RE: Any news of Cindy and n??

[Guest guest]

, I was wondering myself. I check daily and was hoping to see an update.

Donna

Hang tight, Hang tough

[Guest guest]

n came off of the vent yesterday. She is out of intensive

care, and in a regular room. We are thrilled. She is very, very

weak. Like she doesn't even have the strength to sip from a straw.

So it might be a long recovery, but she is going to be okay. Her

platelets are up to 140, in the low range. But they had been

20-40. She still has some fluid around the heart, but it is

minimal. She is on blood pressure meds for the cyclosporine's side

effects. They are also watching for diabetes with the high dose

steroids. It is going to be a great Easter. (n, 17,

systemic)

On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

> Just have been thinking of and praying for n and . Has

> anybody

> heard anything? I hope that she was able to come off the ventilator on

> Friday.

> and Rob 16 Spondy

>

> " Have no fear for what tomorrow may bring. The same loving God who

> cares

> for you today will take care of you tomorrow and every day. God will

> either shield you from suffering or give you unfailing strength to

> bear

> it. Be at peace, then, and put aside all anxious thoughts and

> imaginations. "

> -St Francis DeSales

>

>

>

>

[Guest guest]

That's great news! I am glad to hear n is on the road to

recovery. I am sure this has been a very scary ordeal for you and

your family.

I will keep n, you and your family in my thoughts and prayers.

Val

>

> > Just have been thinking of and praying for n and . Has

> > anybody

> > heard anything? I hope that she was able to come off the

ventilator on

> > Friday.

> > and Rob 16 Spondy

> >

> > " Have no fear for what tomorrow may bring. The same loving God

who

> > cares

> > for you today will take care of you tomorrow and every day. God

will

> > either shield you from suffering or give you unfailing strength

to

> > bear

> > it. Be at peace, then, and put aside all anxious thoughts and

> > imaginations. "

> > -St Francis DeSales

> >

> >

> >

> >

[Guest guest]

So happy to hear she is doing better!!

Lots of Love

(JAS, 21)

Price <bc.price@...> wrote:

n came off of the vent yesterday. She is out of intensive

care, and in a regular room. We are thrilled. She is very, very

weak. Like she doesn't even have the strength to sip from a straw.

So it might be a long recovery, but she is going to be okay. Her

platelets are up to 140, in the low range. But they had been

20-40. She still has some fluid around the heart, but it is

minimal. She is on blood pressure meds for the cyclosporine's side

effects. They are also watching for diabetes with the high dose

steroids. It is going to be a great Easter. (n, 17,

systemic)

On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

> Just have been thinking of and praying for n and . Has

> anybody

> heard anything? I hope that she was able to come off the ventilator on

> Friday.

> and Rob 16 Spondy

>

> " Have no fear for what tomorrow may bring. The same loving God who

> cares

> for you today will take care of you tomorrow and every day. God will

> either shield you from suffering or give you unfailing strength to

> bear

> it. Be at peace, then, and put aside all anxious thoughts and

> imaginations. "

> -St Francis DeSales

>

>

>

>

[Guest guest]

- this is wonderful news - your n is quite the fighter - I am so

happy for your family. Sandi Ken and Hunter (Systemic 7)

[Guest guest]

Absolutely incredible news ! Way to go n. What awesome news to

find on the email this Easter morning! I am so happy for you guys......Happy,

Happy Easter!

Hang tight, Hang tough

Donna

[Guest guest]

Alleluia! Praise God!

Tell n HAPPY EASTER from us all!

and Rob 16 Spondy (17 in 10 days)

On Sat, 15 Apr 2006 19:36:20 -0700 Price <bc.price@...>

writes:

n came off of the vent yesterday. She is out of intensive

care, and in a regular room. We are thrilled. She is very, very

weak. Like she doesn't even have the strength to sip from a straw.

So it might be a long recovery, but she is going to be okay. Her

platelets are up to 140, in the low range. But they had been

20-40. She still has some fluid around the heart, but it is

minimal. She is on blood pressure meds for the cyclosporine's side

effects. They are also watching for diabetes with the high dose

steroids. It is going to be a great Easter. (n, 17,

systemic)

On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

> Just have been thinking of and praying for n and . Has

> anybody

> heard anything? I hope that she was able to come off the ventilator on

> Friday.

> and Rob 16 Spondy

>

> " Have no fear for what tomorrow may bring. The same loving God who

> cares

> for you today will take care of you tomorrow and every day. God will

> either shield you from suffering or give you unfailing strength to

> bear

> it. Be at peace, then, and put aside all anxious thoughts and

> imaginations. "

> -St Francis DeSales

>

>

>

>

[Guest guest]

,

What wonderful news! Happy Easter!!!

Liz

_____

From: [mailto: ] On Behalf

Of Price

Sent: Saturday, April 15, 2006 10:36 PM

Subject: Re: Any news of and n??

n came off of the vent yesterday. She is out of intensive

care, and in a regular room. We are thrilled. She is very, very

weak. Like she doesn't even have the strength to sip from a straw.

So it might be a long recovery, but she is going to be okay. Her

platelets are up to 140, in the low range. But they had been

20-40. She still has some fluid around the heart, but it is

minimal. She is on blood pressure meds for the cyclosporine's side

effects. They are also watching for diabetes with the high dose

steroids. It is going to be a great Easter. (n, 17,

systemic)

On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

> Just have been thinking of and praying for n and . Has

> anybody

> heard anything? I hope that she was able to come off the ventilator on

> Friday.

> and Rob 16 Spondy

>

> " Have no fear for what tomorrow may bring. The same loving God who

> cares

> for you today will take care of you tomorrow and every day. God will

> either shield you from suffering or give you unfailing strength to

> bear

> it. Be at peace, then, and put aside all anxious thoughts and

> imaginations. "

> -St Francis DeSales

>

>

>

>

[Guest guest]

, what wonderful news! Great news for Easter weekend. We are so happy for

n and your family. Jan

Re: Any news of and n??

n came off of the vent yesterday. She is out of intensive

care, and in a regular room. We are thrilled. She is very, very

weak. Like she doesn't even have the strength to sip from a straw.

So it might be a long recovery, but she is going to be okay. Her

platelets are up to 140, in the low range. But they had been

20-40. She still has some fluid around the heart, but it is

minimal. She is on blood pressure meds for the cyclosporine's side

effects. They are also watching for diabetes with the high dose

steroids. It is going to be a great Easter. (n, 17,

systemic)

On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

> Just have been thinking of and praying for n and . Has

> anybody

> heard anything? I hope that she was able to come off the ventilator on

> Friday.

> and Rob 16 Spondy

>

> " Have no fear for what tomorrow may bring. The same loving God who

> cares

> for you today will take care of you tomorrow and every day. God will

> either shield you from suffering or give you unfailing strength to

> bear

> it. Be at peace, then, and put aside all anxious thoughts and

> imaginations. "

> -St Francis DeSales

>

>

>

>

[Guest guest]

that actually IS great news for Easter!

I have been away the last couple of days visiting our family, and

been praying for all our JIA kids the whole time I was at Mass. And I

had a few chances to do sothese past few days.

So I am very happy to read of n's improvements.

I hope it continues.

(Bayly's not so well right now but at least he's home with us!)

Jo

Bayly, 3, extended oligo

>

> > Just have been thinking of and praying for n and . Has

> > anybody

> > heard anything? I hope that she was able to come off the

ventilator on

> > Friday.

> > and Rob 16 Spondy

> >

> > " Have no fear for what tomorrow may bring. The same loving God

who

> > cares

> > for you today will take care of you tomorrow and every day. God

will

> > either shield you from suffering or give you unfailing strength

to

> > bear

> > it. Be at peace, then, and put aside all anxious thoughts and

> > imaginations. "

> > -St Francis DeSales

> >

> >

> >

> >

[Guest guest]

Hi ,

I was just checking in and hoping to hear that things went according

to plan with removing the vent. So glad to hear that she has turned

the corner and is ever so slowly regaining her strength.

I bet she is so tired that she must just want to sleep all the

time. I can't imagine those high doses of steroids she was

on...Makes you wonder how long it will take her body to

just " sort " everything out.

Are you and your husband still able to tag-team your time between

hospital and home. I hope that his employer has been generous with

time off and meeting all of those needs.

Your family remains in my prayers and thanks again for taking the

time to update us as to how n is doing!

God Bless,

(Aundrea 10 systemic jra)

-- In , Price <bc.price@...> wrote:

>

> n came off of the vent yesterday. She is out of intensive

> care, and in a regular room. We are thrilled. She is very, very

> weak. Like she doesn't even have the strength to sip from a

straw.

> So it might be a long recovery, but she is going to be okay. Her

> platelets are up to 140, in the low range. But they had been

> 20-40. She still has some fluid around the heart, but it is

> minimal. She is on blood pressure meds for the cyclosporine's

side

> effects. They are also watching for diabetes with the high dose

> steroids. It is going to be a great Easter. (n, 17,

> systemic)

>

>

> On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

>

> > Just have been thinking of and praying for n and .

Has

> > anybody

> > heard anything? I hope that she was able to come off the

ventilator on

> > Friday.

> > and Rob 16 Spondy

> >

> > " Have no fear for what tomorrow may bring. The same loving God

who

> > cares

> > for you today will take care of you tomorrow and every day. God

will

> > either shield you from suffering or give you unfailing strength

to

> > bear

> > it. Be at peace, then, and put aside all anxious thoughts and

> > imaginations. "

> > -St Francis DeSales

> >

> >

> >

> >

[Guest guest]

,

I am so glad to hear that n is improving! Lots of prayers coming your way

for a quick recovery.

has been on blood pressure medicine ever since they added the

cyclosporine - we did find that as we were able to lower the steriods from the

high IV & PO amounts given when hospitalized or in a flare - we were also able

to lower the bp med. His bp wasn't high until the cyclosporine was raised - but

the bp would be higher when the steriods were higher - apparrently the combo of

the two meds can really cause the bp to raise & I think I've read that the

steriods alone can cause hypertension - though in 's case, that wasn't a

problem til the cyclosporine was added to the mix. Hmm, could I have found a

longer way to say that? Sorry for the wordiness, but again know that we are so

pleased to hear of the improvements & will continue to pray for n and the

rest of your family - as well as all of the others here on the list.

Val

Rob's Mom (8,systemic)

Re: Any news of and n??

n came off of the vent yesterday. She is out of intensive

care, and in a regular room. We are thrilled. She is very, very

weak. Like she doesn't even have the strength to sip from a straw.

So it might be a long recovery, but she is going to be okay. Her

platelets are up to 140, in the low range. But they had been

20-40. She still has some fluid around the heart, but it is

minimal. She is on blood pressure meds for the cyclosporine's side

effects. They are also watching for diabetes with the high dose

steroids. It is going to be a great Easter. (n, 17,

systemic)

On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

> Just have been thinking of and praying for n and . Has

> anybody

> heard anything? I hope that she was able to come off the ventilator on

> Friday.

> and Rob 16 Spondy

>

> " Have no fear for what tomorrow may bring. The same loving God who

> cares

> for you today will take care of you tomorrow and every day. God will

> either shield you from suffering or give you unfailing strength to

> bear

> it. Be at peace, then, and put aside all anxious thoughts and

> imaginations. "

> -St Francis DeSales

>

>

>

>

[Guest guest]

So glad to hear the good news! I checked the list on Saturday and was

delighted to see she was coming off the vent. Keep us updated, you're

all in our prayers, Michele

Re: Any news of and n??

n came off of the vent yesterday. She is out of intensive

care, and in a regular room. We are thrilled. She is very, very

weak. Like she doesn't even have the strength to sip from a straw.

So it might be a long recovery, but she is going to be okay. Her

platelets are up to 140, in the low range. But they had been

20-40. She still has some fluid around the heart, but it is

minimal. She is on blood pressure meds for the cyclosporine's side

effects. They are also watching for diabetes with the high dose

steroids. It is going to be a great Easter. (n, 17,

systemic)

On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

> Just have been thinking of and praying for n and . Has

> anybody

> heard anything? I hope that she was able to come off the ventilator on

> Friday.

> and Rob 16 Spondy

>

> " Have no fear for what tomorrow may bring. The same loving God who

> cares

> for you today will take care of you tomorrow and every day. God will

> either shield you from suffering or give you unfailing strength to

> bear

> it. Be at peace, then, and put aside all anxious thoughts and

> imaginations. "

> -St Francis DeSales

>

>

>

>

[Guest guest]

- I hope it was a Happy Easter indeed!! I am hoping that n is

continuing to gain strength and improve!!

Alia and Caroline, age 4, poly and Uveitis

________________________________

From: [mailto: ] On

Behalf Of Price

Sent: Saturday, April 15, 2006 9:36 PM

Subject: Re: Any news of and n??

n came off of the vent yesterday. She is out of intensive

care, and in a regular room. We are thrilled. She is very, very

weak. Like she doesn't even have the strength to sip from a straw.

So it might be a long recovery, but she is going to be okay. Her

platelets are up to 140, in the low range. But they had been

20-40. She still has some fluid around the heart, but it is

minimal. She is on blood pressure meds for the cyclosporine's side

effects. They are also watching for diabetes with the high dose

steroids. It is going to be a great Easter. (n, 17,

systemic)

On Apr 15, 2006, at 7:16 PM, snooksmama@... wrote:

> Just have been thinking of and praying for n and . Has

> anybody

> heard anything? I hope that she was able to come off the ventilator on

> Friday.

> and Rob 16 Spondy

>

> " Have no fear for what tomorrow may bring. The same loving God who

> cares

> for you today will take care of you tomorrow and every day. God will

> either shield you from suffering or give you unfailing strength to

> bear

> it. Be at peace, then, and put aside all anxious thoughts and

> imaginations. "

> -St Francis DeSales

>

>

>

>