Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 Is anyone else taking Depakote??? I went to see a doctor who treats CFS and he prescribed this medication. I've been on it for about two weeks and notice a big improvement in symptoms. The doctor told me that other CFS patients have also had success with this drug. _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 1999 Report Share Posted June 30, 1999 That is very interesting I tried taking Depakote once and it just knocked me out I only tried it for a couple of days. I am now taking Neurontin which helps a little in the area of cognitive functioning. Both of these drug are anti seizure medication and they are both use as mood stabilizers in bipolar illness ( and in case were there are mood swing but not of the bipolar type of magnitude). I would be interested in your history and what symptoms that Depakote is helping you with. LOL Steve > Re: Depakote > > From: <safreed@...> > > Is anyone else taking Depakote??? I went to see a > doctor who treats CFS and he prescribed this > medication. I've been on it for about two weeks and > notice a big improvement in symptoms. The doctor told > me that other CFS patients have also had success with > this drug. > > > > > > > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 In a message dated 6/30/99 10:51:48 AM Eastern Daylight Time, safreed@... writes: > other CFS patients have also had success with > this drug. > I tried Depokote and noticed i wanted to pull all the shades and blinds up to brighten the home, just naturally never gave it a second thought, then realized it was the Depakote,My GP gave it to me for migraines, He is a non beleiver or doesn't understand CFS, 3 times i tried it but interfered with my menses. That was one of the side effects to watch for. I had to stop the script, but I also know a young man in Indiana, that his Mother says Depakote has really help him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 1999 Report Share Posted July 10, 1999 : My son is on Depakote for schizophrenia and bipolar disease. I don't know anyone with CFIDS taking it. This is interesting in that a lot I have been reading lately ties the two together. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 In a message dated 3/4/00 6:12:47 PM Mountain Standard Time, noelle136@... writes: << - had a terrible reaction to Depakote. It was digesting into ammonia in his blood. >> My daughter Leigh was put on Depakote at age 6, this was our first attempt at medications to help her. She was on it two weeks over Christmas break and when she went back to school she became maniacal, trying to stab another kid with scissors, totally out of control, attacking other kids with chairs, pencils, kicking, etc. I took her off the Depakote after 5 weeks on it, and the psychiatrist took me to task for interfering since he felt we didn't give it enough of a trial. I said, well, it's doing the opposite of what we want, and I will not have her on this drug another day!! For some kids it is absolutely the right drug, but for others, like mine, it is the wrong drug. Jay W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2000 Report Share Posted August 19, 2000 Margaret, Brook is on Depakote presently and was on it from the age of 17 months until he was almost 7 yrs for seizures. He started having seizures again last May and he is back on It. We really felt that it made no difference whatsoever to his behavior unfortunately. When we stopped the Depakote the ONLY thing we noticed was that he slimmed down quite a bit. Depakote is known for the weight gain side effect. We are presently undergoing a very long and arduous process of switching him over to a fairly new seizure med called Lamictal. We are going to take 3 1/2 months to get him up to full dose and wean him off the Depakote. I specifically asked his pediatric neurologist about the kinds of benefits for behavior, etc., of using Depakote and she said that she hadn't found it to be helpful in that way. I also asked her if it was related to the dose and she said it wasn't. I know that we had a lot of severe behavior problems with Brook in the past and he was on Depakote at the time and it really did nothing for that. The reason we are switching from Depakote to Lamictal is because of side effects. Not just weight gain, but also liver toxicity, suppressed immune systems, the need to supplement with Carnitor and vitamins, blood tests to check the liver and immune system. If we can give up all of that and still control his seizures that would be great for us. Marisa Mom to MIles, Brook and Gennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 << We really felt that it made no difference whatsoever to his behavior unfortunately. When we stopped the Depakote the >> Hi Everyone...........Marissa.......thanks for the info. All these drugs seem to have one side effect or another. Gareth's psych. wants me to think about Depakote, but I want to keep him on the combo he's on now as long as it's still working. The Depa. supposedly will eliminate the Risp., Paxil, and Ritalin............but, the chance of liver problems is higher and he will need routine blood work. Gareth does not do well with needles!!! This Paxil is starting to wane also (he's been on it a month). The kid will not stop eating for one thing........and he doesn't need more weight!!! Eight pounds up already.........it's as bad as the Risperdal was initially. Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Margaret, I've been thinking for awhile that I might like to try Brook on Risperdal to see if there are any positive develpmental or behavior changes but I too have been wary of the weight gain for one thing. Brook weighs 71 lbs and is about 52 1/2 inches tall at 101/2 yrs. As a matter of fact there was a time when we thought either the Depakote or the Carnitor was making him hyper. This side effect seemed to go away with time. I also know another mom with a child with CP and autistic behaviors who is on Depakote for seizures and she felt like he became quite agitated on Depakote at least initially. I would really be interested to see some really definite data that Depakote can help kids like Brook with behavior, etc. First we are going to try to get his new seizure med up to full dose before we consider adding different meds. Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Mark takes Risperdal, depakote, and clonidine. He eats like a horse, but is skinny as all get out. He is 48 " and 50 lbs. I also want to get him off of the depakote, will check with new doctor he will be seeing. Jeannie Mom to Mark and ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Jeanne, I have also heard that Depakote can take away your appetite. But I guess this isn't the case with Mark. Or maybe it's the other drugs like the clonidine that is responsible for that. Why is he on risp and Dep? Do you think it's helping him? What dose of Dep does he take? Thanks Marisa Mom to Miles 13, Brook 10 and Gennie 3 on Monday Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 In a message dated 08/20/2000 3:56:36 PM Central Daylight Time, poggim@... writes: << I have also heard that Depakote can take away your appetite. >> This did not happen when was on Depakote - for over 2 years. In fact, her appetite increased as did her weight, significantly. Also, over time we had to keep increasing the dose for it to be effective - just as we're doing now with Risperdal. It seems to be 's pattern - med works great initially, then several weeks or months later effectiveness steadily decreases. We were so hopeful with Risperdal initially because we had our sweet, happy little girl back for about three months. Her personality and behavior were much more like she was before she began showing signs of autism. Now she's pulling hair, hitting, kicking, throwing and yelling again and back to her extremely short attention span and wakeful patterns during the night. This roller coaster just breaks our hearts. I'm feeling low this morning - guess I'm just over-tired and needing to vent a little. I know you guys understand. Besides my husband, you guys are the only ones who do. Thanks for listening, Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 Maureen, I'm sitting here crying, reading your post. We haven't experienced the " roller coaster " with Seth. It must be horrible to live that. I can't imagine him doing well, then fall back again. I'm sorry. (((((hugs))))) Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 In a message dated 8/21/00 6:31:09 AM Pacific Daylight Time, MRASMUS@... writes: << Thanks for listening, >> {{{Maureen}}} That is what we are here for! I was telling my just the other day what a wonderful bunch of new " friends " I met in here! We all share the same experiences with our children and we all are wonderful listeners! Hope you have a good week, or maybe a good Monday to start! Jeannie Mom to Mark and ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 In a message dated 8/21/00 9:08:11 AM Central Daylight Time, smilinggail@... writes: << I'm sitting here crying, reading your post. >> Sorry, Gail. I didn't mean to sound too pathetic. I just got up feeling discouraged and weepy this morning. Thanks for the hugs and encouragement. This group means so much to me. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 In a message dated 8/21/00 10:09:39 AM Central Daylight Time, JVal987@... writes: << Hope you have a good week >> Thanks, Jeannie! Things will get better later this week. My kids go back to school this Thursday, which will be so good for who needs the constant structure and me who needs a break. It's always stressful at the beginning of the school year because of all the changes (new teacher, classroom, aides and friends), but she does gradually adjust. I get nervous for her at the beginning of the school year, but remind myself that our school staff takes good care of her and we are so lucky to be there. I'm sure many of us are feeling this way with school about to start. Thanks, and take care, Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 Don't want to sound naive, but what is " carnitore " ? What's it for? Re: Re: Depakote > Margaret, > I've been thinking for awhile that I might like to try Brook on > Risperdal to see if there are any positive develpmental or behavior changes > but I too have been wary of the weight gain for one thing. Brook weighs 71 > lbs and is about 52 1/2 inches tall at 101/2 yrs. As a matter of fact there > was a time when we thought either the Depakote or the Carnitor was making him > hyper. This side effect seemed to go away with time. I also know another > mom with a child with CP and autistic behaviors who is on Depakote for > seizures and she felt like he became quite agitated on Depakote at least > initially. > I would really be interested to see some really definite data that > Depakote can help kids like Brook with behavior, etc. First we are going to > try to get his new seizure med up to full dose before we consider adding > different meds. > Marisa > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 In a message dated 4/4/01 10:47:55 AM Pacific Daylight Time, writes: > Perhaps someone else on the list could help, there > 's on Depakote for a little less than two weeks now, but he's on the time release coated tablet. What was the question? LOL..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 In a message dated 4/4/01 1:37:41 PM Pacific Daylight Time, writes: > . He has been on really high doses of > This is interesting....'s taking Trileptal (derivitive of Tegretol) and DepaKOTE.......any difference?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 In a message dated 4/4/01 1:37:41 PM Pacific Daylight Time, writes: > . He has been on really high doses of > This is interesting....'s taking Trileptal (derivitive of Tegretol) and DepaKOTE.......any difference?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 In a message dated 6/10/01 8:29:28 PM Pacific Daylight Time, writes: > He better give us some thing to replace the > , may I ask why you're taking JJ off the Depakote? Health reasons? Side effects? is on 1,000 mg., 500 mg. twice a day, along with Tripleptal....so far, so good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 In a message dated 6/10/01 8:29:28 PM Pacific Daylight Time, writes: > He better give us some thing to replace the > , may I ask why you're taking JJ off the Depakote? Health reasons? Side effects? is on 1,000 mg., 500 mg. twice a day, along with Tripleptal....so far, so good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 , JJ's blood test for pancreatic function(amyles{sp?} ) was WAY out opf wack. His reading was 243---max should be about 130. If it is permanent damage we are in trouble. Can cause him to be insulant depandant, and sone other things I understand. & Garry, parents of (10 ds), (9 ds), JJ (7 ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (4 ds). All adopted. ---------- >From: Ltb3105@... > >Subject: Re: Depakote >Date: Mon, Jun 11, 2001, 10:53 AM > >In a message dated 6/10/01 8:29:28 PM Pacific Daylight Time, > writes: > > >> He better give us some thing to replace the >> > >, may I ask why you're taking JJ off the Depakote? Health reasons? >Side effects? is on 1,000 mg., 500 mg. twice a day, along with >Tripleptal....so far, so good. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2002 Report Share Posted January 10, 2002 In a message dated 1/10/02 4:52:42 AM Pacific Standard Time, writes: > . Now we > are on Risperadal, Tennex and Depacote. I don't believe the Depacote does > anything and am thinking of taking him off of it. Judy, Depakote did nothing for , except keep me scared that the whites of his eyes would turn yellow......it affects the liver! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Thanks for responding. Will definitely be taking him off of it. I know about the liver problems and never saw anything positive while on it. Just kept him on it????? Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Good luck!! > my neurologist, kathryn swoboda enrolled me in the drug trial recently. i > have to take depakote 2 times a day via gtube, and have my blood checked every > so often--to make sure there are no side effects. she also does a muscle test > to see how many motor neurons respond which indicates the amount of strength > you have in numbers. so far my numbers have remained stable in the last year. > what the depakote may do is increase the numbers---or keep them stable for a > long time instead of decreasing--or do nothing. no one knows. it will take > atleast 6 months to see a difference--if there is one. ill keep you all updated > in how it goes. i think it is interesting! > - > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.