at > http://www.ZapLife.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 That is great -- I was actually thinking of giving the Conference a miss this year -- But I think I am reconsidering!! (Ya know I am so busy with a Senior this year and School Board duties!!) Can't wait to hear your complete story -- That is what makes it all worth coming, is hearing the stories! ~guin KIGreen816@... wrote: > Hi Guin. I've been silently monitoring your posts. All is well here is MI > (Michigan, not the cardiac MI, never had one of those). They've asked me to > speak at the Young ICD conference in Ypsilanti in October and I said yes. I > told them my story is boring compared to many others (even more so after > looking at the lists of other people's meds!) but they still say they want > me. Next EP check is in 2 weeks, first time I've made it the full 6 months. > Yeah! > > > Please visit the Zapper homepage at > http://www.ZapLife.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 Guin: My story is pretty boring so don't make the trip on my account. I'm feeling great, much to my cardio's surprise with EF of 26 (in addition to v-tach, I have sarcoid heart and lungs, CHF and non-ischemic dilated cardiomyopathy). I'm doing some serious weightlifting and riding an exercise bike 3 times per week. I'll know more on April 16 after interrogation. If it wasn't for all the meds I take and the occasional bouts of dizziness (due to low blood pressure, primarily), I wouldn't know that there was anything wrong with me. ita: Good luck with the ablation. Since you're in Ohio, you might want to consider coming to the conference in October. As Guin noted, listening to the stories and meeting others in similar situations is very worthwhile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 - Glad to know about the conference -- yes, we would actually be pretty close. I'll look forward to hearing more about it as you get details. And congrats on being invited to tell your story! That's great! ita Re: ..... Guin: My story is pretty boring so don't make the trip on my account. I'm feeling great, much to my cardio's surprise with EF of 26 (in addition to v-tach, I have sarcoid heart and lungs, CHF and non-ischemic dilated cardiomyopathy). I'm doing some serious weightlifting and riding an exercise bike 3 times per week. I'll know more on April 16 after interrogation. If it wasn't for all the meds I take and the occasional bouts of dizziness (due to low blood pressure, primarily), I wouldn't know that there was anything wrong with me.ita: Good luck with the ablation. Since you're in Ohio, you might want to consider coming to the conference in October. As Guin noted, listening to the stories and meeting others in similar situations is very worthwhile.Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 .... > Feel free to go ahead and give my email addy out to your co-worker. Would love to talk to her g-d about her experiences. I asked her today if her Granddaughter would be interested in 'talking' to you.... she said 'Oh yes!', and will mention it to her tonight. So tomorrow I will give her your e-mail addy. G.D.'s name is , so if you hear from her, that is who is she. Sue > -- " She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. " -- Mark Twain Rich and Sue Owens http://www.geocities.com/Yosemite/Meadows/7457/index3.html http://www.nothnbut.net/~reo77/aurora.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 I have been thinking of you and your mom recently and stopped by your webpage to check up on you. I was worried to see it has not been updated lately. I hope everything is going ok, drop us a note when you get a free moment. Know we are thinking of you and your mom and holding you close in our prayers. hugs Helen and (8,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Everything is going ok. Finished up this semester with a 3.2 I was a little disapointed by that but I will get over it eventually, I worked really hard unfortunately a 3.2 is all I could manage... My mom is doing pretty good she is doing way better then they expected, she finished her second round of chemotherapy and she is still doing really well, tired and crappy feeling but she is alive and surviving so that is what really matters we find out June 12th if the cancer has shrunk (we found out on the last scans that the radiation didn't work, if the chemo hasn't worked then hospice is all that is left as an option). As for me I am doing pretty good.. I had the nerve conducting study (for the numbness and tingling in feet which has progressed up my legs) done which showed nothing significant so my rheumy sent me to a neurologist who is now making me get a brain and spine MRI (which they have told me will take at least 3 hours) and an evoked potential test. I'm not positive what they are testing me for but as long as they figure it out and make it go away I will be happily content. As for the arthritis stuff I am doing actually quite good. I'm not saying anything because I don't want to jinx it but its been good no big flares or anything. And I got a membership at a YMCA and have been exercising everyday. Currently just trying to stay healthy try to look forward to going to San Francisco State Next Semester and spend as much time with my mom as I can. All things considered its going ok. So that is all thats going on. Lots of Love a very tired (21, JAS) hburger64 <hburger64@...> wrote: I have been thinking of you and your mom recently and stopped by your webpage to check up on you. I was worried to see it has not been updated lately. I hope everything is going ok, drop us a note when you get a free moment. Know we are thinking of you and your mom and holding you close in our prayers. hugs Helen and (8,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 Thanks for the update. Believe me 3.2 is great! That takes a lot of hard work to keep that kind of average and with all the stress you are going through to keep it that high is wonderful. I am sorry about your mom - I hope you have good news on the 12th. I'll keep praying for it. I'm glad you're feeling well arthritis-wise and I hope that they can give you some kind of relief with the other stuff. Hugs, Michele ( 19, spondy) Re: ..... Everything is going ok. Finished up this semester with a 3.2 I was a little disapointed by that but I will get over it eventually, I worked really hard unfortunately a 3.2 is all I could manage... My mom is doing pretty good she is doing way better then they expected, she finished her second round of chemotherapy and she is still doing really well, tired and crappy feeling but she is alive and surviving so that is what really matters we find out June 12th if the cancer has shrunk (we found out on the last scans that the radiation didn't work, if the chemo hasn't worked then hospice is all that is left as an option). As for me I am doing pretty good.. I had the nerve conducting study (for the numbness and tingling in feet which has progressed up my legs) done which showed nothing significant so my rheumy sent me to a neurologist who is now making me get a brain and spine MRI (which they have told me will take at least 3 hours) and an evoked potential test. I'm not positive what they are testing me for but as long as they figure it out and make it go away I will be happily content. As for the arthritis stuff I am doing actually quite good. I'm not saying anything because I don't want to jinx it but its been good no big flares or anything. And I got a membership at a YMCA and have been exercising everyday. Currently just trying to stay healthy try to look forward to going to San Francisco State Next Semester and spend as much time with my mom as I can. All things considered its going ok. So that is all thats going on. Lots of Love a very tired (21, JAS) hburger64 <hburger64@...> wrote: I have been thinking of you and your mom recently and stopped by your webpage to check up on you. I was worried to see it has not been updated lately. I hope everything is going ok, drop us a note when you get a free moment. Know we are thinking of you and your mom and holding you close in our prayers. hugs Helen and (8,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 , A 3.2 with all that's been going on is amazing, but I expect nothing less from you. ;0) I'm glad things are going well for you on the arthritis front and I hope that they get that tingling thing figured out soon. Enjoy your summer! Blessings, & (11-poly) (8), Caity (4) 's JRA Page: http://www.caringbridge.org/mn/palexander/ JRA Webring: http://d.webring.com/hub?ring=kidslivingwithar I GoodSearch for The Arthritis Foundation North/Central Chapter! Raise money for your favorite charity or school just by searching the Internet with GoodSearch - www.goodsearch.com - powered by > I have been thinking of you and your mom recently and stopped by your > webpage to check up on you. I was worried to see it has not been > updated lately. > > I hope everything is going ok, drop us a note when you get a free > moment. Know we are thinking of you and your mom and holding you close > in our prayers. > > hugs Helen and (8,systemic) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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