Re: Re: Do they ever grow out of this?

[Guest guest]

Melinda - I was thinking about the same thing today - I wish that families

who have had success stories would log on and tell us how the complete

remission happened. We gotta have hope. Hope Lily Grace is doing well.

Sandi Ken

Hunter (6 Systemic)

[Guest guest]

Yes, many do outgrow it and never see JRA again. One of my best friends in high

school had terrible problems for a year or two when she was around 14. Never

came back (she's 40+ now). My aunts neighbor had horrible onset Stills but it

resolved and has never reappeared. I believe you will find the more active JRA

kids parents here long term. Others come for awhile and leave. Some just take an

NSAID. Others do all meds then end up on no meds. So, yes, many do go into a

permanent remission. It is what I pray for daily for all affected.

e

Mel <melandhubbies@...> wrote:

Hi all,

After listening to all of you for the past few months I'm beginning to

wonder if they ever grow out of arther? According to my doc there is

a high percentage likelihood that Lily will outgrow this in a few

years. Do you find this to be true or is it just wishful thinking?

Everytime we go back to the doc there are new meds to add. I keep

thinking that this one will be the one that puts her into remission

but that just hasn't happened yet.

Is there an end to the madness?

Thanks,

Melinda and Lily Grace 8 (pauci)

[Guest guest]

I am curious about this one as well. I know of no one that has " outgrown "

it and i hope someone here can give us a couple cases. I was in " remission "

for about 4 years after my replacements, but it did come back.

(Poly 35)

Re: Do they ever grow out of this?

Hi all,

After listening to all of you for the past few months I'm beginning to

wonder if they ever grow out of arther? According to my doc there is

a high percentage likelihood that Lily will outgrow this in a few

years. Do you find this to be true or is it just wishful thinking?

Everytime we go back to the doc there are new meds to add. I keep

thinking that this one will be the one that puts her into remission

but that just hasn't happened yet.

Is there an end to the madness?

Thanks,

Melinda and Lily Grace 8 (pauci)

[Guest guest]

This is a taboo topic for me as I have heard over the years it can and it

does go away. However my experiences do not go along with the estimates of 70%

outgrowing it. I have met many who for years had no symptoms and then 20 years

later are hit very hard. I, myself have been through many years of no

inflammation nor any signs , lab wise, of the disease. Many years I have had

labs

that show no traces of arthritis yet my body says and shows different.

Granted many of my aches and pains and deformities have been from damage done in

the many years as a child/teen with aggressive JRA and not the disease itself. I

have simply came to terms with it and realize every break I get from the

aches, pains, etc is always welcome and loved! To all I hope for long and

lengthy remissions!

Donna

[Guest guest]

Melinda...When it is our kids we are allowed all the pity partying,

complaints, tears, fears, and anger we want. That's what this group is for. For

every

story filled pity there is a story filled with good news which provides

hope. Hang tight and hang tough!

Donna

[Guest guest]

My uncle was in a wheelchair for a year because of JRA and thirty-something

years later only has a few residual issues...it's almost entirely burnt

itself out in him.

(15, ?)

On 1/18/06, <brian.taylor@...> wrote:

>

> I am curious about this one as well. I know of no one that has " outgrown "

> it and i hope someone here can give us a couple cases. I was in

> " remission "

> for about 4 years after my replacements, but it did come back.

> (Poly 35)

>

> Re: Do they ever grow out of this?

>

>

> Hi all,

>

> After listening to all of you for the past few months I'm beginning to

> wonder if they ever grow out of arther? According to my doc there is

> a high percentage likelihood that Lily will outgrow this in a few

> years. Do you find this to be true or is it just wishful thinking?

> Everytime we go back to the doc there are new meds to add. I keep

> thinking that this one will be the one that puts her into remission

> but that just hasn't happened yet.

>

> Is there an end to the madness?

>

> Thanks,

>

> Melinda and Lily Grace 8 (pauci)

>

>

>

>

>

>

>

>

[Guest guest]

That is great news. I was surprised also to hear from so many others.

(poly 35)

Re: Do they ever grow out of this?

>

>

> Hi all,

>

> After listening to all of you for the past few months I'm beginning to

> wonder if they ever grow out of arther? According to my doc there is

> a high percentage likelihood that Lily will outgrow this in a few

> years. Do you find this to be true or is it just wishful thinking?

> Everytime we go back to the doc there are new meds to add. I keep

> thinking that this one will be the one that puts her into remission

> but that just hasn't happened yet.

>

> Is there an end to the madness?

>

> Thanks,

>

> Melinda and Lily Grace 8 (pauci)

>

>

>

>

>

>

>

>

[Guest guest]

Your child's pediatric rheumatologist should be able to address your

question from a clinical perspective. However, anecdotally, I'm 33 and have had

active systemic JRA for 32 yrs. I'm not sure " growing " out of JRA is an accurate

term. Some children go into remission with the assistance of medical

management. Sometimes the remission lasts for a long time, sometimes the active

disease returns. Depending on the extent and severity of the disease, joint

damage

may remain and cause other issues and pain.

The advanced medical treatment currently available presents a new hope that

JRA can be better control and possibly forced into remission.

L. Mitterer

Attorney at Law

206 669-6167

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[Guest guest]

, wonderfully put. As a 36 year vet to JRA I agree whole heartedly with

your comments!

Donna Fox-Keidel

AJAO-KY, Chairperson

Arthritis Foundation- KY Branch

2908 Brownsboro Rd., Ste 107

Louisville, Ky 40206

502-585-1866