Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 I got an e-mail from the Albany chapter of the AF yesterday about the advocacy summit. I am very interested in attending and I am trying to get my daughter to show the same level of enthusiasm. Of course her first question was who else is going? So I am putting the question out there - how many of you are planning on attending and how old are yours kids. Jackie, mother of Faryn, 13, poly --------------------------------- FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 Tell Faryn that will be there and would be thrilled if Faryn attends as well. Liz advocacy summit I got an e-mail from the Albany chapter of the AF yesterday about the advocacy summit. I am very interested in attending and I am trying to get my daughter to show the same level of enthusiasm. Of course her first question was who else is going? So I am putting the question out there - how many of you are planning on attending and how old are yours kids. Jackie, mother of Faryn, 13, poly --------------------------------- FareChase - Search multiple travel sites in one click. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Hi, Unfortunately, we won't be able to attend. It's just too far from home. I was wondering, though, if anybody here remembered many years back when a group of people with arthritis, online, sent out a call for others to save and collect their empty prescription vials, to be brought to the Summit, to make a statement about the impact and importance of the ongoing medical needs of people with arthritis? I think I heard about it through the alt.support.arthritis newsgroup or maybe ArthritisInsight? I was wondering if anyone here knew or heard anything about that and, if so, did it turn out to be a good thing? Also, might we consider doing something like that - to help with a visible marker to represent all the people who support the arthritis advocacy initiatives but who won't be in attendance? Not necessarily empty pill vials but pictures of the kids or something? Just wondering, Georgina ----- Original Message ----- From: liz smith Tell Faryn that will be there and would be thrilled if Faryn attends as well. Liz -----Original Message----- From: [mailto: ] On Behalf Of Jackie Borella I got an e-mail from the Albany chapter of the AF yesterday about the advocacy summit. I am very interested in attending and I am trying to get my daughter to show the same level of enthusiasm. Of course her first question was who else is going? So I am putting the question out there - how many of you are planning on attending and how old are yours kids. Jackie, mother of Faryn, 13, poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 , go to _www.arthritis.org_ (http://www.arthritis.org) and click on advocacy then contact your chapter. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 I wish we were going, the kids and i really enjoyed it last year, unfortunately we just don't have the extra cash this year......its quite expensive. Holly was hoping to go to see emily :-) See you in Atlanta!!!! Luv and hugs, Aj and Holly (12 yrs old, systemic jra since 9/94) _www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/visit/holly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 AJ, Is your chapter sending anyone??? Have you checked into scholarship to attend?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Donna, I'll be there with the girls. Liz _____ From: [mailto: ] On Behalf Of ajaoky@... Sent: Tuesday, January 24, 2006 3:23 PM ; ajao_young_adults Subject: advocacy summit I am considering the advocacy summit and was checking to see who all will be there?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Donna, My husband, Bill ,will be there with n. (n, 17, systemic) On Jan 24, 2006, at 12:22 PM, ajaoky@... wrote: > I am considering the advocacy summit and was checking to see who > all will be > there?? > Donna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 My chapter is sending someone already......they send a different family each year if possible. Any other suggestions???? I will beg, lol!!!!! Aj Quote Link to comment Share on other sites More sharing options...
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