Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 I am on the fence about this issue big time. I am in allot of pain or I wouldn't be considering this, but I may start the plaquenil. I don't want to, but I have spoken to so many people who say they feel so much better taking it and I feel like I am suffering and for what? I just hate being in pain all the time. I am only 36 years old so I don't believe it is age thing, and I have the really high ana so I need to do something, but I am holding out and hoping the diet will help and the supplements. It is just so confusing. I can't decide what road to take and who to listen too. I mean what if the plaquenil really gets rid of the pain, arg any advice appreciated here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 To carina063@..., I would be more than happy to help you with your questions and concerns about your illness (lupus) and plaquenil. I, too, have lupus, and was on plaquenil for some time. I am also a registered nurse, and can help you with other health questions you may have. Why don't you provide me some of your history so I can better help you. Look forward to hearing from you. e, RN, BSN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 I can see your dilema girlfriend. Any natural method of correcting a problem is going to take a while for the effects to be noticeable so if you're in that much pain kiddo you may want to help yourself for the time being. Why don't you look up on the net the side effects of plaquenil if you haven't already and maybe that will help you to decide. Whatever you do, be good to yourself. Jackie ----- Original Message ----- From: carina063@... Sent: Friday, April 20, 2001 10:39 AM Subject: prescription meds I am on the fence about this issue big time. I am in allot of pain or I wouldn't be considering this, but I may start the plaquenil. I don't want to, but I have spoken to so many people who say they feel so much better taking it and I feel like I am suffering and for what? I just hate being in pain all the time. I am only 36 years old so I don't believe it is age thing, and I have the really high ana so I need to do something, but I am holding out and hoping the diet will help and the supplements. It is just so confusing. I can't decide what road to take and who to listen too. I mean what if the plaquenil really gets rid of the pain, arg any advice appreciated here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Hi , Plaquenil can give you much pain relief, although it may take up to 4-6 weeks to build up enough in your system to be of such relief -- so don't get discouraged if you decide to take it, and don't get immediate relief. Plaquenil was originally used for malaria many years ago, now, so it's been around for awhile. The only serious side effects that you must be monitored for is eye problems with an opthamologist every 6-months. I was on plaquenil for several months before explant surgery, and thought I was going to die when I had to come off of it 3-months prior to surgery -- that's when I realized how much it helped. I went back on placquenil after healing from my surgery, for at least 6-months. Then, when I went to the opthamologist for retinol x-rays, the x-rays were so painful for me ( I have ultra-sensitive eyes), I decided to quit taking the drug -- because I didn't feel like I could continue to tolerate that kind of eye pain ever again. Since that time, I have seen another opthamologist from India, who is very knowledgable about breast implants, and placquenil. Based on my discussions with him re my concerns about this drug & my eyes, I feel very comfortable going back on the drug. I intend to go back on placquenil soon, in lieu of taking far more pain medication, etc. -- when I'm having one of my severe " flares " ! Hope this is somewhat helpful! Love & Blessings, MM / NSIF Martha Murdock, Director National Silicone Implant Foundation Dallas, Texas Headquarters ----- Original Message ----- From: <carina063@...> < > Sent: Friday, April 20, 2001 12:39 PM Subject: prescription meds > I am on the fence about this issue big time. I am in allot of pain or > I wouldn't be considering this, but I may start the plaquenil. I > don't want to, but I have spoken to so many people who say they feel > so much better taking it and I feel like I am suffering and for what? > I just hate being in pain all the time. I am only 36 years old so I > don't believe it is age thing, and I have the really high ana so I > need to do something, but I am holding out and hoping the diet will > help and the supplements. It is just so confusing. I can't decide > what road to take and who to listen too. I mean what if the plaquenil > really gets rid of the pain, arg any advice appreciated here. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Please, please be careful with medicating your children. Look up Dr. Breggins site and " ritalin-deaths " . My child suffered from the drugs she was given, she was very sick. When I found Dr. Breggins testimony - he could have been telling her story to the last detail! Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 >>Please, please be careful with medicating your children. Medications should ALWAYS be done carefully and under a doctors care (hence, that is why they are prescription), and as we all know, some doctors have more expertise in certain areas than others. In fact, one of the presenters said that ANY substance given to alter neurology, behavior, biochemistry in any way should be handled as a prescription medication would - meaning all of these over-the-counter things such as melatonin, 5-HTP, vitamin mega-doses, special diets attempting to remove entire categories of food in order to elicit a neurological response, etc. She suggested always starting slow, carefully monitoring side-effects, keeping an eye of your family member's response, and working with any aspect as part of the total treatment program. We use prescription meds - and I am grateful they are available - with both good and bad results. The Ritalin was a disaster, so we stopped it immediately. The amitryptiline was a life-saver. The Zoloft was somewhat positive, the xanax was horrid. Gee, sounds like a lot of the OTC supplements we tried! Great on enzymes, horrid on DMG, great on magnesium, bad on high B, .... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 You can find help for just about any med at this web site. It list programs and how to get a hold of the forms to apply. Most of them the income limit is quite high so you don't have to be broke to get assistance. http://www.rxassist.org/Patients/default.cfm Celeste Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 Sherry, I did the interview yesterday, by phone. Now I sit and wait 2-4 months for the denial so I can start my appeal. But in the meantime, I need to find affordable meds. jane Jane, if you are approved for SSDI, you will be eligible for Medicare after 24 months. . . . sherry z Quote Link to comment Share on other sites More sharing options...
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