Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Marc, I think many of us subscribing to are doing so because we have not found a drug that works for us and are therefore searching for alternatives. I too have looked into GABA supplementation, but, as you probably know, the conventional thinking is that GABA does not cross the blood-brain barrier, so taking GABA orally will not reach the brain. However, in doing the research, I found a firm that used be called NeuroScience but that now seems to also be using the name NeuroRelief. The firm's new web site is: https://www.neurorelief.com/ This outfit provides testing for levels of various neurotransmitters and to also sells their own formulations of substances to correct imbalances. Two of their products--CeroLox and GabaMax-- supposedly contains substances that are known to inhibit neural over-excitation. See https://www.neurorelief.com/index.php?option=com_content & task=view & id=223 & Itemid\ =48 These formulations contain substances that are GABA precursors and potentiators, and which unlike GABA itself, can cross the blood-brain barrier. You cannot order CeroLox or GabaMax on your own; they only distribute the products through heath care practitioners. If you ask, NeuroScience/NeuroRelief will identify a person in your area that deals with them. I asked and was sent a list of health care providers. I was pleasantly surprised to see that in addition to naturopaths and chiropractors, there were MDs and DOs on this list. I was thinking of going to consult one of the MD providers, but I have not done so as yet. My son's epileptologist is very skeptical (no surprise !). But perhaps there is something to it. Mike " marcus1988001 " <marcus1988001@ya hoo.com> To Sent by: @yah cc oogroups.com Subject [ ] GABA Supplements 11/21/2006 10:38 PM Please respond to @yah oogroups.com I have done a considerable amount of research regarding GABA supplements over the past few months and have found enough literature about what it is and how it may or may not help those with epilepsy. But what I really want is to hear from real people who have real experiences with taking GABA supplements. My daughter Mira was diagnosed with Infantile Spasms over a year ago and has failed numerous AEDs. Best regards. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Marc, Good luck. If you do use a NeuroScience product, I would appreciate it if you could share your experiences. I'm still thinking about it. Most neurologists I find are not well-versed in alternative treatments and are usually hostile to the notion. The idea of having the alternative treatment overseen (or at least approved) by a physician is comforting to me, perhaps because it takes away some of the responsibility that if something goes wrong, it was " you " who did that to your child. I came across an edited textbook meant for neurologists and educated consumers about alternative treatments for seizures. It presents a balanced view. The editors are respected neurologists, and I discussed some things with my son's neurologist using it as a basis for the discussion. A link to Amazon's site for it is below: http://www.amazon.com/Complementary-Alternative-Therapies-Epilepsy-Devinsky/dp/1\ 888799897 In case you have not come across it, there was a discussion thread about GABA crossing the blood-brain barrier back in 1999 at the following link. http://www.bio.net/bionet/mm/neur-sci/1999-May/038331.html I read that the drug Gabapentin (Neurontin) was developed as an " artificial " GABA that could cross the blood-brain barrier. This was done by modifying the chemical structure of GABA only slightly (something about a fifth ring). However, while Gabapentin did turn out to be an AED, it must work through mechanisms other than GABA, because it reportedly does not bind to the GABA receptors. The idea of supplementing with substances that can cross the blood-brain barrier and that either a involved in forming GABA or that help sustain it makes theoretical sense. Mike Marc Bertolino <marcus1988001 @> To Roszkowski 11/29/2006 <roszkows@...> 11:09 PM cc Subject Re: [ ] GABA Supplements Mike. Thanks so much for the information. I had no idea that there are companies or research being done on this sort of thing. Most of what I had come across said basically the same thing - a lot of generalizations and lacking in concrete evidence, so to speak about the effects/affects of GABA on the brain and the potential it has for treating epilepsy. Mira's neuro didn't seem to be all that familiar with OTC GABA supplements, but we came to the conclusion that it was worth a try. Right now, she is just taking B6 and no medications. There is a concern about the potential interaction between GABA and AEDs, including Depakene. I will certainly look into the links. Thanks again. Best regards. Marc Bertolino Roszkowski <roszkows@...> wrote: Marc, I think many of us subscribing to are doing so because we have not found a drug that works for us and are therefore searching for alternatives. I too have looked into GABA supplementation, but, as you probably know, the conventional thinking is that GABA does not cross the blood-brain barrier, so taking GABA orally will not reach the brain. However, in doing the research, I found a firm that used be called NeuroScience but that now seems to also be using the name NeuroRelief. The firm's new web site is: https://www.neurorelief.com/ This outfit provides testing for levels of various neurotransmitters and to also sells their own formulations of substances to correct imbalances. Two of their products--CeroLox and GabaMax-- supposedly contains substances that are known to inhibit neural over-excitation. See https://www.neurorelief.com/index.php?option=com_content & task=view & id=223 & Itemid\ =48 These formulations contain substances that are GABA precursors and potentiators, and which unlike GABA itself, can cross the blood-brain barrier. You cannot order CeroLox or GabaMax on your own; they only distribute the products through heath care practitioners. If you ask, NeuroScience/NeuroRelief will identify a person in your area that deals with them. I asked and was sent a list of health care providers. I was pleasantly surprised to see that in addition to naturopaths and chiropractors, there were MDs and DOs on this list. I was thinking of going to consult one of the MD providers, but I have not done so as yet. My son's epileptologist is very skeptical (no surprise !). But perhaps there is something to it. Mike " marcus1988001 " hoo.com> To Sent by: @yah cc oogroups.com Subject [ ] GABA Supplements 11/21/2006 10:38 PM Please respond to @yah oogroups.com I have done a considerable amount of research regarding GABA supplements over the past few months and have found enough literature about what it is and how it may or may not help those with epilepsy. But what I really want is to hear from real people who have real experiences with taking GABA supplements. My daughter Mira was diagnosed with Infantile Spasms over a year ago and has failed numerous AEDs. Best regards. Marc Want to start your own business? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I believe Gaba supplements most certainly reach the brain! My autistic son (who is not epileptic) has been using Gaba for several months and it most certainly has enhanced his moods, speech, and cognition. If that doesn't mean it reaches the brain, then I don't know what does! My mother reported that on days where she feels like either a migraine or seizure could occur (she wakes up feeling weepy), the Gaba definitely helps with the weepy, over-emotional feeling. She may have a slight migraine later, but the seizure seems to have not reached the thresh hold of activation. Many on www.autismanswer.com use it to help balance glutamate excitotoxins (and also use grapseed extract & pycnogenol to do similar things). An excellent supplement for us! > > Marc, > > I think many of us subscribing to are doing so because we > have not found a drug that works for us and are therefore searching for > alternatives. > > I too have looked into GABA supplementation, but, as you probably know, the > conventional thinking is that GABA does not cross the blood-brain barrier, > so taking GABA orally will not reach the brain. > > However, in doing the research, I found a firm that used be called > NeuroScience but that now seems to also be using the name NeuroRelief. The > firm's new web site is: https://www.neurorelief.com/ > > This outfit provides testing for levels of various neurotransmitters and to > also sells their own formulations of substances to correct imbalances. Two > of their products--CeroLox and GabaMax-- supposedly contains substances > that are known to inhibit neural over-excitation. > See > https://www.neurorelief.com/index.php? option=com_content & task=view & id=223 & Itemid=48 > > These formulations contain substances that are GABA precursors and > potentiators, and which unlike GABA itself, can cross the blood- brain > barrier. > > > > > You cannot order CeroLox or GabaMax on your own; they only distribute the > products through heath care practitioners. If you ask, > NeuroScience/NeuroRelief will identify a person in your area that deals > with them. I asked and was sent a list of health care providers. I was > pleasantly surprised to see that in addition to naturopaths and > chiropractors, there were MDs and DOs on this list. > > > > I was thinking of going to consult one of the MD providers, but I have not > done so as yet. My son's epileptologist is very skeptical (no surprise !). > But perhaps there is something to it. > > Mike > > > > > > " marcus1988001 " > <marcus1988001@ya > hoo.com> To > Sent by: > @yah cc > oogroups.com > Subject > [ ] GABA Supplements > 11/21/2006 10:38 > PM > > > Please respond to > @yah > oogroups.com > > > > > > > I have done a considerable amount of research regarding GABA > supplements over the past few months and have found enough literature > about what it is and how it may or may not help those with epilepsy. > But what I really want is to hear from real people who have real > experiences with taking GABA supplements. > > My daughter Mira was diagnosed with Infantile Spasms over a year ago > and has failed numerous AEDs. > > Best regards. > > Marc > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Hi , I'm just repeating what is the conventional wisdom in the neurosciences about oral GABA crossing the blood-brain barrier. A discussion thread of this issue among the " professionals " can be found at the following link http://www.bio.net/bionet/mm/neur-sci/1999-May/038331.html The discussants seem to believe that some " leaks " through, but that it is mainly a placebo effect. But if it works for some people, then who cares if it's a placebo effect. As long as it stops the seizures and doesn't cause any harm, I'm for it. Mike " jensbeard " <jensbeard (DOT) com> To Sent by: @yah cc oogroups.com Subject [ ] Re: GABA 11/30/2006 02:13 Supplements PM Please respond to @yah oogroups.com I believe Gaba supplements most certainly reach the brain! My autistic son (who is not epileptic) has been using Gaba for several months and it most certainly has enhanced his moods, speech, and cognition. If that doesn't mean it reaches the brain, then I don't know what does! My mother reported that on days where she feels like either a migraine or seizure could occur (she wakes up feeling weepy), the Gaba definitely helps with the weepy, over-emotional feeling. She may have a slight migraine later, but the seizure seems to have not reached the thresh hold of activation. Many on www.autismanswer.com use it to help balance glutamate excitotoxins (and also use grapseed extract & pycnogenol to do similar things). An excellent supplement for us! > > Marc, > > I think many of us subscribing to are doing so because we > have not found a drug that works for us and are therefore searching for > alternatives. > > I too have looked into GABA supplementation, but, as you probably know, the > conventional thinking is that GABA does not cross the blood-brain barrier, > so taking GABA orally will not reach the brain. > > However, in doing the research, I found a firm that used be called > NeuroScience but that now seems to also be using the name NeuroRelief. The > firm's new web site is: https://www.neurorelief.com/ > > This outfit provides testing for levels of various neurotransmitters and to > also sells their own formulations of substances to correct imbalances. Two > of their products--CeroLox and GabaMax-- supposedly contains substances > that are known to inhibit neural over-excitation. > See > https://www.neurorelief.com/index.php? option=com_content & task=view & id=223 & Itemid=48 > > These formulations contain substances that are GABA precursors and > potentiators, and which unlike GABA itself, can cross the blood- brain > barrier. > > > > > You cannot order CeroLox or GabaMax on your own; they only distribute the > products through heath care practitioners. If you ask, > NeuroScience/NeuroRelief will identify a person in your area that deals > with them. I asked and was sent a list of health care providers. I was > pleasantly surprised to see that in addition to naturopaths and > chiropractors, there were MDs and DOs on this list. > > > > I was thinking of going to consult one of the MD providers, but I have not > done so as yet. My son's epileptologist is very skeptical (no surprise !). > But perhaps there is something to it. > > Mike > > > > > > " marcus1988001 " > <marcus1988001@ya > hoo.com> To > Sent by: > @yah cc > oogroups.com > Subject > [ ] GABA Supplements > 11/21/2006 10:38 > PM > > > Please respond to > @yah > oogroups.com > > > > > > > I have done a considerable amount of research regarding GABA > supplements over the past few months and have found enough literature > about what it is and how it may or may not help those with epilepsy. > But what I really want is to hear from real people who have real > experiences with taking GABA supplements. > > My daughter Mira was diagnosed with Infantile Spasms over a year ago > and has failed numerous AEDs. > > Best regards. > > Marc > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 and Marc, I have some experience with Neuroscience which is now Neurorelief. Actually they were two different companies before with similar services and products. We used the Urinary Neurotransmitter Profiles which yielded some interesting results and they dovetailed with the ION profile test by Metametrix.I did NOT check the validity of the Urinary Neurotransmitter Profiles test though I did look into the ION profile test. There is some concern for the accuracy of one of the ION profile panels. I believe it it the organix acid panel. Anyway,after the test Neuroscience recommended a series of products step by step. The first ones were Serene and Serene Plus. I believe that later on they would use GABAMax. My son took Serene and Serene Plus and they had no impact on the seizures. We then stopped. So, I cannot comment on GABAMax, CY Roszkowski <roszkows@...> wrote: Marc, I think many of us subscribing to are doing so because we have not found a drug that works for us and are therefore searching for alternatives. I too have looked into GABA supplementation, but, as you probably know, the conventional thinking is that GABA does not cross the blood-brain barrier, so taking GABA orally will not reach the brain. However, in doing the research, I found a firm that used be called NeuroScience but that now seems to also be using the name NeuroRelief. The firm's new web site is: https://www.neurorelief.com/ This outfit provides testing for levels of various neurotransmitters and to also sells their own formulations of substances to correct imbalances. Two of their products--CeroLox and GabaMax-- supposedly contains substances that are known to inhibit neural over-excitation. See https://www.neurorelief.com/index.php?option=com_content & task=view & id=223 & Itemid\ =48 These formulations contain substances that are GABA precursors and potentiators, and which unlike GABA itself, can cross the blood-brain barrier. You cannot order CeroLox or GabaMax on your own; they only distribute the products through heath care practitioners. If you ask, NeuroScience/NeuroRelief will identify a person in your area that deals with them. I asked and was sent a list of health care providers. I was pleasantly surprised to see that in addition to naturopaths and chiropractors, there were MDs and DOs on this list. I was thinking of going to consult one of the MD providers, but I have not done so as yet. My son's epileptologist is very skeptical (no surprise !). But perhaps there is something to it. Mike " marcus1988001 " <marcus1988001@ya hoo.com> To Sent by: @yah cc oogroups.com Subject [ ] GABA Supplements 11/21/2006 10:38 PM Please respond to @yah oogroups.com I have done a considerable amount of research regarding GABA supplements over the past few months and have found enough literature about what it is and how it may or may not help those with epilepsy. But what I really want is to hear from real people who have real experiences with taking GABA supplements. My daughter Mira was diagnosed with Infantile Spasms over a year ago and has failed numerous AEDs. Best regards. Marc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 My son has used several NeuroScience products: Calm PRT, Balance D, TravaCor Jr, EndoTrex spray, and Kavinace. We used them for about six months and have since stopped them. _____ From: [mailto: ] On Behalf Of C Fu Sent: Saturday, December 02, 2006 9:41 AM Subject: Re: [ ] GABA Supplements and Marc, I have some experience with Neuroscience which is now Neurorelief. Actually they were two different companies before with similar services and products. We used the Urinary Neurotransmitter Profiles which yielded some interesting results and they dovetailed with the ION profile test by Metametrix.I did NOT check the validity of the Urinary Neurotransmitter Profiles test though I did look into the ION profile test. There is some concern for the accuracy of one of the ION profile panels. I believe it it the organix acid panel. Anyway,after the test Neuroscience recommended a series of products step by step. The first ones were Serene and Serene Plus. I believe that later on they would use GABAMax. My son took Serene and Serene Plus and they had no impact on the seizures. We then stopped. So, I cannot comment on GABAMax, CY Roszkowski <roszkowslasalle (DOT) <mailto:roszkows%40lasalle.edu> edu> wrote: Marc, I think many of us subscribing to are doing so because we have not found a drug that works for us and are therefore searching for alternatives. I too have looked into GABA supplementation, but, as you probably know, the conventional thinking is that GABA does not cross the blood-brain barrier, so taking GABA orally will not reach the brain. However, in doing the research, I found a firm that used be called NeuroScience but that now seems to also be using the name NeuroRelief. The firm's new web site is: https://www. <https://www.neurorelief.com/> neurorelief.com/ This outfit provides testing for levels of various neurotransmitters and to also sells their own formulations of substances to correct imbalances. Two of their products--CeroLox and GabaMax-- supposedly contains substances that are known to inhibit neural over-excitation. See https://www. <https://www.neurorelief.com/index.php?option=com_content & task=view & id=223 & I temid=48> neurorelief.com/index.php?option=com_content & task=view & id=223 & Itemid=48 These formulations contain substances that are GABA precursors and potentiators, and which unlike GABA itself, can cross the blood-brain barrier. You cannot order CeroLox or GabaMax on your own; they only distribute the products through heath care practitioners. If you ask, NeuroScience/NeuroRelief will identify a person in your area that deals with them. I asked and was sent a list of health care providers. I was pleasantly surprised to see that in addition to naturopaths and chiropractors, there were MDs and DOs on this list. I was thinking of going to consult one of the MD providers, but I have not done so as yet. My son's epileptologist is very skeptical (no surprise !). But perhaps there is something to it. Mike " marcus1988001 " <marcus1988001@ya hoo.com> To Sent by: @ <mailto: %40> @yah cc oogroups.com Subject [ ] GABA Supplements 11/21/2006 10:38 PM Please respond to @yah oogroups.com I have done a considerable amount of research regarding GABA supplements over the past few months and have found enough literature about what it is and how it may or may not help those with epilepsy. But what I really want is to hear from real people who have real experiences with taking GABA supplements. My daughter Mira was diagnosed with Infantile Spasms over a year ago and has failed numerous AEDs. Best regards. Marc Quote Link to comment Share on other sites More sharing options...
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