Cindy and n

[Guest guest]

- Please know that we are praying for n. I am so sorry you

are going through this.

Alia and Caroline, age 4, poly and iritis

________________________________

From: [mailto: ] On

Behalf Of Price

Sent: Friday, April 07, 2006 9:26 PM

Subject: Re: and n

I am home only for a minute. n has taken a turn for the worse.

She is in intensive care getting aid to breathe. She is in critical.

On Apr 7, 2006, at 8:43 AM, Tepper, Michele wrote:

> Just going through all the emails and read about the MAS diagnosis.

> I am

> so glad they caught it right away and what a great idea about the

> folder. You are so right about educating drs whenever you can. Once

> again, praying for you all, Michele

>

> Re: and n

>

> My husband is staying with her. We have two other children, with the

> youngest at 8 years old. I am trying not to alarm them too much. I

> will be there bright and early tomorrow. My husband knows to call me

> if n hiccups.

>

> The blood test showed that she had MAS. The mono triggered it.

> Everything seems to hurt her, and I don't see too much relief with

> the morphine.

>

> I believe that she is in very good hands. The doctor just had a 15

> year old systemic boy with MAS earlier in the week. That boy was in

> the hospital for 6 days and has recovered. Thanks for the prayers.

>

> You know what I think every systemic parent should do? I have kept a

> folder on my desk the last several years with MAS articles. We

> brought that to the ER today and had the ER doctor read it. The ER

> doctor had never even seen a systemic child before. You have to move

> so quick with MAS. It is the nightmare for every systemic parent.

> You have to educate the doctors on the fly.

>

>

> On Apr 6, 2006, at 9:52 PM, sonia1md wrote:

>

>> ,

>> Are you staying at the hospital with her? Is she still in a lot of

>> pain or has the moriphine kicked in? How did they determine that

>> she has mas in addition to mono? Make sure you get some rest. I am

>> sure that is hard to do when you must be so concerned for n.

>>

>> Are you pleased with the doctors that are overseeing her care?

>>

>> I have been praying for you all day! This seems really serious and I

>> sure hope that the labs show that things are getting better.

>>

>> (Aundrea 10 systemic)-

>>

>> -- In , Price <bc.price@...> wrote:

>>>

>>> Mono threw her into it. She is on 1000mg solumedrol per day .

>> We

>>> are going day by day. Cyclosporin may be added tomorrow depending

>> on

>>> what labs say. She is also on morphine. We could use some

>> prayers.

>>> (n,17, systemic)

>>>

>>>

>>>

>>>

>>> On Apr 6, 2006, at 9:12 PM, ThreeMayEmeralds@... wrote:

>>>

>>>>

>>>> In a message dated 4/7/2006 12:01:29 A.M. Eastern Standard Time,

>>>> bc.price@... writes:

>>>>

>>>> n has MAS( macrophage activation syndrome) They think

>> that they

>>>> caught it early.

>>>>

>>>>

>>>>

>>>> Goodness! I am sorry to hear that n has MAS. How scary.

>> Do

>>>> they

>>>> think the mono dx was wrong or is this what led to MAS? Are

>> the

>>>> meds helping her?

>>>>

>>>> Will keep her and you all in my thoughts and prayers.

>>>>

>>>> Take care.

>>>> Patty

>>>>

>>>>

>>>>

[Guest guest]

,

We are keeping n and your entire family in our prayers. Please give a

little update when you have a few minutes to spare.

Liz

_____

[Guest guest]

:

Continuing our prayers for you and n. She is a trooper!

and Rob 17 Spondy

" Have no fear for what tomorrow may bring. The same loving God who cares

for you today will take care of you tomorrow and every day. God will

either shield you from suffering or give you unfailing strength to bear

it. Be at peace, then, and put aside all anxious thoughts and

imaginations. "

-St Francis DeSales