Re: Re: Updates on DH and !

[Guest guest]

Thanks so much Stacia. Have question on shots. Where are they given? Thigh,

buttocks, arm? Does the fatter tissue the better sound right?

--

Lorilee

~~~~~~~~~~~~~~~~

Ken 47 {PolyRA}

6 {Systemic JRA, Eczema},

Kayla 15 {Healthy Thank God}

18 {Asthma}

~~~~~~~~~~~~~~~~

-------------- Original message --------------

From: " staciar101 " <staciar@...>

Lorilee,

Don't let the injections intimidate you or let you lose sight of the

end all goal of better health for your child (and whole family).

Many of us were needlephobic before doing injections, but it does

get better, especially when you know it's making your child better.

Yes, the beginning of doing them is very difficult, but that

difficulty will pass.

When my son was diagnosed at 7, we started on oral mtx., then went

to injectible in juice, then finally the action injections within a

6 month period. The injections were the only thing that worked.

I'm sorry you are feeling so overwhelmed by everything goingon with

your family member's health. Ii pray thing get better for you soon.

Stacia and Hunter 9 systemic, iritis

>

> Ok here it is. For the second time, after I accidentaly erased

everything I just typed. UGH!

> Hubby went to his appt. yesterday. He now has a dx, he has

Polyarticular RA and fatigue. She's put him on some other drug that

I couldn't read her handwriting of and we haven't picked up the

script yet. He has to go in for more labs and that's it for now.

> had his this morning. She's has dropped the probable from

his dx. He truely has SJRA. Ok so she up'd his MTX (injectable)

from .6ml orally to .8ml. And tapering his pred from 10 mg (5mg

twice a day) back down to 5mg. She told me to shave or cut off

small portions one pill until it's down to only the one dose per

day. So that all started tonight.

> She told me that if the uping of MTX doesn't seem to work then we

will have to go to injecting it instead. Not looking forward to

that. Have enough troubles with drawing blood. and then if that

doesn't seem to work we will have to go to Remicade IV's. She's

also setting up some physical therapy. I'm not sure but I think

she's setting it up where she's at and that's an hour away. Not

sure how that one is going to go over with driving and time frames

and school and such. I'd much rather it be set up here in my town

so I don't have so much frustrations. He also woke up this morning

with 102 fever and rash and a general feeling of yuck. Poor kid.

After driving that hour to his appt. he seemed to be alittle better.

> A week or so ago we found out that my hubby's father has been dx'd

with RA also. So now its a family thing.

> So what the heck has happened to my family in the last year. It's

gone to hell in a hand basket and all I can do is hold on screaming

as it plummets to the hell at break neck speed. I'm so not ready

for this....why couldn't this be when I was younger and had more

energy....I'm not ready to be everyone's nurse...lol

>

>

> --

> Lorilee

> ~~~~~~~~~~~~~~~~

> Ken 47 {PolyRA}

> 6 {Systemic JRA, Eczema},

> Kayla 15 {Healthy Thank God}

> 18 {Asthma}

> ~~~~~~~~~~~~~~~~

>

>

[Guest guest]

Thanks Stacia. 's Rheumy said if the increase of injectable taken orally

idn't do the job then we would have to go to injections. Just wanted to prepare

myself for anything and everything. You've been very helpful.

--

Lorilee

~~~~~~~~~~~~~~~~

Ken 47 {PolyRA}

6 {Systemic JRA, Eczema},

Kayla 15 {Healthy Thank God}

18 {Asthma}

~~~~~~~~~~~~~~~~

-------------- Original message --------------

From: " staciar101 " <staciar@...>

Lorilee,

We do shots in the arms and thighs, rotating the site each week.

Hunter is very slim, so you do need to make sure you get the fatty

part of the upper thigh and the back/side of the arm. I think there

are some people here that might do the stomach, but we don't.

Stacia

> >

> > Ok here it is. For the second time, after I accidentaly erased

> everything I just typed. UGH!

> > Hubby went to his appt. yesterday. He now has a dx, he has

> Polyarticular RA and fatigue. She's put him on some other drug

that

> I couldn't read her handwriting of and we haven't picked up the

> script yet. He has to go in for more labs and that's it for now.

> > had his this morning. She's has dropped the probable from

> his dx. He truely has SJRA. Ok so she up'd his MTX (injectable)

> from .6ml orally to .8ml. And tapering his pred from 10 mg (5mg

> twice a day) back down to 5mg. She told me to shave or cut off

> small portions one pill until it's down to only the one dose per

> day. So that all started tonight.

> > She told me that if the uping of MTX doesn't seem to work then

we

> will have to go to injecting it instead. Not looking forward to

> that. Have enough troubles with drawing blood. and then if that

> doesn't seem to work we will have to go to Remicade IV's. She's

> also setting up some physical therapy. I'm not sure but I think

> she's setting it up where she's at and that's an hour away. Not

> sure how that one is going to go over with driving and time frames

> and school and such. I'd much rather it be set up here in my town

> so I don't have so much frustrations. He also woke up this

morning

> with 102 fever and rash and a general feeling of yuck. Poor kid.

> After driving that hour to his appt. he seemed to be alittle

better.

> > A week or so ago we found out that my hubby's father has been

dx'd

> with RA also. So now its a family thing.

> > So what the heck has happened to my family in the last year.

It's

> gone to hell in a hand basket and all I can do is hold on

screaming

> as it plummets to the hell at break neck speed. I'm so not ready

> for this....why couldn't this be when I was younger and had more

> energy....I'm not ready to be everyone's nurse...lol

> >

> >

> > --

> > Lorilee

> > ~~~~~~~~~~~~~~~~

> > Ken 47 {PolyRA}

> > 6 {Systemic JRA, Eczema},

> > Kayla 15 {Healthy Thank God}

> > 18 {Asthma}

> > ~~~~~~~~~~~~~~~~

> >

> >

[Guest guest]

At JA camp, injections were most often given in the thigh... some children

prefered being able to see the area. The stomach never seemed preferable for

the kids although many of the YA's did this out of easier access? It gets

easier in time for everyone...

good fortune

Issadora

On 3/6/06, staciar101 <staciar@...> wrote:

>

> Lorilee,

> We do shots in the arms and thighs, rotating the site each week.

> Hunter is very slim, so you do need to make sure you get the fatty

> part of the upper thigh and the back/side of the arm. I think there

> are some people here that might do the stomach, but we don't.

>

> Stacia

>

>

> > >

> > > Ok here it is. For the second time, after I accidentaly erased

> > everything I just typed. UGH!

> > > Hubby went to his appt. yesterday. He now has a dx, he has

> > Polyarticular RA and fatigue. She's put him on some other drug

> that

> > I couldn't read her handwriting of and we haven't picked up the

> > script yet. He has to go in for more labs and that's it for now.

> > > had his this morning. She's has dropped the probable from

> > his dx. He truely has SJRA. Ok so she up'd his MTX (injectable)

> > from .6ml orally to .8ml. And tapering his pred from 10 mg (5mg

> > twice a day) back down to 5mg. She told me to shave or cut off

> > small portions one pill until it's down to only the one dose per

> > day. So that all started tonight.

> > > She told me that if the uping of MTX doesn't seem to work then

> we

> > will have to go to injecting it instead. Not looking forward to

> > that. Have enough troubles with drawing blood. and then if that

> > doesn't seem to work we will have to go to Remicade IV's. She's

> > also setting up some physical therapy. I'm not sure but I think

> > she's setting it up where she's at and that's an hour away. Not

> > sure how that one is going to go over with driving and time frames

> > and school and such. I'd much rather it be set up here in my town

> > so I don't have so much frustrations. He also woke up this

> morning

> > with 102 fever and rash and a general feeling of yuck. Poor kid.

> > After driving that hour to his appt. he seemed to be alittle

> better.

> > > A week or so ago we found out that my hubby's father has been

> dx'd

> > with RA also. So now its a family thing.

> > > So what the heck has happened to my family in the last year.

> It's

> > gone to hell in a hand basket and all I can do is hold on

> screaming

> > as it plummets to the hell at break neck speed. I'm so not ready

> > for this....why couldn't this be when I was younger and had more

> > energy....I'm not ready to be everyone's nurse...lol

> > >

> > >

> > > --

> > > Lorilee

> > > ~~~~~~~~~~~~~~~~

> > > Ken 47 {PolyRA}

> > > 6 {Systemic JRA, Eczema},

> > > Kayla 15 {Healthy Thank God}

> > > 18 {Asthma}

> > > ~~~~~~~~~~~~~~~~

> > >

> > >