Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 I made the changes..............If there are more that need to be edited feel free to send me the info and I will edit as needed.............Talk to you soon Aj The following is a geographical listing of some members of the JRA Mailing List. The information included for each entry may consist of the adult's name, email address, home city and state, phone number, child's name and date of birth, type of arthritis, diagnosis date, and name and location of the rheumatologist(s) they see for treatment. If you would like to be added to this member listing, please email said information to: gmckin11@... ALABAMA Sharon 4nanny@... Chatom, Alabama Mom of Olivia (6/21/93) Ginger gbread2808@... Alabama Mom of (5/1/92) Amy c.luker@... Excel, Alabama Mom to Buzz (9-19-92) Bridget Frith rbfrith0821@... Foley, Alabama 251-971-2329 Mom to Meaghan (10-5-00) Pauci JRA dx: 7/01 Dr. Ray ARIZONA sylvan_luvr@... Phoenix, Arizona Father of Skyler VanHook Systemic Onset ~ Stills Disease Dr. s Diane & Ken dbornscheu@... sdale, AZ Parents of (4/5/99) pauciarticular (8/01) Uveitis (11/02) Dr. chrisujohnson@... sdale, AZ Mom of Cameron (8/10/89) Alison and Fischer pfischer@... Phoenix, AZ ali_algebra@... 602 438-7465 Alison: JRA Age 15mo. (now 26yrs old) Pete: JRA Age 4yrs (now 31) Both: Dr. Ralph sonia1md@... Anthem, Arizona mother to Aundrea 7/25/92 dx. systemic jra (9/2002) Dr. AUSTRALIA Oonagh miglow@... Bendigo, , Australia Mom of Maddie (5/2/96) e nachosj2002@... Narara NSW, Australia Mom of Analeise (8/7/92) CALIFORNIA Colleen bookissmom@... Long Beach, CA mom to Caitlin, systemic (4/9/98) Dr. s Reiff at Children's Hospital _Bncknwurnumber@... Bncknwurnumber@... Belmont, CA 12/17/84 1991 dx JRA 2003 dx changed to Juvenile Ankylosing Spondylitis Originallly treated by Dr. Christy Sanborge, LPCH Currently Treated by Dr. Chung and Dr. Chakavarty, Stanford Hospital Ellie skyley8@... Valley Glen, CA Mom of Riley (8/13/97) Dr. s Reiff, Children's Hospital Los Angeles (323)669-2119 Kasey kasey@... San Francisco, CA Mom of (3/30/98) Chellie chellieae@... San Valley, CA Mom of Tyler (4/7/96) Sharon & rsgerfen@... Corning, CA Mom & Dad of Meghann (2/13/87) mbvanert@... Chico, CA Mom of Halie (1/8/95) Kim rav4kim@... Oakley, Ca Mom of (2/12/99) Carolyn mom2dylan@... Santa Clarita Valley, CA dylansmommy42298@... Mom to Dylan (4/22/98) Pauci JRA (8/2001) Dr. Kerry Gallagher, UCLA Maureen momo2inca@... Fresno, CA Mother of Caleb (5/16/99) Pauci JRA ANA Positive (11/2003) Dr. , Central Valley Childrens Hospital CANADA claudia_eugenin@... Montreal, Canada Mom to (8/30/94) Leonard lkroft@... Vernon BC Canada Dad of (4/4/93) Bob btilk@... Winnipeg MB Canada Dad of (4/5/87) Lynn llyoung@... Kincardine, Ontario, Canada mom to Mickey (Mickaela) (2/18/94) COLORADO Abrams-Counterman Redfeather03@... Arvada, CO. 303-463-1799 Mom of Lexi Counterman 8/11/01 unsure but think it is pauciarticular dx date - 2/18/2005 sees Dr. Hollister at Denver Children's Hosp. Rheumatology ENGLAND Oliver superzola@... Kent - UK Father of Damien (10/4/94) Systemic JIA Prof. Woo, Gt Ormond St Hospital, London FINLAND Soili soilimar@... Mom of Juha (4/17/96) & Juho (1/9/95) FLORIDA Tara Vanner bambam31900@... Boynton Beach, Florida Mom of (5/18/02) Polyarticular JRA Diagnosed 6/23/04 Dr. Rivas-Chacon, Miami Children's Hospital KAMitchemalways@... Pensacola, Florida Mom of Systemic Onset JRA Dr. Jane El-Dahr, New Orleans (Tulane University) BHB023@... (5/23/82) Jupiter & Orlando FL karen@... Tequesta, Fl Mom to Adam (1-26-93) Psoriatic Arthritis (1996) Dr. Goodman, Linton Blvd, Delray Beach Fl FRANCE Anton anton.gruss@... Grenoble France Dad of Vivien (1/4/89) Systemic Onset JRA GEORGIA (Chris) Weaver christineweaver@... Mom of Bradley Lawrenceville, Georgia Pauciarticular JRA. Diagnosed in June 2002. Also has Glaucoma and Cataract Lens Replacement due to Uveitis. Sees Dr. Larry Vogler, Emory Children's Center, Atlanta, Georgia Robbin N Robbin40@... Atlanta, Ga (4/11/87) See Dr Larry Vogler in Atlanta, Ga glamgirl131@... 16 yo AS and ???? SC Dr. Rita Jerath in Augusta, Ga Carol and Ken Shroyer car54ol@... , SC 864-225-6605 Parents of 04/20/1987 See Dr. Rita S. Jerath, Children's Medical Center Augusta, GA 30912 706-721-0650 e Bowen (age 28) chrisandbrandie@... crankybrandie@... currently living in Kaiserslautern, Germany (home grown in Colorado) Polyarticular Chronic JRA dx: 1977 I see a military rheumatologist HAWAII Gentile scandinavia_today@... Maui, HI 808-579-8302 / 808-877-3456 Mom to Bergill-Gentile (7/19/96) Systemic Poly Jra (onset 10/99) Dr. Kurahara, Shriners Hospital, Honolulu Dr. Friedman, Naturalpath, Maui Georgina gmckin@... Kahului, Maui, HI 808-877-8716 Mom of (4/5/89) Systemic Onset JRA dx: May, 1995 Drs. Dave Kurahara & Kara Yamamoto IDAHO Jana janabecker@... Boise, ID Mom to Robbie (11/14/86) Stacia Royster Ward staciar@... Eagle, ID 208-938-6348 Mom to Hunter, 8 Systemic JRA, iritis We see Dr. W. Knibbe, Intermountain Orthopaedic, Idaho Elks Rehab. Hospital ILLINOIS Kris kldisjustme@... Bloomingdale, IL Grandmother of Garrett (dob 9/11/01) Poly/Systemic dx: 09/21/2003 Rheumy Dr. Spencer Ped.Opthomologist, Dr. Osterle, Wheaton Eye Clinic and Bruce Biggers numom93097@... Rockton, IL (815)624-0124 Parents of Noah, DOB 10-25-99 poly JRA (diagnosed 03-04), Down Syndrome Dr. Huttenlocher, Madison, WI Pat sdbpab@... Mundelein, IL Mom to (9/30/94) Jeannie jvalera2@... Chicago, IL Mom to (10/28/90) N. Jakuch@... Northbrook, IL Mom to Grace (8/10/94) tec1959@... Lake in the Hills Illinois Mom to (4-4-94) Pauciarticular with Uveitis (5/2001) Dr. Klein-Gittleman Childrens Memorial Dr. Dana Kolton Premier Eye Care in Barrington Michele mtepper@... Midlothian, IL Mom to (5/9/87) Pauci & spondyloarthropy (10/2000) Dr. Spencer, Hope Childrens Hospital Sue mudslid4952002@... Heyworth, IL Mom to Mackenzie (11/12/97) Systemic Onset JRA (11/00) INDIANA Dawn mamafivesons@... ton, Indiana Mom of (Nate) 6-16-2002 Systemic (onset 9/03) Dr. Suzanne Bowyer and Dr. Ballinger at Riley Hospital for children in Indianapolis, IN sfrazer@... Columbus, IN Mom to Brittany (10/14/90) Poly JRA (3/2003) Dr. Klausmeier, Riley Hospital for Children Schulz snooksmama@... Floyds Knobs, Indiana Mom to Rob (4/26/1989) Juvenile Ankylosing Spondylitis (3/2002) Alport syndrome Dr. Murray Passo at Cincinnati Children's Hospital, Ohio Cinda Abbott CjA417@... Mom to (age 16yrs) Polyarticular JRA, Diagnosed October 2003 sburg, Indiana Dr. Klausmeier, Riley's Hospital, Indianapolis IOWA - micmert@... West Branch, Iowa Mom to Joe (3-20-2001) Systemic - Dx 3-2005 Ped. rheumatologist: Dr.Polly Ferguson at Univ of Iowa Children's Hospital Jana janajake@... Sioux City, IA 712-266-9110 Mom to Jake (7/11/97) Dr.Lawrence Jung, Omaha, NE KENTUCKY Donna faces1999@... Kentucky Poly JRA (1971) Scleroderma (localized) (1970) Dr. Neustadt Theresa (Tree) Treesap61@... Kentucky JRA vet diagnosed 10/68 age 6 Morse dam755@... Louisville, KY JRA / ankylosing spondylitis Dr. Neustadt MARYLAND Carneyval@... Severn MD Mom to (10/2/97) Systemic (Onset 8/01) Pediatric Rheumatology Team Walter Army Medical Center, Washington DC Gray mom to Hailey (10-31-02) poly dx--(9-04) sees Dr. in MD Pikesville, MD 410-653-6339 MASSACHUSETTS n ajaomom@... Westfield MA Mom to Holly (12/22/93) Systemic JRA 9/94 Dr. Rothman, Shriners Hospital maltabet@... Sharon, MA Mom to Ezra (5-1-96) Systemic JRA Dr. Sundel, Boston Children’s Hospital MICHIGAN beegal68@... Michigan Mom to Jessie (11/20/93) Dr. Hillary Haftel University of Michigan/Mott's Children's Hospital Ann Arbor Kim Mom to ne (2-9-94) Poly JRA Commerce, Michigan Dr. Lasiack - West Bloomfield Vicky vdziubinski48108@... Ann Arbor, MI Mom to (4/12/1995) Tina jramom2002@... New Haven, MI Mom to (12/6/94) Sherry chiaowl@... Lansing, MI mom to Casey (5/23/91) polyarticular Dr. E. Dowd, Brighton, MI gladswan@... Traverse City, Mi 49684 231-946-7839 mom to Meg 14 pauci(probable psoriatic) Dr. Cuesta, Farmington Hills, Mi Nate and Ardle nate.ardle@... Ann Arbor, MI Parents of (2/17/00) Pauciarticular Dr. Hillary Haftel - University of Michigan MINNESOTA McGee earthmama2k@... Owatonna, Minnesota Mom to (10/16/94) Onset: June 2004 Diagnosis: Dec 2004 Type: Polyarticular JRA (tenative) Pediatric Rheumatologist: Dr. Mason, Mayo Clinic Rochester http://www.mayoclinic.org/rheumatology-rst/11944889.html Ray leslie@... South St. , MN Dr. Vehe, University of Minnesota Allie Ray (8 poly) Diagnosed 12-02 Currently is on a study (Humira) at the University of Minnesota Helen hburger64@... Ham Lake, Minnesota Mom to (8/17/97) Systemic JRA (6/03) Dr Warshawsky, Childrens Hospital, Minneapolis Alia and Alan Pranke Alia.Pranke@... Apple Valley, Minnesota Caroline 1/31/02 Polyarticular JRA (11/30/03) & Uveitis (1/13/04) Dr. U. Evren Akin, Gillette Children's Hospital, St. , MN Dr. Bothun, Park Nicollet Clinic, Burnsville, MN MISSOURI jwood_fire@... Columbia, MO Dad of (2/15/95) MONTANA bionicmaninmt@... MT (5/3/74) NEW HAMPSHIRE Patty Emeraldsx3@... Pembroke, NH Mom to Caitlin (5/14/92) Systemic JRA/Stills ******no doctor as of yet******** NEW JERSEY RPerre3314@... Lakewood, NJ Mom to Alecia (10/20/91) Charlie ga208@... NJ Dad of Elliot (7/4/94) and Rick cmjoconnor@... Hopewell, NJ 609-466-4114 parents of Carrick, age 11 poly onset at 9 after parvo virus infection Dr. Cron and team at Children's Hospital, Philadelphia Maureen TAPYEE3@... Mom to Paige -age 3 Pauci (2/02) Bergenfield, NJ Dr. Onel @ The Hospital for Special Surgery, New York City NEW YORK Emilie Skidmore h.skidmore@... Granville NY Mom to (6/2001) Polyarticular Dr. Rothman, Shriners Hospital, Springfield, MA Deadra wolfdee@... Champlain, NY 518-298-5147 Mom to Chase (2/23/98) Pauciarticular jra Dr. Barbara Edelheit, Albany Medical College Teri thep115@... Rome, NY Mom of (7/9/97) Karl kju_0601@... Sparkill (Rockland County), NY Dad to (4/28/02) Dr. Immundo (NYC) jt102493@... Patchogue, Long Island, NY Mom to Owen (7/11/99)juvenile ankylosing spondylitis Liam (8/15/96) Bechet's Dr. Lehman, Manhattan laocme12@... Upstate New York Mom to (5/18/00) Pauci, ANA Positive (5/23/01) Dr. Deborah Rothman @ Shriner's Hospital Springfield Ma 1-800-322-5905 NEW ZEALAND Janice Neame neame@... Christchurch Mother of Elijah age 8 Systemic JRA since birth NORWAY Helge feynman@... Norway Dad of (4/6/90) Systemic JRA NORTH CAROLINA Dew maydo65@... Tarboro, North Carolina Mom to Kaylee Westbrook, 3, 8/30/02 pauci diagnosed Jan 6, 05 now Poly Duke Childrens Hospital Durham, NC Dr. Dewitt Dr. Rabinowich Dr. Shanburg Kristi dkakheath@... Salisbury,North Carolina Mom of Ashton (10/4/86) Duke Pediatric Rheumotology, Durham, NC OHIO chcook214@... Grandmother to Alix (11/28/95) Pauci, diagnosed 1997 Wickliffe, Ohio Carolyn cybersis40@... Cleveland, OH (2/17/60) April amiksich@... Columbus, Ohio Mom to Evan (4/16/97) Poly JRA (3/2003) Dr. Gloria Higgins at Children's Hospital, Columbus Ohio s shelly443142002@... Akron, Ohio Mom to Ciarra (10/17/95) Systemic Onset DX: April, 2000 Dr. Reuman, Childrens Hospital of Akron OREGON Price bc.price@... Tigard, Oregon Mom to n (1-19-89) Systemic (11/99) Dr. Borzy, Oregon Health Sciences University Amy foxpro@... Springfield, OR Mom of (7/18/96) stutzman@... Mom of Tori (7/23/95) Systemic (6/98) never had remission + stopped growing at onset Rosetta Bray orwranglerbabe2002@... roseburg,oregon mom to Dakota 2 1/2 systemic, feb 2004 Dr. Kingsbury at Emanuel Legacy Hospital, portland orgegon PENNSYLVANIA Kellie - angelsbabysis@... Girard, PA Mom to (9/10/94) Poly JRA diagnosed 10/2000 Dr. Kathie Bryson (rheumatologist)- Erie, PA Barb owits@... Birdsboro, PA Mom to Chase (4/30/93) Dr. Brandt Groh, Hershey Medical Center Tammy & Jim Fiffick nikki228@... stown, PA Parents of Gabby (2/6/98) Systemic Onset JRA with polyarticular course Dr. Frederick at Altoona Arthritis Clinic, Duncansville, PA Tammy Zeigler rstlz@... Mechanicsburg, PA Mom to (9/22/97) pauci-articular JRA (7/23/1999) uveitis (3/2001) Dr. Brandt Groh at Hershey Medical Center Christy Boos gazelle@... Ephrata, PA Mom of Abbie (7/6/89) Systemic JRA Dr. Brandt Groh at Hershey Medical Center RHODE ISLAND Jane Jitz45@... town, RI Mom of (1/19/91) SOUTH CAROLINA Lynne Lynne101@... Greenville, South Carolina mom to Chandler (1993) poly diagnosed 08/2000 Duke University Medical Center Dr. Schanberg Kathy akally@... Clemson, SC Mom of Tally (1/6/95) Carol Car54ol@... , SC Mom of (4/20/87) TENNESSEE Becki Larson Arthurnator@... Mom to (7-24-98) (615)867-4983 Systemic (6/22/01) Lawton & Donna Hummal Vanderbilt Childrens Hospital TEXAS Summer remmussing@... mom to Gabi 6-6-97 Austin, Texas poly since apr. 2003 Jerry lumineri@... Mom of Logan 7/13/99 Austin, TX Poly JRA (diag. 12/20/04) Dr. , Houston Kat katcpub@... Mom to Ally 4 Polyarticular jra Houston, Tx Dr. Warren Kim smithkim@... Denton,Tx 940-380-1771 Mom of Logan (07-24-97) o Salas robertosalas@... Texas father to It-xetl (8) Dx: May 2003 Dr. Cole San , TX Missy Guerrero MG9393@... San , Texas Mom to Tyler Dx: Spondy Dr. M. DeGuzman Jeanine Maldonado maldomaldo@... San , TX Mom to Sadie (6/15/93) Juvenile Dermatomyositis with Vasculitis Sees Dr. Cole UTAH Suzanne festivefood@... Salt Lake City Utah Jimmy 4 1/2 years old JRA (12/17/2003) Dr. Sampath Prahalad Primary Childrens Hospital, Salt Lake City VIRGINIA Ashlee Blair ablair@... Mom to Madison (7/27/02) Gretna, VA 434-656-3550 Pauci onset ... now Poly Dr. T. Saulsbury at UVA Liz liz_smith@... Burke, VA Mom of (1/22/92) Polyarticular (1994) Dr. Harry Gewanter in Richmond Helen Hollingsworth helenchollingsworth@... Oakton, VA 703 255-9635 Mom to Teddy (9/9/91) Polyarticular (dx: 11/02) Dr. Ellen Goldmuntz Knoble knoblefamily@... Clifton, VA 703-322-9474 Mom to Christian (1-22-92) Systemic Onset JRA (11-03) Dr. Harry Gewanter Terri Berube Terriber@... Mom of Aubrey 8 1/2 years old Uveitis(3/08/02), Pauci-Jra (2/6/04) Yorktown, Va Dr. @Chkd Norfolk, Dr.Chamblee Hampton Roads Eye Assoc. a Kleinhans Winchester, Virginia Mixed Connective Tissue Disease & JRA Lynda Chassey arhianrhod@... Brodnax, VA Poly JRA 8/1966 Dr. Wise Rheumatology, Medical College of Virginia, VCU WASHINGTON tiffaniesmom01@... Mom of Tiffanie (born 6-28-01) systemic onset (diagnosed 4-2-04) Tacoma Wa Dr Bietz Childrens reg. medical center rchitchcock1958@... Mom of 11-18-1986 Systemic Juvenile Rheumatoid Arthritis Lacey, Washington Dr Emery, Childrens Hospital, Seattle e boundforlondon@... Federal Way mom to joe (12/29/86) poly (8/2001) Dr. Troy Torgerson, Seattle Childrens WISCONSIN and Therese Z. maryfield@... Hartford, WI Genevieve (10/02/02) Pauci (1/16/04) & Uveitis (1/27/04) Dr. Judyann Olson, Children's Hospital of WI Quote Link to comment Share on other sites More sharing options...
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