WARING; Re:Has anyone else had fantastic results from neurosurgery or is it jus

[Guest guest]

Hi Dorene,

I hope your daughter continues to improve her seizure disorder. You might want

to do a search on Zonegran side effects and see if you can do anything to

address them, such as supplements to make up for any nurtients depleted by the

medication. Your pharmacist should have this information or be able to look it

up for you.

Are your keto doctors giving you and your daughter any help in developing a

diet for her to maintain as she weans off the keto diet?

There was at least on nutritionist on one of the Atkins4Seizures support group.

atkins4seizures/

There are a lot of nice folks there so maybe they will have some ideas and

support for you too. Over all the years she suffered, was she evaluated for

celiac disease? I don't have it, but am gluten intolerant and getting the gluten

out of my diet did make a very big improvement in my seizure frequency. This

link is to an earlier study showing that myoclonus can be due to gluten

sensitivity\celiac disease.

Epilepsy and Celiac Disease

Given diagnosis of Juvenile Myoclonic Epilepsy. One week ago, (2/10/08)

hospitalized and diagnosed with Celiac disease. AMAZING improvement after just 1

....

http://www.celiac.com/articles/116/1/Epilepsy-and-Celiac-Disease/Page1.html

For all the frustrations, it is important to keep picking up where we left off,

to do what we can to maintain in normal life and do what we want to do,

regardless any obstacles from the seizure disorder. It sounds like your daughter

is taking charge of her situation. I wish her the best.

Zoe

> >

> >

> > Hello Arnold and group,

> >

> > Ten years after my brain surgery for seizures failed, I brought my

seizures under control using diet, exercise, behavior modification, yoga, and

neurofeedback as well as vitamin, amino acid, and mineral supplements. Also

extremely helpful was learning relaxation and breathing techniques and going on

a gluten and lactose free diet.

> > I have been seizure free without drugs since July of 1998. There are

many options to explore for managing seizures and overcoming them with or

without medication. Had I understood more about nutrition and how the drugs

could make my condition worse, the seizures may have never gotten so severe that

surgery seemed to be the only hope. A lot of people are told this when there are

many options that may be safer.

> > Below are some links that are worth checking out for further information

on taking control of one's seizure disorder.

> > Warm Regards,

> > Zoe

> >

> > The only comprehensive epilepsy clinic in the USA focusing on showing

patients how to manage their seizure disorders.

> >

> > http://www.andrewsreiter.com/

> >

> > Contact them about neurofeedback for epilepsy

> >

> > http://www.eeginfo.com/research/epilepsy_main.html

> >

> >

> > He is working with diet approaches to treating seizure disorders.

> >

> > http://dogtorj.tripod.com/index.html

> >

> > Nutrients depleted by epilepsy drugs

> >

> > http://www.healingwithnutrition.com/edisease/epilepsy/epilepsydrugs.html

> >

> >

> > Research on a modified Atkins diet for seizures has been giving very good

results. They may still be taking participants for one of their studies.

> >

> > http://www.epilepsy.com/epilepsy/treatment_atkins_diet

> >

> > Some of my articles on seizure disorders

> >

> >

http://epilepsy.suite101.com/article.cfm/epilepsy_modified_atkins_diet_for_seizu\

res

> >

> >

> >

http://epilepsy.suite101.com/article.cfm/epilepsy_atkins_for_seizures_support_gr\

oups

> >

> > http://epilepsy.suite101.com/article.cfm/drug_resistant_seizures

> >

> >

http://chronicillness.suite101.com/article.cfm/neurofeedback_for_epilepsy_and_ot\

her_conditions

> >

> > http://epilepsy.suite101.com/article.cfm/neurofeedback_for_epilepsy

> >

> >