Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Sorry i have been so quiet lately, just a ton of stuff going on. Little time for mommy and her computer. Nichoals is doing very well on his remicade. Enjoying LONG periods of play outside in the snow with his brothers. This is a 1st since dx 3 long years ago that hes had the engery to play after school. usually hes dragging by the end of the school day and just lays around watching TV, or playing computer games etc. Nick saw a new rheumy yesterday, his is still out on medical leave. he was a very nice guy and we enjoyed meeting him. He knew his stuff thats for sure. is loking very good exceot in his hands, he has swelling in a few of his fingers and has very weak grip strength. he made some comment about Nicks hands just dont match the rest of his build. I didnt get to ask more questions as the nurse came in and the the topic went another direction and I forgot. But all in all in was a good appt. We then right striaght accross the hall and had his remicade infusion. On a side note, echocardigram he had shows thats theres something wrong with his heart. His aortic root is enlarged. We meet with a pedicatric cardioloigst on feb 2nd to get some answers and find out exactly what this means. Please keep nick in your thoughts that day. We realy dont need something else to deal with. hugs Helen and (8,systemic) Quote Link to comment Share on other sites More sharing options...
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