Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Beautiful words , beautiful thoughts from a beautiful lady. May God Bless you and yours, and all of ours on this list. It's ANZAC Day here in Australia and New Zealand- when we remember one of the most disastrous campaigns of WWI- the landing and battle against the Turks at Anzac Cove in Gallipoli. So many families lost their men that day, too many mothers lost their sons. (One entire family of 7 brothers from this area signed up!) I look at my little boy, with his sufferings, and I think (selfishly perhaps) that I still wouldn't be without him for the world. I keep you all in my prayers, and on my mind, Jo Bayly, 3, extended oligo > > Tonight I pondered this list and wondered where each family might be on this evening. >> I picture Alia watching over Miss Caroline..exhaustion seeping into > her soul as she watches the rash coming out over her sweet brown > eyed girl and surely she must entertain the thought as to when will > life be normal? > > I see Helen preparing to go off to the nightshift, but lingering at > Saras door. Her precious daughter...forgotten today..abandoned yet > again, but returned home to a loving family with the sweetest > brother that has such a big heart! > > I think of Robbin checking in on . A teenager willing to > have a skin biopsy in hopes it will help other kids with jra. how > amazing. > > I see ...tired with her own aches and pains but its her mothers > heart that I think about this night. Her big Mr. Rob...hiding his > knee pain from mom, from work, from doctors and my guess is he would > hide it from himself if he could! > I think about and her alex...they are in the tapering phase > of mtx...I so hoped that aundrea could have been that beacon of > light of a successful taper to kimberly and others. > > I see Patty checkin in on her girls. I love her sweet sense of > humor. I picture her doing the last load of laundry for the > night...of course its a load of darks! lol > > I see Jo...only its morning down under...so she is starting her day > with the kiddos and I imagine she is leading her little ones to > stand up in the face of adversity and to be strong! > > Donna and her big boys...probably feet hanging off the edge of the > bed, unless of course Matt has taken to crawling up as a ball due to > the back pain. > > I see , ever so grateful to have her weak " little lamb " home > from the hospital... > > Georgina, our den mother..I see her peeking in on Josh. I imagine > her smiling at her son of small stature but having pride in her > heart that he has a character of incredible strength. > I see my own beautiful blonde hair blue eyed girl. Soaking those > ankles in a foot spa, with the crutches tossed by her side...I > wonder will this flare burn out quickly. what will tomorrow bring. > I have no answer for that, but I do know that this road is > familiar. I have traveled it before. I have good friends on this > path and whatever way the road bends, I will still enjoy the ride! > > Please know that there are so many more of you that I didn't mention > this night. You weren't fogotten. You will be in my prayers this > night. Its just that my eyes are heavy and Aundrea is calling for > me and asking for an ankle wrap. Motherhood waits for no man, or no > list! lol > God bless you all, > (Aundrea systemic jra 10) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 , your words were so moving and reached deep into my heart. Thank you for adding perspective to an already wonderfully caring and compassionate group of individuals whom we have all come to care so deeply for and who are there for one another despite all their own obstacles. We are blessed! Donna Fox-Keidel, Volunteer Arthritis Foundation-KY Branch 2908 Brownsboro Rd., STE 117 Louisville, KY 40206 502-585-1866 ajaoky@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 - You are such a blessing. My eyes are welled up and tears are starting to come out... You have reminded me of how precious all our little ones are and how brave they are, but most importantly you have reminded me of the power of prayer and friendship. It's not easy being a mom these days, and all of us here get the benefit of being an extra special mom to some extraordinary kids. No matter what phase of pain or what extreme we are all facing, it is no nice that we have each other. Thank you! Alia and Caroline, age 4, poly and uveitis > > Tonight I pondered this list and wondered where each family might be > on this evening. > > I picture Alia watching over Miss Caroline..exhaustion seeping into > her soul as she watches the rash coming out over her sweet brown > eyed girl and surely she must entertain the thought as to when will > life be normal? > > I see Helen preparing to go off to the nightshift, but lingering at > Saras door. Her precious daughter...forgotten today..abandoned yet > again, but returned home to a loving family with the sweetest > brother that has such a big heart! > > I think of Robbin checking in on . A teenager willing to > have a skin biopsy in hopes it will help other kids with jra. how > amazing. > > I see ...tired with her own aches and pains but its her mothers > heart that I think about this night. Her big Mr. Rob...hiding his > knee pain from mom, from work, from doctors and my guess is he would > hide it from himself if he could! > > I think about and her alex...they are in the tapering phase > of mtx...I so hoped that aundrea could have been that beacon of > light of a successful taper to kimberly and others. > > I see Patty checkin in on her girls. I love her sweet sense of > humor. I picture her doing the last load of laundry for the > night...of course its a load of darks! lol > > I see Jo...only its morning down under...so she is starting her day > with the kiddos and I imagine she is leading her little ones to > stand up in the face of adversity and to be strong! > > Donna and her big boys...probably feet hanging off the edge of the > bed, unless of course Matt has taken to crawling up as a ball due to > the back pain. > > I see , ever so grateful to have her weak " little lamb " home > from the hospital... > > Georgina, our den mother..I see her peeking in on Josh. I imagine > her smiling at her son of small stature but having pride in her > heart that he has a character of incredible strength. > > I see my own beautiful blonde hair blue eyed girl. Soaking those > ankles in a foot spa, with the crutches tossed by her side...I > wonder will this flare burn out quickly. what will tomorrow bring. > I have no answer for that, but I do know that this road is > familiar. I have traveled it before. I have good friends on this > path and whatever way the road bends, I will still enjoy the ride! > > Please know that there are so many more of you that I didn't mention > this night. You weren't fogotten. You will be in my prayers this > night. Its just that my eyes are heavy and Aundrea is calling for > me and asking for an ankle wrap. Motherhood waits for no man, or no > list! lol > > God bless you all, > (Aundrea systemic jra 10) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 --, That was beautifully written, and so true.... I did check twice before i went to work last night. We do have something special here. While I wish Nick never had JRA, it has brought our family many blessings too.. Most importantly, some very special people that would never have entered our lives if it were not for this disease. Every cloud has a silver lining!!! hugs Helen and (8,systemic) - In , " sonia1md " <sonia1md@...> wrote: > > Tonight I pondered this list and wondered where each family might be > on this evening. > > I picture Alia watching over Miss Caroline..exhaustion seeping into > her soul as she watches the rash coming out over her sweet brown > eyed girl and surely she must entertain the thought as to when will > life be normal? > > I see Helen preparing to go off to the nightshift, but lingering at > Saras door. Her precious daughter...forgotten today..abandoned yet > again, but returned home to a loving family with the sweetest > brother that has such a big heart! > > I think of Robbin checking in on . A teenager willing to > have a skin biopsy in hopes it will help other kids with jra. how > amazing. > > I see ...tired with her own aches and pains but its her mothers > heart that I think about this night. Her big Mr. Rob...hiding his > knee pain from mom, from work, from doctors and my guess is he would > hide it from himself if he could! > > I think about and her alex...they are in the tapering phase > of mtx...I so hoped that aundrea could have been that beacon of > light of a successful taper to kimberly and others. > > I see Patty checkin in on her girls. I love her sweet sense of > humor. I picture her doing the last load of laundry for the > night...of course its a load of darks! lol > > I see Jo...only its morning down under...so she is starting her day > with the kiddos and I imagine she is leading her little ones to > stand up in the face of adversity and to be strong! > > Donna and her big boys...probably feet hanging off the edge of the > bed, unless of course Matt has taken to crawling up as a ball due to > the back pain. > > I see , ever so grateful to have her weak " little lamb " home > from the hospital... > > Georgina, our den mother..I see her peeking in on Josh. I imagine > her smiling at her son of small stature but having pride in her > heart that he has a character of incredible strength. > > I see my own beautiful blonde hair blue eyed girl. Soaking those > ankles in a foot spa, with the crutches tossed by her side...I > wonder will this flare burn out quickly. what will tomorrow bring. > I have no answer for that, but I do know that this road is > familiar. I have traveled it before. I have good friends on this > path and whatever way the road bends, I will still enjoy the ride! > > Please know that there are so many more of you that I didn't mention > this night. You weren't fogotten. You will be in my prayers this > night. Its just that my eyes are heavy and Aundrea is calling for > me and asking for an ankle wrap. Motherhood waits for no man, or no > list! lol > > God bless you all, > (Aundrea systemic jra 10) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Amen to that Helen. I have and continue to learn so much from everyone here - parents and kids. You are all in my thoughts and prayers. The incredible strength of all here is a continued inspiration. This cloud can have a silver lining. Michele ( 18, spondy) Re: where were u tonight? --, That was beautifully written, and so true.... I did check twice before i went to work last night. We do have something special here. While I wish Nick never had JRA, it has brought our family many blessings too.. Most importantly, some very special people that would never have entered our lives if it were not for this disease. Every cloud has a silver lining!!! hugs Helen and (8,systemic) - In , " sonia1md " <sonia1md@...> wrote: > > Tonight I pondered this list and wondered where each family might be > on this evening. > > I picture Alia watching over Miss Caroline..exhaustion seeping into > her soul as she watches the rash coming out over her sweet brown > eyed girl and surely she must entertain the thought as to when will > life be normal? > > I see Helen preparing to go off to the nightshift, but lingering at > Saras door. Her precious daughter...forgotten today..abandoned yet > again, but returned home to a loving family with the sweetest > brother that has such a big heart! > > I think of Robbin checking in on . A teenager willing to > have a skin biopsy in hopes it will help other kids with jra. how > amazing. > > I see ...tired with her own aches and pains but its her mothers > heart that I think about this night. Her big Mr. Rob...hiding his > knee pain from mom, from work, from doctors and my guess is he would > hide it from himself if he could! > > I think about and her alex...they are in the tapering phase > of mtx...I so hoped that aundrea could have been that beacon of > light of a successful taper to kimberly and others. > > I see Patty checkin in on her girls. I love her sweet sense of > humor. I picture her doing the last load of laundry for the > night...of course its a load of darks! lol > > I see Jo...only its morning down under...so she is starting her day > with the kiddos and I imagine she is leading her little ones to > stand up in the face of adversity and to be strong! > > Donna and her big boys...probably feet hanging off the edge of the > bed, unless of course Matt has taken to crawling up as a ball due to > the back pain. > > I see , ever so grateful to have her weak " little lamb " home > from the hospital... > > Georgina, our den mother..I see her peeking in on Josh. I imagine > her smiling at her son of small stature but having pride in her > heart that he has a character of incredible strength. > > I see my own beautiful blonde hair blue eyed girl. Soaking those > ankles in a foot spa, with the crutches tossed by her side...I > wonder will this flare burn out quickly. what will tomorrow bring. > I have no answer for that, but I do know that this road is > familiar. I have traveled it before. I have good friends on this > path and whatever way the road bends, I will still enjoy the ride! > > Please know that there are so many more of you that I didn't mention > this night. You weren't fogotten. You will be in my prayers this > night. Its just that my eyes are heavy and Aundrea is calling for > me and asking for an ankle wrap. Motherhood waits for no man, or no > list! lol > > God bless you all, > (Aundrea systemic jra 10) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 , That was so cute and thanks. I read it to my sister. You were almost right though lolol. Soon as I got home I did check in with . About the time you were writing this I was in Target and was here at home because she was tired. :-). Wait a Minute lolol. I just checked the date you sent this. lolol. was with Me. lololol We had went riding with 2 of my sister's and my middle brother. My sister said Y'all want to check out Wild Bill's and said yes let's go see what it look's like. Wild Bill's is a Country Dance Bar. lolol. So off we go to Gwinnett County north of Atlanta. We get there and see it is a BIG place. I get out to see when it's open. I see the dress code on the door and everyone in the car had to get out and read it. Very strict dress code to go dance lololol. and My sister said ok we are going tomorrow night. Which was tonight lolol. calls this afternoon and they said well if your under 21 your not allowed in. Well that blew going lolol. But can go on Thursday night. lolol If your 18 or older. It was funny though.My sister said well we can just say your 22 if you dress older. I gave them both a oh no your not MOM look lolol. I said there's no way that you could even look 20. You know as well as I do people say you look 14 at the most lolol. My sister said yes that's right and that sign did say no FAKE ID's lololol. My sister did email them to get support for the Arthritis Walk. lololol. We almost took off to Kennesaw Ga to check out Cowboys another Country Dance Bar. lolol. But it was Late and this Momma was falling alseep in the passenger seat. lolol. So the question where were you tonight. You could say Robbin and was out looking around Dance Bar's/ Clubs. lololol. Ummmm I would have been happy at home in bed at that time of the night lololol. Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 , You might just be right lololol. A man today came out to measure the back yard asked which middle school did she attend out here. said WHAT? lolol She let the man know she was 19 and had Graduated High School lolol. I went out side and said well you can ask my Mom. He was amazed when I told him she was 19. He appologized to and said stay young as long as you can. gave him this look and said I wish my body would stay young like my skin lololol. He asked her what she meant and she said some day's you would think I was your Grandma with the way I get around. I was wearing my Tshirt which says Kid's Get Arthritis too. lolol. He waited til we had walked away from and asked me about my shirt. I said well that young lady there has Arthritis. He said no way kid's don't have that. I told him I wish they didn't but it is true. He really asked a lot of questions. Then as we walked by he said I am sorry I thought you were younger. He walked through the house and said She doesn't look like she has anything wrong with her. I said well Don't judge a book by it's cover lololol. He said well you got that right lolol Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Looking young is no fun. Now that I'm 21 I can get into all the " fun " places, but of course I get my ID checked a million times a day.. Maybe is a JA thing, looking young and what not. I mean look at Donna and Uncle Rusty.. they don't look a day over 20! Lots of Love (JAS, 21) Robbin40@... wrote: , That was so cute and thanks. I read it to my sister. You were almost right though lolol. Soon as I got home I did check in with . About the time you were writing this I was in Target and was here at home because she was tired. :-). Wait a Minute lolol. I just checked the date you sent this. lolol. was with Me. lololol We had went riding with 2 of my sister's and my middle brother. My sister said Y'all want to check out Wild Bill's and said yes let's go see what it look's like. Wild Bill's is a Country Dance Bar. lolol. So off we go to Gwinnett County north of Atlanta. We get there and see it is a BIG place. I get out to see when it's open. I see the dress code on the door and everyone in the car had to get out and read it. Very strict dress code to go dance lololol. and My sister said ok we are going tomorrow night. Which was tonight lolol. calls this afternoon and they said well if your under 21 your not allowed in. Well that blew going lolol. But can go on Thursday night. lolol If your 18 or older. It was funny though.My sister said well we can just say your 22 if you dress older. I gave them both a oh no your not MOM look lolol. I said there's no way that you could even look 20. You know as well as I do people say you look 14 at the most lolol. My sister said yes that's right and that sign did say no FAKE ID's lololol. My sister did email them to get support for the Arthritis Walk. lololol. We almost took off to Kennesaw Ga to check out Cowboys another Country Dance Bar. lolol. But it was Late and this Momma was falling alseep in the passenger seat. lolol. So the question where were you tonight. You could say Robbin and was out looking around Dance Bar's/ Clubs. lololol. Ummmm I would have been happy at home in bed at that time of the night lololol. Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2006 Report Share Posted April 26, 2006 ! I admire you more everyday hun! Although, I must admit most JRAers I know do look much younger than they are, 20??? Darlin, look a lil closer...lmao... luv ya girl!!!!!!!!!!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2006 Report Share Posted April 26, 2006 Robbin, tell to enjoy it. I still do. Saturday I was at Thunder Over Louisville ( the most awesome and incredible air show and fireworks display) with Matt, Bran, Amy, , Nikki, and Adam (all my kiddos) and the people next to us kept referring to my brothers and sisters when I politely said nope, they are my kids. Blew their lil brains all over the place. First reaction was you got kids???? Not uncommon. Folks with disabilities ain't suppose to have kids I guess. Then it was followed by how old was you when you had your oldest? I replied 25. They replied, Da*m , how old are you? Then I explained mine are soon to be 15 and 11 and the others I won in a marriage. They laughed but still kept saying you don't look like someone who will be 41 and you don't act like it either. Not sure how 41 year olds act but guess I better learn before September...lol and tell her I only stopped getting carded for alcohol 3 or 4 years ago and I still get carded if I buy cigs for the hubby....... enjoy it you young gals with JRA, its one of the few benefits! Hang tight, Hang tough ~ Donna~ Quote Link to comment Share on other sites More sharing options...
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