Re: Holly is starting Enbrel

[Guest guest]

Hi Liz,

I really hope so too!!! Thanks so much!!!

Aj

[Guest guest]

AJ,

Enbrel worked quickly for and provided such relief that I had other

parents ask me if a cure had been found. I hope that Holly will see that

kind of improvement.

Liz

_____

From: [mailto: ] On Behalf

Of ajaomom@...

Sent: Friday, May 26, 2006 4:44 PM

Subject: Holly is starting Enbrel

Hi all.....Holly is still having a very rough time......the rheumie is

starting her on enbrel starting tomorrow now, as we were going to start it

Wednesday, but it finally just got the prior authorization..........Any

thoughts???

suggestions??? I am just hoping and praying this is the answer, she has

had a rough year and a half. Talk to you soon!!!

Luv and hugs,

Aj and Holly (12 yrs old, systemic jra since 9/94)

_www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/visit/holly)

[Guest guest]

Thanks !!!!

[Guest guest]

AJ,

I hope it works for you. Audrey has been very slow to respond to it. She has

been on it for over 2 months and we are still seeing significant swelling in 2

of her toes.

Re: Holly is starting Enbrel

Hi Liz,

I really hope so too!!! Thanks so much!!!

Aj

[Guest guest]

AJ

I hope that it is the wonder drug for Holly, like so many others.

Keep us posted on her progress!

and Rob 17 Spondy

On Fri, 26 May 2006 16:44:07 EDT ajaomom@... writes:

Hi all.....Holly is still having a very rough time......the rheumie is

starting her on enbrel starting tomorrow now, as we were going to start

it

Wednesday, but it finally just got the prior authorization..........Any

thoughts???

suggestions??? I am just hoping and praying this is the answer, she

has

had a rough year and a half. Talk to you soon!!!

Luv and hugs,

Aj and Holly (12 yrs old, systemic jra since 9/94)

_www.caringbridge.org/visit/holly_

(http://www.caringbridge.org/visit/holly)

[Guest guest]

AJ

I hope that it is the wonder drug for Holly, like so many others.

Keep us posted on her progress!

and Rob 17 Spondy

On Fri, 26 May 2006 16:44:07 EDT ajaomom@... writes:

Hi all.....Holly is still having a very rough time......the rheumie is

starting her on enbrel starting tomorrow now, as we were going to start

it

Wednesday, but it finally just got the prior authorization..........Any

thoughts???

suggestions??? I am just hoping and praying this is the answer, she

has

had a rough year and a half. Talk to you soon!!!

Luv and hugs,

Aj and Holly (12 yrs old, systemic jra since 9/94)

_www.caringbridge.org/visit/holly_

(http://www.caringbridge.org/visit/holly)

[Guest guest]

Aj and Holly...Positive vibes comin your way! Let this be just what ya need.

Keep us posted. Donna

[Guest guest]

Thanks Donna!!!

[Guest guest]

-Aj,

I hope that enbrel is the wonder drug for Holly. Nichoals started to

show inprovement within days of starting it. I was not expecting it to

work so quickly.

Hugs Helen and (8,systemic)

-- In , ajaoky@... wrote:

>

> Aj and Holly...Positive vibes comin your way! Let this be just what

ya need.

> Keep us posted. Donna

>

>

>

[Guest guest]

Hope this is the answer for Holly. I'll keep you in my prayers, Michele

( 19, spondy)

Holly is starting Enbrel

Hi all.....Holly is still having a very rough time......the rheumie is

starting her on enbrel starting tomorrow now, as we were going to start

it

Wednesday, but it finally just got the prior authorization..........Any

thoughts???

suggestions??? I am just hoping and praying this is the answer, she

has

had a rough year and a half. Talk to you soon!!!

Luv and hugs,

Aj and Holly (12 yrs old, systemic jra since 9/94)

_www.caringbridge.org/visit/holly_

(http://www.caringbridge.org/visit/holly)

[Guest guest]

hello:

like your daughter holly, my daughter sasha (14) started enbrel 3

mos ago, it's helping a lot , because she was in heavy doses of solumedrol (

1000 mg twice a week ) and she had a pick line. she was waining weight and

developed esteroid resistant diabetes, now she's out of solumedrol and pick line

,also she got rid of insuline and her sugar levels are back to normal, she's

back to school and trying to go back to her normal

activities........................

snooksmama@... wrote:

AJ

I hope that it is the wonder drug for Holly, like so many others.

Keep us posted on her progress!

and Rob 17 Spondy

On Fri, 26 May 2006 16:44:07 EDT ajaomom@... writes:

Hi all.....Holly is still having a very rough time......the rheumie is

starting her on enbrel starting tomorrow now, as we were going to start

it

Wednesday, but it finally just got the prior authorization..........Any

thoughts???

suggestions??? I am just hoping and praying this is the answer, she

has

had a rough year and a half. Talk to you soon!!!

Luv and hugs,

Aj and Holly (12 yrs old, systemic jra since 9/94)

_www.caringbridge.org/visit/holly_

(http://www.caringbridge.org/visit/holly)