, where in Kansas do you live

[Guest guest]

,

I was reading your note and we live in Kansas also. My Jaye is 12

also. She was just diagnosed this past year. You are the first person I have

noticed on here that is from Kansas. We see Dr. Lindsley at KU Medical Center in

Kansas City usually. In June we get to see her in Wichita though and that

will save us many hours on the road.

Veri & Jaye 12 poly

[Guest guest]

Veri, We live in north east Kansas near Lawrence(home of KU jayhawks) and

usually go to Children's Mercy Hospital which is very close to KU Med Center. In

fact, Elaney was born at KU Med. We see Dr. Canty. He is relatively new and we

like him a lot. I have heard of Dr. Lindsley but have never met her. Sometimes

we go to Little River, KS to visit my grandmother. Little River is near

McPherson. Do any of these places sound familiar? Elaney(12) has had JRA for

about 4 yrs and recently came out of remission only to find her JRA getting

worse. --- & Elaney(12 poly) & Elyssa(7)

veristroud@... wrote:

,

I was reading your note and we live in Kansas also. My Jaye is 12

also. She was just diagnosed this past year. You are the first person I have

noticed on here that is from Kansas. We see Dr. Lindsley at KU Medical Center in

Kansas City usually. In June we get to see her in Wichita though and that

will save us many hours on the road.

Veri & Jaye 12 poly

[Guest guest]

Veri & ,

We also live in Kansas. Our daughter was diagnosed just a couple

months ago and we also see Dr. Lindsley. Veri-maybe we'll run into

each other in Wichita as our daughter has an appt. in June also.

Hope your daughters are doing well.

Tracey

Madi, 14mo, systemic

-

>

> ,

>

> I was reading your note and we live in Kansas also. My Jaye

is 12

> also. She was just diagnosed this past year. You are the first

person I have

> noticed on here that is from Kansas. We see Dr. Lindsley at KU

Medical Center in

> Kansas City usually. In June we get to see her in Wichita though

and that

> will save us many hours on the road.

>

> Veri & Jaye 12 poly

>

>

>

>

[Guest guest]

,

We live in Newton which is just 30 miles south of McPherson. Jaye is

pretty new to the JRA, she began having problems in October and was

diagnosed by the end of December. Our Pediatrician was very quick to suggest JRA

and

to get us into Dr. Lindsley. was 11 and able to communicate with us

well as to what was hurting and not. Since she knew she had not done anything to

injur herself and the x-rays showed no injury we got a good jump on it. She

had a rough time for about four months and is now doing very well. She still

has swelling in her ankle but not much and her pain is gone. Her first joint

was her right ankle but quickly it moved to several other joints. But as of

now she has no pain most days.

also has asthma and a seizure disorder. Her asthma causes her

problems regularly but she has not had a seizure in the past three years, yea.

In

March her neurologist took her off of one of her seizure meds and by the first

of May she was off her second seizure medication. But due to her having bad

headaches all day every day we had to put her back on her Keppra, but it is at

a lower dose then she was on before.

Veri & Jaye (12 poly), Kristie Jo (15) & (17)