I can't take it anymore!!!!! Help!!

[Guest guest]

I have 2 boys with autism, the oldest is 9. He has uncontrollable seizures and

has had this

condition since he was 2! We are afraid that we may lose him if we don't gain

control over

these crippling seizures! He has tried 10 anticonvulsants that don't work. He

is currently

taking Ativan and has for the last 2 years, and he is still having

seizures...but Ativan is

such an addictive drug that if we even try to wean him off of it, he goes into

seizures.

So...our options are Neurofeedback? Ketogenic diet? What should we do? Does

anyone

have any ideas? He is so beautiful...this is just devastating! How can we go

on like this?

Then everyone who knows us has to call and say, " did you hear what happened to

Travolta's son? " Yes, we heard and we have been living this nightmare for the

last 7

years!!

We would like to get him involved with the MIND Institute, but they have refused

our

inquiry because they are booked with kids, supposedly.

Does anyone have a contact for a Neurofeedback specialist in the central

California region

around Sacramento or Stockton area? Will this even work? More $$ down the

drain?

We bought a $25,000 hyperbaric oxygen chamber, thinking that would help. I have

done

about 120 dives and still his seizures are prevalent.

Any ideas would help!

Thank you! Rhonda