Re: alternative cure?

[Guest guest]

You are far from alone in the search for seizure control! I tried for 20+

years to get control of my partial and grand mal seizures without any luck

at all. In fact, no matter which drug or drug combination I was on, my

seizures became more frequent and more violent as time went on. I finally

gave up on the drug approach and, although my neuro urged me to have the

surgery, I didn't want to do that. Instead, I started to take vitamins and

supplements - primarily B complex, CoQ10, taurine, magnesium and flaxseed

oil - and the results have been astonishing! I have not had a single

partial since then. In the beginning, I went seven months without a grand

mal - then it was almost two years before the next one - and tomorrow, it

will be three solid years since the last one. Giving up on the drugs was

the best thing that I ever did! Alot of people here with really good ideas.

Keep in mind though that, as highly individualized as epilepsy is, what

works for one does not work for all and it really is a search to find what

works for oneself. Good luck!!

>From: " anasTasia " <pellegrina8@...>

>Reply-

>

>Subject: [ ] " alternative " cure?

>Date: Mon, 12 Feb 2007 02:57:23 -0000

>

>I am talking with my doctor (naturo/homeopath as well as

>acupuncturist) about weaning me off Tegretol while introducing other

>remedies. I'm quite determined to get off Tegretol, which I've taken

>for 13 years and have suffered memory problems from it, I'm quite

>sure. Not to mention what it could do to my liver. I've never achieved

>100% seizure control even with pharmaceuticals, so I'm not even

>expecting a full cure from an " alternative " approach, but I'm

>wondering about others' experience with various therapies? Biofeedback

>isn't on the table for me, but rather homeopathy, acupuncture, and a

>remedy that my brilliant doctor made himself that has already stopped

>an advanced warning aura that I get (metallic taste). He's already

>helped me improve my health greatly in other areas (such as allergies

>and an orthopedic condition) through natural medicine and I trust him.

>I have complex partial and tonic-clonic seizures, the latter mostly

>nocturnal or secondary generalized from complex partial. Though I have

>a driver's license, I don't have a car and so don't depend on being

>able to drive. I'm at a good place to make a change in my approach to

>seizure control and would be encouraged by other's success stories.

>I'd also like to hear from any who have tried other methods and

>failed. Eyes wide open.

>Very glad to find this list.

>~

>

_________________________________________________________________

Don’t miss your chance to WIN 10 hours of private jet travel from Microsoft

Office Live http://clk.atdmt.com/MRT/go/mcrssaub0540002499mrt/direct/01/

[Guest guest]

Hi ,

Just wanted to send you an article about different vit. supplements and diet

changes that could help control seizures or even eliminate them. We are trying

several of these things w/ my 4 y/o daughter w/ great sucess. We have been able

to wean nearly all meds and she is down from hundreds of " head-drops " to 10-20

(if any). She too has compex partial seizures and we have seen great control w/

these also. Good luck!

Miranda

http://www.healthsentinel.com/org_news.php?id=058 & title=Stopping+epileptic+seizu\

res+using+omega-3%2C+vitamin+E%2C+diet%2C+and+more & event=org_news_print_list_ite\

m

anasTasia <pellegrina8@...> wrote: I am

talking with my doctor (naturo/homeopath as well as

acupuncturist) about weaning me off Tegretol while introducing other

remedies. I'm quite determined to get off Tegretol, which I've taken

for 13 years and have suffered memory problems from it, I'm quite

sure. Not to mention what it could do to my liver. I've never achieved

100% seizure control even with pharmaceuticals, so I'm not even

expecting a full cure from an " alternative " approach, but I'm

wondering about others' experience with various therapies? Biofeedback

isn't on the table for me, but rather homeopathy, acupuncture, and a

remedy that my brilliant doctor made himself that has already stopped

an advanced warning aura that I get (metallic taste). He's already

helped me improve my health greatly in other areas (such as allergies

and an orthopedic condition) through natural medicine and I trust him.

I have complex partial and tonic-clonic seizures, the latter mostly

nocturnal or secondary generalized from complex partial. Though I have

a driver's license, I don't have a car and so don't depend on being

able to drive. I'm at a good place to make a change in my approach to

seizure control and would be encouraged by other's success stories.

I'd also like to hear from any who have tried other methods and

failed. Eyes wide open.

Very glad to find this list.

~

---------------------------------

Don't pick lemons.

See all the new 2007 cars at Autos.

[Guest guest]

We have had GREAT success in getting my son's sz's under control with the help

of a naturopath. Howver, he's still on 3 meds: felbatol, clorazepate and

valprioc acid. We recently tried weaning the clorazepate and didn't like the

way he was acting after 1 week. I chickened out and added the dosage back in.

We've only had sz control for 4 months. He went a year and a half wtih

absolutely no control whatsoever.

We didn't get immediate control upon starting the homeopathics but after 3 mos

of doing them, adding in new ones weekly (you have to start slowly or you'll

stir up a bunch of unwatned side effects by detoxing your body too quickly), we

were seeing little improvements here and there and then BAM we literally got

control overnight.

's dx is complex partials that secondary generalize. He is 5 1/2. 3

1/2 when he was dx'd. Cognitively he is delayed. He received ot and speech

therapy at school (public). We will most likely pull him out and put him in a

private school that is specifically for children with special needs. The

student/teacher ratio is 2:1 and the kids in the program are just thriving,

compared to the public school just doing the minimum the law requires.

sorry, I've gotten way off topic. Just wanted to let you know that

homeopathics worked great for us - but they don't for everyone. You have to be

patient and can't expect immediate results. And you have to work iwth a dr who

is very knowledgable and experienced.

Best of luck,

nancy

[Guest guest]

thanks for sharing. my son has had all kinds of seiuzres. technically his dx

is idiopathic seizures/lennox gastau (Sp?) and we are taking clorazepate,

felbatol and phenobarb. (trying desperately to get rid of the last two!) he

also takes risperdal for behavior-really crazy mood swings from other

meds/seizure combo. he's also on keto. diet. we are thinking it's time for

something else, but we want to look for a good alt. med. doc. here in St. Louis.

Thanks for your post. It's amazing to know so many people who feel like i

do-not believeing that my son is destined for disability forever!

thanks,

jenny

[ ] Re: " alternative " cure?

We have had GREAT success in getting my son's sz's under control

with the help of a naturopath. Howver, he's still on 3 meds: felbatol,

clorazepate and valprioc acid. We recently tried weaning the clorazepate and

didn't like the way he was acting after 1 week. I chickened out and added the

dosage back in. We've only had sz control for 4 months. He went a year and a

half wtih absolutely no control whatsoever.

We didn't get immediate control upon starting the homeopathics but after 3 mos

of doing them, adding in new ones weekly (you have to start slowly or you'll

stir up a bunch of unwatned side effects by detoxing your body too quickly), we

were seeing little improvements here and there and then BAM we literally got

control overnight.

's dx is complex partials that secondary generalize. He is 5 1/2. 3

1/2 when he was dx'd. Cognitively he is delayed. He received ot and speech

therapy at school (public). We will most likely pull him out and put him in a

private school that is specifically for children with special needs. The

student/teacher ratio is 2:1 and the kids in the program are just thriving,

compared to the public school just doing the minimum the law requires.

sorry, I've gotten way off topic. Just wanted to let you know that

homeopathics worked great for us - but they don't for everyone. You have to be

patient and can't expect immediate results. And you have to work iwth a dr who

is very knowledgable and experienced.

Best of luck,

nancy

[Guest guest]

,

I love reading stories like yours. It gives me so much hope. My daughter had

the same dx as your son, but they recently changed it to onset generalized

epilepsy. We too have started her on a number of different herbs including

inkberry, virginia snake root, slippery elm, brain and nerve coctail, feverfew,

research formula and several others. What were some of the herbs your son was

on? She also takes a number of different vit. supp. including e, b-complex, and

omega. She has been on them for 2 months and we have seen huge improvements and

are hoping for the same results as you. A friend of mine has a daughter like

mine and she was cured w/ similar herbs by the same doctor. She also said it

took 3 months and it was literally overnight. He is an Amish doctor. He is a

really good man and truly seems to want to cure her. Unlike the doctors who just

play the guessing game and give me horrible a prognosis. The Amish doctor is

very confident in his treatment. He also only

works on donations (that's a big help). I also wanted to say I understand what

you are going through w/ his school. Hailey's teachers don't know what to do w/

her and when she first started last year they tried to send her home early all

the time saying she was too " disruptive " . I put a stop to that immediately by

calling the board on them. Well that stopped and I think now that they

understand her and us a little better (I think they just thought we just let her

run a muck and had no control over her (so not the case)) they are more willing

to work w/ her. We too have thought about private school, but they are soooo

expensive. Maybe in the future. Anyway, hope continues to do well. I just

pray we get the same results.

Miranda

The Inmans <theinmans@...> wrote:

thanks for sharing. my son has had all kinds of seiuzres. technically his dx

is idiopathic seizures/lennox gastau (Sp?) and we are taking clorazepate,

felbatol and phenobarb. (trying desperately to get rid of the last two!) he

also takes risperdal for behavior-really crazy mood swings from other

meds/seizure combo. he's also on keto. diet. we are thinking it's time for

something else, but we want to look for a good alt. med. doc. here in St. Louis.

Thanks for your post. It's amazing to know so many people who feel like i

do-not believeing that my son is destined for disability forever!

thanks,

jenny

[ ] Re: " alternative " cure?

We have had GREAT success in getting my son's sz's under control with the help

of a naturopath. Howver, he's still on 3 meds: felbatol, clorazepate and

valprioc acid. We recently tried weaning the clorazepate and didn't like the

way he was acting after 1 week. I chickened out and added the dosage back in.

We've only had sz control for 4 months. He went a year and a half wtih

absolutely no control whatsoever.

We didn't get immediate control upon starting the homeopathics but after 3 mos

of doing them, adding in new ones weekly (you have to start slowly or you'll

stir up a bunch of unwatned side effects by detoxing your body too quickly), we

were seeing little improvements here and there and then BAM we literally got

control overnight.

's dx is complex partials that secondary generalize. He is 5 1/2. 3 1/2

when he was dx'd. Cognitively he is delayed. He received ot and speech therapy

at school (public). We will most likely pull him out and put him in a private

school that is specifically for children with special needs. The

student/teacher ratio is 2:1 and the kids in the program are just thriving,

compared to the public school just doing the minimum the law requires.

sorry, I've gotten way off topic. Just wanted to let you know that

homeopathics worked great for us - but they don't for everyone. You have to be

patient and can't expect immediate results. And you have to work iwth a dr who

is very knowledgable and experienced.

Best of luck,

nancy

[Guest guest]

Please read about Urine Therapy there's books about it! Look it up on the

internet and read about it because it's made my seizures decrease inleast 70%

Also look up foods for healing Epilepsy! Those foods are the nutrients people

like you and me need in order to heal natually! Like foods with vitamin E and

foods with Manganese! Plus a raw food diet! Raw foods have alot more nutrients

in them! Also alot of good fats like nuts, avocados, Coconut/coconut oil,

flaxseed oil & etc. I wish you the best!

-Melinda

anasTasia <pellegrina8@...> wrote:

I am talking with my doctor (naturo/homeopath as well as

acupuncturist) about weaning me off Tegretol while introducing other

remedies. I'm quite determined to get off Tegretol, which I've taken

for 13 years and have suffered memory problems from it, I'm quite

sure. Not to mention what it could do to my liver. I've never achieved

100% seizure control even with pharmaceuticals, so I'm not even

expecting a full cure from an " alternative " approach, but I'm

wondering about others' experience with various therapies? Biofeedback

isn't on the table for me, but rather homeopathy, acupuncture, and a

remedy that my brilliant doctor made himself that has already stopped

an advanced warning aura that I get (metallic taste). He's already

helped me improve my health greatly in other areas (such as allergies

and an orthopedic condition) through natural medicine and I trust him.

I have complex partial and tonic-clonic seizures, the latter mostly

nocturnal or secondary generalized from complex partial. Though I have

a driver's license, I don't have a car and so don't depend on being

able to drive. I'm at a good place to make a change in my approach to

seizure control and would be encouraged by other's success stories.

I'd also like to hear from any who have tried other methods and

failed. Eyes wide open.

Very glad to find this list.

~

---------------------------------

Any questions? Get answers on any topic at Answers. Try it now.

[Guest guest]

It's really good to hear how you are succeeding with seizure

control. I was off meds for five years before I got them to stop

[1998]. Unfortunately, I went through the surgery before I wised

up. I'm glad you didn't go through that.

Zoe

>

> You are far from alone in the search for seizure control! I tried

for 20+

> years to get control of my partial and grand mal seizures without

any luck

> at all. In fact, no matter which drug or drug combination I was

on, my

> seizures became more frequent and more violent as time went on. I

finally

> gave up on the drug approach and, although my neuro urged me to

have the

> surgery, I didn't want to do that. Instead, I started to take

vitamins and

> supplements - primarily B complex, CoQ10, taurine, magnesium and

flaxseed

> oil - and the results have been astonishing! I have not had a

single

> partial since then. In the beginning, I went seven months without

a grand

> mal - then it was almost two years before the next one - and

tomorrow, it

> will be three solid years since the last one. Giving up on the

drugs was

> the best thing that I ever did! Alot of people here with really

good ideas.

> Keep in mind though that, as highly individualized as epilepsy

is, what

> works for one does not work for all and it really is a search to

find what

> works for oneself. Good luck!!

>

> >From: " anasTasia " <pellegrina8@...>

> >Reply-

> >

> >Subject: [ ] " alternative " cure?

> >Date: Mon, 12 Feb 2007 02:57:23 -0000

> >

> >I am talking with my doctor (naturo/homeopath as well as

> >acupuncturist) about weaning me off Tegretol while introducing

other

> >remedies. I'm quite determined to get off Tegretol, which I've

taken

> >for 13 years and have suffered memory problems from it, I'm quite

> >sure. Not to mention what it could do to my liver. I've never

achieved

> >100% seizure control even with pharmaceuticals, so I'm not even

> >expecting a full cure from an " alternative " approach, but I'm

> >wondering about others' experience with various therapies?

Biofeedback

> >isn't on the table for me, but rather homeopathy, acupuncture,

and a

> >remedy that my brilliant doctor made himself that has already

stopped

> >an advanced warning aura that I get (metallic taste). He's already

> >helped me improve my health greatly in other areas (such as

allergies

> >and an orthopedic condition) through natural medicine and I trust

him.

> >I have complex partial and tonic-clonic seizures, the latter

mostly

> >nocturnal or secondary generalized from complex partial. Though I

have

> >a driver's license, I don't have a car and so don't depend on

being

> >able to drive. I'm at a good place to make a change in my

approach to

> >seizure control and would be encouraged by other's success

stories.

> >I'd also like to hear from any who have tried other methods and

> >failed. Eyes wide open.

> >Very glad to find this list.

> >~

> >

>

> _________________________________________________________________

> Don't miss your chance to WIN 10 hours of private jet travel from

Microsoft

> Office Live

http://clk.atdmt.com/MRT/go/mcrssaub0540002499mrt/direct/01/

>

[Guest guest]

Hi Melinda-

Which books do you recommend for foods that heal epilepsy?

I tried ut and it healed me of bronquitis, and mononucleosis and other

infections.

Not epilepsythough. I am thinking about doing prana

Any info is appreciated

Melinda Pruitt <melindaxl@...> wrote:

Please read about Urine Therapy there's books about it! Look it up on the

internet and read about it because it's made my seizures decrease inleast 70%

Also look up foods for healing Epilepsy! Those foods are the nutrients people

like you and me need in order to heal natually! Like foods with vitamin E and

foods with Manganese! Plus a raw food diet! Raw foods have alot more nutrients

in them! Also alot of good fats like nuts, avocados, Coconut/coconut oil,

flaxseed oil & etc. I wish you the best!

-Melinda

anasTasia <pellegrina8@...> wrote:

I am talking with my doctor (naturo/homeopath as well as

acupuncturist) about weaning me off Tegretol while introducing other

remedies. I'm quite determined to get off Tegretol, which I've taken

for 13 years and have suffered memory problems from it, I'm quite

sure. Not to mention what it could do to my liver. I've never achieved

100% seizure control even with pharmaceuticals, so I'm not even

expecting a full cure from an " alternative " approach, but I'm

wondering about others' experience with various therapies? Biofeedback

isn't on the table for me, but rather homeopathy, acupuncture, and a

remedy that my brilliant doctor made himself that has already stopped

an advanced warning aura that I get (metallic taste). He's already

helped me improve my health greatly in other areas (such as allergies

and an orthopedic condition) through natural medicine and I trust him.

I have complex partial and tonic-clonic seizures, the latter mostly

nocturnal or secondary generalized from complex partial. Though I have

a driver's license, I don't have a car and so don't depend on being

able to drive. I'm at a good place to make a change in my approach to

seizure control and would be encouraged by other's success stories.

I'd also like to hear from any who have tried other methods and

failed. Eyes wide open.

Very glad to find this list.

~

---------------------------------

Any questions? Get answers on any topic at Answers. Try it now.