Re: and now.......................

May 11, 2006

Liz, I am sorry to hear has yet another JRA related issue but I know

being the strong gal she is, will endure!

Hang Tight, Hang Tough

Donna

May 11, 2006

That is interesting because we are waiting on a dermatology appointment the last

week of this month to rule out psoriasis. My daughters ocular immunologist is

patiently waiting to find out what is said. I just assumed that if it is

psoriasis that another med would be added. Or at the very least, a higher dose

of what she is already on. Let me know what your doc says. Where is her

psoriasis? Does she have nail pitting? My daughter has had a rash on her neck

since January. I didn't think too much about it until about two months ago. It

looks awful.

Thanks for any info,

', a 10 year JIA/Uveitis

liz smith <liz_smith@...> wrote:

Nearly 12 years since onset of arthritis we now have a diagnosis of

psoriasis. I don't know that it actually changes anything, except perhaps a

classification from poly to psoriatic. But it does add to what I need to

know. Because is already on methotrexate and Remicade and the

psoriasis is currently limited to a small area she will only use a topical

ointment to treat it.

She definitely keeps us on our toes.

Liz

May 11, 2006

That is interesting because we are waiting on a dermatology appointment the last

week of this month to rule out psoriasis. My daughters ocular immunologist is

patiently waiting to find out what is said. I just assumed that if it is

psoriasis that another med would be added. Or at the very least, a higher dose

of what she is already on. Let me know what your doc says. Where is her

psoriasis? Does she have nail pitting? My daughter has had a rash on her neck

since January. I didn't think too much about it until about two months ago. It

looks awful.

Thanks for any info,

', a 10 year JIA/Uveitis

liz smith <liz_smith@...> wrote:

Nearly 12 years since onset of arthritis we now have a diagnosis of

psoriasis. I don't know that it actually changes anything, except perhaps a

classification from poly to psoriatic. But it does add to what I need to

know. Because is already on methotrexate and Remicade and the

psoriasis is currently limited to a small area she will only use a topical

ointment to treat it.

She definitely keeps us on our toes.

Liz

May 11, 2006

Wow Liz,

Thats a shocker, you would think after 12 years nothing would change

so much. I have no idea whats all involved with psoriatic. I guess

you will be doing a lot of reading.

I hope this doesn't cause too many additional problems. How is

she taking the news.

I have to ask, do you think that had anything to do with the hair

loss??? I must admit it was the 1st thing that came to my mind.

Hugs to you all as you venture down a new path.

hugs Helen and (8,systemic)

>

> Nearly 12 years since onset of arthritis we now have a diagnosis of

> psoriasis. I don't know that it actually changes anything, except

perhaps a

> classification from poly to psoriatic. But it does add to what I

need to

> know. Because is already on methotrexate and Remicade and the

> psoriasis is currently limited to a small area she will only use a

topical

> ointment to treat it.

>

> She definitely keeps us on our toes.

>

> Liz

>

May 11, 2006

Liz,

Our other daughter has psoriasis. We use a topical cream called

protopic. It works great, and clears it up quickly. Although I believe

it is a steroid cream, it works great. Unfortunately we have an awful

history of psorsis in both my husband and my side of the family. Nerves

are a great contributor to the control of psorasis. I have a cousin

that has been hospitalized for her disease several times. When she was

in High School she was in the Mayo Clinic at least 6 weeks every year.

I hope the methotrexate and Remicaid can keep it to a minimum.

My thoughts are with you!

________________________________

From: [mailto: ] On

Behalf Of liz smith

Sent: Thursday, May 11, 2006 6:20 PM

Subject: and now.......................

Nearly 12 years since onset of arthritis we now have a diagnosis of

psoriasis. I don't know that it actually changes anything, except

perhaps a

classification from poly to psoriatic. But it does add to what I need to

know. Because is already on methotrexate and Remicade and the

psoriasis is currently limited to a small area she will only use a

topical

ointment to treat it.

She definitely keeps us on our toes.

Liz

May 11, 2006

I am sorry to hear that Liz. I am glad it is only on a small area....Terri

and now.......................

Nearly 12 years since onset of arthritis we now have a diagnosis of

psoriasis. I don't know that it actually changes anything, except perhaps a

classification from poly to psoriatic. But it does add to what I need to

know. Because is already on methotrexate and Remicade and the

psoriasis is currently limited to a small area she will only use a topical

ointment to treat it.

She definitely keeps us on our toes.

Liz

May 11, 2006

’,

’s only affected area right now is right around her eyes. It’s

interesting~~ many years ago her rheumatologist in Houston (we had moved, so

this wasn’t her diagnosing rheumy) said to be aware that we may someday see

psoriasis, based on a sausage shaped finger at diagnosis. After this many

years, though, we didn’t expect it. And I certainly never thought about

having a first round of it while on methotrexate and Remicade! does

not have any nail pitting. I don’t know if that’s just pure luck or if it is

because she’s been on meds for so many years.

She has been started on protopic, an ointment used for psoriasis. Hopefully

that will clear it up quickly. As for adding any other systemic meds, I

really don’t want to go there. And unless the psoriasis gets bad I don’t

think that will even be an issue.

’s next rheumatology appointment/ Remicade infusion is on June 6th.

I’ll let you know if he suggests any changes. Let us know what a’s

dermatologist has to say.

Liz

_____

From: [mailto: ] On Behalf

Of ' Taunton

Sent: Thursday, May 11, 2006 7:42 PM

Subject: Re: and now.......................

That is interesting because we are waiting on a dermatology appointment the

last week of this month to rule out psoriasis. My daughters ocular

immunologist is patiently waiting to find out what is said. I just assumed

that if it is psoriasis that another med would be added. Or at the very

least, a higher dose of what she is already on. Let me know what your doc

says. Where is her psoriasis? Does she have nail pitting? My daughter

has had a rash on her neck since January. I didn't think too much about it

until about two months ago. It looks awful.

Thanks for any info,

', a 10 year JIA/Uveitis

liz smith <liz_smith@...> wrote:

Nearly 12 years since onset of arthritis we now have a diagnosis of

psoriasis. I don't know that it actually changes anything, except perhaps a

classification from poly to psoriatic. But it does add to what I need to

know. Because is already on methotrexate and Remicade and the

psoriasis is currently limited to a small area she will only use a topical

ointment to treat it.

She definitely keeps us on our toes.

Liz

May 11, 2006

Helen,

I don't know that anything different will be involved with this, other than

keeping an eye on the skin. I guess I'll learn as I go.

was fine with the news. She has such a great sense of humor! Her only

comment was, " Well, just think how many conversation starters I have! "

As for the hair loss and a possible tie to the psoriasis, I didn't even ask

the dermatologist. If I can find any info online I'll call and ask. The

nurse there is a neighbor of mine and I'm sure would ask for me.

Good luck with Nick's infusion. It's tomorrow, isn't it? I hope things go

smoothly. Hopefully there will be no more grouchy days for a while!

Liz

_____

From: [mailto: ] On Behalf

Of hburger64

Sent: Thursday, May 11, 2006 7:51 PM

Subject: Re: and now.......................

Wow Liz,

Thats a shocker, you would think after 12 years nothing would change

so much. I have no idea whats all involved with psoriatic. I guess

you will be doing a lot of reading.

I hope this doesn't cause too many additional problems. How is

she taking the news.

I have to ask, do you think that had anything to do with the hair

loss??? I must admit it was the 1st thing that came to my mind.

Hugs to you all as you venture down a new path.

hugs Helen and (8,systemic)

>

> Nearly 12 years since onset of arthritis we now have a diagnosis of

> psoriasis. I don't know that it actually changes anything, except

perhaps a

> classification from poly to psoriatic. But it does add to what I

need to

> know. Because is already on methotrexate and Remicade and the

> psoriasis is currently limited to a small area she will only use a

topical

> ointment to treat it.

>

> She definitely keeps us on our toes.

>

> Liz

>

May 11, 2006

,

The dermatologist said that protopic is not a steroid cream, which is why we

(the derm and I) chose that over the other one he offered. I'm glad to hear

that it works so well. 's psoriasis is currently limited to the area

around her eyes, but because of the location is easily noticed, so she wants

it cleared up as quickly as possible.

I'm sorry that so many in your family deal with it. How does your daughter

handle it?

Liz

_____

From: [mailto: ] On Behalf

Of Ray

Sent: Thursday, May 11, 2006 7:57 PM

Subject: RE: and now.......................