- e: Possible Diagnosis for Marissa

[Guest guest]

Thanks for the support and the advice. I will bring up the

possibilty of a conference call next time we see both docs. I think

that will be next month.

Thanks, Val

>

> I'd just like to add to Becki's excellent thoughts, that Dr. Passo

is

> very good at ferreting out the diagnosis. Seeing your son will

give him

> more info as well. I know that it is exhausting thinking of the

> difference between what each specialty is telling you. Perhaps

they could

> do a conference call together and discuss? That might be an idea.

> At any rate, I'm glad that you are seeing Dr. Passo.

> and Rob 16 Spondy

>

> On Wed, 19 Oct 2005 14:00:24 EDT Arthurnator@w... writes:

> In a message dated 10/19/05 12:11:59 PM Central Daylight Time,

> darksun1889@y... writes:

>

>

> > On the other hand though, the GI clinic has 100's of patients

with

> > Eosinophilic and is the leading researchers of Eosinophilic

> > Gastroeneteris and they said they do not see this as a symptoms

of

> > Eos Disorder. There is only a half a dozen or so patients

suffering

> > from these symptoms out of 100's so they believe these half a

dozen

> > patients are suffering from another autoimmune disorder causing

> > arthritic symptoms as well as Eosinophilic.

> >

> > Hi,

> I just looked some of this up and it led me to Cincinnati Childrens

> website

> for Eos disorders.

> From what I understand is eosinophilic is a fancy name for white

blood

> cells

> and in these disorders there are too many wbc in certain areas

that

> cause

> chronic inflimation.

> There was a small section on rheumatoligy stating that it can

cause

> eosinophilic synovitis(swelling)eosinophilic myalgas(pain near a

joint

> but no

> swelling).In another section they mentioned Celiac disease which

causes

> arthritis but

> goes away be eliminating gluten.

> Looks like Passo is on to something and if Marissa was to see him

and he

> found obvious swelling then a joint aspiration sent to the lab

just might

> show a

> high number of wbc.

> Even if they can't put the whole puzzle together yet, it looks

like they

> are

> willing to try and treat the mystery symptoms.

> I hope the Celebrex works.

> Hugs

> Becki and 7 systemic

>

>

>