Re: Getting Ready for 1st Surgery

[Guest guest]

Yes, we've experienced general anesthesia twice for . Once when she

was 3 /12 (a very mild general) so they could do am MRI -- and again at 12

yrs old for cortisone shots in her knee and elbow (they gave her a general

because they were concerned about her ability to stay still enough). The

first one was a piece of cake! She came out of it quickly, and it was

actually

kind of funny because she acted drunk! The second time it was a stronger

general anesthesia, probably because she was older and larger. The

anesthesia was no problem, but it made her very sick afterwards (I hear that

can be

genetic, and I reacted the same way when I've had a general twice in the past).

I bet Delaney will be just fine, and they do it all the time so please try

not to worry too much.

I have a quick comment on your note that " we are 5+ months out from initial

diagnosis and nothing else yet " . Just a word from our own experience

because only had one joint (elbow) affected when she was diagnosed at

3

/12 yrs old. We were able to put it into remission (actually, I had thought

she was " cured " !) with only an oral anti-inflammatory and OT to straighten the

joint. She had no other symptoms for 7 years so I never even thought to

look for signs again. When she mentioned to me that she could not straighten

her elbow again, by the time we were able to get in to see a reumy, she had

other joints affected. That's when she had the cortisone shots and is also on

oral methotrexate. All in all we are very fortunate because she either has

a high pain tolerance, or very little pain. She participates in all

activities, and you would never know that she has anything wrong with her.

It sounds like you're doing all the right things for Delaney, let us know

how the surgery goes.

Sandy & (12 yrs old - pauci to poly)

[Guest guest]

I will be thinking and praying for Delaney! All will be fine.

Donna

[Guest guest]

Good luck! Sophie had steroid injections in her knee, foot, and ankle. The

procedure went incredibly well and did quiet her inflammation. However, she

doesn't react well when coming out of being put under. She is very

combative! In fact, she seems to have the strength of a couple of grown men

as she is coming to. So, be prepared for the possibility of her behavior

being very out of the ordinary. The good news is that is doesn't last

long. I would say that Sophie returns to normal after the first hour or so

of recovery. It is my hope that Delaney and you won't have any of that to

contend with. Please keep us posted.

Weber

Professional Mom to:

Sophie - 4: pauci / panuveitis

Charlie - 26 weeks: high maintenance but oh-so-lovable

On 1/29/06, ajaoky@... <ajaoky@...> wrote:

>

> I will be thinking and praying for Delaney! All will be fine.

> Donna

>

>

>

[Guest guest]

One question: After the knee injection, how long does

it usually take for a child to be back to walking

around?

Brad and

Delaney (2 1/2 Pauci)

--- Weber <teamsophie@...> wrote:

> Good luck! Sophie had steroid injections in her

> knee, foot, and ankle. The

> procedure went incredibly well and did quiet her

> inflammation. However, she

> doesn't react well when coming out of being put

> under. She is very

> combative! In fact, she seems to have the strength

> of a couple of grown men

> as she is coming to. So, be prepared for the

> possibility of her behavior

> being very out of the ordinary. The good news is

> that is doesn't last

> long. I would say that Sophie returns to normal

> after the first hour or so

> of recovery. It is my hope that Delaney and you

> won't have any of that to

> contend with. Please keep us posted.

>

> Weber

> Professional Mom to:

> Sophie - 4: pauci / panuveitis

> Charlie - 26 weeks: high maintenance but

> oh-so-lovable

>

>

> On 1/29/06, ajaoky@... <ajaoky@...> wrote:

> >

> > I will be thinking and praying for Delaney! All

> will be fine.

> > Donna

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

> >

[Guest guest]

:

My son had a hip injection and they usually advise that the child keep

the limb 'quiet' and not walk on it for at least 24 hours. We made it

about 36 but Rob was 15 at the time...

Most kids feel a lot of relief pretty quickly and its difficult to keep

them down!

and Rob 16 Spondy

On Sun, 29 Jan 2006 19:13:32 -0800 (PST) jennifer casselman

<bamabelle1997@...> writes:

One question: After the knee injection, how long does

it usually take for a child to be back to walking

around?

Brad and

Delaney (2 1/2 Pauci)

--- Weber <teamsophie@...> wrote:

> Good luck! Sophie had steroid injections in her

> knee, foot, and ankle. The

> procedure went incredibly well and did quiet her

> inflammation. However, she

> doesn't react well when coming out of being put

> under. She is very

> combative! In fact, she seems to have the strength

> of a couple of grown men

> as she is coming to. So, be prepared for the

> possibility of her behavior

> being very out of the ordinary. The good news is

> that is doesn't last

> long. I would say that Sophie returns to normal

> after the first hour or so

> of recovery. It is my hope that Delaney and you

> won't have any of that to

> contend with. Please keep us posted.

>

> Weber

> Professional Mom to:

> Sophie - 4: pauci / panuveitis

> Charlie - 26 weeks: high maintenance but

> oh-so-lovable

>

>

> On 1/29/06, ajaoky@... <ajaoky@...> wrote:

> >

> > I will be thinking and praying for Delaney! All

> will be fine.

> > Donna

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

> >

[Guest guest]

- Caroline was up and walking within 24 hours. She's had both

knee's injected twice and it's been the same every time... The results

are amazing. They want them to lay low for up to 24 hours, but virtually

impossible with a toddler! Caroline had her first one done at 23

months.... Good luck!

Alia and Caroline, age 3 (4 tomorrow!!!), poly and iritis

________________________________

From: [mailto: ] On

Behalf Of jennifer casselman

Sent: Sunday, January 29, 2006 9:14 PM

Subject: Re: Getting Ready for 1st Surgery

One question: After the knee injection, how long does

it usually take for a child to be back to walking

around?

Brad and

Delaney (2 1/2 Pauci)

--- Weber <teamsophie@...> wrote:

> Good luck! Sophie had steroid injections in her

> knee, foot, and ankle. The

> procedure went incredibly well and did quiet her

> inflammation. However, she

> doesn't react well when coming out of being put

> under. She is very

> combative! In fact, she seems to have the strength

> of a couple of grown men

> as she is coming to. So, be prepared for the

> possibility of her behavior

> being very out of the ordinary. The good news is

> that is doesn't last

> long. I would say that Sophie returns to normal

> after the first hour or so

> of recovery. It is my hope that Delaney and you

> won't have any of that to

> contend with. Please keep us posted.

>

> Weber

> Professional Mom to:

> Sophie - 4: pauci / panuveitis

> Charlie - 26 weeks: high maintenance but

> oh-so-lovable

>

>

> On 1/29/06, ajaoky@... <ajaoky@...> wrote:

> >

> > I will be thinking and praying for Delaney! All

> will be fine.

> > Donna

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

> >

[Guest guest]

- Caroline has had a few of the medicines, but her last one was

Artiospan... It worked wonders on her knees. She also had to go under

general. It is scary, but they all do fairly well.. Caroline has done

okay, however the last two times (last time August 05) she went under

she had a lot of trouble coming out of the anesthesia. After she was

able to see me, she calmed down quite a bit. It will be okay. Luckily

they are young and don't remember it. Caroline was most annoyed with the

IV, she wanted it out. When they wouldn't take it out, it made her

angrier and she got a lot more worked up....

Hopefully Delaney will only have the one knee to deal with - what a

blessing that would be!

Alia and Caroline, age 3 (4 tomorrow!!), poly and iritis

________________________________

From: [mailto: ] On

Behalf Of jennifer casselman

Sent: Sunday, January 29, 2006 1:36 AM

Subject: Getting Ready for 1st Surgery

Hello All. We are getting ready for a steroid

injection (Aristospan, Kenelog, Celestine, not sure

which, they've all been mentioned) on Monday for

Delaney in her right knee. Our Rhumy is hopeful that

this will keep the inflammation down for about a year,

and we will see what happens then as far as the need

to progress to Methotrexate.

We are a little nervous about general anesthesia, but

our Ped Orthopaedic (we are having this done here in

Birmingham at Children's instead of going to the Rhumy

in Atlanta) assures us that this is a pretty standard

procedure. She has informed us that she will be doing

this arthroscopically to do a synovial biopsy to

confirm the JRA as well as look around to see what

joint damage may be there. Then they will inject

Marcaine (?) and finally the steroid.

Does anyone have experience with this? Just seems

like an awful lot for a 2 1/2 year old. We tried the

oral steroids, and while they seemed to work, some of

the side effects were almost worse than the knee pain

and it did not fully eradicate the swelling in

Delaney's rt knee.

Since then we've switched Rhumys and our current one

wants to give this a shot (no pun intended) to see if

it might trigger a remission. He told us that 1-joint

Pauciarticular children (knock on wood - we are 5+

months out from initial diagnosis and nothing else

yet) sometimes respond to a long acting injected

steroid. He also said that the injected steroid

should be more effective than the oral with many less

side effects.

Still, there's just that General Anesthesia thing...

We will let everyone know on Monday night how it went.

After that, the endless march of MD visits continues.

We go to Ped Opthamology at UAB for an eye check in

early March and then we go back to Emory on March 20th

for our next Rheumy appt.

Brad and

Delaney (2 1/2 Pauci)

__________________________________________________

[Guest guest]

Our son Louis has had many joint injections. With the knees, he is fine the day

after but his mood swings with the high steroids is wild for several days. Good

luck. Jan

Re: Getting Ready for 1st Surgery

One question: After the knee injection, how long does

it usually take for a child to be back to walking

around?

Brad and

Delaney (2 1/2 Pauci)

--- Weber <teamsophie@...> wrote:

> Good luck! Sophie had steroid injections in her

> knee, foot, and ankle. The

> procedure went incredibly well and did quiet her

> inflammation. However, she

> doesn't react well when coming out of being put

> under. She is very

> combative! In fact, she seems to have the strength

> of a couple of grown men

> as she is coming to. So, be prepared for the

> possibility of her behavior

> being very out of the ordinary. The good news is

> that is doesn't last

> long. I would say that Sophie returns to normal

> after the first hour or so

> of recovery. It is my hope that Delaney and you

> won't have any of that to

> contend with. Please keep us posted.

>

> Weber

> Professional Mom to:

> Sophie - 4: pauci / panuveitis

> Charlie - 26 weeks: high maintenance but

> oh-so-lovable

>

>

> On 1/29/06, ajaoky@... <ajaoky@...> wrote:

> >

> > I will be thinking and praying for Delaney! All

> will be fine.

> > Donna

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

> >

[Guest guest]

--,

We have never had injections so I can't comment, but i did want to

wish you all the best. I'm sure all will be well and from what ive

heard these shots really help.

we will be thinking of you both.

hugs Helen and (8,systemic)

- In , <Alia.Pranke@t...> wrote:

>

> - Caroline has had a few of the medicines, but her last

one was

> Artiospan... It worked wonders on her knees. She also had to go

under

> general. It is scary, but they all do fairly well.. Caroline has

done

> okay, however the last two times (last time August 05) she went

under

> she had a lot of trouble coming out of the anesthesia. After she

was

> able to see me, she calmed down quite a bit. It will be okay.

Luckily

> they are young and don't remember it. Caroline was most annoyed

with the

> IV, she wanted it out. When they wouldn't take it out, it made her

> angrier and she got a lot more worked up....

>

> Hopefully Delaney will only have the one knee to deal with - what a

> blessing that would be!

>

> Alia and Caroline, age 3 (4 tomorrow!!), poly and iritis

>

> ________________________________

>

> From: [mailto: ] On

> Behalf Of jennifer casselman

> Sent: Sunday, January 29, 2006 1:36 AM

>

> Subject: Getting Ready for 1st Surgery

>

>

> Hello All. We are getting ready for a steroid

> injection (Aristospan, Kenelog, Celestine, not sure

> which, they've all been mentioned) on Monday for

> Delaney in her right knee. Our Rhumy is hopeful that

> this will keep the inflammation down for about a year,

> and we will see what happens then as far as the need

> to progress to Methotrexate.

>

> We are a little nervous about general anesthesia, but

> our Ped Orthopaedic (we are having this done here in

> Birmingham at Children's instead of going to the Rhumy

> in Atlanta) assures us that this is a pretty standard

> procedure. She has informed us that she will be doing

> this arthroscopically to do a synovial biopsy to

> confirm the JRA as well as look around to see what

> joint damage may be there. Then they will inject

> Marcaine (?) and finally the steroid.

>

> Does anyone have experience with this? Just seems

> like an awful lot for a 2 1/2 year old. We tried the

> oral steroids, and while they seemed to work, some of

> the side effects were almost worse than the knee pain

> and it did not fully eradicate the swelling in

> Delaney's rt knee.

>

> Since then we've switched Rhumys and our current one

> wants to give this a shot (no pun intended) to see if

> it might trigger a remission. He told us that 1-joint

> Pauciarticular children (knock on wood - we are 5+

> months out from initial diagnosis and nothing else

> yet) sometimes respond to a long acting injected

> steroid. He also said that the injected steroid

> should be more effective than the oral with many less

> side effects.

>

> Still, there's just that General Anesthesia thing...

>

> We will let everyone know on Monday night how it went.

> After that, the endless march of MD visits continues.

> We go to Ped Opthamology at UAB for an eye check in

> early March and then we go back to Emory on March 20th

> for our next Rheumy appt.

>

> Brad and

> Delaney (2 1/2 Pauci)

>

> __________________________________________________

>

[Guest guest]

Alia,

Our experience today was the same. Delaney calmed

down in recovery once she saw Mommy.

Thanks!

Brad and

Delaney (2 1/2 Pauci)

--- Alia.Pranke@... wrote:

> - Caroline has had a few of the medicines,

> but her last one was

> Artiospan... It worked wonders on her knees. She

> also had to go under

> general. It is scary, but they all do fairly well..

> Caroline has done

> okay, however the last two times (last time August

> 05) she went under

> she had a lot of trouble coming out of the

> anesthesia. After she was

> able to see me, she calmed down quite a bit. It will

> be okay. Luckily

> they are young and don't remember it. Caroline was

> most annoyed with the

> IV, she wanted it out. When they wouldn't take it

> out, it made her

> angrier and she got a lot more worked up....

>

> Hopefully Delaney will only have the one knee to

> deal with - what a

> blessing that would be!

>

> Alia and Caroline, age 3 (4 tomorrow!!), poly and

> iritis

>

> ________________________________

>

> From:

> [mailto: ] On

> Behalf Of jennifer casselman

> Sent: Sunday, January 29, 2006 1:36 AM

>

> Subject: Getting Ready for 1st Surgery

>

>

> Hello All. We are getting ready for a steroid

> injection (Aristospan, Kenelog, Celestine, not sure

> which, they've all been mentioned) on Monday for

> Delaney in her right knee. Our Rhumy is hopeful

> that

> this will keep the inflammation down for about a

> year,

> and we will see what happens then as far as the need

> to progress to Methotrexate.

>

> We are a little nervous about general anesthesia,

> but

> our Ped Orthopaedic (we are having this done here in

> Birmingham at Children's instead of going to the

> Rhumy

> in Atlanta) assures us that this is a pretty

> standard

> procedure. She has informed us that she will be

> doing

> this arthroscopically to do a synovial biopsy to

> confirm the JRA as well as look around to see what

> joint damage may be there. Then they will inject

> Marcaine (?) and finally the steroid.

>

> Does anyone have experience with this? Just seems

> like an awful lot for a 2 1/2 year old. We tried

> the

> oral steroids, and while they seemed to work, some

> of

> the side effects were almost worse than the knee

> pain

> and it did not fully eradicate the swelling in

> Delaney's rt knee.

>

> Since then we've switched Rhumys and our current one

> wants to give this a shot (no pun intended) to see

> if

> it might trigger a remission. He told us that

> 1-joint

> Pauciarticular children (knock on wood - we are 5+

> months out from initial diagnosis and nothing else

> yet) sometimes respond to a long acting injected

> steroid. He also said that the injected steroid

> should be more effective than the oral with many

> less

> side effects.

>

> Still, there's just that General Anesthesia thing...

>

> We will let everyone know on Monday night how it

> went.

> After that, the endless march of MD visits

> continues.

> We go to Ped Opthamology at UAB for an eye check in

> early March and then we go back to Emory on March

> 20th

> for our next Rheumy appt.

>

> Brad and

> Delaney (2 1/2 Pauci)

>

> __________________________________________________

>