Re: How often do you generally have blood work done

[Guest guest]

I get my blood checked every 6-8 weeks..

veristroud@... wrote: I am wondering if you have bloodwork done when you go

to most of your appointments. My daughter has to have bloodwork done a week

before every appointment with her neurologist so that he can look at it to check

her levels. Our Rheumy had blood drawn in November after we saw her and then we

have been back to see her twice but she has not ordered any more. Maybe I am

just so used to how we do it with the neurologist and it may not be necessary

with the JRA and med's I don't know. We do not go back to see her again for

three months and she has not requested any for that appointment either. I am

assuming we will have more done this month with the Endocrinologist and it is

not like I like to see them poke full of holes, I just wonder. I intended

to ask her about it last week while in her office but it was one of the few I

forgot to ask.

Veri & Jaye 12 Poly

[Guest guest]

Sophie's rheumy requests that she have blood drawn every 6 weeks.

Sometimes, she has is drawn more often if she's in a flare or if her mtx

dosage has been tweaked a bit.

My endocrinologist requests that I have blood drawn a week prior to each

visit. If I forget or can't get there before then, they draw it the day of

the visit.

Weber

Professional Mom to:

Sophie 4 - pauci/panuveitis

Charlie 31 weeks - fussy but oh-so-lovable

On 2/27/06, Salvucci <lisa_salvucci@...> wrote:

>

> I get my blood checked every 6-8 weeks..

>

> veristroud@... wrote: I am wondering if you have bloodwork done when

> you go to most of your appointments. My daughter has to have bloodwork done

> a week before every appointment with her neurologist so that he can look at

> it to check her levels. Our Rheumy had blood drawn in November after we saw

> her and then we have been back to see her twice but she has not ordered any

> more. Maybe I am just so used to how we do it with the neurologist and it

> may not be necessary with the JRA and med's I don't know. We do not go back

> to see her again for three months and she has not requested any for that

> appointment either. I am assuming we will have more done this month with the

> Endocrinologist and it is not like I like to see them poke full of

> holes, I just wonder. I intended to ask her about it last week while in her

> office but it was one of the few I forgot to ask.

>

> Veri & Jaye 12 Poly

>

>

>

[Guest guest]

Once a month with her ivig infusion

veristroud@... wrote: I am wondering if you have bloodwork done when you go

to most of your appointments. My daughter has to have bloodwork done a week

before every appointment with her neurologist so that he can look at it to check

her levels. Our Rheumy had blood drawn in November after we saw her and then we

have been back to see her twice but she has not ordered any more. Maybe I am

just so used to how we do it with the neurologist and it may not be necessary

with the JRA and med's I don't know. We do not go back to see her again for

three months and she has not requested any for that appointment either. I am

assuming we will have more done this month with the Endocrinologist and it is

not like I like to see them poke full of holes, I just wonder. I intended

to ask her about it last week while in her office but it was one of the few I

forgot to ask.

Veri & Jaye 12 Poly

[Guest guest]

Nick has his blood drawn each tiem he has his remciade, they draw

off the blood once the iv is in and before they start the meds. I

then get a copy of them before we are finished. This happens every 8

weeks right now, but his remciade will be moved closer so he will be

getting labs done more often now.

Its pretty standard to get labs done every 6-8 weeks, especially if

they are on drugs like MTX etc as liver functions need to be

monitored.

hugs Helen and (8,systemic)

>

> I am wondering if you have bloodwork done when you go to most of

your appointments. My daughter has to have bloodwork done a week

before every appointment with her neurologist so that he can look at

it to check her levels. Our Rheumy had blood drawn in November after

we saw her and then we have been back to see her twice but she has

not ordered any more. Maybe I am just so used to how we do it with

the neurologist and it may not be necessary with the JRA and med's I

don't know. We do not go back to see her again for three months and

she has not requested any for that appointment either. I am assuming

we will have more done this month with the Endocrinologist and it is

not like I like to see them poke full of holes, I just

wonder. I intended to ask her about it last week while in her office

but it was one of the few I forgot to ask.

>

> Veri & Jaye 12 Poly

>

>

>

[Guest guest]

Veri,

You need to get both Dr's on the same paige.One may need bloodwork more then

the other but you may be able to blend them both together.

has always gotten labs every 2 months ever since he was maxed out on

MTX years ago.It used to be every month in the beginning.

Now it looks like every 3 months.

Just be sure,I have to find out tomorrow about what I heard.

Hugs

Becki and 7 systemic

[Guest guest]

Most docs can share that info. If she really needed to know what a lab was she

could always get the results from the labs he ordered too. Do you get copies of

the labs that the neurologist orders?

--

Lorilee

~~~~~~~~~~~~~~~~

Ken 47 {PolyRA}

6 {Systemic JRA, Eczema},

Kayla 15 {Healthy Thank God}

18 {Asthma}

~~~~~~~~~~~~~~~~

-------------- Original message --------------

From: veristroud@...

I am wondering if you have bloodwork done when you go to most of your

appointments. My daughter has to have bloodwork done a week before every

appointment with her neurologist so that he can look at it to check her levels.

Our Rheumy had blood drawn in November after we saw her and then we have been

back to see her twice but she has not ordered any more. Maybe I am just so used

to how we do it with the neurologist and it may not be necessary with the JRA

and med's I don't know. We do not go back to see her again for three months and

she has not requested any for that appointment either. I am assuming we will

have more done this month with the Endocrinologist and it is not like I like to

see them poke full of holes, I just wonder. I intended to ask her about

it last week while in her office but it was one of the few I forgot to ask.

Veri & Jaye 12 Poly

[Guest guest]

Madison has blood drawn at each visit which is every 3-4 months. She has been

doing well so the appointments have been stretched out but lately she has been

complaining of pain in her knees again so i'm sure we'll be back sooner!

Good luck!

Ashlee (Madison, 3 1/2, Poly & Iritis)

________________________________

From: on behalf of veristroud@...

Sent: Mon 2/27/2006 5:09 PM

Subject: How often do you generally have blood work done

I am wondering if you have bloodwork done when you go to most of your

appointments. My daughter has to have bloodwork done a week before every

appointment with her neurologist so that he can look at it to check her levels.

Our Rheumy had blood drawn in November after we saw her and then we have been

back to see her twice but she has not ordered any more. Maybe I am just so used

to how we do it with the neurologist and it may not be necessary with the JRA

and med's I don't know. We do not go back to see her again for three months and

she has not requested any for that appointment either. I am assuming we will

have more done this month with the Endocrinologist and it is not like I like to

see them poke full of holes, I just wonder. I intended to ask her about

it last week while in her office but it was one of the few I forgot to ask.

Veri & Jaye 12 Poly

[Guest guest]

Veri - It depends on which medicines is on. Some require more careful

monitoring than others. Because of Caroline's liver we have her blood work done

every 8

weeks.

Alia and Caroline, age 4, poly and iritis

>

> I am wondering if you have bloodwork done when you go to most of your

appointments.

My daughter has to have bloodwork done a week before every appointment with her

neurologist so that he can look at it to check her levels. Our Rheumy had blood

drawn in

November after we saw her and then we have been back to see her twice but she

has not

ordered any more. Maybe I am just so used to how we do it with the neurologist

and it

may not be necessary with the JRA and med's I don't know. We do not go back to

see her

again for three months and she has not requested any for that appointment

either. I am

assuming we will have more done this month with the Endocrinologist and it is

not like I

like to see them poke full of holes, I just wonder. I intended to ask her

about it

last week while in her office but it was one of the few I forgot to ask.

>

> Veri & Jaye 12 Poly

>

>

>

[Guest guest]

gets bloodwork done every single month. He's still on pred as

well as mtx and Enbrel, so we keep careful watch on liver and kidney

function. Kidney especially because he only has one (congenetal). We

actually get it done at the clinic here in town, who then fax the

results to his rheumy. Since your daughter already gets regular

bloodwork, you should be able to get any additional tests your rheumy

might want done at the same time. I once had in the ER and they

wanted to do bloodwork there, so I had them add his regular tests then,

so we wouldn't have to do 2 pulls in a week.

Misty & (7, systemic)

[Guest guest]

Hi Veri - I forgot to add that since Caroline is having monthly

infusions they will be drawing her blood then..

Alia and Caroline, age 4, poly and iritis

________________________________

From: [mailto: ] On

Behalf Of veristroud@...

Sent: Monday, February 27, 2006 4:09 PM

Subject: How often do you generally have blood work done

I am wondering if you have bloodwork done when you go to most of your

appointments. My daughter has to have bloodwork done a week before every

appointment with her neurologist so that he can look at it to check her

levels. Our Rheumy had blood drawn in November after we saw her and then

we have been back to see her twice but she has not ordered any more.

Maybe I am just so used to how we do it with the neurologist and it may

not be necessary with the JRA and med's I don't know. We do not go back

to see her again for three months and she has not requested any for that

appointment either. I am assuming we will have more done this month with

the Endocrinologist and it is not like I like to see them poke

full of holes, I just wonder. I intended to ask her about it last week

while in her office but it was one of the few I forgot to ask.

Veri & Jaye 12 Poly