Update

[Guest guest]

Nick saw his rheumy and had his remicade yesterday. All his joints are

looking good with the exception of 4 fingers, 2 on each hand. The consenous

is that he might of had a slight infection a couple of weeks ago which

caused the fevers and the knee flare. His knees are doing great now and hes

not having any issues with them ( apart from walking too much)

The remciade is going great, we have even upped the speed at which its

infused and he does just fantastic with it. No reactions at all. Our only

issue is with the nurse that took 3 tries to get the IV started and then

tried to blame it on not holding still. The poor boy was not moving

and got quite worked up. He didnt want the elma on and didnt want them to go

to this other arm, he just begged to go home (((

I was firm and said it was not an option, it was cream or no cream and a

heating pad. he went with the heating pad and finally she got the iv

started. Both Nicks forearms are black and blue. I'm not happy, I was not

happy with where he gets his remicade and have previously discussed with the

rheumy switching and we are going to, this was our last infusion in the

oncology clinic. This just made that choice more concrete.

Today at our support group meeting it was suggested we get a port-a-cath for

his infusions... anyone gone this route??? I am getting conerned that with

monthly infusions and experiences like this last one ( it happened once

before at Childrens last Oct) Nick will get trumatized and will start

stressing over his shots/blood draws and remicade. He does so awesome with

it all now I dont want to loose that.

hugs Helen and (8,systemic)

Hugs..Helen

DH Dan

(22)(16)(13)Zachary(11)(8)

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