Re: Pills V liquids!!

[Guest guest]

Oh Helen isn't that funny? I find giving Bayly liquid Meds much

easier.

His Pred he usually takes without a complaint (although he spat it

out at Grant yesterday morning for some strange reason)

His Iron supplement for his anaemia, and any cough medicines or

whatever, he's great. It's those blasted little yellow Methotrexate

pills he WILL NOT take!

We've tried smashing it up in food, on a spoon, in drinks, to no

avail. We've tried to get him to just swallow it, no go. And forget

him chewing it up himself!

His Paed Rheumy has even had a chat with him, explaining that he'll

have to have his Mtx via needles if he won't have the tabs.

I've had to resort to putting it to the back of his mouth like one

give's a dog a tablet. Not a lot of fun for either of us, but at

least he can't spit it out, or blow it off the spoon.

And now he's so adverse to the tablets- he won't wear his yellow

singlet or drink froma yellow cup, since they're the same colour

at 'that yucky tablet'. (Good Grief)

Go Caroline!! Go Nick!!

Jo

Bayly, 3, extended oligo

Hey Guys,

> I have to commend all the moms on the list who have younger kids on

> liquid medciations. Man, liquids are a lot of work!!

> Little Caroline came to my daughters birthday party and slept over

> last night, I couldnt beleive how much work dishing out liquid meds

> is!! My hat goes off to you all. Caroline is a superstar taking

them all, but what a lot of work with all that measuring. Caroline

does take one in a pill form and shes so proud of herself. She had to

show everyone how she did it and walked around with her mouth open

just to prove it was gone!!

> I am so grateful that Nicks meds are all pills ( or shots) I fill

his pill box up once a week and just tell him the day. He knows that

to do....

> hugs Helen and (8,systemic)

[Guest guest]

--Jo,

have you tried having Bayly drink from a straw to take his MTX

pills. It worked like a charm when Alia tried this with Caroline,

now shes a pro with just a cup.

Nick has never like liquid meds, I now have to get his antibiotics

in pill form as he just doesnt like any kind of liquids. He would

much rather have a nasty tasting prednisone pill disolve on his

tongue than drink a fruit flavored liquid. Hes a strange one!!!

trying to get liquid tylenol down him is like trying to pull teeth!

he will not do chewables either.

Hows Bayly doing, is he still struggling or are things getting a

little easier. IS he at least being nicer to Violet???

hugs Helen and (8,systemic)

- In , " Jo & Grant " <joking70@...> wrote:

>

> Oh Helen isn't that funny? I find giving Bayly liquid Meds much

> easier.

>

> His Pred he usually takes without a complaint (although he spat it

> out at Grant yesterday morning for some strange reason)

> His Iron supplement for his anaemia, and any cough medicines or

> whatever, he's great. It's those blasted little yellow

Methotrexate

> pills he WILL NOT take!

>

> We've tried smashing it up in food, on a spoon, in drinks, to no

> avail. We've tried to get him to just swallow it, no go. And

forget

> him chewing it up himself!

>

> His Paed Rheumy has even had a chat with him, explaining that

he'll

> have to have his Mtx via needles if he won't have the tabs.

>

> I've had to resort to putting it to the back of his mouth like one

> give's a dog a tablet. Not a lot of fun for either of us, but at

> least he can't spit it out, or blow it off the spoon.

>

> And now he's so adverse to the tablets- he won't wear his yellow

> singlet or drink froma yellow cup, since they're the same colour

> at 'that yucky tablet'. (Good Grief)

>

> Go Caroline!! Go Nick!!

>

> Jo

> Bayly, 3, extended oligo

>

>

> Hey Guys,

> > I have to commend all the moms on the list who have younger kids

on

> > liquid medciations. Man, liquids are a lot of work!!

> > Little Caroline came to my daughters birthday party and slept

over

> > last night, I couldnt beleive how much work dishing out liquid

meds

> > is!! My hat goes off to you all. Caroline is a superstar taking

> them all, but what a lot of work with all that measuring.

Caroline

> does take one in a pill form and shes so proud of herself. She had

to

> show everyone how she did it and walked around with her mouth open

> just to prove it was gone!!

> > I am so grateful that Nicks meds are all pills ( or shots) I

fill

> his pill box up once a week and just tell him the day. He knows

that

> to do....

> > hugs Helen and (8,systemic)

>

[Guest guest]

Jo,

With She didn't like taking Liquid much. I use to have to hold

her nose and get meds down her. By the time she was 3 she was taking pills. She

would take the chewable tablets but wanted something to chase it down. When

she was 13 she got to where she couldn't swallow pills and resorted back to

liquid meds. I had to give her a chaser with that too. She has bouts

sometimes where she can't swallow a pill so we use both liquid and pill form.

said it feels like the muscles tighten up in her throat and it either don't

go down or it get's stuck. At 19 she will alternate with it but has to have a

chaser with it. We did try time release capsules and I would mix it in her

food. lololol She knew it everytime I did that. I have even took a paper

towel and laid the pill in it and hit it with a hammer and mixed it with a

small

amount of juice or water.

Robbin

[Guest guest]

Well Bayly bit me this morning while I was trying to 'convince' him

to have his Methotrexate tablet.

Hurt too!

:-(

Jo

> Jo,

> With She didn't like taking Liquid much. I use to have

to hold

> her nose and get meds down her. By the time she was 3 she was

taking pills. She

> would take the chewable tablets but wanted something to chase it

down. When

> she was 13 she got to where she couldn't swallow pills and

resorted back to

> liquid meds. I had to give her a chaser with that too. She has

bouts

> sometimes where she can't swallow a pill so we use both liquid and

pill form.

> said it feels like the muscles tighten up in her throat and it

either don't

> go down or it get's stuck. At 19 she will alternate with it but

has to have a

> chaser with it. We did try time release capsules and I would mix

it in her

> food. lololol She knew it everytime I did that. I have even took a

paper

> towel and laid the pill in it and hit it with a hammer and mixed it

with a small

> amount of juice or water.

> Robbin

[Guest guest]

Jo

Ouch....I guess out in the land of OZ you aren't allowed to give injectable

MTX in juice.

When was diagnosed at 2 we did it for the first 4 months before going

to shots and he never had any idea he was taking it.

When I joined this list almost 5 yrs ago some moms thought my ped rheumy was

crazy.As the years went by more and more little ones were given this option.

At AJAO San Diego at a round table discussion with a rheumy the type of

administration was validated.It happened that another child was seeing the same

rheumy as and was taking MTX this way and mom thought the ped rheumy was

crazy too.

Mayby it's worth mentioning it to Baylys rheumy again.Things change and you

both shouldn't have to go through this if there is another way.

Hugs

Becki and 7 systemic

[Guest guest]

Hi Becki,

See that'S WHY I'M ON THIS LIST (whoops, sorry for yelling- I hit

the Caps key by mistake)

I never knew that you could do that- give the injectable Mtx orally!

Oh how good would that be?! Can you taste it? At least it wouldn't

leave any telltale sign of yellow powder that my boy can spot from a

thousand paces!! ;-)

We see Bayly's Paed Rheumy next week, so I shall be sure to ask him.

He'll probably think I'm crazy but what else is new?!

How is going?

Jo

>

> Jo

> Ouch....I guess out in the land of OZ you aren't allowed to give

injectable MTX in juice.

> When was diagnosed at 2 we did it for the first 4 months

before going to shots and he never had any idea he was taking it.

> When I joined this list almost 5 yrs ago some moms thought my ped

rheumy was crazy.As the years went by more and more little ones were

given this option.

> At AJAO San Diego at a round table discussion with a rheumy the

type of administration was validated.It happened that another child

was seeing the same rheumy as and was taking MTX this way and

mom thought the ped rheumy was crazy too.

> Mayby it's worth mentioning it to Baylys rheumy again.Things change

and you both shouldn't have to go through this if there is another

way.> Hugs

> Becki and 7 systemic

[Guest guest]

Jo,

never tasted it and never had a clue.I also never,ever let him see me

do it.

Hopefuly others will chime in about their use of it so you can get a head

count on the kiddos.

I'll try and find an article on it and post it.

Anything to convince Bayly's ped rheumy that it is ok and acceptable.

We don't need your little man trying to eat you alive,lol

's doing fine,his wrist is no better yet, but it's only been just under

2 months since uping his MTX.His problems are his emotions,I swear all those

steroids from long ago are having some sort of delayed effect.

I hope you have a good apointment and can switch to just drinking the MTX.

Hugs

Becki and 7 systemic

[Guest guest]

Hi Jo,

I just wanted to chime in and let you know that giving the injectible orally in

juice was an option Robbie's rheumy offered when first prescribed, but we opted

to go directly to injecting it, as I really anticipated having to move on to

another injection down the road (hasn't happened yet - but don't say it too

loud). The rheumy just suggested that I not discuss it with the pharmacist as

he'd had enough phone calls from pharmacists.

Val

Rob's Mom (8,systemic)

Re: Re: Pills V liquids!!

Jo,

never tasted it and never had a clue.I also never,ever let him see me

do it.

Hopefuly others will chime in about their use of it so you can get a head

count on the kiddos.

I'll try and find an article on it and post it.

Anything to convince Bayly's ped rheumy that it is ok and acceptable.

We don't need your little man trying to eat you alive,lol

's doing fine,his wrist is no better yet, but it's only been just under

2 months since uping his MTX.His problems are his emotions,I swear all those

steroids from long ago are having some sort of delayed effect.

I hope you have a good apointment and can switch to just drinking the MTX.

Hugs

Becki and 7 systemic

[Guest guest]

Audrey took her mtx by mouth for a while. When it stopped working is when they

put her on injections. I put in some milk in an oral syringe, and she never

made a face like it tasted funny or anything like that. For a while, it worked

great for her.

Re: Re: Pills V liquids!!

Jo,

never tasted it and never had a clue.I also never,ever let him see me

do it.

Hopefuly others will chime in about their use of it so you can get a head

count on the kiddos.

I'll try and find an article on it and post it.

Anything to convince Bayly's ped rheumy that it is ok and acceptable.

We don't need your little man trying to eat you alive,lol

's doing fine,his wrist is no better yet, but it's only been just under

2 months since uping his MTX.His problems are his emotions,I swear all those

steroids from long ago are having some sort of delayed effect.

I hope you have a good apointment and can switch to just drinking the MTX.

Hugs

Becki and 7 systemic

[Guest guest]

When holly was on injectable methotrexate taken orally, the pharmacy would

actually mix the mtx with a cherry syrup.....the only problem was that the

bottle would last the whole month and we found that it didn't seem to be as

effective at the end of the month...........then we switched her to pills which

she did great on till about 2 years ago................now she just hates the

shots and its miserable for her and me.........we are working on trying to

make it better....Aj

[Guest guest]

Jo - Caroline started taking the MTX liquid orally. She was too little

to swallow pills and wasn't on a high enough dosage in the beginning to

do injections. We actually never mixed it with juice, we just squirted

it into her mouth. She took it like a champ - no complaints!

Alia and Caroline, age 4, poly and uveitis

________________________________

From: [mailto: ] On

Behalf Of Arthurnator@...

Sent: Tuesday, April 25, 2006 8:07 AM

Subject: Re: Re: Pills V liquids!!

Jo,

never tasted it and never had a clue.I also never,ever let him see

me

do it.

Hopefuly others will chime in about their use of it so you can get a

head

count on the kiddos.

I'll try and find an article on it and post it.

Anything to convince Bayly's ped rheumy that it is ok and acceptable.

We don't need your little man trying to eat you alive,lol

's doing fine,his wrist is no better yet, but it's only been just

under

2 months since uping his MTX.His problems are his emotions,I swear all

those

steroids from long ago are having some sort of delayed effect.

I hope you have a good apointment and can switch to just drinking the

MTX.

Hugs

Becki and 7 systemic

[Guest guest]

first took mtx as a liquid. He did not take it in juice,

though, just straight from an oral syringe. It was actually easier

for us that way, as I could not be sure that he would finish the

juice. We have had to switch to injecting it, though. Unfortunately,

he is very used to needles now.

Misty & (7, systemic)

>

> Jo,

> never tasted it and never had a clue.I also never,ever let

him see me

> do it.

> Hopefuly others will chime in about their use of it so you can get

a head

> count on the kiddos.

> I'll try and find an article on it and post it.

> Anything to convince Bayly's ped rheumy that it is ok and

acceptable.

> We don't need your little man trying to eat you alive,lol

> 's doing fine,his wrist is no better yet, but it's only been

just under

> 2 months since uping his MTX.His problems are his emotions,I swear

all those

> steroids from long ago are having some sort of delayed effect.

> I hope you have a good apointment and can switch to just drinking

the MTX.

> Hugs

> Becki and 7 systemic

>

>

>