Re: still no news from Cindy :-(

[Guest guest]

i am worried sick!!!!!!!!!! i just wish we would hear something

soon.........keeping them all in my thoughts and prayers just about without

ceasing...........

Luv and hugs,

Aj and Holly (12 yrs old, systemic jra since 9/94)

_www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/visit/holly)

[Guest guest]

Hi,

I phoned on Sunday afternoon and spoke with n's Dad, Bill, briefly. He

asked me to call directly, at the ICU. n was sedated, still on

the ventilator, receiving nourishment thru an IV. As thoughtful as is,

she said that she felt some concern about not wanting to scare anybody here

in the group but, on the other hand, she also wanted newer people to

understand the seriousness of the complications that may sometimes occur in

a child who has systemic arthritis and the need to act quickly.

I, too, am eagerly awaiting a message from . I'm feeling very

concerned. If she doesn't write soon I'll want to phone her again for an

update but I also don't want to disturb the family, so I'm torn. By

tomorrow, I hope we'll hear from them. More importantly, I hope it's

positive news.

Aloha,

Georgina

Re: still no news from :-(

> i am worried sick!!!!!!!!!! i just wish we would hear

something

> soon.........keeping them all in my thoughts and prayers just about

without

> ceasing...........

>

>

>

> Luv and hugs,

> Aj and Holly (12 yrs old, systemic jra since 9/94)

> _www.caringbridge.org/visit/holly_

(http://www.caringbridge.org/visit/holly)

[Guest guest]

n is still on the ventilator and in ICU. Her lung x ray was a

little worse today. She has developed an infection in her lungs.

She is on two very strong antibiotics. She is more sedated today,

because if she isn't she really fights and her oxygen saturation rate

goes all to hell. Her labs are slowly improving. They are no where

near normal, but for the most part they are now headed in the right

direction. Her platelets have increased the last two readings. She

had a pretty good day today.

On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

> i am worried sick!!!!!!!!!! i just wish we would hear

> something

> soon.........keeping them all in my thoughts and prayers just

> about without

> ceasing...........

>

>

>

> Luv and hugs,

> Aj and Holly (12 yrs old, systemic jra since 9/94)

> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

> visit/holly)

>

>

>

>

[Guest guest]

,

Thanks so much for writing..........we have all been very

worried..........MAS is very serious.........please dont be worrying about us,

we care for

you and your family so much. You are like part of our family. I am glad her

labs are improving, atleast it gives your something to grasp onto........we

will keep praying. Talk to you soon, hon. Take care.

n

[Guest guest]

, Thanks for the update and please do not worry about the group we are

all with you in spirit and are greatly concerned. Let us know if anything,

what we can do. Continued prayers for n!!!!

Hugs!

Donna

[Guest guest]

Cinday and n,

I'm new to the board and had basically lurked alot, but I wanted to send you

my prayers and support too. n sounds like a fighter, which is the most

important thing of all. *HUGS* to you all in this trying time.

Carey and Ben (5, still waiting to be diagnosed)

Price <bc.price@...> wrote:

n is still on the ventilator and in ICU. Her lung x ray was a

little worse today. She has developed an infection in her lungs.

She is on two very strong antibiotics. She is more sedated today,

because if she isn't she really fights and her oxygen saturation rate

goes all to hell. Her labs are slowly improving. They are no where

near normal, but for the most part they are now headed in the right

direction. Her platelets have increased the last two readings. She

had a pretty good day today.

On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

> i am worried sick!!!!!!!!!! i just wish we would hear

> something

> soon.........keeping them all in my thoughts and prayers just

> about without

> ceasing...........

>

>

>

> Luv and hugs,

> Aj and Holly (12 yrs old, systemic jra since 9/94)

> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

> visit/holly)

>

>

>

>

[Guest guest]

Thank you to everyone for praying for n. I believe in the power

of prayer. n's high school is having a prayer service for her

tonight.

n had a good night last night. I don't have the results from

the latest chest x-ray or labs. They lowered her oxygen a little.

On Apr 12, 2006, at 6:45 AM, Carey wrote:

> Cinday and n,

> I'm new to the board and had basically lurked alot, but I wanted

> to send you my prayers and support too. n sounds like a

> fighter, which is the most important thing of all. *HUGS* to you

> all in this trying time.

>

> Carey and Ben (5, still waiting to be diagnosed)

>

> Price <bc.price@...> wrote:

> n is still on the ventilator and in ICU. Her lung x ray was a

> little worse today. She has developed an infection in her lungs.

> She is on two very strong antibiotics. She is more sedated today,

> because if she isn't she really fights and her oxygen saturation rate

> goes all to hell. Her labs are slowly improving. They are no where

> near normal, but for the most part they are now headed in the right

> direction. Her platelets have increased the last two readings. She

> had a pretty good day today.

>

>

> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>

>> i am worried sick!!!!!!!!!! i just wish we would hear

>> something

>> soon.........keeping them all in my thoughts and prayers just

>> about without

>> ceasing...........

>>

>>

>>

>> Luv and hugs,

>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>> visit/holly)

>>

>>

>>

>>

[Guest guest]

Carey <careynsa@...> wrote: ,

Know that just down on the coast, we are praying very hard for you all. If

you need anything at all I hope you know you can post it here. You're only a

few hours away from me ; )

', a JIA 10, uveitis

Price <bc.price@...> wrote:

n is still on the ventilator and in ICU. Her lung x ray was a

little worse today. She has developed an infection in her lungs.

She is on two very strong antibiotics. She is more sedated today,

because if she isn't she really fights and her oxygen saturation rate

goes all to hell. Her labs are slowly improving. They are no where

near normal, but for the most part they are now headed in the right

direction. Her platelets have increased the last two readings. She

had a pretty good day today.

On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

> i am worried sick!!!!!!!!!! i just wish we would hear

> something

> soon.........keeping them all in my thoughts and prayers just

> about without

> ceasing...........

>

>

>

> Luv and hugs,

> Aj and Holly (12 yrs old, systemic jra since 9/94)

> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

> visit/holly)

>

>

>

>

[Guest guest]

Thanks for the update . Hugs to you and your family, we are praying

for you all. Michele

Re: still no news from :-(

Thank you to everyone for praying for n. I believe in the power

of prayer. n's high school is having a prayer service for her

tonight.

n had a good night last night. I don't have the results from

the latest chest x-ray or labs. They lowered her oxygen a little.

On Apr 12, 2006, at 6:45 AM, Carey wrote:

> Cinday and n,

> I'm new to the board and had basically lurked alot, but I wanted

> to send you my prayers and support too. n sounds like a

> fighter, which is the most important thing of all. *HUGS* to you

> all in this trying time.

>

> Carey and Ben (5, still waiting to be diagnosed)

>

> Price <bc.price@...> wrote:

> n is still on the ventilator and in ICU. Her lung x ray was a

> little worse today. She has developed an infection in her lungs.

> She is on two very strong antibiotics. She is more sedated today,

> because if she isn't she really fights and her oxygen saturation rate

> goes all to hell. Her labs are slowly improving. They are no where

> near normal, but for the most part they are now headed in the right

> direction. Her platelets have increased the last two readings. She

> had a pretty good day today.

>

>

> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>

>> i am worried sick!!!!!!!!!! i just wish we would hear

>> something

>> soon.........keeping them all in my thoughts and prayers just

>> about without

>> ceasing...........

>>

>>

>>

>> Luv and hugs,

>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>> visit/holly)

>>

>>

>>

>>

[Guest guest]

,

we all really appreciate you taking the time to update us. You are

a member of our jra family and you have so much support being

extended to your family thru the power of prayer.

I am glad that last night was a better night. Do you have family

that have come to stay with your younger children? I hope your

tangible needs are being met. All we know to do is pray...if there

is something else that we can do, please let us know!

Blessings,

(Aundrea 10 systemic jra)-

-- In , Price <bc.price@...> wrote:

>

> Thank you to everyone for praying for n. I believe in the

power

> of prayer. n's high school is having a prayer service for

her

> tonight.

>

> n had a good night last night. I don't have the results

from

> the latest chest x-ray or labs. They lowered her oxygen a

little.

>

>

>

> On Apr 12, 2006, at 6:45 AM, Carey wrote:

>

> > Cinday and n,

> > I'm new to the board and had basically lurked alot, but I

wanted

> > to send you my prayers and support too. n sounds like a

> > fighter, which is the most important thing of all. *HUGS* to

you

> > all in this trying time.

> >

> > Carey and Ben (5, still waiting to be diagnosed)

> >

> > Price <bc.price@...> wrote:

> > n is still on the ventilator and in ICU. Her lung x ray

was a

> > little worse today. She has developed an infection in her lungs.

> > She is on two very strong antibiotics. She is more sedated

today,

> > because if she isn't she really fights and her oxygen saturation

rate

> > goes all to hell. Her labs are slowly improving. They are no

where

> > near normal, but for the most part they are now headed in the

right

> > direction. Her platelets have increased the last two readings.

She

> > had a pretty good day today.

> >

> >

> > On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

> >

> >> i am worried sick!!!!!!!!!! i just wish we would

hear

> >> something

> >> soon.........keeping them all in my thoughts and prayers just

> >> about without

> >> ceasing...........

> >>

> >>

> >>

> >> Luv and hugs,

> >> Aj and Holly (12 yrs old, systemic jra since 9/94)

> >> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

> >> visit/holly)

> >>

> >>

> >>

> >>

[Guest guest]

Great news !!!! I will keep the prayers coming...........n

[Guest guest]

,

Whoo Hoo!!

I haven't spoken up due to the reality that this could be my baby but I have

been constantly waiting and praying for a turn around.

This is the best news ever and I will continue to pray that only good updates

follow.

Much love and many prayers

Becki and 7 systemic

[Guest guest]

,

Great news....Tell n we have her in our prayers and thought's.

said to tell her to keep her chin up. One day at a time. Keep us

informed

about n.

Robbin

[Guest guest]

In a message dated 4/12/2006 10:13:24 P.M. Eastern Standard Time,

bc.price@... writes:

He everyone, n woke up today and could communicate with us by

nodding. Her x ray has improved, and they are hoping that she can

come off of the vent on Friday. She now has a fungus in her lungs

that they are treating, and high blood pressure from the

cyclosporine. They will start her on methadone so she doesn't suffer

withdrawal from all of the pain meds. Her platelets have

stabilized . They are still very low, but no longer going down. So

we got some great news today. Thanks for all of the prayers.

Hi :

Great news! Sending prayers your way.

Take care.

Patty

[Guest guest]

He everyone, n woke up today and could communicate with us by

nodding. Her x ray has improved, and they are hoping that she can

come off of the vent on Friday. She now has a fungus in her lungs

that they are treating, and high blood pressure from the

cyclosporine. They will start her on methadone so she doesn't suffer

withdrawal from all of the pain meds. Her platelets have

stabilized . They are still very low, but no longer going down. So

we got some great news today. Thanks for all of the prayers.

On Apr 12, 2006, at 9:43 AM, sonia1md wrote:

> ,

>

> we all really appreciate you taking the time to update us. You are

> a member of our jra family and you have so much support being

> extended to your family thru the power of prayer.

>

> I am glad that last night was a better night. Do you have family

> that have come to stay with your younger children? I hope your

> tangible needs are being met. All we know to do is pray...if there

> is something else that we can do, please let us know!

>

> Blessings,

> (Aundrea 10 systemic jra)-

>

> -- In , Price <bc.price@...> wrote:

>>

>> Thank you to everyone for praying for n. I believe in the

> power

>> of prayer. n's high school is having a prayer service for

> her

>> tonight.

>>

>> n had a good night last night. I don't have the results

> from

>> the latest chest x-ray or labs. They lowered her oxygen a

> little.

>>

>>

>>

>> On Apr 12, 2006, at 6:45 AM, Carey wrote:

>>

>>> Cinday and n,

>>> I'm new to the board and had basically lurked alot, but I

> wanted

>>> to send you my prayers and support too. n sounds like a

>>> fighter, which is the most important thing of all. *HUGS* to

> you

>>> all in this trying time.

>>>

>>> Carey and Ben (5, still waiting to be diagnosed)

>>>

>>> Price <bc.price@...> wrote:

>>> n is still on the ventilator and in ICU. Her lung x ray

> was a

>>> little worse today. She has developed an infection in her lungs.

>>> She is on two very strong antibiotics. She is more sedated

> today,

>>> because if she isn't she really fights and her oxygen saturation

> rate

>>> goes all to hell. Her labs are slowly improving. They are no

> where

>>> near normal, but for the most part they are now headed in the

> right

>>> direction. Her platelets have increased the last two readings.

> She

>>> had a pretty good day today.

>>>

>>>

>>> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>>>

>>>> i am worried sick!!!!!!!!!! i just wish we would

> hear

>>>> something

>>>> soon.........keeping them all in my thoughts and prayers just

>>>> about without

>>>> ceasing...........

>>>>

>>>>

>>>>

>>>> Luv and hugs,

>>>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>>>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>>>> visit/holly)

>>>>

>>>>

>>>>

>>>>

[Guest guest]

Thank God! I'm so happy for you all. We'll keep n in our prayers for her

continued recovery and improvement.

*HUGS*

Price <bc.price@...> wrote:

He everyone, n woke up today and could communicate with us by

nodding. Her x ray has improved, and they are hoping that she can

come off of the vent on Friday. She now has a fungus in her lungs

that they are treating, and high blood pressure from the

cyclosporine. They will start her on methadone so she doesn't suffer

withdrawal from all of the pain meds. Her platelets have

stabilized . They are still very low, but no longer going down. So

we got some great news today. Thanks for all of the prayers.

On Apr 12, 2006, at 9:43 AM, sonia1md wrote:

> ,

>

> we all really appreciate you taking the time to update us. You are

> a member of our jra family and you have so much support being

> extended to your family thru the power of prayer.

>

> I am glad that last night was a better night. Do you have family

> that have come to stay with your younger children? I hope your

> tangible needs are being met. All we know to do is pray...if there

> is something else that we can do, please let us know!

>

> Blessings,

> (Aundrea 10 systemic jra)-

>

> -- In , Price <bc.price@...> wrote:

>>

>> Thank you to everyone for praying for n. I believe in the

> power

>> of prayer. n's high school is having a prayer service for

> her

>> tonight.

>>

>> n had a good night last night. I don't have the results

> from

>> the latest chest x-ray or labs. They lowered her oxygen a

> little.

>>

>>

>>

>> On Apr 12, 2006, at 6:45 AM, Carey wrote:

>>

>>> Cinday and n,

>>> I'm new to the board and had basically lurked alot, but I

> wanted

>>> to send you my prayers and support too. n sounds like a

>>> fighter, which is the most important thing of all. *HUGS* to

> you

>>> all in this trying time.

>>>

>>> Carey and Ben (5, still waiting to be diagnosed)

>>>

>>> Price <bc.price@...> wrote:

>>> n is still on the ventilator and in ICU. Her lung x ray

> was a

>>> little worse today. She has developed an infection in her lungs.

>>> She is on two very strong antibiotics. She is more sedated

> today,

>>> because if she isn't she really fights and her oxygen saturation

> rate

>>> goes all to hell. Her labs are slowly improving. They are no

> where

>>> near normal, but for the most part they are now headed in the

> right

>>> direction. Her platelets have increased the last two readings.

> She

>>> had a pretty good day today.

>>>

>>>

>>> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>>>

>>>> i am worried sick!!!!!!!!!! i just wish we would

> hear

>>>> something

>>>> soon.........keeping them all in my thoughts and prayers just

>>>> about without

>>>> ceasing...........

>>>>

>>>>

>>>>

>>>> Luv and hugs,

>>>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>>>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>>>> visit/holly)

>>>>

>>>>

>>>>

>>>>

[Guest guest]

,

You just let me breathe a sigh of relief to hear some good news. So

glad that the platelet count is stabalizing. It sounds as if the

docs are really staying on top of everything and I am sure they will

get that lung fungus problem cleared up...It must be so scary right

now for n. I am glad that she can communicate a bit with you

and sure hope that she is able to get off that vent by Friday.

Of course our family will continue to pray and believe for n's

healing. How did the prayer service at the highschool go. I am

sure n will be so touched by all the support of her friends.

God Bless,

--

- In , Price <bc.price@...> wrote:

>

> He everyone, n woke up today and could communicate with us

by

> nodding. Her x ray has improved, and they are hoping that she

can

> come off of the vent on Friday. She now has a fungus in her

lungs

> that they are treating, and high blood pressure from the

> cyclosporine. They will start her on methadone so she doesn't

suffer

> withdrawal from all of the pain meds. Her platelets have

> stabilized . They are still very low, but no longer going down.

So

> we got some great news today. Thanks for all of the prayers.

>

>

>

> On Apr 12, 2006, at 9:43 AM, sonia1md wrote:

>

> > ,

> >

> > we all really appreciate you taking the time to update us. You

are

> > a member of our jra family and you have so much support being

> > extended to your family thru the power of prayer.

> >

> > I am glad that last night was a better night. Do you have family

> > that have come to stay with your younger children? I hope your

> > tangible needs are being met. All we know to do is pray...if

there

> > is something else that we can do, please let us know!

> >

> > Blessings,

> > (Aundrea 10 systemic jra)-

> >

> > -- In , Price <bc.price@> wrote:

> >>

> >> Thank you to everyone for praying for n. I believe in the

> > power

> >> of prayer. n's high school is having a prayer service for

> > her

> >> tonight.

> >>

> >> n had a good night last night. I don't have the results

> > from

> >> the latest chest x-ray or labs. They lowered her oxygen a

> > little.

> >>

> >>

> >>

> >> On Apr 12, 2006, at 6:45 AM, Carey wrote:

> >>

> >>> Cinday and n,

> >>> I'm new to the board and had basically lurked alot, but I

> > wanted

> >>> to send you my prayers and support too. n sounds like a

> >>> fighter, which is the most important thing of all. *HUGS* to

> > you

> >>> all in this trying time.

> >>>

> >>> Carey and Ben (5, still waiting to be diagnosed)

> >>>

> >>> Price <bc.price@> wrote:

> >>> n is still on the ventilator and in ICU. Her lung x ray

> > was a

> >>> little worse today. She has developed an infection in her

lungs.

> >>> She is on two very strong antibiotics. She is more sedated

> > today,

> >>> because if she isn't she really fights and her oxygen

saturation

> > rate

> >>> goes all to hell. Her labs are slowly improving. They are no

> > where

> >>> near normal, but for the most part they are now headed in the

> > right

> >>> direction. Her platelets have increased the last two readings.

> > She

> >>> had a pretty good day today.

> >>>

> >>>

> >>> On Apr 11, 2006, at 9:19 PM, ajaomom@ wrote:

> >>>

> >>>> i am worried sick!!!!!!!!!! i just wish we would

> > hear

> >>>> something

> >>>> soon.........keeping them all in my thoughts and prayers just

> >>>> about without

> >>>> ceasing...........

> >>>>

> >>>>

> >>>>

> >>>> Luv and hugs,

> >>>> Aj and Holly (12 yrs old, systemic jra since 9/94)

> >>>> _www.caringbridge.org/visit/holly_

(http://www.caringbridge.org/

> >>>> visit/holly)

> >>>>

> >>>>

> >>>>

> >>>>

[Guest guest]

Hugs to you and n, Here's hoping the improvements continue!

The prayers will- specially since I got Mass three times in the next

four days! LOL

Our little man is having trouble with his breathing at the moment

thanks to a nasty croupy cough and temps, etc. Sure got me like a

worried mother hen listening to him all night long, and cuddling him

during the day, but nowhere near the angst you must be going through.

Jo

Bayly, 3, extended oligo

>

> He everyone, n woke up today and could communicate with us by

> nodding. Her x ray has improved, and they are hoping that she can

> come off of the vent on Friday. She now has a fungus in her lungs

> that they are treating, and high blood pressure from the

> cyclosporine. They will start her on methadone so she doesn't

suffer

> withdrawal from all of the pain meds. Her platelets have

> stabilized . They are still very low, but no longer going down.

So

> we got some great news today. Thanks for all of the prayers.

[Guest guest]

Incredible News ! The thoughts will continue to flow your way and the

prayers wont stop. Tell n hello from KY and as always hang tight and hang

tough.

Hugs and smiles!

Donna

[Guest guest]

That is great news about n and such a relief to hear. We are still sending

prayers for her continued recovery. She is strong and things will be even

better soon. Jan

Re: still no news from :-(

He everyone, n woke up today and could communicate with us by

nodding. Her x ray has improved, and they are hoping that she can

come off of the vent on Friday. She now has a fungus in her lungs

that they are treating, and high blood pressure from the

cyclosporine. They will start her on methadone so she doesn't suffer

withdrawal from all of the pain meds. Her platelets have

stabilized . They are still very low, but no longer going down. So

we got some great news today. Thanks for all of the prayers.

On Apr 12, 2006, at 9:43 AM, sonia1md wrote:

> ,

>

> we all really appreciate you taking the time to update us. You are

> a member of our jra family and you have so much support being

> extended to your family thru the power of prayer.

>

> I am glad that last night was a better night. Do you have family

> that have come to stay with your younger children? I hope your

> tangible needs are being met. All we know to do is pray...if there

> is something else that we can do, please let us know!

>

> Blessings,

> (Aundrea 10 systemic jra)-

>

> -- In , Price <bc.price@...> wrote:

>>

>> Thank you to everyone for praying for n. I believe in the

> power

>> of prayer. n's high school is having a prayer service for

> her

>> tonight.

>>

>> n had a good night last night. I don't have the results

> from

>> the latest chest x-ray or labs. They lowered her oxygen a

> little.

>>

>>

>>

>> On Apr 12, 2006, at 6:45 AM, Carey wrote:

>>

>>> Cinday and n,

>>> I'm new to the board and had basically lurked alot, but I

> wanted

>>> to send you my prayers and support too. n sounds like a

>>> fighter, which is the most important thing of all. *HUGS* to

> you

>>> all in this trying time.

>>>

>>> Carey and Ben (5, still waiting to be diagnosed)

>>>

>>> Price <bc.price@...> wrote:

>>> n is still on the ventilator and in ICU. Her lung x ray

> was a

>>> little worse today. She has developed an infection in her lungs.

>>> She is on two very strong antibiotics. She is more sedated

> today,

>>> because if she isn't she really fights and her oxygen saturation

> rate

>>> goes all to hell. Her labs are slowly improving. They are no

> where

>>> near normal, but for the most part they are now headed in the

> right

>>> direction. Her platelets have increased the last two readings.

> She

>>> had a pretty good day today.

>>>

>>>

>>> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>>>

>>>> i am worried sick!!!!!!!!!! i just wish we would

> hear

>>>> something

>>>> soon.........keeping them all in my thoughts and prayers just

>>>> about without

>>>> ceasing...........

>>>>

>>>>

>>>>

>>>> Luv and hugs,

>>>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>>>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>>>> visit/holly)

>>>>

>>>>

>>>>

>>>>

[Guest guest]

Thank you. I am starting to get discouraged. Her platelets went

down last night.

On Apr 13, 2006, at 6:42 AM, jatwill@... wrote:

> That is great news about n and such a relief to hear. We are

> still sending prayers for her continued recovery. She is strong

> and things will be even better soon. Jan

>

> Re: still no news from :-(

>

>

> He everyone, n woke up today and could communicate with us by

> nodding. Her x ray has improved, and they are hoping that she can

> come off of the vent on Friday. She now has a fungus in her lungs

> that they are treating, and high blood pressure from the

> cyclosporine. They will start her on methadone so she doesn't suffer

> withdrawal from all of the pain meds. Her platelets have

> stabilized . They are still very low, but no longer going down. So

> we got some great news today. Thanks for all of the prayers.

>

>

>

> On Apr 12, 2006, at 9:43 AM, sonia1md wrote:

>

>> ,

>>

>> we all really appreciate you taking the time to update us. You are

>> a member of our jra family and you have so much support being

>> extended to your family thru the power of prayer.

>>

>> I am glad that last night was a better night. Do you have family

>> that have come to stay with your younger children? I hope your

>> tangible needs are being met. All we know to do is pray...if there

>> is something else that we can do, please let us know!

>>

>> Blessings,

>> (Aundrea 10 systemic jra)-

>>

>> -- In , Price <bc.price@...> wrote:

>>>

>>> Thank you to everyone for praying for n. I believe in the

>> power

>>> of prayer. n's high school is having a prayer service for

>> her

>>> tonight.

>>>

>>> n had a good night last night. I don't have the results

>> from

>>> the latest chest x-ray or labs. They lowered her oxygen a

>> little.

>>>

>>>

>>>

>>> On Apr 12, 2006, at 6:45 AM, Carey wrote:

>>>

>>>> Cinday and n,

>>>> I'm new to the board and had basically lurked alot, but I

>> wanted

>>>> to send you my prayers and support too. n sounds like a

>>>> fighter, which is the most important thing of all. *HUGS* to

>> you

>>>> all in this trying time.

>>>>

>>>> Carey and Ben (5, still waiting to be diagnosed)

>>>>

>>>> Price <bc.price@...> wrote:

>>>> n is still on the ventilator and in ICU. Her lung x ray

>> was a

>>>> little worse today. She has developed an infection in her lungs.

>>>> She is on two very strong antibiotics. She is more sedated

>> today,

>>>> because if she isn't she really fights and her oxygen saturation

>> rate

>>>> goes all to hell. Her labs are slowly improving. They are no

>> where

>>>> near normal, but for the most part they are now headed in the

>> right

>>>> direction. Her platelets have increased the last two readings.

>> She

>>>> had a pretty good day today.

>>>>

>>>>

>>>> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>>>>

>>>>> i am worried sick!!!!!!!!!! i just wish we would

>> hear

>>>>> something

>>>>> soon.........keeping them all in my thoughts and prayers just

>>>>> about without

>>>>> ceasing...........

>>>>>

>>>>>

>>>>>

>>>>> Luv and hugs,

>>>>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>>>>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>>>>> visit/holly)

>>>>>

>>>>>

>>>>>

>>>>>

[Guest guest]

, I know it must be so hard to sit and wait but try not to be

discouraged, sometimes things will get worse before they get better. n is

tough

and will endure. Remain strong!

Hugs!

Donna

[Guest guest]

- I am sorry to hear her platelets went down again.. Hang in there

- you are going through a lot right now. We are praying for you and your

family - especially n.

Which hospital is she at? Is she still in ICU?

Alia

________________________________

From: [mailto: ] On

Behalf Of Price

Sent: Thursday, April 13, 2006 8:47 AM

Subject: Re: still no news from :-(

Thank you. I am starting to get discouraged. Her platelets went

down last night.

On Apr 13, 2006, at 6:42 AM, jatwill@... wrote:

> That is great news about n and such a relief to hear. We are

> still sending prayers for her continued recovery. She is strong

> and things will be even better soon. Jan

>

> Re: still no news from :-(

>

>

> He everyone, n woke up today and could communicate with us by

> nodding. Her x ray has improved, and they are hoping that she can

> come off of the vent on Friday. She now has a fungus in her lungs

> that they are treating, and high blood pressure from the

> cyclosporine. They will start her on methadone so she doesn't suffer

> withdrawal from all of the pain meds. Her platelets have

> stabilized . They are still very low, but no longer going down. So

> we got some great news today. Thanks for all of the prayers.

>

>

>

> On Apr 12, 2006, at 9:43 AM, sonia1md wrote:

>

>> ,

>>

>> we all really appreciate you taking the time to update us. You are

>> a member of our jra family and you have so much support being

>> extended to your family thru the power of prayer.

>>

>> I am glad that last night was a better night. Do you have family

>> that have come to stay with your younger children? I hope your

>> tangible needs are being met. All we know to do is pray...if there

>> is something else that we can do, please let us know!

>>

>> Blessings,

>> (Aundrea 10 systemic jra)-

>>

>> -- In , Price <bc.price@...> wrote:

>>>

>>> Thank you to everyone for praying for n. I believe in the

>> power

>>> of prayer. n's high school is having a prayer service for

>> her

>>> tonight.

>>>

>>> n had a good night last night. I don't have the results

>> from

>>> the latest chest x-ray or labs. They lowered her oxygen a

>> little.

>>>

>>>

>>>

>>> On Apr 12, 2006, at 6:45 AM, Carey wrote:

>>>

>>>> Cinday and n,

>>>> I'm new to the board and had basically lurked alot, but I

>> wanted

>>>> to send you my prayers and support too. n sounds like a

>>>> fighter, which is the most important thing of all. *HUGS* to

>> you

>>>> all in this trying time.

>>>>

>>>> Carey and Ben (5, still waiting to be diagnosed)

>>>>

>>>> Price <bc.price@...> wrote:

>>>> n is still on the ventilator and in ICU. Her lung x ray

>> was a

>>>> little worse today. She has developed an infection in her lungs.

>>>> She is on two very strong antibiotics. She is more sedated

>> today,

>>>> because if she isn't she really fights and her oxygen saturation

>> rate

>>>> goes all to hell. Her labs are slowly improving. They are no

>> where

>>>> near normal, but for the most part they are now headed in the

>> right

>>>> direction. Her platelets have increased the last two readings.

>> She

>>>> had a pretty good day today.

>>>>

>>>>

>>>> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>>>>

>>>>> i am worried sick!!!!!!!!!! i just wish we would

>> hear

>>>>> something

>>>>> soon.........keeping them all in my thoughts and prayers just

>>>>> about without

>>>>> ceasing...........

>>>>>

>>>>>

>>>>>

>>>>> Luv and hugs,

>>>>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>>>>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>>>>> visit/holly)

>>>>>

>>>>>

>>>>>

>>>>>

[Guest guest]

,

I am so glad to see some good news about n. We will continue to pray for

her. All of you are in our thoughts and prayers.

Val

Rob's Mom (8,systemic)

Re: still no news from :-(

He everyone, n woke up today and could communicate with us by

nodding. Her x ray has improved, and they are hoping that she can

come off of the vent on Friday. She now has a fungus in her lungs

that they are treating, and high blood pressure from the

cyclosporine. They will start her on methadone so she doesn't suffer

withdrawal from all of the pain meds. Her platelets have

stabilized . They are still very low, but no longer going down. So

we got some great news today. Thanks for all of the prayers.

On Apr 12, 2006, at 9:43 AM, sonia1md wrote:

> ,

>

> we all really appreciate you taking the time to update us. You are

> a member of our jra family and you have so much support being

> extended to your family thru the power of prayer.

>

> I am glad that last night was a better night. Do you have family

> that have come to stay with your younger children? I hope your

> tangible needs are being met. All we know to do is pray...if there

> is something else that we can do, please let us know!

>

> Blessings,

> (Aundrea 10 systemic jra)-

>

> -- In , Price <bc.price@...> wrote:

>>

>> Thank you to everyone for praying for n. I believe in the

> power

>> of prayer. n's high school is having a prayer service for

> her

>> tonight.

>>

>> n had a good night last night. I don't have the results

> from

>> the latest chest x-ray or labs. They lowered her oxygen a

> little.

>>

>>

>>

>> On Apr 12, 2006, at 6:45 AM, Carey wrote:

>>

>>> Cinday and n,

>>> I'm new to the board and had basically lurked alot, but I

> wanted

>>> to send you my prayers and support too. n sounds like a

>>> fighter, which is the most important thing of all. *HUGS* to

> you

>>> all in this trying time.

>>>

>>> Carey and Ben (5, still waiting to be diagnosed)

>>>

>>> Price <bc.price@...> wrote:

>>> n is still on the ventilator and in ICU. Her lung x ray

> was a

>>> little worse today. She has developed an infection in her lungs.

>>> She is on two very strong antibiotics. She is more sedated

> today,

>>> because if she isn't she really fights and her oxygen saturation

> rate

>>> goes all to hell. Her labs are slowly improving. They are no

> where

>>> near normal, but for the most part they are now headed in the

> right

>>> direction. Her platelets have increased the last two readings.

> She

>>> had a pretty good day today.

>>>

>>>

>>> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>>>

>>>> i am worried sick!!!!!!!!!! i just wish we would

> hear

>>>> something

>>>> soon.........keeping them all in my thoughts and prayers just

>>>> about without

>>>> ceasing...........

>>>>

>>>>

>>>>

>>>> Luv and hugs,

>>>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>>>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>>>> visit/holly)

>>>>

>>>>

>>>>

>>>>

[Guest guest]

Emanuel Children's Hospital in ICU,

On Apr 13, 2006, at 7:03 AM, <Alia.Pranke@...> wrote:

> - I am sorry to hear her platelets went down again.. Hang in

> there

> - you are going through a lot right now. We are praying for you and

> your

> family - especially n.

>

> Which hospital is she at? Is she still in ICU?

>

> Alia

>

> ________________________________

>

> From: [mailto: ] On

> Behalf Of Price

> Sent: Thursday, April 13, 2006 8:47 AM

>

> Subject: Re: still no news from :-(

>

>

> Thank you. I am starting to get discouraged. Her platelets went

> down last night.

> On Apr 13, 2006, at 6:42 AM, jatwill@... wrote:

>

>> That is great news about n and such a relief to hear. We are

>> still sending prayers for her continued recovery. She is strong

>> and things will be even better soon. Jan

>>

>> Re: still no news from :-(

>>

>>

>> He everyone, n woke up today and could communicate with us by

>> nodding. Her x ray has improved, and they are hoping that she can

>> come off of the vent on Friday. She now has a fungus in her lungs

>> that they are treating, and high blood pressure from the

>> cyclosporine. They will start her on methadone so she doesn't suffer

>> withdrawal from all of the pain meds. Her platelets have

>> stabilized . They are still very low, but no longer going down. So

>> we got some great news today. Thanks for all of the prayers.

>>

>>

>>

>> On Apr 12, 2006, at 9:43 AM, sonia1md wrote:

>>

>>> ,

>>>

>>> we all really appreciate you taking the time to update us. You are

>>> a member of our jra family and you have so much support being

>>> extended to your family thru the power of prayer.

>>>

>>> I am glad that last night was a better night. Do you have family

>>> that have come to stay with your younger children? I hope your

>>> tangible needs are being met. All we know to do is pray...if there

>>> is something else that we can do, please let us know!

>>>

>>> Blessings,

>>> (Aundrea 10 systemic jra)-

>>>

>>> -- In , Price <bc.price@...> wrote:

>>>>

>>>> Thank you to everyone for praying for n. I believe in the

>>> power

>>>> of prayer. n's high school is having a prayer service for

>>> her

>>>> tonight.

>>>>

>>>> n had a good night last night. I don't have the results

>>> from

>>>> the latest chest x-ray or labs. They lowered her oxygen a

>>> little.

>>>>

>>>>

>>>>

>>>> On Apr 12, 2006, at 6:45 AM, Carey wrote:

>>>>

>>>>> Cinday and n,

>>>>> I'm new to the board and had basically lurked alot, but I

>>> wanted

>>>>> to send you my prayers and support too. n sounds like a

>>>>> fighter, which is the most important thing of all. *HUGS* to

>>> you

>>>>> all in this trying time.

>>>>>

>>>>> Carey and Ben (5, still waiting to be diagnosed)

>>>>>

>>>>> Price <bc.price@...> wrote:

>>>>> n is still on the ventilator and in ICU. Her lung x ray

>>> was a

>>>>> little worse today. She has developed an infection in her lungs.

>>>>> She is on two very strong antibiotics. She is more sedated

>>> today,

>>>>> because if she isn't she really fights and her oxygen saturation

>>> rate

>>>>> goes all to hell. Her labs are slowly improving. They are no

>>> where

>>>>> near normal, but for the most part they are now headed in the

>>> right

>>>>> direction. Her platelets have increased the last two readings.

>>> She

>>>>> had a pretty good day today.

>>>>>

>>>>>

>>>>> On Apr 11, 2006, at 9:19 PM, ajaomom@... wrote:

>>>>>

>>>>>> i am worried sick!!!!!!!!!! i just wish we would

>>> hear

>>>>>> something

>>>>>> soon.........keeping them all in my thoughts and prayers just

>>>>>> about without

>>>>>> ceasing...........

>>>>>>

>>>>>>

>>>>>>

>>>>>> Luv and hugs,

>>>>>> Aj and Holly (12 yrs old, systemic jra since 9/94)

>>>>>> _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/

>>>>>> visit/holly)

>>>>>>

>>>>>>

>>>>>>

>>>>>>