questionaire

[Guest guest]

Don't mean to pick on you Sue. Several others did this as well. Folks,

this is the perfect example of an email that only needs to be sent to

the writer of the original message. The whole list doesn't need to

receive this information. At least Sue didn't include the entire

original message in her reply. Thanks.

Please think carefully about your responses and who really needs to see

them. Everyone's mailbox will thank you.

On Fri, 26 Feb 1999, sue wrote:

> From: sue <sue@...>

>

> 1. Has your child received the Hepatitis B vaccine? Yes.

>

> 2. Did your doctor inform you that you can sign a personal waiver NOT

> to

> receive hepatitis B or any vaccine for that matter? NO

>

> If NO, did the nurse inform you of your right to be exempt from

> receiving

> immunizations? NO

>

> 3. Has your doctor discussed the risks involved in receiving

> immunizations; that adverse reactions can cause immediate or long term

> problems, including death, in some people? NO

>

> If NO, did the nurse? NO

>

> 4. Did you know that The National Vaccine Information Health Center

> (established 1982) in Washington released figures during the week of

> January 24th, 1999 which show that the number of Hepatitis-B

> vaccine-associated serious adverse event and death reports in American

> children under the age of 14 outnumber the reported cases of Hepatitis B

>

> disease in that age group? did not know, but am not surprised!!

>

> 5. Did you know that a national poll reveals that two thirds of all

> Americans want the right to make informed, voluntary decisions about

> vaccination? Would you like to make informed, voluntary decisions about

>

> vaccines? Yes, I would like to be able to make informed choices!

>

> 6. Did you know that polio has been eradicated and only exists in India

>

> today? And did you know that the only known cause of polio in the

> United

> States is from people who have an adverse reaction to the vaccine, or,

> in a

> few cases polio that was brought in from outside the country? Get rid of

> the vaccine!!

>

> Do you have anything that you would like to share that would be

> pertinent

> to the T.V. program on a parents rights to be informed and freedom to

> choose? Just that we should have that right!!

>

>

>

>

> ------------------------------------------------------------------------

> Is ONElist important to you? Has it changed your life?

>

> Come visit our new web site and share with us your stories

>

[Guest guest]

I have to admit, that I didn't fill out the original questionnaire in posting #1, 9Sept2001, either.

In general, most of the issues related to symptoms, in the list below, are similar to mine,

but,

most to all of the lifestyle issues are not.

One observation that does stand out though, is smoking.

I grew up with smokers and I did smoke a cigar or two, most days, for 10 years, and my problems did start after that time.

FWIW.

regards,

Ken West

From: " Tami Klumpyan " <tami@...>

Reply-samters

Date: Mon, 31 Mar 2003 20:23:28 -0600

<samters >

Subject: questionaire

I have come up with a list of questions that relate to my life experience. I'm being honest, and letting you know all about me. Some of the questions seem a little bizzare but I needed to ask questions that related to my experience over the years. Sometimes it's the wierdest thing that we all have in common that may lead to the cure. You never know, you may see yourself in my answers. I just want to see if we as a group can come up with something. Now you know all my bad habits, but a cure is more important than my lifestyle. Yes, I smoke. I quit for 10 months and the polyps went crazy and I became so sick. Needless to say I didn't care whether I lived a long life or not and started smoking again. Pretty pathetic, I know. I'm not looking for judgement, just an answer. If you agree with doing this survey, and have more questions to add email me. I think it's important. What can it hurt? I used to be a happy go lucky person, spontaneous and fun. I play acoutic guitar, love to sit around a campfire even in cold snowy weather, and have a couple beers to relax. I can't sit around a campfire anymore in fear of a sinus headache. I want my life back. I want to be spontaneous again and stay up past nine without worrying if I get enough sleep to avoid a sinus headache. I'm probably getting a little too personal, but tell me you all don't feel the same way. I'm a little nervous to check my emails tomorrow, so go easy on me. After all, you only know me as an email message. Thanks for listening. My questionaire follows.

1 How old were you when you were first diagnosed with sinus polyps? 29 2 Are you female or male? female 3 Are you allergic to aspirin? yes 4 Is your allergy to aspirin mild or severe (anaphalactic)? severe 5 Are you allergic to tylenol? yes 6 Was your reaction to tylenol mild or severe (anaphalactic)? severe 7 Are you allergic to anti-inflamatories? yes 8 Was your reaction to anti-inflamatories mild or severe (anaphalactic)? severe 9 Please list all medication you've had a severe reaction to: alka seltzer, tylenol, anaprox 10 Please list all medication that you've had a mild reaction to: oxycotin, 11 Did you grow up in a rural area, village, town or city? village 12 Did you live on a farm? no 13 If you lived on a farm were you exposed to chemicals? n/a 14 How old were you when you had your first reaction to aspirin? 17 15 How old were you when you had your first asthma attack? 30 something 16 Did you ever suffer from depression before developing Samters? yes 17 Did you grow up in a house with smokers? yes 18 Did you or do you smoke cigarettes? yes 19 If you were a smoker and quit did your Samters symtoms become worse? Better? worse 20 Women: Did you become allergic to aspirin after a pregnancy or miscarriage? yes 21 All: Was there any specific incident prior to your apirin allergy? (example: virus) miscarriage 22 What type of climate do you live in? 4 season, tropical, dry, humid. 4 season 23 Is your asthma mild (seasonal) or severe? mild 24 How often have you had surgery to remove your polyps? 4 25 How many years between surgeries? 3 to 4 26 Have you been desensitized to aspirin? no 27 If desensitized, did your polyps return? If yes, how long before the polyps returned? n/a 28 Do you have any allergies to food? Which ones? no 29 If you have an allergy to food is it mild or severe? n/a 30 Are you on a special diet avoiding foods with salysalites? no 31 Which diet? Is it working for you? n/a 32 What do you do for a living? child care 33 Do you work around chemicals? Not currently/yes in the past 34 Do you work in health care where you are exposed to fixer and developer for xrays? Not currently/yes in the past 35 Did you prefer silver over gold jewelry at the time you became allergic to aspirin? yes 36 Do you have any food cravings? yes, ice cream 37 Do you have any non-food cravings? For me, chlorine. yes, chlorine 38 How many years between your 1st aspirin reaction and diagnosis of polyps? 12 years 39 Are your polyps mostly in the maxillary sinuses? Or in all sinuses? all

[Guest guest]

Hi- I am new to this site but not to the condition.

I have spent many hours the last few nights trying to read through

all the posts since the beginning, and well, forget it, it's

overwhelming!

I think the idea of doing a questionaire/database is excellent, and I

can help

with this too- not that I know how but am willing to learn. There is

a place on this site to post " Polls " and " database " so I suggest we

try and incorporate those functions. I agree with Tami about wierd

questions that can be pertinent- i.e. when I was reading the posts

from years back about prednisone causing itching of the hands and

feet- well, I can't say that I am glad to see that it happens to

other people too, but you know.....!

Feel free to email me with anything related and I will get my 5c

worth together someday soon.

Nice to meet you all.

Karla Mc.

> I have come up with a list of questions that relate to my life

experience. I'm being honest, and letting you know all about me.

Some of the questions seem a little bizzare but I needed to ask

questions that related to my experience over the years. Sometimes

it's the wierdest thing that we all have in common that may lead to

the cure. You never know, you may see yourself in my answers. I

just want to see if we as a group can come up with something. Now

you know all my bad habits, but a cure is more important than my

lifestyle. Yes, I smoke. I quit for 10 months and the polyps went

crazy and I became so sick. Needless to say I didn't care whether I

lived a long life or not and started smoking again. Pretty pathetic,

I know. I'm not looking for judgement, just an answer. If you agree

with doing this survey, and have more questions to add email me. I

think it's important. What can it hurt? I used to be a happy go

lucky person, spontaneous and fun. I play acoutic guitar, love to

sit around a campfire even in cold snowy weather, and have a couple

beers to relax. I can't sit around a campfire anymore in fear of a

sinus headache. I want my life back. I want to be spontaneous again

and stay up past nine without worrying if I get enough sleep to avoid

a sinus headache. I'm probably getting a little too personal, but

tell me you all don't feel the same way. I'm a little nervous to

check my emails tomorrow, so go easy on me. After all, you only know

me as an email message. Thanks for listening. My questionaire

follows.

> 1 How old were you when you were first diagnosed with sinus

polyps? 29

> 2 Are you female or male? female

> 3 Are you allergic to aspirin? yes

> 4 Is your allergy to aspirin mild or severe (anaphalactic)?

severe

> 5 Are you allergic to tylenol? yes

> 6 Was your reaction to tylenol mild or severe

(anaphalactic)? severe

> 7 Are you allergic to anti-inflamatories? yes

> 8 Was your reaction to anti-inflamatories mild or severe

(anaphalactic)? severe

> 9 Please list all medication you've had a severe reaction

to: alka seltzer, tylenol, anaprox

> 10 Please list all medication that you've had a mild

reaction to: oxycotin,

> 11 Did you grow up in a rural area, village, town or city?

village

> 12 Did you live on a farm? no

> 13 If you lived on a farm were you exposed to chemicals? n/a

> 14 How old were you when you had your first reaction to

aspirin? 17

> 15 How old were you when you had your first asthma attack?

30 something

> 16 Did you ever suffer from depression before developing

Samters? yes

> 17 Did you grow up in a house with smokers? yes

> 18 Did you or do you smoke cigarettes? yes

> 19 If you were a smoker and quit did your Samters symtoms

become worse? Better? worse

> 20 Women: Did you become allergic to aspirin after a

pregnancy or miscarriage? yes

> 21 All: Was there any specific incident prior to your

apirin allergy? (example: virus) miscarriage

> 22 What type of climate do you live in? 4 season, tropical,

dry, humid. 4 season

> 23 Is your asthma mild (seasonal) or severe? mild

> 24 How often have you had surgery to remove your polyps? 4

> 25 How many years between surgeries? 3 to 4

> 26 Have you been desensitized to aspirin? no

> 27 If desensitized, did your polyps return? If yes, how

long before the polyps returned? n/a

> 28 Do you have any allergies to food? Which ones? no

> 29 If you have an allergy to food is it mild or severe? n/a

> 30 Are you on a special diet avoiding foods with

salysalites? no

> 31 Which diet? Is it working for you? n/a

> 32 What do you do for a living? child care

> 33 Do you work around chemicals? Not currently/yes in the

past

> 34 Do you work in health care where you are exposed to fixer

and developer for xrays? Not currently/yes in the past

> 35 Did you prefer silver over gold jewelry at the time you

became allergic to aspirin? yes

> 36 Do you have any food cravings? yes, ice cream

> 37 Do you have any non-food cravings? For me, chlorine.

yes, chlorine

> 38 How many years between your 1st aspirin reaction and

diagnosis of polyps? 12 years

> 39 Are your polyps mostly in the maxillary sinuses? Or in

all sinuses? all

[Guest guest]

I also think the questionnaire idea is a good one. Maybe we can all learn something new.

As far as the prednisone goes, I really think that I am allergic to it and my doctor agrees.

Rob

I think the idea of doing a questionaire/database is excellent, and I can help the posts from years back about prednisone causing itching of the hands and feet- well, I can't say that I am glad to see that it happens to other people too, but you know.....!

[Guest guest]

Since I own a computer company, I'll fess up :-)

If someone can get all the questions together I will see about setting them up on the Internet. I checked the database & poll functions of the user group but neither one of them will work. I will see about setting it up in an access database or html that I can make available to everyone.

BTW I am still very envious of Ken being able to smell all of those good things <bg>

Rob

questionaire

We need someone to fess up to being the computer pro in our group. If someone is willing to get this set up, then we can all email the questions we want to see on it to this person. It would take a lot of work and time. I'd offer but haven't a clue how to set it up. I would be willing to have all the questions sent to me so I can put them in subject order if you want. That would save the computer pro a little time. Thanks for sending such possitive emails.

Tami

[Guest guest]

Rob,

Glad to know you own a computer company. You may be sorry for letting us know. (Ha Ha). I will be glad to take all the questions from everyone. Please email the questions directly to me @ tami@.... Don't be afraid of sending questions that seem way off base. No one will know who sent the questions except me. My only interest is in finding a true common link that we all share other than the obvious triad links. Start sending your questions now. I've got a little time before I have to spend all my time tending to my strawberry fields. Try to get all your questions to me within the next two weeks.

Thanks,

Tami

questionaire

We need someone to fess up to being the computer pro in our group. If someone is willing to get this set up, then we can all email the questions we want to see on it to this person. It would take a lot of work and time. I'd offer but haven't a clue how to set it up. I would be willing to have all the questions sent to me so I can put them in subject order if you want. That would save the computer pro a little time. Thanks for sending such possitive emails.

Tami

[Guest guest]

Dear Tami,

I think this is such a wonderful idea! I loved your questionare. I too

grew up with smokers! Maybe there is something with this. We may find out

great information.

questionaire

<< File: ATT00010.txt; charset = iso-8859-1 >> << File: ATT00011.htm;

charset = ISO-8859-1 >>

[Guest guest]

Dear Karla,

I too have had itching hands and feet with cortisone! It's nice to know once

again I'm not alone!

Re: questionaire

<< File: ATT00030.htm; charset = ISO-8859-1 >>

[Guest guest]

Dear Rob,

That is great that you can put the questionare on the internet for everyone! I

think it will be so valuable.

Re: questionaire

<< File: ATT00043.txt; charset = iso-8859-1 >> << File: ATT00044.htm; charset

= ISO-8859-1 >>

[Guest guest]

This questionaire may also help us with our own problems. When seeing the questions in writing, we may find that we do or don't have those 'problems' and just think it is due to something else. I am looking forward to the end product cause I think I can learn something about myself that I have just gotten so use to and I don't think of it as a problem. Our bodies tend to 'adjust' to things especially if it is over a long period of time and so we just get use to it.

Hope I made some sense there?

-- questionaire

I realize that the questionaire is only asking short answer questions. When everyone fills it out and if we find a bunch of common things between us, then we can get into more detail. As Carolyn says, we need to be our own detectives.

Tami

[Guest guest]

Hi Tami,

Been meaning to answer the questionaire but this winter has been a

really hard one for me and just haven't felt up to it. Is is ok to

wait until you post the final draft? I can work on it next week. Do

we send the answers to you or to Rob?

in NM

> I've added all new questions and will do so until Monday. I'll

post the revised questionaire next week. Rob, if you need me to

email it directly to you, let me know. Thanks, Tami

> tami@p...

[Guest guest]

Hi ,

You don't need to answer the questionaire yet. Rob is going to set it up on a web site or something like that and he'll let us know when it's ready. I sure hope you feel better.

Tami

Re: questionaire

Hi Tami,Been meaning to answer the questionaire but this winter has been a really hard one for me and just haven't felt up to it. Is is ok to wait until you post the final draft? I can work on it next week. Do we send the answers to you or to Rob? in NM> I've added all new questions and will do so until Monday. I'll post the revised questionaire next week. Rob, if you need me to email it directly to you, let me know. Thanks, Tami> tami@p...

[Guest guest]

I know exactly what you mean. I just got done with a 6 week dose of antibiotics and I've been having stomach attacks all this week. I know antibiotics help our sinus infections but what price do we pay with the rest of our body? Sometimes I wonder what it must be like for my husband who just pops out of bed and is ready to go like he's on top of the world. I get up an extra hour earlier just so I can get all the crap out of my sinuses and feel somewhat normal.

Tami

questionaire

I realize that the questionaire is only asking short answer questions. When everyone fills it out and if we find a bunch of common things between us, then we can get into more detail. As Carolyn says, we need to be our own detectives.

Tami

[Guest guest]

1. What time is it? 10:30 pm

2. What's your full name? Deadra Ann McCarthy Dunbar

3. What are you most afraid of? someone kidnapping my children

4. What is the most recent movie that you saw in a theater? Big Mommas House

2

5. Place of birth? Little Falls, new york

6. Favorite food? chinese

7. What's your natural hair color? brown

8. Ever been to Alaska? No

9. Love someone so much it made you cry? Yes.

10. Been in a car accident? yes

11. Croutons or bacon bits? croutons.

12. Favorite day of the week? saturday

13. Favorite Restaurant? the Outback Steakhouse

14. Favorite Flower? lilac

15. Favorite sport to watch? basketball

16. Favorite Drink? coffee, ice water

17. Favorite ice cream? death by chocolate

18. Disney or Warner Brothers? not sure

19. Favorite fast food restaurant? taco bell

20. What color is your bedroom carpet? hunter green

21. How many times have you failed your drivers test? never did

22. Before this one, from whom did you get your last e-mail? my brother

23. What do you do most often when you are bored? sigh and get up and do

something

24. Bedtime? 11:00 weeknights, any time weekends

25. Who will respond to this e-mail the quickest? Not sure

26. Which person is least likely to responde? not sure

27. Whose reponse are you most curious to see? all of them

28. Favorite TV shows? Fear Factor,Animal cops, Cops, any reality show

29. What are you currently reading? something by Cassie

30. Ford or Chevy? Ford

31. What are you listening to right now? my husband has the T.V. on but no

clue what he is watching

32. What are your favorite colors? green,and blue

33. How many tattoos do you have? 2

34. How many pets do you have? 2 dogs, 1 cat, and my daughter has a dog that

she brings when she stays here

35. Which came first the chicken or the egg? chicken

36. How many people are you sending this e-mail to? quite a few.

RETURN DIRECTIONS: Now, here's what you're supposed to do... and

please do not spoil the fun. Copy and Paste in new email, delete my

answers and type in your answers. Then send this to a whole bunch of

people you know INCLUDING the person who sent it to you. The theory is that

you will learn a lot of little known facts about those who know you.

Remember to send it back to the person who sent it to you.

---------------------------------

What are the most popular cars? Find out at Autos

[Guest guest]

I would be glad to fill out questionaire.

a

I want to write and abstract for the Am Soc of HTN meeting next

spring-in San Fran and would like the members help is collecting the

data to do this. I am working on a quesitonaire now to begin the

data collection.

How many would like to be involved in filling out a questionaire that

will be several pages long?

CE Grim

[Guest guest]

I'll fill one out too. Whatever I can do to help!

Mike

>

> I would be glad to fill out questionaire.

>

> a

>

>

>

> I want to write and abstract for the Am Soc of HTN meeting next

> spring-in San Fran and would like the members help is collecting the

> data to do this. I am working on a quesitonaire now to begin the

> data collection.

>

> How many would like to be involved in filling out a questionaire that

> will be several pages long?

>

> CE Grim

>