Keppra

[Guest guest]

, I do not know about the med but I do know that sometimes I can

get information faster from the pharmacy than the doctor. If you do not hear

from the doctor, ask the pharmacy about it and ask them to fax the doctor if

it is right.

Betty

{I've reached the age where the happy hour is a nap.}

----- Original Message -----

From: " eashtonb " <eashtonb@...>

>

> I called the doctors office but they havent called back... Thanks

> goodness I didnt give it to my son yet.. because I am pretty sure

> this cant be right...

>

>

[Guest guest]

Thanks Betty... what I was reading was the mg per KG... not the

total dose so his prescription was right... I usually do call the

pharmacy too when I have med questions, but since I thought THEY had

messed up anyway, I wanted to be sure what the doctor prescribed to

be sure... I got a call as soon as I posted my question, so I

hurried up and deleted it... But it was right... Just seemed like

waaayy too many MG for a little boy. But she said it was right

> , I do not know about the med but I do know that

sometimes I can

> get information faster from the pharmacy than the doctor. If you

do not hear

> from the doctor, ask the pharmacy about it and ask them to fax the

doctor if

> it is right.

>

> >

[Guest guest]

I usually do call the

> pharmacy too when I have med questions, but since I thought THEY had

> messed up anyway, I wanted to be sure what the doctor prescribed to

> be sure... >>

My husband usually has me make copies of his prescriptions since it seems

they almost always get messed up or he thinks the pharmacy has screwed it

up. Some times he is even right. lol That might be something I should do

also since sometimes the doc will give more refills than the drug store

thinks is necessary. We have had more than one pharmacist over the years

who questioned the doctor's right to write out a certain prescription with

refills.

Betty Ann-61 yo, possibly Bipolar but undx'd, Effexor, Buspar

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Singular

Evan - 9 yo nonverbal autism on 3 mg Risperdal, 5 mg Abilify stated

3/11/03

- 6 yo- Bipolar/ADHD/PTSD on Tegretol, Adderall, Clonidine .1 mg,

mother to -32 yo, their mom - Bipolar/ADHD on Topamax, Singular

wife to Bob - 71 yo, Effexor and too more many meds to remember

{I've reached the age where the happy hour is a nap.}

[Guest guest]

Hi

My son has been on Keppra for the last 2.5 years. It is the only drug, thank

God, which stopped the seizures.

He started with a high dose 1500 and is now on 1000.

Glad to help if you want to know any more.

But I would start with 500 and if there was seizures still work my way up.

Simy

Canada

keppra

> KEPPRA...anyone know anything about this drug ( antiepileptic)

> what is the usual childrens dose? ( my son is 3) the pharmacy gave

> him 250mg!! working up to 2 pills a day which would be 500MG a

> DAY.... I looked it up on the internet that an adult dosage was a

> goal of working up to 500-1000mg a day and a child was MUCH less..

>

> I got the prescription the other day ( she called it in so I didnt

> see what she said for the mg to be) but they had it in my husbands

> name for some reason... all they did was put a new sticker with my

> sons name over my husbands name... I didnt give it to him because I

> wanted to check the dose to make sure they didnt make a mistake and

> make it for a 240lb 6'1 " MAN and not a 37 lb 3 yr old.

>

> I called the doctors office but they havent called back... Thanks

> goodness I didnt give it to my son yet.. because I am pretty sure

> this cant be right...

>

>

>

>

>

[Guest guest]

Thank you! definately makes me feel better regarding this. Is he on

any other meds? I know the doctor told me there was nothing OTC that

he couldnt take with this, but I forgot to specifically mention the

risperdal. We are having major violent episodes... and I just

thought it was bad at age 2. He is just bigger and stronger now... I

was brutally beaten at the bookstore tonight. Its funny but its

not...

> Hi

>

> My son has been on Keppra for the last 2.5 years. It is the only

drug, thank

> God, which stopped the seizures.

>

> He started with a high dose 1500 and is now on 1000.

>

> Glad to help if you want to know any more.

>

> But I would start with 500 and if there was seizures still work my

way up.

>

> Simy

> Canada

> keppra

>

>

> > KEPPRA...anyone know anything about this drug ( antiepileptic)

> > what is the usual childrens dose? ( my son is 3) the pharmacy gave

> > him 250mg!! working up to 2 pills a day which would be 500MG a

> > DAY.... I looked it up on the internet that an adult dosage was a

> > goal of working up to 500-1000mg a day and a child was MUCH less..

> >

> > I got the prescription the other day ( she called it in so I

didnt

> > see what she said for the mg to be) but they had it in my

husbands

> > name for some reason... all they did was put a new sticker with my

> > sons name over my husbands name... I didnt give it to him

because I

> > wanted to check the dose to make sure they didnt make a mistake

and

> > make it for a 240lb 6'1 " MAN and not a 37 lb 3 yr old.

> >

> > I called the doctors office but they havent called back... Thanks

> > goodness I didnt give it to my son yet.. because I am pretty sure

> > this cant be right...

> >

> >

> >

> >

> >

[Guest guest]

Hi

My son is 13 yrs old. As I said on my previous email , he has been on Keppra

since the year 2002 and no he is not on any other medications.

As he is going thru puberty, we are seeing more non compliance and he gets

furious at times when we refuse things ...to the point that he will slap his

head in anger.

I was also told about Risperdal (spelling is not good, I am sure) but I feel

that one drug is enough.

Simy

Canada

keppra

> >

> >

> > > KEPPRA...anyone know anything about this drug ( antiepileptic)

> > > what is the usual childrens dose? ( my son is 3) the pharmacy gave

> > > him 250mg!! working up to 2 pills a day which would be 500MG a

> > > DAY.... I looked it up on the internet that an adult dosage was a

> > > goal of working up to 500-1000mg a day and a child was MUCH less..

> > >

> > > I got the prescription the other day ( she called it in so I

> didnt

> > > see what she said for the mg to be) but they had it in my

> husbands

> > > name for some reason... all they did was put a new sticker with my

> > > sons name over my husbands name... I didnt give it to him

> because I

> > > wanted to check the dose to make sure they didnt make a mistake

> and

> > > make it for a 240lb 6'1 " MAN and not a 37 lb 3 yr old.

> > >

> > > I called the doctors office but they havent called back... Thanks

> > > goodness I didnt give it to my son yet.. because I am pretty sure

> > > this cant be right...

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi

I meant to ask you. Are you in the U.S. or in Canada.

I have to travel all the time to the U.S. to get KEPPRA for our son as it is

not available apparently here yet.

If you are in Canada and know how to get Keppra , could you please let me

know.

Kindly Yours,

Simy

keppra

> >

> >

> > > KEPPRA...anyone know anything about this drug ( antiepileptic)

> > > what is the usual childrens dose? ( my son is 3) the pharmacy gave

> > > him 250mg!! working up to 2 pills a day which would be 500MG a

> > > DAY.... I looked it up on the internet that an adult dosage was a

> > > goal of working up to 500-1000mg a day and a child was MUCH less..

> > >

> > > I got the prescription the other day ( she called it in so I

> didnt

> > > see what she said for the mg to be) but they had it in my

> husbands

> > > name for some reason... all they did was put a new sticker with my

> > > sons name over my husbands name... I didnt give it to him

> because I

> > > wanted to check the dose to make sure they didnt make a mistake

> and

> > > make it for a 240lb 6'1 " MAN and not a 37 lb 3 yr old.

> > >

> > > I called the doctors office but they havent called back... Thanks

> > > goodness I didnt give it to my son yet.. because I am pretty sure

> > > this cant be right...

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Simy, After being introduced to the wonderful world of bipolar before we had

even seen the whole country of autism, I have learned that sometimes

combinations of meds are necessary when just one will not do. So far,

and are on just one med for their bipolar but is not

stabilized yet and he is on his second med change for a mood stabilizer.

From remarks on the bipolar list, (and we have two doctors on there with

bipolar children, plus Aspergers) I have heard that going through puberty is

a whole new game with meds needed to be adjusted or changed. and

both have to take a med for their bipolar and another for their ADHD.

They cannot function with just one and in fact without their mood

stabilizers the Adderall would be a disaster. Your spelling of Risperdal is

just fine. Evan's doctor keeps saying that the dose he is on is small and

that he does not want to increase it for behaviors because he wants to keep

that option for if he gets violent as he gets older. Risperdal does bring

some side effects that are not desirable in some circumstances like, weight

gain. Look out for the hungries. On rare occasions, there can be loss of

bladder control. There is also a drooling but there is another med to stop

that, lol. What you have to do, is balance the need of your child with his

behaviors. I understand that the two with Bipolar/ADHD have chemical

imbalances and I believe the same is true for Evan. But I also know that it

took a few years for me to come to terms with this. I hated taking the

Effexor and Buspar myself and tried to go without them. Found out that it

was best for my family IF I also took my meds and not just made sure the

others did.

Betty Ann-61 yo, possibly Bipolar but undx'd, Effexor, Buspar

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Singular

Evan - 9 yo nonverbal autism on 3 mg Risperdal, 5 mg Abilify stated

3/11/03

- 6 yo- Bipolar/ADHD/PTSD on Tegretol, Adderall, Clonidine .1 mg,

mother to -32 yo, their mom - Bipolar/ADHD on Topamax, Singular

wife to Bob - 71 yo, Effexor and too more many meds to remember

{I've reached the age where the happy hour is a nap.}

----- Original Message -----

From: " Simy Illouze " <sillouz@...>

> Hi

>

> My son is 13 yrs old. As I said on my previous email , he has been on

Keppra

> since the year 2002 and no he is not on any other medications.

>

> As he is going thru puberty, we are seeing more non compliance and he gets

> furious at times when we refuse things ...to the point that he will slap

his

> head in anger.

>

> I was also told about Risperdal (spelling is not good, I am sure) but I

feel

> that one drug is enough.

>

> Simy

> Canada

[Guest guest]

Hi folks - I am relatively new to this group. I have a question regarding the

use of Keppra.

I am 51 years old - male. I have had two seizures - one in Nov 2006 and one in

April 2007. The doctors put me on 500mg Keppra twice a day starting April 2007

(after my second seizure).

After my second incident, I switched jobs, started to sleep 7-8 hours / night (I

was doing a lot less than that), dramatically reduced travel (I was traveling

50-60% of my time, all overseas, constantly dealing with jet lag, fatigue) and

so on. I also exercise regularly and my weight is exactly where various

guidelines say it should be. I feel *great*.

Here's the question: in general, I seem to tolerate Keppra well, with no

significant side effects (as far as I can tell!). However, I don't like taking

medications in general because most of them have long term side effects. I

asked my neurologist if I could start reducing the dosage of Keppra and he

seemed very reluctant. The impression I got was that he is afraid of the

liability, more than any medical reason.

What's do you folks think? Given my situation, would you recommend reduction of

Keppra dosage (Note: I am not trying to stop taking it altogether, but just

reducing it - to say 250mg twice a day or something like that)?? Any experience

either way on this?

Thanks!

NM

[Guest guest]

Hi,

I recently switched from Trileptal to Keppra earlier this year.My new

neurologist suggested it to me because the Trileptal was giving me side

effectsThe dosage I take is also 500mg 1 Tab twice a day.For a while I was

taking it twice a day and also noticed my seizures are a lot more spaced out

than before.I dropped it from twice a day to once a day at 500mg and it works

well.I'd ask your dr for a trial of lowering it and if it works good otherwise

go back to the original dosage (500mg of Keppra twice a day)-E

________________________________

From: lacompengr <nimishmehta@...>

Sent: Monday, September 28, 2009 7:07:01 AM

Subject: [ ] Keppra

Hi folks - I am relatively new to this group. I have a question regarding the

use of Keppra.

I am 51 years old - male. I have had two seizures - one in Nov 2006 and one in

April 2007. The doctors put me on 500mg Keppra twice a day starting April 2007

(after my second seizure).

After my second incident, I switched jobs, started to sleep 7-8 hours / night (I

was doing a lot less than that), dramatically reduced travel (I was traveling

50-60% of my time, all overseas, constantly dealing with jet lag, fatigue) and

so on. I also exercise regularly and my weight is exactly where various

guidelines say it should be. I feel *great*.

Here's the question: in general, I seem to tolerate Keppra well, with no

significant side effects (as far as I can tell!). However, I don't like taking

medications in general because most of them have long term side effects. I

asked my neurologist if I could start reducing the dosage of Keppra and he

seemed very reluctant. The impression I got was that he is afraid of the

liability, more than any medical reason.

What's do you folks think? Given my situation, would you recommend reduction of

Keppra dosage (Note: I am not trying to stop taking it altogether, but just

reducing it - to say 250mg twice a day or something like that)?? Any experience

either way on this?

Thanks!

NM

[Guest guest]

Hi NM.

I am on Keppra also. I was initially taking 500 mg twice a day and then reduced

it to 250 mg twice a day with no adverse affects. My last seizure was in October

of 2006.

I also take a vitamin B complex supplement which seems to help me as well.

Just wanted to let you know that I have done what you are asking and am okay.

I wish you luck!

Jenna

" Becontent with what you have; rejoice in the way things are. When yourealize

there is nothing lacking, the whole world belongs to you. "

-Lao Tzu

" Each indecision brings with it it's own delays...What you can do or think you

can do, begin it.

For boldness has Magic, Power, and Genius in it. "

- Johann Wolfgang von Goethe

________________________________

From: lacompengr <nimishmehta@...>

Sent: Monday, September 28, 2009 11:07:01 AM

Subject: [ ] Keppra

Hi folks - I am relatively new to this group. I have a question regarding the

use of Keppra.

I am 51 years old - male. I have had two seizures - one in Nov 2006 and one in

April 2007. The doctors put me on 500mg Keppra twice a day starting April 2007

(after my second seizure).

After my second incident, I switched jobs, started to sleep 7-8 hours / night (I

was doing a lot less than that), dramatically reduced travel (I was traveling

50-60% of my time, all overseas, constantly dealing with jet lag, fatigue) and

so on. I also exercise regularly and my weight is exactly where various

guidelines say it should be. I feel *great*.

Here's the question: in general, I seem to tolerate Keppra well, with no

significant side effects (as far as I can tell!). However, I don't like taking

medications in general because most of them have long term side effects. I

asked my neurologist if I could start reducing the dosage of Keppra and he

seemed very reluctant. The impression I got was that he is afraid of the

liability, more than any medical reason.

What's do you folks think? Given my situation, would you recommend reduction of

Keppra dosage (Note: I am not trying to stop taking it altogether, but just

reducing it - to say 250mg twice a day or something like that)?? Any experience

either way on this?

Thanks!

NM

------------------------------------