Re: Diet for Lupus and MS/Patty and everyone advise please

[Guest guest]

i guess I didn't pay to much attention to the diet thing back then, i

was hoping that once the implants were gone and some time had passed

that all would be well...ha wrong. I am coming up on five months

explant and while my head is so much better I feel like i am so much

more achey and tired than I was before. Do you think that the fact

that I am recovering could be why I am so tired now? I mean when I

had the implants in I never slept, I was constantly up, and slept for

never more than 2 hours at a time at night. My dilemna now is that

instead of going down my ANA has actually gone up, so I am thinking

that I am dealing with Lupus, and the women I have spoken to seem to

have gotten better with a combination of diet and meds. I want to

feel better and I am wondering if Diet and natural means are really

the best way by themselves, I mean I just don't know, you still have

the brain thing, after three years, I don't want to wait three years

to feel better.....If taking lupus meds will make me well I think I

may have to try. On the other hand I am so afraid of meds, and tend

to not do well on them, I can no longer take Ibuprofen as I get

stomach aches.....Vicodin I can tolerate well, but if I take too many

it makes me very sleepy and it is addictive. Ahhhhh what to do?????

What would you do if you had the High ANA would you try meds or not?

I think I already know your answer

any other opinions appreciated here.

In @y..., " Patty " <faussettdp@m...> wrote:

> Diet makes all the difference in the world to me. That, and my

herbal

> supplements. I posted about the MS diet on here once before.

Message

> number 1498, please look at it, . (Just go to the bottom of

this

> email, and look for the link for archives. Once you get there, just

enter

> the message number in the search box.)

>

> I have found that there are certain foods that my body just doesn't

like me

> to eat anymore. Chocolate, corn tortilla chips, sugar, some

breads, foods

> with red food coloring, lots of meats, lots of saturated fats. I

must

> continually watch what I put in my mouth.

>

> I have been back on my herbs and other supplements like clockwork

since I

> got back from Tucson, and my head is clear again. I know it is

something

> that I am taking that is working, but I do not know what that

" something "

> is. I have a few clues, but I can't say for sure.

>

> I think the molybdenum supplements have been very helpful. I take

250 mcg

> three times a day of that. I also take gingko biloba three times a

day along

> with all my other many herbs. But I won't go without my gingko,

milk

> thistle, olive leaf extract, siberian gingseng or Vitamin C anymore.

>

> I am also taking large doses of caprylic acid three times a day in

case this

> is a candida issue.

>

> I drink a quart of ozonated water upon rising every morning, more

later

> whenever I think about it and have an empty stomach! I also do

ozone

> insufflation in my ear, funnel over my liver, and vaginal and rectal

> insufflations. Unfortunately, I have not been as consistent with

those as I

> need to be. I am truly thankful for my ozone machine, though.

>

> The ONE and ONLY prescription drug I allow myself to take that I

think has

> made a big difference is Hydergine (ergoloid mesylates). These are

supposed

> to be extremely safe, a vasodilator. I got these off the Internet

through

> Hong Kong, so I don't need a doctor to prescribe them for me. These

are in

> the class of drugs called nootropics, or " smart drugs " and include

> vinpocetine, pirecetam or pramiracetam. If I understand it

correctly, they

> are supposed to protect your brain from the effects of aging. I

can say

> that since taking them, I have noticed a difference.

>

> Yup, it's a lifestyle change. What a ride.

> Patty

> ----- Original Message -----

> From: <carina063@h...>

> < @y...>

> Sent: Thursday, April 19, 2001 1:13 PM

> Subject: Diet for Lupus and MS

>

>

> > i was talking to a friend of my sisters who has had lupus for

years

> > and years, really bad at one time and in the hospital a few times

(no

> > implants) but she did tell me that what has helped her the most

was a

> > diet that she follows and it is a book called " the muliple

sclerosis

> > diet " by Dr.Roy Swank. I just ordered it off amazon.com and plan

to

> > get started on it asap. It seems that it would work for any of us

> > with autoimmune stuff. Thought I would pass on the info.