WARING; Re:Has anyone else had fantastic results from neurosurgery or is it jus

[Guest guest]

Zoe,

Thank you so much for posting. Your timing is perfect for us =)

My daughter has had intractable absence epilepsy, which was just re-diagnosed as

Juvenile Myoclonic Epilepsy, for over 10 years. We have struggled very much. I

feel that the things you mention are a key to helping many control their

epilepsy.

After begging and crying 2 1/2 years ago, our Dr. finally let us try a study for

Modified Atkins Diet for seizures and now we are on the Ketogenic Diet. I know

that these diets have their flaws, but when nothing else is working you are

desperate to try anything. Prior to the diet she was having thousands of

absence seizures a day, and they were beginning to mutate into other kinds of

seizures. We have made it as clean and organic as possible.

She is now 95 to 98% seizure free with the diet and able to do pretty much

anything she wants except drive a car. She is studying wire-wrap jewelry

design, and making awareness bracelets for several causes. She lost 3 1/2 years

of her to status absence seizures, which she has no memory of. We are so

thankful for the positive changes that the diet has made, but now, she cannot

keep large ketones anymore, no matter what we do, and I know that we will

probably begin weaning her off the diet in May.

She is in agreement that her lifestyle must be carefully crafted to maintain

health. She is on Zonegran now as well, without any side effects at the

present.

We are in the research phase of trying to figure out what her diet will look

like when she begins to wean off of the Ketogenic diet and your information has

given me a path to pursue. THANK YOU. It's also helpful for her to know the

these things will help her from another person's perspective in addition to

mine. You know how it is =)

With a grateful Heart,

Dorene

>

>

> Hello Arnold and group,

>

> Ten years after my brain surgery for seizures failed, I brought my seizures

under control using diet, exercise, behavior modification, yoga, and

neurofeedback as well as vitamin, amino acid, and mineral supplements. Also

extremely helpful was learning relaxation and breathing techniques and going on

a gluten and lactose free diet.

> I have been seizure free without drugs since July of 1998. There are many

options to explore for managing seizures and overcoming them with or without

medication. Had I understood more about nutrition and how the drugs could make

my condition worse, the seizures may have never gotten so severe that surgery

seemed to be the only hope. A lot of people are told this when there are many

options that may be safer.

> Below are some links that are worth checking out for further information on

taking control of one's seizure disorder.

> Warm Regards,

> Zoe

>

> The only comprehensive epilepsy clinic in the USA focusing on showing patients

how to manage their seizure disorders.

>

> http://www.andrewsreiter.com/

>

> Contact them about neurofeedback for epilepsy

>

> http://www.eeginfo.com/research/epilepsy_main.html

>

>

> He is working with diet approaches to treating seizure disorders.

>

> http://dogtorj.tripod.com/index.html

>

> Nutrients depleted by epilepsy drugs

>

> http://www.healingwithnutrition.com/edisease/epilepsy/epilepsydrugs.html

>

>

> Research on a modified Atkins diet for seizures has been giving very good

results. They may still be taking participants for one of their studies.

>

> http://www.epilepsy.com/epilepsy/treatment_atkins_diet

>

> Some of my articles on seizure disorders

>

>

http://epilepsy.suite101.com/article.cfm/epilepsy_modified_atkins_diet_for_seizu\

res

>

>

>

http://epilepsy.suite101.com/article.cfm/epilepsy_atkins_for_seizures_support_gr\

oups

>

> http://epilepsy.suite101.com/article.cfm/drug_resistant_seizures

>

>

http://chronicillness.suite101.com/article.cfm/neurofeedback_for_epilepsy_and_ot\

her_conditions

>

> http://epilepsy.suite101.com/article.cfm/neurofeedback_for_epilepsy

>

>

>

>

> From: Arnoldgore@...

> Date: Mon, 25 Jan 2010 09:06:29 -0500

> Subject: WARING; Re:Has anyone else had fantastic results from neurosurgery or

is it jus

>

> CC: zll51@...

>

>

>

> Hi JoAnn,

> Congratulations on your success BUT, Every case is different and all

surgery--ESPECIALLY BRAIN SURGERY is RISKY.

> As a reminder, one of the people who started this list, Zoe Langley was a

survivor of brain surgery that did not work--but then she was finally able to

control her epilepsy without drugs and has trained herself to be able to do

fantastic work in discovering little known medical research on epilepsy despite

a surgically complicating disability that compomised her overall health and

energy level.

> Even the Brain Surgeons at NYU Medical Center were warning that not all cases

are even candidates for surgery, it is a very complicated picture.

>

> 1.

>

> Has anyone else had fantastic results from neurosurgery or is it jus

> Posted by: " JoannG " joann583@... joann583

> Sun Jan 24, 2010 5:04 pm (PST)

>

>

> I had brain surgery for epilepsy about 10 years ago, when I was 16, and

haven't had a seizure since. They took me off of medication about 8 years ago. I

was still able to get a bachelors degree and don't seem to have any side effects

from it. As a matter of fact when they took me off of medication my IQ went up.

Is it even an option for most epileptics or are most just to scared to try it?

>

>

> Arnold

> _________________________________________________________________

> Hotmail: Trusted email with powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/196390707/direct/01/

>

>