ice skating ... what was I thinking ?

[Guest guest]

Ok I have done something that was REALLY hard , I let my daughter go

to an all night party ( with our church youth group) and they are

going ice skating for three hours . Belle LOVES to skate but its

getting increasing harder for her each time. Her foot and heel are

giving her some pain along with the same old hip and hand issues. I

know logically that we can't protect her from harm all of the time but

gosh - I want to ! I didn't want to go because she needs to know she

can trust herself . With this disease we cant predict what tomorrow

will bring so we made this decision that we would let her do as much

as she feels she can do today - we will worry about tomorrow when it

gets here. All that being said : I'm so scared she's going to get

hurt and not tell anyone , hiding her pain is something she does with

ease. Being a pre-teen and having this to deal with has been pretty

tough and she doesn't want to be different and by not letting her

skate tonight that's just what she would have been ... different. Gosh

my heart hurts for these kids. Thanks for letting me vent a little

Teri ( Belle 11 psoriatic )