OT: experience with Lamictal

[Guest guest]

Hi listmates,

I am going to start my 5 yo son on Lamictal because of seizures

(absence seizures per one neuro, partial and secondary generalization

seizures per another neuro, who should I believe? a third one?). I

believe his seizures are not classic. They look very much like

absence ones (staring, eyes blinking, eyes rolling up) but he can

continue eating or drinking or pedaling his bike during a seizure...

He does not loose muscle tone. He can sometimes hear me if I yell

really loud during the seizure.

Anyway I am very scared of starting the Lamictal but I am also not

confortable anymore of not treating him. I have been trying natural

supplements for 6 months but seizures are still there, hundreds per

day. I am especially scared of the possible rash (stevens-johnson

syndrome). He is also on Valtrex (anti-viral) and he gets occasional

rashes with it. How am I going to tell if he has a rash?

Does anyone has experience (good or bad) with Lamictal?

Thanks for anything you could share,

[Guest guest]

Hi , am writing this, as I saw a movie dedicated to mothers of children who have seizures on TV the other night, quite by accident - anyway it was from Hopkins Hospital and is called the Ketogenic Diet, it might be worth doing a google search or ringing them as 30% of those who go on the diet have complete recover - the movie was called "Do No Harm", some of the actors were people who had recovered from seizures using this diet - think its mainly fat, some carbs and some protein, its very measured and for about two years - I have been trying to do a google search for it but only come up with about as much information as I am giving you - so if anyone knows anything about what the diet is and and measurements are I would be very interested - we are on the SCD diet and it has made a difference, however we still have spaciness and zone out times etc and short term memory losses which are seizure related - I am interested to know anything about this - as know when our child has a lot of fat related food he does calm down, when he has carbs of any type we have hypeness or spaciness - I have no idea re medications but feel I want to look into this diet first - good luck

mary

OT: experience with Lamictal

Hi listmates,I am going to start my 5 yo son on Lamictal because of seizures (absence seizures per one neuro, partial and secondary generalization seizures per another neuro, who should I believe? a third one?). I believe his seizures are not classic. They look very much like absence ones (staring, eyes blinking, eyes rolling up) but he can continue eating or drinking or pedaling his bike during a seizure... He does not loose muscle tone. He can sometimes hear me if I yell really loud during the seizure.Anyway I am very scared of starting the Lamictal but I am also not confortable anymore of not treating him. I have been trying natural supplements for 6 months but seizures are still there, hundreds per day. I am especially scared of the possible rash (stevens-johnson syndrome). We are still on Valtrex and he gets occasional rashes with it. How am I going to tell if he has a rash?Does anyone has experience (good or bad) with Lamictal?Thanks for anything you could share,

[Guest guest]

Hi , am writing this, as I saw a movie dedicated to mothers of children who have seizures on TV the other night, quite by accident - anyway it was from Hopkins Hospital and is called the Ketogenic Diet, it might be worth doing a google search or ringing them as 30% of those who go on the diet have complete recover - the movie was called "Do No Harm", some of the actors were people who had recovered from seizures using this diet - think its mainly fat, some carbs and some protein, its very measured and for about two years - I have been trying to do a google search for it but only come up with about as much information as I am giving you - so if anyone knows anything about what the diet is and and measurements are I would be very interested - we are on the SCD diet and it has made a difference, however we still have spaciness and zone out times etc and short term memory losses which are seizure related - I am interested to know anything about this - as know when our child has a lot of fat related food he does calm down, when he has carbs of any type we have hypeness or spaciness - I have no idea re medications but feel I want to look into this diet first - good luck

mary

OT: experience with Lamictal

Hi listmates,I am going to start my 5 yo son on Lamictal because of seizures (absence seizures per one neuro, partial and secondary generalization seizures per another neuro, who should I believe? a third one?). I believe his seizures are not classic. They look very much like absence ones (staring, eyes blinking, eyes rolling up) but he can continue eating or drinking or pedaling his bike during a seizure... He does not loose muscle tone. He can sometimes hear me if I yell really loud during the seizure.Anyway I am very scared of starting the Lamictal but I am also not confortable anymore of not treating him. I have been trying natural supplements for 6 months but seizures are still there, hundreds per day. I am especially scared of the possible rash (stevens-johnson syndrome). We are still on Valtrex and he gets occasional rashes with it. How am I going to tell if he has a rash?Does anyone has experience (good or bad) with Lamictal?Thanks for anything you could share,

[Guest guest]

Hi , am writing this, as I saw a movie dedicated to mothers of children who have seizures on TV the other night, quite by accident - anyway it was from Hopkins Hospital and is called the Ketogenic Diet, it might be worth doing a google search or ringing them as 30% of those who go on the diet have complete recover - the movie was called "Do No Harm", some of the actors were people who had recovered from seizures using this diet - think its mainly fat, some carbs and some protein, its very measured and for about two years - I have been trying to do a google search for it but only come up with about as much information as I am giving you - so if anyone knows anything about what the diet is and and measurements are I would be very interested - we are on the SCD diet and it has made a difference, however we still have spaciness and zone out times etc and short term memory losses which are seizure related - I am interested to know anything about this - as know when our child has a lot of fat related food he does calm down, when he has carbs of any type we have hypeness or spaciness - I have no idea re medications but feel I want to look into this diet first - good luck

mary

OT: experience with Lamictal

Hi listmates,I am going to start my 5 yo son on Lamictal because of seizures (absence seizures per one neuro, partial and secondary generalization seizures per another neuro, who should I believe? a third one?). I believe his seizures are not classic. They look very much like absence ones (staring, eyes blinking, eyes rolling up) but he can continue eating or drinking or pedaling his bike during a seizure... He does not loose muscle tone. He can sometimes hear me if I yell really loud during the seizure.Anyway I am very scared of starting the Lamictal but I am also not confortable anymore of not treating him. I have been trying natural supplements for 6 months but seizures are still there, hundreds per day. I am especially scared of the possible rash (stevens-johnson syndrome). We are still on Valtrex and he gets occasional rashes with it. How am I going to tell if he has a rash?Does anyone has experience (good or bad) with Lamictal?Thanks for anything you could share,

[Guest guest]

I am sorry this is not about lamictal-but I am unable at this time to compose a message for some reason and I just wanted to let people at MB12valtrex-that I did not send an e-mail titled graphic site. I don't know what it is, but i only wanted to delete it. maurineferdeson <ferdeson@...> wrote: Hi listmates,I am going to start my 5 yo son on Lamictal because of seizures (absence seizures per one neuro, partial and secondary generalization seizures per another neuro, who should I believe? a third one?). I believe his

seizures are not classic. They look very much like absence ones (staring, eyes blinking, eyes rolling up) but he can continue eating or drinking or pedaling his bike during a seizure... He does not loose muscle tone. He can sometimes hear me if I yell really loud during the seizure.Anyway I am very scared of starting the Lamictal but I am also not confortable anymore of not treating him. I have been trying natural supplements for 6 months but seizures are still there, hundreds per day. I am especially scared of the possible rash (stevens-johnson syndrome). We are still on Valtrex and he gets occasional rashes with it. How am I going to tell if he has a rash?Does anyone has experience (good or bad) with Lamictal?Thanks for anything you could share, __________________________________________________

[Guest guest]

I am sorry this is not about lamictal-but I am unable at this time to compose a message for some reason and I just wanted to let people at MB12valtrex-that I did not send an e-mail titled graphic site. I don't know what it is, but i only wanted to delete it. maurineferdeson <ferdeson@...> wrote: Hi listmates,I am going to start my 5 yo son on Lamictal because of seizures (absence seizures per one neuro, partial and secondary generalization seizures per another neuro, who should I believe? a third one?). I believe his

seizures are not classic. They look very much like absence ones (staring, eyes blinking, eyes rolling up) but he can continue eating or drinking or pedaling his bike during a seizure... He does not loose muscle tone. He can sometimes hear me if I yell really loud during the seizure.Anyway I am very scared of starting the Lamictal but I am also not confortable anymore of not treating him. I have been trying natural supplements for 6 months but seizures are still there, hundreds per day. I am especially scared of the possible rash (stevens-johnson syndrome). We are still on Valtrex and he gets occasional rashes with it. How am I going to tell if he has a rash?Does anyone has experience (good or bad) with Lamictal?Thanks for anything you could share, __________________________________________________

[Guest guest]

my daughter is on lamictal. this is the second time she has been on it

in her life. she has been on it for a couple years now.... she had not

once gotten a rash. it helps. but u may want to find out if there is

any interactions with the Valtrex. If not, as long as the doctor knows

what he is doing and gradually ups the dose on the lamictal until it

is theraputic, then he shouldn't get a rash at all. good luck!!!!

>

> Hi listmates,

>

> I am going to start my 5 yo son on Lamictal because of seizures

> (absence seizures per one neuro, partial and secondary generalization

> seizures per another neuro, who should I believe? a third one?). I

> believe his seizures are not classic. They look very much like

> absence ones (staring, eyes blinking, eyes rolling up) but he can

> continue eating or drinking or pedaling his bike during a seizure...

> He does not loose muscle tone. He can sometimes hear me if I yell

> really loud during the seizure.

>

> Anyway I am very scared of starting the Lamictal but I am also not

> confortable anymore of not treating him. I have been trying natural

> supplements for 6 months but seizures are still there, hundreds per

> day. I am especially scared of the possible rash (stevens-johnson

> syndrome). He is also on Valtrex (anti-viral) and he gets occasional

> rashes with it. How am I going to tell if he has a rash?

>

> Does anyone has experience (good or bad) with Lamictal?

>

> Thanks for anything you could share,

>

>

[Guest guest]

>

> Hi listmates,

>

> I am going to start my 5 yo son on Lamictal because of seizures

> (absence seizures per one neuro, partial and secondary

generalization

> seizures per another neuro, who should I believe? a third one?). I

> believe his seizures are not classic. They look very much like

> absence ones (staring, eyes blinking, eyes rolling up) but he can

> continue eating or drinking or pedaling his bike during a

seizure...

> He does not loose muscle tone. He can sometimes hear me if I yell

> really loud during the seizure.

>

> Anyway I am very scared of starting the Lamictal but I am also not

> confortable anymore of not treating him. I have been trying

natural

> supplements for 6 months but seizures are still there, hundreds

per

> day. I am especially scared of the possible rash (stevens-johnson

> syndrome). He is also on Valtrex (anti-viral) and he gets

occasional

> rashes with it. How am I going to tell if he has a rash?

>

> Does anyone has experience (good or bad) with Lamictal?

>

> Thanks for anything you could share,

>

>

Hello.

My 16 yrold son has been taking Lamictal for over a month now

and has shown no side effects of it. He has had seizures since he

was 14 yrs old. This is he's 3 medican. He has full force granmal

seizures.

Robin

[Guest guest]

,

Dr. Jeff Bradstreet says Lamictal is best for our kids bcz it raises gluthione levels, and our kids are mostly gluthione deficient.

http://www.gnd.org/autism/overview.htm

My son was on Trileptal for 3 weeks. Set him back 3 months. Horrible. Switched to Lamictal for 6 months, much better. Was able to function and speak, and couldn't at all on Trileptal. He did best after I weaned him off of the anti-seizures meds completely. They are very toxic. I share your concern of s Syndrome.

You might check out the list: epilepsy treatment. A lot of people there have had success using more natural substances. One father there stopped his daughter's seizures through LEAP testing and then avoiding the foods that she was allergic to.

I am not convinced my son was having absence seizures, although his EEG does indicate very abnormal brain activity (the neuro said "sparks coming off his left frontal lobe"). I started Taurine a few months ago and he no longer has dialated pupils for no reason. The anti-virals are helping a lot, too.

You might also explore the Ketogenic diet, as someone mentioned, and others have success on a modified Atkins type diet (not as extreme as the Keto).

Have you tried any detoxes, like infrared sauna, or cleansing the liver with milk thistle or something? You might try researching some safe methods and see if reducing toxins helps at all, too.

Best wishes,

Hi listmates,I am going to start my 5 yo son on Lamictal because of seizures (absence seizures per one neuro, partial and secondary generalization seizures per another neuro, who should I believe? a third one?). I believe his seizures are not classic. They look very much like absence ones (staring, eyes blinking, eyes rolling up) but he can continue eating or drinking or pedaling his bike during a seizure... He does not loose muscle tone. He can sometimes hear me if I yell really loud during the seizure.Anyway I am very scared of starting the Lamictal but I am also not confortable anymore of not treating him. I have been trying natural supplements for 6 months but seizures are still there, hundreds per day. I am especially scared of the possible rash (stevens-johnson syndrome). We are still on Valtrex and he gets occasional rashes with it. How am I going to tell if he has a rash?Does anyone has experience (good or bad) with Lamictal?Thanks for anything you could share,

[Guest guest]

,

Dr. Jeff Bradstreet says Lamictal is best for our kids bcz it raises gluthione levels, and our kids are mostly gluthione deficient.

http://www.gnd.org/autism/overview.htm

My son was on Trileptal for 3 weeks. Set him back 3 months. Horrible. Switched to Lamictal for 6 months, much better. Was able to function and speak, and couldn't at all on Trileptal. He did best after I weaned him off of the anti-seizures meds completely. They are very toxic. I share your concern of s Syndrome.

You might check out the list: epilepsy treatment. A lot of people there have had success using more natural substances. One father there stopped his daughter's seizures through LEAP testing and then avoiding the foods that she was allergic to.

I am not convinced my son was having absence seizures, although his EEG does indicate very abnormal brain activity (the neuro said "sparks coming off his left frontal lobe"). I started Taurine a few months ago and he no longer has dialated pupils for no reason. The anti-virals are helping a lot, too.

You might also explore the Ketogenic diet, as someone mentioned, and others have success on a modified Atkins type diet (not as extreme as the Keto).

Have you tried any detoxes, like infrared sauna, or cleansing the liver with milk thistle or something? You might try researching some safe methods and see if reducing toxins helps at all, too.

Best wishes,

Hi listmates,I am going to start my 5 yo son on Lamictal because of seizures (absence seizures per one neuro, partial and secondary generalization seizures per another neuro, who should I believe? a third one?). I believe his seizures are not classic. They look very much like absence ones (staring, eyes blinking, eyes rolling up) but he can continue eating or drinking or pedaling his bike during a seizure... He does not loose muscle tone. He can sometimes hear me if I yell really loud during the seizure.Anyway I am very scared of starting the Lamictal but I am also not confortable anymore of not treating him. I have been trying natural supplements for 6 months but seizures are still there, hundreds per day. I am especially scared of the possible rash (stevens-johnson syndrome). We are still on Valtrex and he gets occasional rashes with it. How am I going to tell if he has a rash?Does anyone has experience (good or bad) with Lamictal?Thanks for anything you could share,

[Guest guest]

>

> Hi listmates,

>

> I am going to start my 5 yo son on Lamictal because of seizures

> (absence seizures per one neuro, partial and secondary

generalization

> seizures per another neuro, who should I believe? a third one?). I

> believe his seizures are not classic. They look very much like

> absence ones (staring, eyes blinking, eyes rolling up) but he can

> continue eating or drinking or pedaling his bike during a

seizure...

> He does not loose muscle tone. He can sometimes hear me if I yell

> really loud during the seizure.

>

> Anyway I am very scared of starting the Lamictal but I am also not

> confortable anymore of not treating him. I have been trying

natural

> supplements for 6 months but seizures are still there, hundreds

per

> day. I am especially scared of the possible rash (stevens-johnson

> syndrome). We are still on Valtrex and he gets occasional rashes

with

> it. How am I going to tell if he has a rash?

>

> Does anyone has experience (good or bad) with Lamictal?

>

> Thanks for anything you could share,

>

hi natalie,

we have the exact same seizures and our neuro calls them partial

complex but we get the occasional absence too and before treating

them, same thing hundreds a day plus our son keeps his acticvity

going as well but hes not really there.just recently he is

understanding his seizure pattern more(he's 9yrs old now) if i am

not responding to him he will ask me are you having a seizure mom? i

think it is great self realization of what is happenning to him

during his episodes. these seizures need to be treated just as

serious as grand mals to the brain and safety issues are always

concerning especially with lack of stopping activity, my son used to

walk into walls, fall down stairs etc. we were on lamictal for about

a year and we had some improvements but not total control though we

havent got total control from any med and are only on clobazam now

even though this is a adjunct med meaning only supposed to work well

in conjunction with other meds. lamictal for us was the same

effectiveness as all the other ones we tried and i did not know it

raised glutathione, i would have to see reports of that. whatever

you choose will have some side effects the rash may be different

than the valtrex ones but it might not too so you may want to

research a lesser side effect med as the s.j. syndrome is one not to

take lightly. we got a rash on tegretol and immediatly were taken

off, when it turned out to be scarlett fever rash the neuro said he

still shouldnt go back on that one. have you seen a decrease in

seizures with the valtrex? we are on week 8 only and had some

reduction but after a 3 day trial off med we had a bigger than usual

(longer more pronounced episode early in the morning which he doesnt

ever have)so it may have been temporary or more time on the viral

therapy to reduce more inflamation. it could have been an initial

reduction and therefore reduction in seizures and will little by

little keep improving the seizure rate. good luck with it all!!!

>

[Guest guest]

>

> Hi listmates,

>

> I am going to start my 5 yo son on Lamictal because of seizures

> (absence seizures per one neuro, partial and secondary

generalization

> seizures per another neuro, who should I believe? a third one?). I

> believe his seizures are not classic. They look very much like

> absence ones (staring, eyes blinking, eyes rolling up) but he can

> continue eating or drinking or pedaling his bike during a

seizure...

> He does not loose muscle tone. He can sometimes hear me if I yell

> really loud during the seizure.

>

> Anyway I am very scared of starting the Lamictal but I am also not

> confortable anymore of not treating him. I have been trying

natural

> supplements for 6 months but seizures are still there, hundreds

per

> day. I am especially scared of the possible rash (stevens-johnson

> syndrome). We are still on Valtrex and he gets occasional rashes

with

> it. How am I going to tell if he has a rash?

>

> Does anyone has experience (good or bad) with Lamictal?

>

> Thanks for anything you could share,

>

hi natalie,

we have the exact same seizures and our neuro calls them partial

complex but we get the occasional absence too and before treating

them, same thing hundreds a day plus our son keeps his acticvity

going as well but hes not really there.just recently he is

understanding his seizure pattern more(he's 9yrs old now) if i am

not responding to him he will ask me are you having a seizure mom? i

think it is great self realization of what is happenning to him

during his episodes. these seizures need to be treated just as

serious as grand mals to the brain and safety issues are always

concerning especially with lack of stopping activity, my son used to

walk into walls, fall down stairs etc. we were on lamictal for about

a year and we had some improvements but not total control though we

havent got total control from any med and are only on clobazam now

even though this is a adjunct med meaning only supposed to work well

in conjunction with other meds. lamictal for us was the same

effectiveness as all the other ones we tried and i did not know it

raised glutathione, i would have to see reports of that. whatever

you choose will have some side effects the rash may be different

than the valtrex ones but it might not too so you may want to

research a lesser side effect med as the s.j. syndrome is one not to

take lightly. we got a rash on tegretol and immediatly were taken

off, when it turned out to be scarlett fever rash the neuro said he

still shouldnt go back on that one. have you seen a decrease in

seizures with the valtrex? we are on week 8 only and had some

reduction but after a 3 day trial off med we had a bigger than usual

(longer more pronounced episode early in the morning which he doesnt

ever have)so it may have been temporary or more time on the viral

therapy to reduce more inflamation. it could have been an initial

reduction and therefore reduction in seizures and will little by

little keep improving the seizure rate. good luck with it all!!!

>

[Guest guest]

>

> Hi listmates,

>

> I am going to start my 5 yo son on Lamictal because of seizures

> (absence seizures per one neuro, partial and secondary

generalization

> seizures per another neuro, who should I believe? a third one?). I

> believe his seizures are not classic. They look very much like

> absence ones (staring, eyes blinking, eyes rolling up) but he can

> continue eating or drinking or pedaling his bike during a

seizure...

> He does not loose muscle tone. He can sometimes hear me if I yell

> really loud during the seizure.

>

> Anyway I am very scared of starting the Lamictal but I am also not

> confortable anymore of not treating him. I have been trying

natural

> supplements for 6 months but seizures are still there, hundreds

per

> day. I am especially scared of the possible rash (stevens-johnson

> syndrome). We are still on Valtrex and he gets occasional rashes

with

> it. How am I going to tell if he has a rash?

>

> Does anyone has experience (good or bad) with Lamictal?

>

> Thanks for anything you could share,

>

hi natalie,

we have the exact same seizures and our neuro calls them partial

complex but we get the occasional absence too and before treating

them, same thing hundreds a day plus our son keeps his acticvity

going as well but hes not really there.just recently he is

understanding his seizure pattern more(he's 9yrs old now) if i am

not responding to him he will ask me are you having a seizure mom? i

think it is great self realization of what is happenning to him

during his episodes. these seizures need to be treated just as

serious as grand mals to the brain and safety issues are always

concerning especially with lack of stopping activity, my son used to

walk into walls, fall down stairs etc. we were on lamictal for about

a year and we had some improvements but not total control though we

havent got total control from any med and are only on clobazam now

even though this is a adjunct med meaning only supposed to work well

in conjunction with other meds. lamictal for us was the same

effectiveness as all the other ones we tried and i did not know it

raised glutathione, i would have to see reports of that. whatever

you choose will have some side effects the rash may be different

than the valtrex ones but it might not too so you may want to

research a lesser side effect med as the s.j. syndrome is one not to

take lightly. we got a rash on tegretol and immediatly were taken

off, when it turned out to be scarlett fever rash the neuro said he

still shouldnt go back on that one. have you seen a decrease in

seizures with the valtrex? we are on week 8 only and had some

reduction but after a 3 day trial off med we had a bigger than usual

(longer more pronounced episode early in the morning which he doesnt

ever have)so it may have been temporary or more time on the viral

therapy to reduce more inflamation. it could have been an initial

reduction and therefore reduction in seizures and will little by

little keep improving the seizure rate. good luck with it all!!!

>

[Guest guest]

>

> Hi listmates,

>

> I am going to start my 5 yo son on Lamictal because of seizures

> (absence seizures per one neuro, partial and secondary

generalization

> seizures per another neuro, who should I believe? a third one?). I

> believe his seizures are not classic. They look very much like

> absence ones (staring, eyes blinking, eyes rolling up) but he can

> continue eating or drinking or pedaling his bike during a

seizure...

> He does not loose muscle tone. He can sometimes hear me if I yell

> really loud during the seizure.

>

> Anyway I am very scared of starting the Lamictal but I am also not

> confortable anymore of not treating him. I have been trying

natural

> supplements for 6 months but seizures are still there, hundreds

per

> day. I am especially scared of the possible rash (stevens-johnson

> syndrome). We are still on Valtrex and he gets occasional rashes

with

> it. How am I going to tell if he has a rash?

>

> Does anyone has experience (good or bad) with Lamictal?

>

> Thanks for anything you could share,

>

hi natalie,

we have the exact same seizures and our neuro calls them partial

complex but we get the occasional absence too and before treating

them, same thing hundreds a day plus our son keeps his acticvity

going as well but hes not really there.just recently he is

understanding his seizure pattern more(he's 9yrs old now) if i am

not responding to him he will ask me are you having a seizure mom? i

think it is great self realization of what is happenning to him

during his episodes. these seizures need to be treated just as

serious as grand mals to the brain and safety issues are always

concerning especially with lack of stopping activity, my son used to

walk into walls, fall down stairs etc. we were on lamictal for about

a year and we had some improvements but not total control though we

havent got total control from any med and are only on clobazam now

even though this is a adjunct med meaning only supposed to work well

in conjunction with other meds. lamictal for us was the same

effectiveness as all the other ones we tried and i did not know it

raised glutathione, i would have to see reports of that. whatever

you choose will have some side effects the rash may be different

than the valtrex ones but it might not too so you may want to

research a lesser side effect med as the s.j. syndrome is one not to

take lightly. we got a rash on tegretol and immediatly were taken

off, when it turned out to be scarlett fever rash the neuro said he

still shouldnt go back on that one. have you seen a decrease in

seizures with the valtrex? we are on week 8 only and had some

reduction but after a 3 day trial off med we had a bigger than usual

(longer more pronounced episode early in the morning which he doesnt

ever have)so it may have been temporary or more time on the viral

therapy to reduce more inflamation. it could have been an initial

reduction and therefore reduction in seizures and will little by

little keep improving the seizure rate. good luck with it all!!!

>

[Guest guest]

>

> Hi listmates,

>

> I am going to start my 5 yo son on Lamictal because of seizures

> (absence seizures per one neuro, partial and secondary

generalization

> seizures per another neuro, who should I believe? a third one?). I

> believe his seizures are not classic. They look very much like

> absence ones (staring, eyes blinking, eyes rolling up) but he can

> continue eating or drinking or pedaling his bike during a

seizure...

> He does not loose muscle tone. He can sometimes hear me if I yell

> really loud during the seizure.

>

> Anyway I am very scared of starting the Lamictal but I am also not

> confortable anymore of not treating him. I have been trying

natural

> supplements for 6 months but seizures are still there, hundreds

per

> day. I am especially scared of the possible rash (stevens-johnson

> syndrome). We are still on Valtrex and he gets occasional rashes

with

> it. How am I going to tell if he has a rash?

>

> Does anyone has experience (good or bad) with Lamictal?

>

> Thanks for anything you could share,

>

hi natalie,

we have the exact same seizures and our neuro calls them partial

complex but we get the occasional absence too and before treating

them, same thing hundreds a day plus our son keeps his acticvity

going as well but hes not really there.just recently he is

understanding his seizure pattern more(he's 9yrs old now) if i am

not responding to him he will ask me are you having a seizure mom? i

think it is great self realization of what is happenning to him

during his episodes. these seizures need to be treated just as

serious as grand mals to the brain and safety issues are always

concerning especially with lack of stopping activity, my son used to

walk into walls, fall down stairs etc. we were on lamictal for about

a year and we had some improvements but not total control though we

havent got total control from any med and are only on clobazam now

even though this is a adjunct med meaning only supposed to work well

in conjunction with other meds. lamictal for us was the same

effectiveness as all the other ones we tried and i did not know it

raised glutathione, i would have to see reports of that. whatever

you choose will have some side effects the rash may be different

than the valtrex ones but it might not too so you may want to

research a lesser side effect med as the s.j. syndrome is one not to

take lightly. we got a rash on tegretol and immediatly were taken

off, when it turned out to be scarlett fever rash the neuro said he

still shouldnt go back on that one. have you seen a decrease in

seizures with the valtrex? we are on week 8 only and had some

reduction but after a 3 day trial off med we had a bigger than usual

(longer more pronounced episode early in the morning which he doesnt

ever have)so it may have been temporary or more time on the viral

therapy to reduce more inflamation. it could have been an initial

reduction and therefore reduction in seizures and will little by

little keep improving the seizure rate. good luck with it all!!!

>

[Guest guest]

>

> Hi listmates,

>

> I am going to start my 5 yo son on Lamictal because of seizures

> (absence seizures per one neuro, partial and secondary

generalization

> seizures per another neuro, who should I believe? a third one?). I

> believe his seizures are not classic. They look very much like

> absence ones (staring, eyes blinking, eyes rolling up) but he can

> continue eating or drinking or pedaling his bike during a

seizure...

> He does not loose muscle tone. He can sometimes hear me if I yell

> really loud during the seizure.

>

> Anyway I am very scared of starting the Lamictal but I am also not

> confortable anymore of not treating him. I have been trying

natural

> supplements for 6 months but seizures are still there, hundreds

per

> day. I am especially scared of the possible rash (stevens-johnson

> syndrome). We are still on Valtrex and he gets occasional rashes

with

> it. How am I going to tell if he has a rash?

>

> Does anyone has experience (good or bad) with Lamictal?

>

> Thanks for anything you could share,

>

hi natalie,

we have the exact same seizures and our neuro calls them partial

complex but we get the occasional absence too and before treating

them, same thing hundreds a day plus our son keeps his acticvity

going as well but hes not really there.just recently he is

understanding his seizure pattern more(he's 9yrs old now) if i am

not responding to him he will ask me are you having a seizure mom? i

think it is great self realization of what is happenning to him

during his episodes. these seizures need to be treated just as

serious as grand mals to the brain and safety issues are always

concerning especially with lack of stopping activity, my son used to

walk into walls, fall down stairs etc. we were on lamictal for about

a year and we had some improvements but not total control though we

havent got total control from any med and are only on clobazam now

even though this is a adjunct med meaning only supposed to work well

in conjunction with other meds. lamictal for us was the same

effectiveness as all the other ones we tried and i did not know it

raised glutathione, i would have to see reports of that. whatever

you choose will have some side effects the rash may be different

than the valtrex ones but it might not too so you may want to

research a lesser side effect med as the s.j. syndrome is one not to

take lightly. we got a rash on tegretol and immediatly were taken

off, when it turned out to be scarlett fever rash the neuro said he

still shouldnt go back on that one. have you seen a decrease in

seizures with the valtrex? we are on week 8 only and had some

reduction but after a 3 day trial off med we had a bigger than usual

(longer more pronounced episode early in the morning which he doesnt

ever have)so it may have been temporary or more time on the viral

therapy to reduce more inflamation. it could have been an initial

reduction and therefore reduction in seizures and will little by

little keep improving the seizure rate. good luck with it all!!!

>

[Guest guest]

Hi Tina,

>

> I am on Lamictal for myoclonics and absence seizures.

> I have only been on it for three weeks and have

> another three weeks to get up to the dosage they want

> me on. As I'm sure you know, you have to take it very

> slow. Try to make sure they are timed exactly 12

> hours apart if he is taking it twice a day to help

> avoid side effects.

thanks for the tip.

>

> I did have blurred vision the other day, which is a

> side effect, but it went away within 24 hours.

> Otherwise, it has really cut down on my seizures.

May I ask how you feel after an absence? Can you tell you had one? My

son just turned 5 yo and he does not seem to notice. Even when we

read a story if I go on during the absence, he won't notice he

missed " a piece " of it.

>

> However, I would rather not be on the meds and am

> researching other alternative methods and trying to

> decide the best therapy so that I can go off the meds.

I tried that and it definetely does something to the seizures but it

is inconsistent and some supplements help versus others don't or even

worsen the seizures.

> I think the first avenue I want to look at for myself

> and my daughter (who is on Keppra) is nutrition.

> Apparently epileptics can be deficient in several

> vitamins, so I need to figure out which ones and then

> find a diet that is rich in those vitamins. (sorry I

> don't have any concrete info for you..I'm just

> starting out on this journey myself.)

There are some info here:

http://www.worldwidehealthcenter.net/articles-115.html

http://www.healthsentinel.com/org_news.php?

id=058 & title=Stopping+epileptic+seizures+using+omega-3%2C+vitamin+E%

2C+diet%2C+and+more & event=org_news_print_list_item

I am pretty sure that my son's seizures are related to mercury and

viruses in his brain, plus some genetic susceptibility...

[Guest guest]

Hi sargeantdriscoll,

So even if they look like absences, your son's seizures were partial

complex? How can you tell the difference clinically?

I am seing things with Valtrex. We are on day 19, but just started

dosing 3x day. It has just been 2 days but I can tell the difference.

It does help with the seizures. I am not sure if it is temporary or

for real and not just a coincidence. We'll see. I am going to wait a

bit to start the Lamictal in case Valtrex would really help eliminate

the seizures...

Thanks,

> >

> > Hi listmates,

> >

> > I am going to start my 5 yo son on Lamictal because of seizures

> > (absence seizures per one neuro, partial and secondary

> generalization

> > seizures per another neuro, who should I believe? a third one?).

I

> > believe his seizures are not classic. They look very much like

> > absence ones (staring, eyes blinking, eyes rolling up) but he can

> > continue eating or drinking or pedaling his bike during a

> seizure...

> > He does not loose muscle tone. He can sometimes hear me if I yell

> > really loud during the seizure.

> >

> > Anyway I am very scared of starting the Lamictal but I am also

not

> > confortable anymore of not treating him. I have been trying

> natural

> > supplements for 6 months but seizures are still there, hundreds

> per

> > day. I am especially scared of the possible rash (stevens-johnson

> > syndrome). We are still on Valtrex and he gets occasional rashes

> with

> > it. How am I going to tell if he has a rash?

> >

> > Does anyone has experience (good or bad) with Lamictal?

> >

> > Thanks for anything you could share,

> >

>

>

> hi natalie,

> we have the exact same seizures and our neuro calls them partial

> complex but we get the occasional absence too and before treating

> them, same thing hundreds a day plus our son keeps his acticvity

> going as well but hes not really there.just recently he is

> understanding his seizure pattern more(he's 9yrs old now) if i am

> not responding to him he will ask me are you having a seizure mom?

i

> think it is great self realization of what is happenning to him

> during his episodes. these seizures need to be treated just as

> serious as grand mals to the brain and safety issues are always

> concerning especially with lack of stopping activity, my son used

to

> walk into walls, fall down stairs etc. we were on lamictal for

about

> a year and we had some improvements but not total control though we

> havent got total control from any med and are only on clobazam now

> even though this is a adjunct med meaning only supposed to work

well

> in conjunction with other meds. lamictal for us was the same

> effectiveness as all the other ones we tried and i did not know it

> raised glutathione, i would have to see reports of that. whatever

> you choose will have some side effects the rash may be different

> than the valtrex ones but it might not too so you may want to

> research a lesser side effect med as the s.j. syndrome is one not

to

> take lightly. we got a rash on tegretol and immediatly were taken

> off, when it turned out to be scarlett fever rash the neuro said he

> still shouldnt go back on that one. have you seen a decrease in

> seizures with the valtrex? we are on week 8 only and had some

> reduction but after a 3 day trial off med we had a bigger than usual

> (longer more pronounced episode early in the morning which he

doesnt

> ever have)so it may have been temporary or more time on the viral

> therapy to reduce more inflamation. it could have been an initial

> reduction and therefore reduction in seizures and will little by

> little keep improving the seizure rate. good luck with it all!!!

> >

>

[Guest guest]

Hi sargeantdriscoll,

So even if they look like absences, your son's seizures were partial

complex? How can you tell the difference clinically?

I am seing things with Valtrex. We are on day 19, but just started

dosing 3x day. It has just been 2 days but I can tell the difference.

It does help with the seizures. I am not sure if it is temporary or

for real and not just a coincidence. We'll see. I am going to wait a

bit to start the Lamictal in case Valtrex would really help eliminate

the seizures...

Thanks,

> >

> > Hi listmates,

> >

> > I am going to start my 5 yo son on Lamictal because of seizures

> > (absence seizures per one neuro, partial and secondary

> generalization

> > seizures per another neuro, who should I believe? a third one?).

I

> > believe his seizures are not classic. They look very much like

> > absence ones (staring, eyes blinking, eyes rolling up) but he can

> > continue eating or drinking or pedaling his bike during a

> seizure...

> > He does not loose muscle tone. He can sometimes hear me if I yell

> > really loud during the seizure.

> >

> > Anyway I am very scared of starting the Lamictal but I am also

not

> > confortable anymore of not treating him. I have been trying

> natural

> > supplements for 6 months but seizures are still there, hundreds

> per

> > day. I am especially scared of the possible rash (stevens-johnson

> > syndrome). We are still on Valtrex and he gets occasional rashes

> with

> > it. How am I going to tell if he has a rash?

> >

> > Does anyone has experience (good or bad) with Lamictal?

> >

> > Thanks for anything you could share,

> >

>

>

> hi natalie,

> we have the exact same seizures and our neuro calls them partial

> complex but we get the occasional absence too and before treating

> them, same thing hundreds a day plus our son keeps his acticvity

> going as well but hes not really there.just recently he is

> understanding his seizure pattern more(he's 9yrs old now) if i am

> not responding to him he will ask me are you having a seizure mom?

i

> think it is great self realization of what is happenning to him

> during his episodes. these seizures need to be treated just as

> serious as grand mals to the brain and safety issues are always

> concerning especially with lack of stopping activity, my son used

to

> walk into walls, fall down stairs etc. we were on lamictal for

about

> a year and we had some improvements but not total control though we

> havent got total control from any med and are only on clobazam now

> even though this is a adjunct med meaning only supposed to work

well

> in conjunction with other meds. lamictal for us was the same

> effectiveness as all the other ones we tried and i did not know it

> raised glutathione, i would have to see reports of that. whatever

> you choose will have some side effects the rash may be different

> than the valtrex ones but it might not too so you may want to

> research a lesser side effect med as the s.j. syndrome is one not

to

> take lightly. we got a rash on tegretol and immediatly were taken

> off, when it turned out to be scarlett fever rash the neuro said he

> still shouldnt go back on that one. have you seen a decrease in

> seizures with the valtrex? we are on week 8 only and had some

> reduction but after a 3 day trial off med we had a bigger than usual

> (longer more pronounced episode early in the morning which he

doesnt

> ever have)so it may have been temporary or more time on the viral

> therapy to reduce more inflamation. it could have been an initial

> reduction and therefore reduction in seizures and will little by

> little keep improving the seizure rate. good luck with it all!!!

> >

>