Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 This is probably a very common problem for most, but I thought I'd ask if anyone has suggestions for a child who just can't tolerate NSAIDs on a daily basis. My son, 7 years old, has had JRA since he was 3. We've done the Aristospan injections, which seem to help for 9-12 months. But he is unable to tolerate daily NSAIDs. They really upset his stomach and nothing seems to help. Does anyone have any suggestions? Thanks so much, Carolyn Goedike - mom to Dylan, 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Thanks, I will try anything! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Donna, I know Krogers will flavor meds.It's around $2 or $3 to have it done. They have all kinds of flavors to choose from. Hugs Becki and 7 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 has anyone tried the flavors? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Holly uses the flavors on the prednisolone, she picked the sour apple i think it is.......she says it makes a difference, and pred is so awful to cover!!! How is bran doing?? Aj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 yes, but Bran cannot stand anything " mint " . I am calling today to see what can be doen...How are you and the young uns??? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Bran takes spells. He still has tummy problems and chest hurting but better. We really think there may be some school anxiety and not sure how to handle it. Any ideas?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Donna, I wish I knew about the flavors back in the pred days. s sister Shelby immediately threw up the first dose of Zithromax she ever took. Later we had it flavored cherry even though it was already cherry but it was much more tolerable. Luckily both kids are old enough for a z pack. Good luck Becki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Me too, I hope Miss C has an incredible B-Day! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I agree ! is 10 and a big boy and we have tried and tried and he cant swallow pills. He gags every time.....if liquid is better than let em have it! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Donna - Doesn't it already come peppermint? That's what Caroline's and Evan's are... Alia and Caroline, age 3, poly and uveitis ________________________________ From: [mailto: ] On Behalf Of ajaoky@... Sent: Monday, January 23, 2006 12:48 PM Subject: Re: Question About NSAIDs has anyone tried the flavors? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hey Donna, Robbie has been taking Zantac for years - I do believe it's a mint flavor (do they know that most 4-5 year olds don't like mint?) - that's how old Robbie was when he began the Zantac. Almost all of Robbie's meds are still in liquid form. The Cyclosporine is the " skinny yucky one " the Zantac is the " fat yucky one " and the pred is the " red yucky one " - though he complains less about the taste of the pred than any of the others - I guess he is just used to taking the pred. The skinny and fat refer to the size of the syringe I draw them up in - he does better if I wipe the outside of the syringe off so that none of the meds get on his mouth, when he squirts the syringe into his mouth. He used to drink a small amount of milk as a " chaser " - but hasn't required the milk now for a few months - when he is getting Motrin too, he uses that as a chaser. It does help that his folic acid and lisinopril pills are small enough to take in a small spoonful of pudding (chocolate) - which he takes after his other meds - well, almost last, that is followed by the Viactive calcium chew, also chocolate flavored. When he was in the hospital once, the Staff Pediatrician was insisting that he learn to swallow the pred capsule - and Robbie kept choking on it, spitting it up (it had little tiny balls in the capsule - at one point I had the pudding we attempted to get the capsule down with - with all the little tiny circles from the capsule all over me. The Doctor said " Well, he is just going to have to learn to swallow it! " He was so hateful, and I told him there was no way in %$# I was putting my son through that every morning - give him the liquid - he kept arguing with me that all the kids hate the taste, they always throw up with it, and that he would never get it down. I told him to go take a look at Robbie's record, that he had been taking this for 2 years (at that time) in liquid form - he then tried to tell me it was a much higher dose - I told him then he'd been at higher doses. I finally won -but what a battle! Val Rob's Mom (8,systemic) Re: Question About NSAIDs speaking of zantac..how many have had a child on liquid zantac? My son takes it and absolutely hates the taste. Any ideas on how to make it better?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Aww.... That would be part of the problem then. I think the Zantac is naturally minty so I am not sure what you can flavor it with to mask that... I would ask the pharmacist - they are usually really good about that kind of stuff.. We are good here. Evan has a little cold, so we are just holding our breath that Caroline doesn't get it. Her last two birthday's have been terrible (last year Pneumonia and then Influenza). We are hoping this will be her year to finally feel good! Alia and Caroline, age 3, poly and uveitis ________________________________ From: [mailto: ] On Behalf Of ajaoky@... Sent: Monday, January 23, 2006 1:17 PM Subject: Re: Question About NSAIDs yes, but Bran cannot stand anything " mint " . I am calling today to see what can be doen...How are you and the young uns??? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Thanks Donna! ________________________________ From: [mailto: ] On Behalf Of ajaoky@... Sent: Monday, January 23, 2006 2:43 PM Subject: Re: Question About NSAIDs Me too, I hope Miss C has an incredible B-Day! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Alia how is baby Evan and the beautiful Caroline? Alia.Pranke@... wrote: Donna - Caroline is on Zantac (so is Evan actually). She takes it just fine, but she's been taking those meds since she 1 so maybe she's just used to it. The doctor said you can give them a piece of chocolate with it to help kill the taste (i.e. take the Zantac and then immediately bite into a piece of chocolate). I have heard this sometimes works.. Good luck! Alia and Caroline, age 3 (4 next week!!), poly and uveitis ________________________________ From: [mailto: ] On Behalf Of ajaoky@... Sent: Monday, January 23, 2006 12:26 PM Subject: Re: Question About NSAIDs speaking of zantac..how many have had a child on liquid zantac? My son takes it and absolutely hates the taste. Any ideas on how to make it better?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 That is ridcuslous if Robbie wants liquid give him liquid. They did that to me when I was little, they told my mom that since I had to take medicine all the time I needed to learn to swollow pills, so I was forced to, I learned at about age 3 to swollow my pills, we practiced with tic tacs.. it was so ridculous though there was no reason for me to have to get pill form of everything at 3. Doctors need to realize its so uncomfortable being a kid with a disease and if having a liquid med makes it easier then let the kid have it! carneyval@... wrote: Hey Donna, Robbie has been taking Zantac for years - I do believe it's a mint flavor (do they know that most 4-5 year olds don't like mint?) - that's how old Robbie was when he began the Zantac. Almost all of Robbie's meds are still in liquid form. The Cyclosporine is the " skinny yucky one " the Zantac is the " fat yucky one " and the pred is the " red yucky one " - though he complains less about the taste of the pred than any of the others - I guess he is just used to taking the pred. The skinny and fat refer to the size of the syringe I draw them up in - he does better if I wipe the outside of the syringe off so that none of the meds get on his mouth, when he squirts the syringe into his mouth. He used to drink a small amount of milk as a " chaser " - but hasn't required the milk now for a few months - when he is getting Motrin too, he uses that as a chaser. It does help that his folic acid and lisinopril pills are small enough to take in a small spoonful of pudding (chocolate) - which he takes after his other meds - well, almost last, that is followed by the Viactive calcium chew, also chocolate flavored. When he was in the hospital once, the Staff Pediatrician was insisting that he learn to swallow the pred capsule - and Robbie kept choking on it, spitting it up (it had little tiny balls in the capsule - at one point I had the pudding we attempted to get the capsule down with - with all the little tiny circles from the capsule all over me. The Doctor said " Well, he is just going to have to learn to swallow it! " He was so hateful, and I told him there was no way in %$# I was putting my son through that every morning - give him the liquid - he kept arguing with me that all the kids hate the taste, they always throw up with it, and that he would never get it down. I told him to go take a look at Robbie's record, that he had been taking this for 2 years (at that time) in liquid form - he then tried to tell me it was a much higher dose - I told him then he'd been at higher doses. I finally won -but what a battle! Val Rob's Mom (8,systemic) Re: Question About NSAIDs speaking of zantac..how many have had a child on liquid zantac? My son takes it and absolutely hates the taste. Any ideas on how to make it better?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi ! Baby Evan is getting so big! He's almost 7 months old now and weighs about 16 pounds (only 10th percentile!). He is starting to scoot a little - I am sure he'll be crawling in no time. His reflux is still an issue, so we are probably switching meds this week. I have to call his pediatrician and see what's up. Caroline is getting excited for her big day. I just can't believe she is going to be 4! It's crazy! She is doing pretty good. She has the tiniest of flares going on with her knee's, but it's nothing a little Tylenol isn't helping. She's been illness free for about the past 6 weeks so we are doing a mini celebration dance here. If she can make it to her March appointment without getting sick we get to start Remicade and get rid of some of these meds!! How are you doing?? Have you heard back from the other two colleges yet?? Alia and Caroline, age 3, poly and iritis ________________________________ From: [mailto: ] On Behalf Of Salvucci Sent: Monday, January 23, 2006 3:21 PM Subject: RE: Question About NSAIDs Alia how is baby Evan and the beautiful Caroline? Alia.Pranke@... wrote: Donna - Caroline is on Zantac (so is Evan actually). She takes it just fine, but she's been taking those meds since she 1 so maybe she's just used to it. The doctor said you can give them a piece of chocolate with it to help kill the taste (i.e. take the Zantac and then immediately bite into a piece of chocolate). I have heard this sometimes works.. Good luck! Alia and Caroline, age 3 (4 next week!!), poly and uveitis ________________________________ From: [mailto: ] On Behalf Of ajaoky@... Sent: Monday, January 23, 2006 12:26 PM Subject: Re: Question About NSAIDs speaking of zantac..how many have had a child on liquid zantac? My son takes it and absolutely hates the taste. Any ideas on how to make it better?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I agree with you . I think that the underlying issue there is the medical community failing to REALLY listen - and communicate with the parents of the children, when the child is the patient. Not always a problem, but sometimes....So much could have been avoided had he said " this is a much higher dose of the pred thn your son has been taking, so we thought we should try the capsules... " - that could have led to a hopefully productive conversation which would have had the same, though less traumatic and stressful path towards the end, where they gave him the liquid med after all. I keep thinking that I should start working with Robbie and swallowing pills - starting with tic tacs or M & Ms - but he takes so many meds - as long as he wants the pudding to get the little pills down, he can have it. I never have a problem with him taking his medication - for years now he has gone to the kitchen counter after breakfast, or before bedtime, where the syringes & spoon are lined up waiting for him, and just gives them to himself. He used to tell me when I had them out of order (I can't remember if he wants the zantac or cyclosporine to be first in line) - but now he just corrects the order and takes his meds. I hope that you are feeling better! Val Rob's Mom (8,systemic) Re: Question About NSAIDs speaking of zantac..how many have had a child on liquid zantac? My son takes it and absolutely hates the taste. Any ideas on how to make it better?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Well said Val... We are lucky with Caroline's rheumy. She doesn't think we should even attempt pills until Caroline is 5 or 6.... It does make it harder to find some medicines, but since Caroline can't take any NSAID's we haven't run into too many binds... Alia and Caroline, age 3, poly and iritis ________________________________ From: [mailto: ] On Behalf Of carneyval@... Sent: Monday, January 23, 2006 3:43 PM Subject: Re: Question About NSAIDs I agree with you . I think that the underlying issue there is the medical community failing to REALLY listen - and communicate with the parents of the children, when the child is the patient. Not always a problem, but sometimes....So much could have been avoided had he said " this is a much higher dose of the pred thn your son has been taking, so we thought we should try the capsules... " - that could have led to a hopefully productive conversation which would have had the same, though less traumatic and stressful path towards the end, where they gave him the liquid med after all. I keep thinking that I should start working with Robbie and swallowing pills - starting with tic tacs or M & Ms - but he takes so many meds - as long as he wants the pudding to get the little pills down, he can have it. I never have a problem with him taking his medication - for years now he has gone to the kitchen counter after breakfast, or before bedtime, wh! ere the syringes & spoon are lined up waiting for him, and just gives them to himself. He used to tell me when I had them out of order (I can't remember if he wants the zantac or cyclosporine to be first in line) - but now he just corrects the order and takes his meds. I hope that you are feeling better! Val Rob's Mom (8,systemic) Re: Question About NSAIDs speaking of zantac..how many have had a child on liquid zantac? My son takes it and absolutely hates the taste. Any ideas on how to make it better?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Well, I see you've gotten quite a few responses, but I've only had a few minutes to skim through them. I thought I'd add my 2 cents, but please forgive me if I repeat anything anyone else has said! Have you mentioned the problem to your son's pediatric rheumatologist? My daughter always had problems with her stomach tolerating NSAIDs, and her ped. rheum. was sensitive to that. She used to take a daily tums, and now she takes a daily Pepcid Complete. There was a time when things were really bad (two years ago). She was on Sulfasalazine for a month until we realized it was causing major problems with her digestive system, and her esophagus needed some time to heal, so liquid Zantac was prescribed for her. As with most kids, she hated the taste. In fact, when I picked it up from the pharmacy, the pharmacist came out to me and told me that the taste is simply awful, and that some kids found that if mixed with equal parts Hershey's syrup, it was a bit more palatable. My husband worked each night to fill that oral syringe with half Zantac and half chocolate syrup. We got through those 10 weeks of taking Zantac, but my daughter was so relieved to be able to start taking a Pepcid Complete tablet after that! Hope that's helpful! Tammy (mom to , age 8 -- pauci-articular JRA and uveitis) --- Carolyn Goedike <dylansmommy42298@...> wrote: > This is probably a very common problem for most, but > I thought I'd ask if anyone has suggestions for a > child who just can't tolerate NSAIDs on a daily > basis. My son, 7 years old, has had JRA since he > was 3. We've done the Aristospan injections, which > seem to help for 9-12 months. But he is unable to > tolerate daily NSAIDs. They really upset his > stomach and nothing seems to help. > > Does anyone have any suggestions? > > Thanks so much, > Carolyn Goedike - mom to Dylan, 7 > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Hi, Instead of zantac. We did Famotidine or pepcid 10 mg over the counter once a day which is available in chewable tablets flavored and it seemed to work great for Joe- he is 4 y/o and around 20 kg. We tried the liquid stuff and it was gross and expensive. I did my research and famotidine has been used in kids and is just as efficacious as ranitidine/zantac. So I got the ped rheum OK to give pepcid instead and I could not find a chewable Zantac ect. - and she was fine with it. Take care Joe 4 systemic (dx March 2004) Re: Question About NSAIDs speaking of zantac..how many have had a child on liquid zantac? My son takes it and absolutely hates the taste. Any ideas on how to make it better?? Donna Quote Link to comment Share on other sites More sharing options...
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