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,

My heart breaks for you with having to deal with a school district that

prosecutes you for your childs illness. And on top of that and ex-husband that

has no clue about the JRA and would be willing to try to take your kids from

you and then drop his med's. Unfortunatly, when we know we are doing what is

right and doing the best we can, we think that we may not need a lawyer to

represent us. As if paying for our kids med's is not expensive enough that you

have to pay an attorney to explain that for you.

In reading all the responses about schools and how our kids and we as

parents are treated it is amazing how different they can be. About a month ago,

Ama

nda Jaye actually got a positive referral from one of her teachers. The

reason she got the referral was because she had missed so much school but still

was keeping caught up on all her work. She was even called to the office where

the assistant principal gave her the Positive Referral Certificate and told

her she was doing a great job. Let me tell you, I was quite pleased, and then

a few days later they mailed me a copy of that referral.

I went to my daughters school just over a week ago and sat down with her

principal to discuss how much school she has missed. I knew we had a good school

and the teachers have worked hard with to keep her caught up. But I

was still amazed at how well they are working with us. As I talked with her

principal she told me that she has a very good friend whose daughter was

diagnosed a few years back with JRA and so even though she does not understand

much

about it, she does know that it can be devastating and alter everything

about the life of the child and the family at times. does have an IEP

and

her 504 plan will probably allow for some Home Bound study. My daughter has

missed about 30 days since the end of October when she started having

problems.

If your child does not have a IEP or a 504 plan work hard to get that for

them before they get into middle school.

Veri & Jaye 12 Poly

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Veri,

Your right about getting it done before Middle School. Elementary from

my experience was easier than 's Middle School. Middle School get's

harder on the Tardies and missed day's. I will tell you all. That keeping a

copy of every visit to a Dr or PT or even a Test will keep you from getting in

trouble for Educational Neglect.

I would suggest going to the Middle School and talking with the

Counselor and see what's being done now so you can prepare for that to come.

Robbin

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