Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 Rick, Try starting with the Life Extension information from their protocol book that they send you with membership or research their web site. this book is an excellent beginning to the subject of alternative strategies. Remember also that yoga and meditation have been proven to help with seizure control--google it and see for yourself. Merry Holidays and good luck. Rick <slush4458@...> wrote: I'd like to know if surgery is the best way to correct a seizure disorder. I have three options. 1- Install a VNS unit. 2- Corrective brain surgery. or 3- Remain on present medications. Tolerating the side effects is annoying, especially the muscle spasms. Does anyone know about natural remedies for easing epilepsy problems? I need more information so I can decide on what to do next. Surgical intervention doesn't seem like the right way to go. A few of my friends tell me that remedies are out there for helping people with epilepsy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2006 Report Share Posted December 22, 2006 Etherium Gold, Scullcap, Taurine, and Ambrotose (suppused to heal the cells). Meditation and deep breathing exercises. I also use a Biopro magnet that balances your energy around your body, or blocks out waves like from power lines. http://www.harmonicinnerprizes.com/etherium-gold.html?source=google & c1=ppc & kw=et\ herium-gold " Namaste " Tia [ ] surgery for epilepsy I'd like to know if surgery is the best way to correct a seizure disorder. I have three options. 1- Install a VNS unit. 2- Corrective brain surgery. or 3- Remain on present medications. Tolerating the side effects is annoying, especially the muscle spasms. Does anyone know about natural remedies for easing epilepsy problems? I need more information so I can decide on what to do next. Surgical intervention doesn't seem like the right way to go. A few of my friends tell me that remedies are out there for helping people with epilepsy. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Hi Rick: Are yoing all the natural d things that people talk about in this group? or have you only done medication? If you have only tried medication, it might be worth whille to learn some natural things. I can tell you some. Let me know. I dont know anything about the herbs mentioned below, but I have heard that certain types of meditation can correct brain problems. linda Tia Royer <tiaroyer@...> wrote: Etherium Gold, Scullcap, Taurine, and Ambrotose (suppused to heal the cells). Meditation and deep breathing exercises. I also use a Biopro magnet that balances your energy around your body, or blocks out waves like from power lines. http://www.harmonicinnerprizes.com/etherium-gold.html?source=google & c1=ppc & kw=et\ herium-gold " Namaste " Tia [ ] surgery for epilepsy I'd like to know if surgery is the best way to correct a seizure disorder. I have three options. 1- Install a VNS unit. 2- Corrective brain surgery. or 3- Remain on present medications. Tolerating the side effects is annoying, especially the muscle spasms. Does anyone know about natural remedies for easing epilepsy problems? I need more information so I can decide on what to do next. Surgical intervention doesn't seem like the right way to go. A few of my friends tell me that remedies are out there for helping people with epilepsy. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Rick, Just a little background on me - I grew up with epilepsy and played with meds for over 30 yrs. I tried VNS for a while and finally contacted doctors outside of my home area to talk to for brain surgery for better control. My local doctors wouldn't consider brain surgery but would VNS, but that was still pushing. I tried it and it helped some but the full outcome wanted, didn't happen. It works for some not for others but its not as intrusive as brain surgery. The biggest side effect of VNS, when it goes off your vocal cords are effected for the time its going off, its hard to talk full strength until you get used to it. It's a good thing to try its cheaper, and helps some people. After working on VNS for a while the out come wasn't there for me. In Dec 2000 I started to talk about brain surgery with doctors outside my local area, in March 2001 had my first visit in person. After doing 4 trips to visit they said I was a good candidate for brain surgery and on March 18, 2002 had surgery. Mine was right temporal lobe where they went in. Everyone is different. Local doctors in IL couldn't tell me the locations even. Since this time - VNS off, off all Meds, driving. Married, child on way, moved from IL to WY for a new carrier working for a major oil company in operations. I work 7 days of 12 hr shifts and have 7 off . and drive 125 miles per day roundtrip on days worked. I will be turning 40 this summer . Hope this helps .. Any questions please ask . With my work schedule I don't always get to write replies till I get a chance. Rodger Salzman Kemmerer WY _____ From: [mailto: ] On Behalf Of Rick Sent: Friday, December 22, 2006 10:40 PM Subject: [ ] surgery for epilepsy I'd like to know if surgery is the best way to correct a seizure disorder. I have three options. 1- Install a VNS unit. 2- Corrective brain surgery. or 3- Remain on present medications. Tolerating the side effects is annoying, especially the muscle spasms. Does anyone know about natural remedies for easing epilepsy problems? I need more information so I can decide on what to do next. Surgical intervention doesn't seem like the right way to go. A few of my friends tell me that remedies are out there for helping people with epilepsy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Rick, How many seizures do you have weekly or monthy, and what kind? lisa epilepsyapproach/ > > I'd like to know if surgery is the best way to correct a seizure > disorder. I have three options. 1- Install a VNS unit. 2- Corrective > brain surgery. or 3- Remain on present medications. Tolerating the > side effects is annoying, especially the muscle spasms. Does anyone > know about natural remedies for easing epilepsy problems? I need more > information so I can decide on what to do next. Surgical intervention > doesn't seem like the right way to go. A few of my friends tell me that > remedies are out there for helping people with epilepsy. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Rick, Success of brain surgery depends not only on the skill of the surgeon but the type of seizure you have. The success rate varies substantially. Beware! Someone's success story may or may not apply to you. For example, the success rate of surgeries for frontal lobe seizure is quite a bit worse when compare with surgery outcomes of temporal lobe seizures. Cy Rodger Salzman <rasalzman@...> wrote: Rick, Just a little background on me - I grew up with epilepsy and played with meds for over 30 yrs. I tried VNS for a while and finally contacted doctors outside of my home area to talk to for brain surgery for better control. My local doctors wouldn't consider brain surgery but would VNS, but that was still pushing. I tried it and it helped some but the full outcome wanted, didn't happen. It works for some not for others but its not as intrusive as brain surgery. The biggest side effect of VNS, when it goes off your vocal cords are effected for the time its going off, its hard to talk full strength until you get used to it. It's a good thing to try its cheaper, and helps some people. After working on VNS for a while the out come wasn't there for me. In Dec 2000 I started to talk about brain surgery with doctors outside my local area, in March 2001 had my first visit in person. After doing 4 trips to visit they said I was a good candidate for brain surgery and on March 18, 2002 had surgery. Mine was right temporal lobe where they went in. Everyone is different. Local doctors in IL couldn't tell me the locations even. Since this time - VNS off, off all Meds, driving. Married, child on way, moved from IL to WY for a new carrier working for a major oil company in operations. I work 7 days of 12 hr shifts and have 7 off . and drive 125 miles per day roundtrip on days worked. I will be turning 40 this summer . Hope this helps .. Any questions please ask . With my work schedule I don't always get to write replies till I get a chance. Rodger Salzman Kemmerer WY _____ From: [mailto: ] On Behalf Of Rick Sent: Friday, December 22, 2006 10:40 PM Subject: [ ] surgery for epilepsy I'd like to know if surgery is the best way to correct a seizure disorder. I have three options. 1- Install a VNS unit. 2- Corrective brain surgery. or 3- Remain on present medications. Tolerating the side effects is annoying, especially the muscle spasms. Does anyone know about natural remedies for easing epilepsy problems? I need more information so I can decide on what to do next. Surgical intervention doesn't seem like the right way to go. A few of my friends tell me that remedies are out there for helping people with epilepsy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Rick, http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=retrieve & db=pubmed & list_uids=15758038 & dopt=Abstract Tellez-Zenteno JF, Dhar R, Wiebe S. Long-term seizure outcomes following epilepsy surgery: a systematic review and meta-analysis. Brain. 2005 May;128(Pt 5):1188-98. Epub 2005 Mar 9. The bottom line is a follows: " The median proportion of long-term seizure-free patients was 66% with temporal lobe resections, 46% with occipital and parietal resections, and 27% with frontal lobe resections. In the long term, only 35% of patients with callosotomy were free of most disabling seizures, and 16% with multiple subpial transections remained free of all seizures " As Cy indicated, surgery does not work for everyone. C Fu <cyfcais@... m> To Sent by: @yah cc oogroups.com Subject RE: [ ] surgery for 01/03/2007 11:37 epilepsy PM Please respond to @yah oogroups.com Rick, Success of brain surgery depends not only on the skill of the surgeon but the type of seizure you have. The success rate varies substantially. Beware! Someone's success story may or may not apply to you. For example, the success rate of surgeries for frontal lobe seizure is quite a bit worse when compare with surgery outcomes of temporal lobe seizures. Cy Rodger Salzman <rasalzman@...> wrote: Rick, Just a little background on me - I grew up with epilepsy and played with meds for over 30 yrs. I tried VNS for a while and finally contacted doctors outside of my home area to talk to for brain surgery for better control. My local doctors wouldn't consider brain surgery but would VNS, but that was still pushing. I tried it and it helped some but the full outcome wanted, didn't happen. It works for some not for others but its not as intrusive as brain surgery. The biggest side effect of VNS, when it goes off your vocal cords are effected for the time its going off, its hard to talk full strength until you get used to it. It's a good thing to try its cheaper, and helps some people. After working on VNS for a while the out come wasn't there for me. In Dec 2000 I started to talk about brain surgery with doctors outside my local area, in March 2001 had my first visit in person. After doing 4 trips to visit they said I was a good candidate for brain surgery and on March 18, 2002 had surgery. Mine was right temporal lobe where they went in. Everyone is different. Local doctors in IL couldn't tell me the locations even. Since this time - VNS off, off all Meds, driving. Married, child on way, moved from IL to WY for a new carrier working for a major oil company in operations. I work 7 days of 12 hr shifts and have 7 off . and drive 125 miles per day roundtrip on days worked. I will be turning 40 this summer . Hope this helps .. Any questions please ask . With my work schedule I don't always get to write replies till I get a chance. Rodger Salzman Kemmerer WY _____ From: [mailto: ] On Behalf Of Rick Sent: Friday, December 22, 2006 10:40 PM Subject: [ ] surgery for epilepsy I'd like to know if surgery is the best way to correct a seizure disorder. I have three options. 1- Install a VNS unit. 2- Corrective brain surgery. or 3- Remain on present medications. Tolerating the side effects is annoying, especially the muscle spasms. Does anyone know about natural remedies for easing epilepsy problems? I need more information so I can decide on what to do next. Surgical intervention doesn't seem like the right way to go. A few of my friends tell me that remedies are out there for helping people with epilepsy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 I will agree with this ! I was extremely lucky ! I also had the best doctors in the world at s Hopkins in Baltimore land do the Job. I know of some others that have had it done across the country and not been as lucky. Some of the others were good for 6-12 mo and then seizures started reappearing, but not as severe for some. Every situation is different! I also worked for a state university at the time and had excellent insurance .... total cost was over $125,000 and I am still paying on about 15,000 not covered by insurance. A lot of this is travel(fly), hotel for pre & post visits, and deductibles My best suggestion is do research on your own (Which your doing) and find others with similar situations to answer questions on the surgery. Along with success rate at the location if your seriously looking at this. Surgery has lots of factors Rodger _____ From: [mailto: ] On Behalf Of C Fu Sent: Wednesday, January 03, 2007 9:37 PM Subject: RE: [ ] surgery for epilepsy Rick, Success of brain surgery depends not only on the skill of the surgeon but the type of seizure you have. The success rate varies substantially. Beware! Someone's success story may or may not apply to you. For example, the success rate of surgeries for frontal lobe seizure is quite a bit worse when compare with surgery outcomes of temporal lobe seizures. Cy Rodger Salzman <rasalzmanatt (DOT) <mailto:rasalzman%40att.net> net> wrote: Rick, Just a little background on me - I grew up with epilepsy and played with meds for over 30 yrs. I tried VNS for a while and finally contacted doctors outside of my home area to talk to for brain surgery for better control. My local doctors wouldn't consider brain surgery but would VNS, but that was still pushing. I tried it and it helped some but the full outcome wanted, didn't happen. It works for some not for others but its not as intrusive as brain surgery. The biggest side effect of VNS, when it goes off your vocal cords are effected for the time its going off, its hard to talk full strength until you get used to it. It's a good thing to try its cheaper, and helps some people. After working on VNS for a while the out come wasn't there for me. In Dec 2000 I started to talk about brain surgery with doctors outside my local area, in March 2001 had my first visit in person. After doing 4 trips to visit they said I was a good candidate for brain surgery and on March 18, 2002 had surgery. Mine was right temporal lobe where they went in. Everyone is different. Local doctors in IL couldn't tell me the locations even. Since this time - VNS off, off all Meds, driving. Married, child on way, moved from IL to WY for a new carrier working for a major oil company in operations. I work 7 days of 12 hr shifts and have 7 off . and drive 125 miles per day roundtrip on days worked. I will be turning 40 this summer . Hope this helps .. Any questions please ask . With my work schedule I don't always get to write replies till I get a chance. Rodger Salzman Kemmerer WY _____ From: @ <mailto: %40> [mailto: @ <mailto: %40> ] On Behalf Of Rick Sent: Friday, December 22, 2006 10:40 PM @ <mailto: %40> Subject: [ ] surgery for epilepsy I'd like to know if surgery is the best way to correct a seizure disorder. I have three options. 1- Install a VNS unit. 2- Corrective brain surgery. or 3- Remain on present medications. Tolerating the side effects is annoying, especially the muscle spasms. Does anyone know about natural remedies for easing epilepsy problems? I need more information so I can decide on what to do next. Surgical intervention doesn't seem like the right way to go. A few of my friends tell me that remedies are out there for helping people with epilepsy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Rick, If you are so desperate to look into surgery, may be as Rodger has said you need to do some research. There is a new technique coming into horizon - repetitive transcranial magnetic stimulation or rTMS. It is in a research stage. A doc friend of mime at New York is working on that and there are other reports in the literature. It is non-invasive and it has generated some interesting results. Also it could help depression. Since 1/3 of epileptic patients experience depression, there is this good side benefit. No one really knows how it works. Essentially the magnetic field generates an eddy current in your brain. My speculation is that the eddy current induces a surge in the inhibitory neuro-transmitters to " rebalance " the brain chemistry. (There is a report that an accupunctured technquie induces a surge in taurine in rat's brain.) One thing I do not like about current rTMS is that the excitation coil which shapes like a figure 8 is abut 18 cm long. As a result, it could excite multiple lobes and seizures have been reported due to unintended excitation. I have proposed a different technique that based on an array of laser-fabricated 3 mm coils instead of one single coil but I did not get funding for that. Again, since rTMS is at a research stage, there are risks since they do not even know the proper magnitudes of the excitation and how it may vary between different individuals. But, I have high hope for rTMS, so keep an eye on the literature for this one. By the way, thank you for the detailed breakdown of surgery success rate data. I am sure it is helpful for everyone. Good luck, Rick. CY Rodger Salzman <rasalzman@...> wrote: I will agree with this ! I was extremely lucky ! I also had the best doctors in the world at s Hopkins in Baltimore land do the Job. I know of some others that have had it done across the country and not been as lucky. Some of the others were good for 6-12 mo and then seizures started reappearing, but not as severe for some. Every situation is different! I also worked for a state university at the time and had excellent insurance .... total cost was over $125,000 and I am still paying on about 15,000 not covered by insurance. A lot of this is travel(fly), hotel for pre & post visits, and deductibles My best suggestion is do research on your own (Which your doing) and find others with similar situations to answer questions on the surgery. Along with success rate at the location if your seriously looking at this. Surgery has lots of factors Rodger _____ From: [mailto: ] On Behalf Of C Fu Sent: Wednesday, January 03, 2007 9:37 PM Subject: RE: [ ] surgery for epilepsy Rick, Success of brain surgery depends not only on the skill of the surgeon but the type of seizure you have. The success rate varies substantially. Beware! Someone's success story may or may not apply to you. For example, the success rate of surgeries for frontal lobe seizure is quite a bit worse when compare with surgery outcomes of temporal lobe seizures. Cy Rodger Salzman <rasalzmanatt (DOT) <mailto:rasalzman%40att.net> net> wrote: Rick, Just a little background on me - I grew up with epilepsy and played with meds for over 30 yrs. I tried VNS for a while and finally contacted doctors outside of my home area to talk to for brain surgery for better control. My local doctors wouldn't consider brain surgery but would VNS, but that was still pushing. I tried it and it helped some but the full outcome wanted, didn't happen. It works for some not for others but its not as intrusive as brain surgery. The biggest side effect of VNS, when it goes off your vocal cords are effected for the time its going off, its hard to talk full strength until you get used to it. It's a good thing to try its cheaper, and helps some people. After working on VNS for a while the out come wasn't there for me. In Dec 2000 I started to talk about brain surgery with doctors outside my local area, in March 2001 had my first visit in person. After doing 4 trips to visit they said I was a good candidate for brain surgery and on March 18, 2002 had surgery. Mine was right temporal lobe where they went in. Everyone is different. Local doctors in IL couldn't tell me the locations even. Since this time - VNS off, off all Meds, driving. Married, child on way, moved from IL to WY for a new carrier working for a major oil company in operations. I work 7 days of 12 hr shifts and have 7 off . and drive 125 miles per day roundtrip on days worked. I will be turning 40 this summer . Hope this helps .. Any questions please ask . With my work schedule I don't always get to write replies till I get a chance. Rodger Salzman Kemmerer WY _____ From: @ <mailto: %40> [mailto: @ <mailto: %40> ] On Behalf Of Rick Sent: Friday, December 22, 2006 10:40 PM @ <mailto: %40> Subject: [ ] surgery for epilepsy I'd like to know if surgery is the best way to correct a seizure disorder. I have three options. 1- Install a VNS unit. 2- Corrective brain surgery. or 3- Remain on present medications. Tolerating the side effects is annoying, especially the muscle spasms. Does anyone know about natural remedies for easing epilepsy problems? I need more information so I can decide on what to do next. Surgical intervention doesn't seem like the right way to go. A few of my friends tell me that remedies are out there for helping people with epilepsy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 you also have to go in with the attitude " this WILL work " after you research and decide to have it. i had a non-cancerous tumor the same size as a chicken egg and all but the top 1/4 inch of my left temporal lobe removed and the doctors said i might lose the ability to speak or understand speech. but since i was born with the tumor my speech center is on both the right temporal lobe and the remainder of the left. and the only time you really risk losing abilities or not being cured is if the infected area covers a major portion of a skill area. the doctors sometimes lead you along in a mysticized way but do the research and make your own decision. > Rick, > > Just a little background on me - I grew up with epilepsy and played with > meds for over 30 yrs. I tried VNS for a while and finally contacted doctors > outside of my home area to talk to for brain surgery for better control. > > My local doctors wouldn't consider brain surgery but would VNS, but that was > still pushing. I tried it and it helped some but the full outcome wanted, > didn't happen. It works for some not for others but its not as intrusive as > brain surgery. The biggest side effect of VNS, when it goes off your vocal > cords are effected for the time its going off, its hard to talk full > strength until you get used to it. It's a good thing to try its cheaper, > and helps some people. > > After working on VNS for a while the out come wasn't there for me. In Dec > 2000 I started to talk about brain surgery with doctors outside my local > area, in March 2001 had my first visit in person. After doing 4 trips to > visit they said I was a good candidate for brain surgery and on March 18, > 2002 had surgery. Mine was right temporal lobe where they went in. Everyone > is different. Local doctors in IL couldn't tell me the locations even. > > Since this time - VNS off, off all Meds, driving. Married, child on way, > moved from IL to WY for a new carrier working for a major oil company in > operations. I work 7 days of 12 hr shifts and have 7 off . and drive 125 > miles per day roundtrip on days worked. I will be turning 40 this summer . > > Hope this helps .. > > Any questions please ask . With my work schedule I don't always get to write > replies till I get a chance. > > Rodger Salzman > > Kemmerer WY > > _____ > > From: @ <mailto: %40> > [mailto: @ > <mailto: %40> ] > On Behalf Of Rick > Sent: Friday, December 22, 2006 10:40 PM > @ <mailto: %40> > Subject: [ ] surgery for epilepsy > > I'd like to know if surgery is the best way to correct a seizure > disorder. I have three options. 1- Install a VNS unit. 2- Corrective > brain surgery. or 3- Remain on present medications. Tolerating the > side effects is annoying, especially the muscle spasms. Does anyone > know about natural remedies for easing epilepsy problems? I need more > information so I can decide on what to do next. Surgical intervention > doesn't seem like the right way to go. A few of my friends tell me that > remedies are out there for helping people with epilepsy. > > Quote Link to comment Share on other sites More sharing options...
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