Unsure about VNS for my son

[Guest guest]

Hello,

I could use some input from any one with VNS experience. I know it's not a

cure.

My 7 yr old son has drop seizures, generalized grand mal and was diagnosed

with complex partial seizures. We have failed 6 meds. We are using Depakote-

up to 800 mg a day. The Neurologists wants us to keep titrating up. He is also

on Lamictal, Klonipin and the Ketogenic diet. He has had 12 seizures this past

week and missed alot of school-he is now developmentally delayed.

I am concerned about how he will sleep and if it will bother him in his chest.

He is only 43lbs. I also worrry that if it doesn't work, he will always have a

wire in him he doesn't need. It seems like we need to do this. Please share

your experience with us.

cah- 's Mom

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